30.12.2011 Dima Kobzev
completed 8 cycles of photopheresis and GVHD situation had improved.
He was allowed to go home and will return for photopheresis in March.
30.12.2011 Nastia Pogrebnaya
recovered after transplantation and is now in cytopenia. She receives
daily blood transfusions. She has no fever, but developed severe
mucositis and was transferred in IV nutrition.
30.12.2011 Alena Azup
received a first cycle of chemotherapy under RIST regimen.
She is now in cytopenia.
30.12.2011 Roma Ignatovich
feels well. He is being monitored as a day patient. Hospitalization for
pre-transplantation chemotherapy is scheduled for January 2nd.
30.12.2011 Serezha Popov
fell and bumped his head. Since he had very low blood counts, he formed
hematomas in his brain and had seizures. Infusions of donor's
lymphocytes are postponed.
30.12.2011 Nikita Burenkov
feels pretty well, but has a complication: thrombosis of subclavian vein.
He is receiving appropriate therapy. Nikita is in remission.
30.12.2011 Dima Zherebyatiev
is in cytopenia after haploidentical transplantation from his mom.
He feels relatively well.
30.12.2011 Anton Veretennikov
was confirmed to be in remission. The doctors are gradually reducing doses
of hormones and immunosuppressive drugs.
30.12.2011 Timur Rudyko
is being monitored as a day patient. Since a donor was not found yet,
another cycle of high-dose chemotherapy is planned.
Timur feels relatively well.
30.12.2011 Milana Kuzhenova
is at home. She is feeling well and continues taking Noxafil.
Planned tests are scheduled for January.
30.12.2011 Alina Irganova
is recovering after transplantation. She developed severe skin GVHD and
is receiving appropriate therapy.
30.12.2011 Gleb Bogdanov
completed planned tests. He is doing well and feeling well. The next round
of tests is scheduled for February.
30.12.2011 Vova Gusev
had surgery at Children's Hospital No.1 due to acute appendicitis and
peritonitis. He is now recovering and feeling well.
30.12.2011 Karina Kosareva
feels well. Skin GVHD was controlled with hormonal therapy, and was
subsequently canceled. Vfend is still needed.
30.12.2011 Seraphim Ovcharenko
completed planned tests and returned home. He feels rather well and is in
remission. However, he still has fungal lesions in his brain and needs Vfend.
30.12.2011 Vladimir Maslennikov
is now at home. He feels rather well. The results of the tests for tissue
compatibility with his brother are not yet ready. Additional chemotherapy
cycles are being considered.
30.12.2011 Egor Moskalenko
and his mom will go to Israel on January 5th, as Egor's surgery is
scheduled for January 9th.
29.12.2011 Elena Plis's
results of puncture as of December 19th are good. Her broken toe healed.
Elena is continuing to take tacrolimus. Based on test results, she has
issues with liver and prescribed ursofalk. Bone osteoporosis was
also diagnosed. An x-ray of my lungs was normal.
29.12.2011 Mom of Masha Bolokhova, who recently passed
away, asked our fund to remove Masha's information from the site. At her request,
we are taking Masha's page offline.
27.12.2011 Igor Karev
was already discharged from the Clinical hospital of Russian Science
Academy and he flew with his father to Krasnodar for the holidays.
His hemoglobin count is up, and although platelets are still somewhat low,
he feels better with every day. On January 9th Igor is expected to be back
at Berezin Center for another cycle of chemotherapy.
26.12.2011 In early January Sasha Novokreschenov
will come to St. Petersburg for planned tests.
26.12.2011 Serezha Popov
is sick with a sinus infection and was prescribed antibiotics: clindamycin,
meropenem and tavanic. He was planned to undergo additional donor's stem cell
infusion, but we got news from the international registry that his donor is
expecting a baby and it makes harvesting of cells impossible. Further treatment
is under discussion.
26.12.2011 Angelina Garanina
is continuing the 3rd cycle of chemotherapy. The doctors believe that her stomach
bleeding was unrelated to chemotherapy and was instead caused by a viral infection.
Angelina feels rather well. In January she will undergo complete evaluation to check
for possible metastases. Based on results, further treatment will be determined.
26.12.2011 Stas Vasiliev
is undergoing another cycle of chemotherapy. He feels well. There are now holiday
celebrations at the hospital for the little patients, and Stas enjoys participating
in them and practicing rhymes for the Father Frost.
25.12.2011 Marina Devyatkova
came in for another cycle of photopheresis. She feels well.
25.12.2011 Dasha Nekozyreva
came in for planned tests. She feels well and continues taking hormonal therapy
and Gleevec in low doses to treat chronic skin GVHD.
25.12.2011 Daria Lysenko
feels rather well and she is in sustained remission. She is now on maintenance therapy
(Methotrexate and Purinethol). She has some cardiac issues and was prescribed
appropriate therapy. A donor was not found yet.
25.12.2011 Konstantin Korytov
is now at the hospital where he is receiving another blood transfusion due to low
hemoglobin. He feels OK overall, but really needs Exjade medication. A donor was
not found yet.
25.12.2011 Dina Zvereva
feels OK and she is now at home. The next chemotherapy cycle will start on
January 2nd. A donor was not found yet.
25.12.2011 Petr Grigoriev
feels rather well and receives maintenance therapy: infusions of medications at
the hospital once a month. A donor was not found yet.
25.12.2011 On December 17th Svetlana Kotova
underwent bone marrow transplantation. She did not tolerate it well, but is now recovering
gradually. She is in cytopenia for now.
25.12.2011 Lubov Subbotina
feels OK, but has elevated temperature. She is now undergoing evaluation at
R. Gorbacheva Institute. A donor was found, and transplantation is scheduled
for January 26th. We urgently need to pay off the debt to the S. Morsch
registry (13,000 euros) and find additional 2500 euros for delivery of transplant.
25.12.2011 Marusya Lee
feels well and receives replacement therapy with Aldurazyme. There were
interruptions of drug delivery to state orders, and Marusya parents had
to buy it themselves. She now has enough medication to last until end of
January, and there is hope it will again be available for free. A donor
search is ongoing.
25.12.2011 As Sasha Agapitov
has hypofunctioning transplant, it was decided to perform planned donor's
lymphocyte infusion. Delivery of lymphocytes and their infusion are planned
for January 12th. We urgently need help with paying for their delivery (2500 euros).
25.12.2011 Oleg Pershikov's
transplantation was scheduled for January 19th. Oleg needs urgent help with
paying for transplant delivery.
25.12.2011 Unfortunately, Igor Mishin
had a relapse. He is now undergoing anti-relapse chemotherapy cycle at Gorbacheva Institute.
Repeat transplantation of bone marrow is preliminarily scheduled for January 19th.
We are waiting for the bill from the registry to cover another harvesting of bone
marrow from the same donor. Urgent help is needed to cover transplant delivery costs.
25.12.2011 Veronika Nikulina
had a relapse. She is now at the hospital (Gorbacheva Pediatric Hematology & Transplantation
Institute). Veronica does not feel very well. She started the first chemotherapy cycle.
25.12.2011 Lera Bryukhacheva
finished the second cycle of chemotherapy. She tolerated it worse than the first
one. Her blood counts dropped, and her platelet count is low. But the tumor lesion
in Lera's liver shrank to 1.5 cm, based on control ultrasound.
25.12.2011 Zhenya Derenchuk
really enjoyed the holiday celebrations at the hospital. The doctors allowed him to
come out to the hall several times a day and attend celebrations at the game room.
For neck support, he was purchased a Shantz collar and Zhenya tried it on today.
Zhenya's dad will come to visit him in January during his vacation and will spend
the whole month with him. Zhenya cannot wait to see his dad.
25.12.2011 Based on histology results, there are a
few live cells in Nika Baranova's
removed lesion, which means chemotherapy needs to continue. Nika feels rather well
already and had recovered after the surgery.
25.12.2011 Based on results of planned tests,
Iliya Boiko was taken off Vfend. Chemotherapy is
proceeding according to the plan.
25.12.2011 Danya Lutokhin
completed another cycle of chemotherapy and is now recovering. He feels rather well.
25.12.2011 Varya Vlasova's
liver indicators were heightened despite liver protecting drugs. She is now getting better
as her liver recovers. She is in remission.
25.12.2011 Fedya Bolshukhin
feels well. His pneumonia was taken under control. On December 19th he enjoyed
participating at the holiday celebration at the hospital. Chemotherapy is continuing
according to the protocol.
25.12.2011 Konstantin Shushlin
feels relatively well. He is now on high-dose hormonal therapy and his blood sugar
is high. He gets insulin, but has general fatigue and weakness. Konstantin still
needs Vfend and Cellsept.
25.12.2011 Igor Karev's
tumor is responding well to chemotherapy, but his blood counts plummeted and he
was hospitalized at St. Petersburg's Clinical hospital for blood transfusions
(the Berezin Center does not yet has a license for blood transfusions).
24.12.2011 Anastasia Maloryan
has a relapse. Anti-relapse chemotherapy will be administered at the Blokhin
Russian Oncology Research Institute in Moscow.
19.12.2011 Unfortunately, Alesha Laptev's
transplant from a donor did not engraft. On December 6th he underwent a second bone marrow
transplantation. He is still in cytopenia. On December 20th Alesha will have a puncture that
will help evaluate transplantation results. Lesha feels relatively well. His temperature is normal,
but his blood pressure is high. He receives Vfend and Ampholip to treat fungal infection in
his lungs.
19.12.2011 Lera Sukhoverkhova
is at the day patient facility getting maintenance chemotherapy and Vfend.
There are no blasts in the peripheral blood. If blast counts in the bone
marrow increase Lera will be administered another anti-relapse chemotherapy
course, and if her condition remains stable she will be on maintenance therapy
until the middle of January and then in January a haploidentical transplantation
from her mother will be performed.
18.12.2011 Based on the last CT scan,
Sasha Obertyuk still has lesions on both
kidneys and several lesions in his lungs. On December 6th he started
chemotherapy. On the 4th day of chemo, his condition worsened: he
had acute kidney failure and toxic hepatitis. By now, blood biochemistry
had improved, although Sasha still has fatigue, neuropathy, dizziness and
unstable blood pressure. Sasha is optimistic, as usual, and he makes plans
for the future.
18.12.2011 Lera Bychkova
and her mother are back in Germany; the next antibody therapy course
begins tomorrow.
18.12.2011 Misha Stepanov is
still being examined since the doctors are not sure that the newly found
neoformation is malignant and is a relapse. Also there is no final decision
as to what kind of therapy is best for the boy. Blood counts are normal,
Misha is feeling fine.
18.12.2011 Vika Gladinets
had a Dacogen treatment course and is now administered maintenance chemotherapy
with low doses of Cytozar and Purinethol. The levels of minimal residual
disease became lower, but the skin GVH reaction got worse, so Vika is now
on hormones. The girl also needs Noxafil for antifungal therapy. Vika
is feeling ok.
18.12.2011 Natalia Kharatishvili
had another maintenance chemotherapy course, based on the examination results
she has a stable remission. Unfortunately a fungal infection was found in her
lungs, so Vfend was prescribed. The final decision on the antifungal therapy
will be made after the consultation at the Mycology Research Institute.
Natalia is feeling ok. The donor has not been found yet.
18.12.2011 Anya Andreeva
came to the Raisa Gorbacheva Institute of Children's Hematology and
Transplantology for an examination and another photopheresis course.
Her basic disease is in remission. Anya is feeling fine, but the skin
GVH reaction has gotten a bit worse. The girl still needs Noxafil.
18.12.2011 Andrei Ezhov is on
home schooling, he is feeling fine. The boy is under the hematologists' control,
his blood counts are too low so far and he gets colds all the time.
18.12.2011 Vika Smirnova was
prescribed a high dose chemotherapy course. The first block was very hard
for Vika, she had a high fever and a severe intoxication. Now Vika is feeling
better, and most importantly, she responds to the treatment: the tumor became
twice smaller and there are no new foci. The girl is now administered the next
chemotherapy course.
18.12.2011 Nino Utiashvili went
home and will continue with the rehabilitation course in her home town.
The girl's leg is functioning better, she can bend her knee and hip joint.
Nino can now walk. The basic disease is in remission. Nino is to come
for an examination in the middle of February.
18.12.2011 Yulia Kolomeets's
basic disease is ok but neurological problems are still there, and from time
to time she has tachycardia. Yulia mostly feels feels fine.
17.12.2011 AdVita Foundation initiated fund-raising
for the treatment of Marina Glazacheva.
16.12.2011 AdVita Foundation initiated fund-raising
for the treatment of Danil Lutokhin and
Igor Karev.
15.12.2011 We are sincerely grateful to Raisa Gorbacheva Fund
in London for paying the bill for donor search for
Sasha Ulanov,
Oksana Koknaeva and
Dasha Lysenko.
15.12.2011 Zhenya Zavorotynsky's
transplantation took place as scheduled, on December 1. Zhenya is now recovering.
For now he has severe mucositis with damage to his mouth, fever, fatigue and pains.
Blood counts are increasing gradually. Yesterday Zhenya was allowed to leave the
room and walk along the hall for the first time.
15.12.2011 Ivan Buitov
completed chemotherapy and started maintenance regimen: 5-day chemotherapy
with 3-week break.
He is now at the Regional hospital where he is recovering after the last cycle.
He is in remission, but still needs Noxafil. A donor was not found yet.
Ivan feels rather well.
14.12.2011 Marat Bugulov
is being monitored by hematologists locally. His blood counts are still low.
A few days ago he got fever and he is now hospitalized at Vladikavkaz oncology
center with suspected pneumonia. He also has mild skin GVHD. In addition, Marat
needs to continue Vfend therapy.
14.12.2011 Ira Nikonova
is continuing Peg-Intron and Zometa therapy (both medications are purchased
by AdVita fund). She feels well and had adjusted to Peg-Intron.
She has some pain in her leg.
14.12.2011 Igor Karev is
undergoing a second cycle of chemotherapy. He is improving. Igor feels
much better. Please help him with paying for the treatment.
12.12.2011 Igor Kryukov's
therapy with bendamustine is being postponed due to high transaminase in blood.
Igor is receiving appropriate therapy. Based on PET, he has a progression.
12.12.2011 Larisa Mashevskaya
is showing increasing symptoms of multiple organ failure and veno-occlusive
hepatic disease. She is now on a ventilator in a critical condition.
12.12.2011 Nastia Agapitova
had a progression. She lost a lot of weight and is fatigued. As soon as
Nastia's condition allows, she will undergo chemotherapy with Natulan.
12.12.2011 Based on CT of lungs,
Vladimir Gaivoronsky has improvement, but he still
needs to continue therapy with Vfend. He is now receiving chemotherapy
under Mabthera + Ribomustine regimen. He feels rather well.
12.12.2011 Vlad Chernykh is now
on maintenance chemotherapy. He feels well and had returned to his studies at
the college. He was taken off Vfend.
12.12.2011 Vika Polukhina
came to St. Petersburg for control tests. She had a surgery to remove
needles at Pediatric Academy and now needs to undergo rehabilitation
that has to be paid for.
12.12.2011 Konstantin Shushlin
recovered after transplantation and was discharged for day hospital.
He is in a satisfactory condition, although he is fatigued and has mild
skin GVHD. He was prescribed Vfend.
12.12.2011 In November 2011
Dima Yablochkov had a relapse. Currently, Dima is
undergoing anti-relapse chemotherapy at R. Gorbacheva Pediatric Hematology &
Transplantation Institute.
12.12.2011 Vladimir Maslennikov
was hospitalized at Almazov Federal Center. If his brother is a good match based
on typing results, he will become a donor, and Volodya will undergo urgent
transplantation. Vfend is still needed.
12.12.2011 Anya Marchenko
was diagnosed with new fungal lesions in her lungs, she was prescribed Noxafil.
We are now in talks with the manufacturer of drug SGN35 regarding its import
to Russia for Anya's treatment.
12.12.2011 Ivan Morozov's
condition is worsening. He was transferred to a ventilator.
12.12.2011 Chemotherapy for
Denis Vasilashko
went well, without complications.
Transplantation was scheduled for December 16th.
12.12.2011 After a cycle of chemotherapy under FLAG regimen,
Alla Korotich achieved remission. A second cycle
followed by haploidentical bone marrow transplantation from her mother
is planned. We received a bill for 449,608 rubles for equipment.
Please help Alla with paying it!
12.12.2011 Elena Plis
was allowed to go home for two weeks. She will return to St. Petersburg on
December 19th for a planned puncture. Unfortunately, just before her
trip she fractured a toe. Elena still needs tacrolimus.
10.12.2011 We are sincerely grateful
to AiF-Kind Heart fund for agreeing to pay for the donor search for
Nastia Sluchaeva
We still need to raise 2500 euros for delivery of transplant.
10.12.2011 Ksenia Yakovenko
had successful surgery in Finland and returned home.
09.12.2011 Lera Bychkova
is now at home. She is resting between therapy cycles. A cycle of antibodies
was extremely difficult: all of her muscles were affected, and Lera almost
completely lost vision. She is now much better, and on December 18th she
will return to the clinic with her mom.
08.12.2011 Irina Prikhodko's
hormonal therapy doses are being gradually reduced. Irina still has pain in her
joints, as well as tachycardia and high blood pressure. Recently she got another
issue - acute thromboflembitis, and her leg is swelling. Additional therapy
was prescribed. Irina's mood is good. Irina's husband and children plan
to visit her for the New Year.
07.12.2011 On January 5th Egor Moskalenko
and his mom will fly to Israel, and the surgery is scheduled for the January 9th. Jazz and Classics fund
will issue funds for Yegor's January trip.
06.12.2011 Inna Shakhmaeva
returned home after evaluation and treatment in Germany.
04.12.2011 Almira Tashmetova
is receiving therapy with Spycel. She is responding well to treatment and
feels rather well. Transplantation was postponed. The equipment for
transplantation was paid for by sponsors in full.
04.12.2011 A fungal infection in
Maxim Rybakov's lungs was stabilized.
A surgery to remove affected parts of the lung is being considered.
04.12.2011 Sanzhima Lodoeva
had another cycle of chemotherapy. This time she had an allergic reaction
to carboplatin.
03.12.2011 Stas Evdokimov
now has medications for treatment of hepatitis for 2 months. He lost 7 kg
and does not eat well. His blood counts are unstable.
02.12.2011 Kirill Vazhenin
and his mom returned home until February 2012. Kirill feels well.
He brought 3-month supply of Revlimid with him.
01.12.2011 AdVita Foundation initiated fund-raising
for the treatment of Lesha Laptev.
30.11.2011 Timur Rudyko
is finishing another cycle of anti-relapse chemotherapy and his blood
counts are starting to go down. He feels rather well, but is tired of
the hospitals, treatments and is not very happy. A donor was not found yet.
29.11.2011 Nadya Chernoknizhnaya
is continuing treatment in the US. The doctors are happy with the treatment
and they decided to continue chosen chemotherapy. Nadya is in a good mood.
The next MRI is planned in 3 months.
29.11.2011 Slava Zhikharenko's
tumor volume had decreased significantly. Slava now needs to get over
bronchitis and then the is planned to undergo chemotherapy with
ribomustine and revlimid. The drugs cost close to 300,000 rubles.
Please help!
29.11.2011 Volodya Telegin
will start pre-transplantation chemotherapy with Tepadina. A permit to import
this medication is being processed. We expect a bill for the medication shortly.
The drug will cost close to 8,000 euros.
29.11.2011 Sasha Ulanov's
transplantation took place as scheduled. Sasha is now in cytopenia.
Unfortunately, he has pneumonia and it is not yet controlled.
29.11.2011 Kolya Burov
returned from Germany and was hospitalized at First hospice in Moscow.
29.11.2011 Arsen Arustamyan
is continuing chemotherapy cycle at Children's hospital No.1. It was decided
to start the donor search at the international registry.
29.11.2011 Roman Belsky is
undergoing a very difficult cycle of high-dose methotrexate. The results of
immunohistochemistry are not yet ready.
29.11.2011 Angelina Garanina
is now at home. She is resting between chemotherapy cycles. The next
hospitalization is scheduled for December 1.
29.11.2011 Maxim Rybakov
is undergoing treatment for fungal infection with massive doses of
Ampholip and Noxafil. Monthly therapy costs are approaching 1 million dollars.
After pleural puncture, close to a liter of fluid was drained. It was sent
to Mycology Institute for tests. A consultation with Prof. Klimko is scheduled
for November 30th. Maxim is in a stable condition.
29.11.2011 Anya Smirnova's
condition is improving gradually. After cancellation of cellcept, she
got mild skin GVHD symptoms, and the medication was restarted.
Control tests are scheduled for mid-January. Vfend is still needed.
29.11.2011 Alena Azup
had subarachnoid bleeding into brain two weeks ago. It was stopped and
Alena feels rather well now. She is monitored at the day hospital.
GVHD is under control, and her blood counts are normal.
29.11.2011 Danya Zenevich's
skin GVHD is improving. He continues therapy with hormones and photopheresis.
Noxafil is still needed.
29.11.2011 Anton Veretennikov
had signs of stomach GVHD, which were controlled with hormonal therapy.
His vision is improving. Vfend is still needed.
29.11.2011 Serezha Popov
is being monitored at the day hospital. Transplant is not functioning
adequately, and signs of toxic kidney damage. He receives appropriate therapy.
In the next few days we will need to pay for delivery of donor's cells
for Serezha for 2500 euros. Please help!
29.11.2011 Volodya Maslennikov
has lesions in his lungs that are due to his primary illness. Further
treatment is being discussed. Vfend is still needed.
29.11.2011 Sasha Novokreschenov
is being followed locally. He feels well, but continues Noxafil therapy.
29.11.2011 Varya Vlasova
was discharged from the hospital and receives maintenance therapy.
She feels well.
29.11.2011 Anya Andreeva
is monitored locally. She feels well and goes to school. She loves to study.
Anya still needs Noxafil.
29.11.2011 Vova Gusev
is seen at a day hospital. He needs regular blood transfusion and
continues therapy with Noxafil and Exjade. He still has cardiomyopathy signs.
Vova also receives antibiotics due to infectious complications.
29.11.2011 Stas Vasiliev
has improvement in his lungs. His liver counts have normalized as well.
Stas feels well. He will soon start hormonal therapy.
29.11.2011 Vika Dolgova
is off Vfend, finally. She is now at home, studying. She feels well.
29.11.2011 Marina Knyazeva
tolerated surgery well. A lesion was completely removed.
Marina is now recovering.
29.11.2011 It was decided to initiate the donor search for
Nastia Sluchaeva. She feels well.
29.11.2011 Egor Moskalenko
returned from the clinic in Israel. A tracheostomy was not removed, but
the number of papillomas was reduced. The next surgery is scheduled
for January 9th, and Yegor needs to be at the clinic on January 5th.
The surgery and injection of cidofovir will cost close to 6,000 euros.
Egor's family needs to purchase the tickets by December 9th.
They cost $850.
28.11.2011 Olga Shmygleva
completed the first cycle under the recommended regimen (bendamustine + revlimid).
She had many side effects from revlimid and for now, she will continue
treatment with bendamustine only. The next cycle will start on December 7.
In general, Olga feels OK, except for weight loss, low blood pressure and
low hemoglobin. She is continuing search for a clinical trial.
27.11.2011 Karina Kosareva
is in complete remission. Her blood counts are good, but she has increased
symptoms of skin and mouth GVHD. She was prescribed hormonal therapy
and felt better. Photopheresis is also planned. Control puncture and CT
scan are planned for early December.
27.11.2011 Nikita Burenkov
feels well. He is in remission, based on control puncture. GVHD is under
control. Nikita still needs Vfend.
27.11.2011 Katya Yastrebova
was diagnosed with progression of her disease. Due to hardening of the bone
tissue she has pains in her back. Repeat transplantation from her mother
is planned for right after the New Year. Katyusha is now taking Exjade
and Vfend, and she also needs transfusions from time to time.
27.11.2011 Arina Baboshina
will undergo repeat transplantation from her father. Transplantation is
planned for January. Arisha feels well. Although her blood counts are low,
she is not yet receiving blood transfusions.
She still needs Noxafil and Exjade.
27.11.2011 Gleb Kalinyuk
is now at home where he receives maintenance chemotherapy in pills and
goes for planned tests. He is in remission and feels very well.
Gleb grew much taller. Noxafil was canceled and Gleb is taking mycosyst.
A donor was not found yet.
27.11.2011 Roma Aseev
is still at the hospital: he had a second wave of intestinal GVHD and
is on immunosuppressive drugs again. The second time Roma received
donor's bone marrow from his father. His blood counts started growing
and are close to normal now. Vfend is still needed.
26.11.2011 Anya Burilova
is continuing immunosuppressive therapy. Skin GVHD is not yet controlled.
The doctors recommended equine therapy to her. A trainer for Anya was found,
and she cannot wait to start. Please help Anya's family with paying
for the sessions.
26.11.2011 Asel Panabergenova
was allowed to go home for 2-3 months. A donor was not found yet.
26.11.2011 Fedya Bolshukhin
is at the hospital again where he is treated for pneumonia. He had fever and
strong cough, but now his temperature is almost normal. Early next week
he is planned to have MRI of lungs, and on Thursday he will start chemotherapy.
Fedya is very tired of treatment, and is not in the best mood.
26.11.2011 Nika Baranova
did not feel well for two weeks: she suffered from nausea and vomiting.
She lost weight. Fortunately, she is better now. The surgery is planned
on November 29th.
26.11.2011 Ruslan Kholmatov
underwent another cycle of chemotherapy and feels rather well, except for nausea.
The doctors are trying to find the cause of it and Ruslan is undergoing tests.
The first bill for Ruslan's treatment amounted to 83,546 rubles.
26.11.2011 Zhenya Derenchuk
is still in ICU. He can already eat, and gradually, he gets his speech back.
The tumor size is unchanged, and CSF does not drain well. On November 17th a
new chemotherapy cycle was started. All the blood counts plummeted, and
Zhenya has episodes of tachycardia, low blood pressure and high fever.
Overall, his condition is still serious.
26.11.2011 A donor for
Oleg Pershikov was found.
Oleg is not yet in remission.
23.11.2011 For Elena Plis, it
has been six months since transplantation. She was taken off Cellcept and
hormonal doses are being reduced. She still needs Tacrolimus.
23.11.2011 Elena Adamyants
does not feel too well now, as she suffers from pleuritis, fatigue, damage
to arteries in her hips, and periodic depression. There are no signs of GVHD.
Dasatinib was replaced by nilotinib. Last week Elena was in the hospital due
to fever and received antibiotics. On December 1, 90th day post-transplant,
she is planned to undergo a puncture and complete evaluation.
23.11.2011 Inna Shakhmayeva's
surgery went well. She needs to get another tracheostomy. The doctors were able
to locate the source of seizures and select a therapy. Inna will soon be able
to return home and a year later she will need to return to
Germany for evaluation.
23.11.2011 Diana Mishukova
is undergoing therapy with continuing infusions of low-dose Campto.
Pain syndrome that developed earlier subsided, and Diana feels better.
22.11.2011 Svetlana Luchinskaya
underwent MRI, but study data is not conclusive. Repeat MRI is scheduled for
January 13th. Svetlana needs help with paying for expensive medications
and studies.
22.11.2011 Misha Sogomonyan
completed planned photopheresis course. He feels pretty well and takes
Gleevec and Cellcept. The next photopheresis session and CT scan are
scheduled next month.
22.11.2011 Ira Finagina
feels much better. Intestinal GVHD was taken under control.
Transplant works well and blood counts are normal. Ira is still at
the hospital, but she can eat and go for walks. Vfend is still needed.
22.11.2011 Vova Aksenov
comes for planned course of photopheresis once a month, and thanks to
therapy he was able to get off hormonal drugs. Unfortunately, signs of
pleural GVHD remain. Vfend is still needed, but only
as preventative measure.
21.11.2011 AdVita Foundation initiated fund-raising
for the treatment of Roman Belsky.
21.11.2011 Maxim Merkulov
had fully recovered after transplantation and was discharged for outpatient
monitoring. Based on CT scan, he is in remission. Maxim is receiving therapy
under clinical trial protocol with SGN35 to prevent a relapse. He feels well.
Vfend was canceled..
20.11.2011 Zhenya Vasilenko's
latest examination at Turner Institute confirmed drastic worsening. Now Zhenya's
joints are in such a bad shape that any movement can cause fracture and constant
pains have drained him. He applied for a quota for the government funded surgery
in November 2010. It has been a year, but it never got approved. The cost of the
surgery is being verified, but it could amount to several hundred thousand rubles.
Please help!
20.11.2011 The next chemotherapy cycle for
Sanzhima Lodoeva was scheduled for December 1-2.
She again needs help with buying Paclitera (30,000 rubles) and paying
apartment rent (15,000 rubles).
20.11.2011 Dima Golubev
has no new lesions and the old ones are inactive. Pediatric evaluation had also
shown that everything is well. The next evaluation is scheduled for the early January.
20.11.2011 AdVita Foundation initiated fund-raising
for the treatment of Angelina Garanina.
19.11.2011 Nadya Chibireva,
feels well. She enrolled into college and is now studying to
become a designer.
15.11.2011 Karina Kosareva
continues to be monitored at R. Gorbacheva Pediatric Hematology & Transplantation Institute.
In the last puncture the blasts are within norm and they are healthy cells.
Karina feels well.
15.11.2011 Katya Markova
underwent planned puncture. She is doing well, is in remission and has
no signs of GVHD.
15.11.2011 Sasha Vyunikova
has fibrosis and clusters of myeloid cells, based on histology study of the
lesions that were removed. The lesions were taken out completely. Bone marrow
is clear of cancer cells, and there are no other lesions. Sasha feels well.
No active therapy is currently planned. Sasha will undergo rehabilitation after
the surgery.
15.11.2011 Maxim Matytsin
feels well and is in remission. He studies at school, takes music lessons
and driving classes. As all the chemotherapy cycles are finished, he will
be hospitalized at Petrov Oncology Institute in mid-December for a port removal.
Maxim continues to grow, and he now needs a new prosthesis that costs 155,357 rubles.
It will be custom made for Maxim using parts made by Otto Bock, a German manufacturer.
Please help!
15.11.2011 Unfortunately, the therapy that
Masha Vartsan received was not effective.
Masha is in pain. To control the pain and treat other symptoms, she was
hospitalized at the hospice.
15.11.2011 Sanzhima Lodoeva
had tests for oncomarker and it is normal. She feels well overall.
At times, she has pains in her right side and her feet swell a little.
Her visit to oncologist is scheduled for November 17th.
13.11.2011 Natalia Kharatishvili's
started maintenance chemotherapy. She feels well. A donor is not found yet.
13.11.2011 Vlad Kitaisky's
treatment was paid for in full, and he no longer needs help with fundraising.
13.11.2011 Igor Simonov
had issues with his stomach. They were taken under control with the
long-term hormonal therapy. Igor is now trying to gain weight.
13.11.2011 Elena Plis's
liver counts are not improving yet. Skin GVHD is under control. While doses
of hormones are being gradually reduced, she still needs Metypred, cellcept,
heptral and ultop. She was also prescribed tacrolimus again to reduce
skin GVHD symptoms. All the puncture results are good. Elena does not
need Valcyte anymore, because latest tests showed that
cytomegalovirus is inactive.
12.11.2011 Denis Vasilashko
arrived to St. Petersburg. He feels rather well. Transplantation is
scheduled for November 30th.
12.11.2011 Andrei Turik
came in for control tests and planned photopheresis therapy. He feels
rather well and his blood counts are normal. He is in remission. Andrei
still has mild issue with GVHD in his eyes and continues taking Vfend.
The next evaluation and photopheresis therapy are scheduled in a month.
12.11.2011 Timur Rudyko
start another cycle of high-dose chemotherapy under BFM regimen.
A donor was not found yet.
12.11.2011 Anton Veretennikov
was urgently hospitalized due to high fever. The infection is now under
control and he was discharged for day hospital. Vfend is still needed.
12.11.2011 Danya Zenevich
is continuing photopheresis course and feels rather well. Bronchitis was
taken under control.
12.11.2011 Vova Gusev
is receiving therapy for cardiomyopathy, and his ferritin level
in blood is decreasing. Vova feels rather well and is being monitored
at the day hospital. He still needs Noxafil.
12.11.2011 On November 5th
Alina Irganova underwent bone marrow transplantation.
All went well. She is now in cytopenia and has a mild nosebleed.
12.11.2011 Gleb Bogdanov
feels well. Control tests are scheduled for November 20th.
12.11.2011 Vika Dolgova
completed evaluation and returned home. She is well. Vfend therapy is continuing.
12.11.2011 Vitaly Shushmarchenko
is finishing planned tests. All the blood counts are normal, but he has dark
spots in his sinus, according to CT images. Additional tests and repeat CT
scan are planned for November 18th. Vitalik feels well.
12.11.2011 Gosha Makarenko
continues maintenance therapy under RIST protocol and he tolerates it well.
He is in remission.
12.11.2011 Sasha Novokreschenov's
blood counts are normal. His external breathing is still lower than normal,
and for that reason Noxafil is not canceled yet. On Wednesday Sasha will go home.
Control tests are planned in two months.
12.11.2011 Vladimir Maslennikov
still has lesions in his lungs. He had a biopsy of the lesions and results
are awaited. PET scan is planned for the next few days. Vfend is still needed.
12.11.2011 Denis Trufanov
is continuing maintenance therapy. He feels well. Noxafil is still needed.
12.11.2011 Diana Vaschenko
feels rather well, plays outside and draws a lot. Control tests are scheduled
for the late November.
12.11.2011 Sasha Zipenkov's
control tests in Essen are scheduled for December 13th. There are some
issues with the prosthesis: Sasha's eye gets inflamed all the time
and needs constant care. From time to time, Sasha experiences loss
of vision in his other eye.
12.11.2011 Igor Zhuikov
still has symptoms of chronic skin, kidneys and lung GVHD.
He continues Vfend therapy. An infiltrate on his cheek did not respond
to antibiotic ointments and a biopsy of it was taken for an analysis.
Igor has severe pain in his spine and has to wear a corset and take
various calcium supplements. He needs continuing support with immunoglobulins.
12.11.2011 Marina Alyushina
is at home and feels well. Vfend therapy will have to continue until May 2012.
She will need to come to St. Petersburg for planned tests in January.
12.11.2011 Sasha Vjunikova
was successfully operated at Mechnikov Academy. The lesions were removed
and biopsy is being worked on. Sasha is already at rehabilitation
center in Olgino and feels well.
12.11.2011 Sasha Mylnikov
feels well. He studies in the 11th grade and even returned to sports.
He plans to enroll into Polytechnic Institute. Based on control PET-CT,
Sasha is in complete remission.
12.11.2011 Nikita Burenkov
feels well. His blood counts are normal and cyclosporine doses are being
gradually reduced. Hormonal therapy is finally canceled. Nikita loves
going to physical therapy.
12.11.2011 Misha Sogomonyan
came to St. Petersburg for another course of photopheresis.
He feels well. The therapy is proceeding as planned.
12.11.2011 Vlad Chernykh
feels well and is in remission. Control tests are scheduled for the
end of November. Their results will determine whether
Vfend can be canceled.
12.11.2011 Vladimir Gaivoronsky
is undergoing therapy with Mabthera and Ribomustin and feels better.
Vfend is still needed.
12.11.2011 Galina Zhikhareva
goes to the hospital for periodic tests. Her blood counts are normal and
she is in complete remission, based on puncture. Noxafil was canceled.
Galina feels well.
12.11.2011 Anna Mirskaya
had acute intestinal GVHD and she started hormonal therapy again.
Photopheresis procedure is also planned. Anna feels better now, although
she is still fatigued.
11.11.2011 Lera Bychkova's
chemotherapy was canceled after severe dehydration. On November 14th she
will start immunotherapy with antibodies.
10.11.2011 Vova Telegin
feels well. Pre-transplantation chemotherapy regimen is currently under
discussion. He may need expensive medication, tepadina.
10.11.2011 Dima Trifoev
has neurological improvement, although he still has issues with memory
and it makes studying very difficult. Nevertheless, Dima tries hard to
learn. His teachers visit him at home and are happy with his efforts.
10.11.2011 Lisa Kudasova
feels well and was happy to start school. In October she
was in a sanatorium in Anapa.
10.11.2011 Sasha Ustinov
will continue maintenance chemotherapy in pills. In addition, he needs
medications to support liver function. On November 1 Sasha had a
puncture and it showed 2.5% of blast cells. The next puncture will
be needed in a month.
10.11.2011 Lera Stepanova
completed maintenance chemotherapy. She feels well and her blood count
is normal, although leukocytes are a bit low.
10.11.2011 Nika Baranova
finished another cycle of chemotherapy and her blood counts dropped.
She receives antibiotics, blood and platelet transfusions. In a month
she will undergo a surgery. She feels rather well.
10.11.2011 Nino Utiashvili
will undergo rehabilitation at Phtysiology & Pulmonology Institute under
Prof. Mushkin care. Nino feels well.
10.11.2011 Vika Smirnova
got new metastases. Vika was referred for maintenance chemotherapy and
will be monitored at the day hospital. Vika is fatigued and gets tired
easily. Clinical trial protocols are under discussion.
10.11.2011 Nikita Makhmatkulov
was transferred to ICU. Due to intoxication of his body, his kidneys failed
and he is now on dialysis. Nikita is still in cytopenia and has infectious
complications. He needs Cancidas and Zyvox. A procedure to support of
transplant function with donor's stem cells is being considered.
10.11.2011 Serezha Popov
is being monitored as a day patient and receives antibiotics. Based on test
results, his bone marrow is still not functioning adequately. His doctors
are consulting in regards to a procedure to support of transplant
function with donor's stem cells.
10.11.2011 Lera Sukhoverkhova
recovered after FLAG cycle. Although she did not achieve remission, blast
count decreased to 4%. She has infectious complications and needs an
antibiotic (tavanic). Lera needs a caregiver for the time her dad is at work.
One day of caregiver services experienced with ICU patients
costs 1100 rubles.
10.11.2011 Serezha Maister
is still undergoing maintenance chemotherapy. He has symptoms of infectious
complications and receives antibiotics. Blast count is unchanged.
10.11.2011 Dima Zherebyatiev
is finishing pre-transplantation chemotherapy. He does not tolerate it well
and has fever. Dima receives antibiotics.
10.11.2011 Alena Azup
was hospitalized at the clinic with fever and high C-reactive protein.
She also has signs of intestinal GVHD, 2 grade. Alena urgently needs
intraglobin and meronem.
10.11.2011 Lesha Nesterenko's
GVHD affecting liver worsened and bilirubin level grew to 200. Skin GVHD is
also severe. Lesha is in ICU where he receives antibiotics and hormonal therapy.
10.11.2011 Sasha Ulanov
was diagnosed with pneumonia of mixed etiology and cytomegaloviral infection.
He was transferred to ICU due to breathing difficulty caused by accumulation of
fluid in his pleura (hydrothorax) where he had pleural puncture. Based on bone
marrow puncture, blast percentage is slightly above norm (5.8%). Transplantation
is preliminarily scheduled for the end of November.
10.11.2011 Unfortunately, Larisa Mashevskaya's
transplant from a donor did not engraft according to the results of control tests.
She recovered with her own cells. In a week, she is planned to undergo a second bone
marrow transplantation from the donor.
08.11.2011 Alexei Konovalov
is undergoing scheduled chemotherapy cycles and feeling rather well.
A donor was not found yet, but the search is in the final stages.
Full amount needed for the donor search and delivery of transplant
was raised. Alexei is asking for help with finding rental apartment
and paying rent for him and his mom once he arrives for transplantation.
08.11.2011 Violetta Moteva
is doing well in regards to her primary diagnosis. She is in 10th grade.
Violetta needs braces and her family is asking for help.
08.11.2011 Lilya Klepikovskaya
had planned tests and was taken off hormonal therapy completely.
Her blood counts are great, including the hormone that was not produced
with Hurler syndrome. Transplant is working well and produces the right
amount of enzymes. Lilya feels well.
08.11.2011 On October 27th
Nastia Agapitova was hospitalized in a serious
condition after an epileptic seizure. She felt better at the hospital
and on November 3rd she was discharged. On October 1 she started the
3rd cycle of chemotherapy with etoposide. Control MRI is scheduled
for November 22nd and will cost 11,000 rubles. PET with methionine
is scheduled for November 25th and will cost 16,000 rubles.
Please help us with paying for the tests.
08.11.2011 AdVita Foundation initiated fund-raising
for the treatment of Petr Grigoriev.
07.11.2011 Nikita Vassiliev
finished 10 cycles of chemotherapy and has two more to go. He feels well, but his
blood pressure is a little high.
06.11.2011 Diana Ibragimova
does not have chromosomal abnormality based on tests. Next week she
plans to travel to Rheumatology Institute in Moscow for verification
of diagnosis and treatment of knees and ankles.
06.11.2011 Galina Gavrilova
hit her head and her lumbar hernias suffered. She needs therapy that will
cost close to 28,000 rubles. Please help!
03.11.2011 Stas Evdokimov
urgently needs help with buying anti-hepatitis drugs Peg-Intron,
Rebetol and lamivudine.
02.11.2011 Yulia Vodopianova
underwent transplantation on October 26th, as scheduled. She is now recovering.
Her blood counts are very low, and during chemotherapy her mouth tissue
was damaged. She cannot eat and receives nutrition intravenously.
02.11.2011 Anya Smirnova
is in remission and GVHD is under control, so hormonal therapy was canceled.
Anya had difficult adaptation period after long-term hormonal therapy: she
had no appetite and was nauseous. Anya could barely eat and lost a lot
of weight. She now feels much better.
01.11.2011 Elena Plis
has good puncture results and GVHD is under control. To improve liver
function, she was prescribed heptral and she also takes Valcyte for CMV.
Elena also needs medipred and cellcept, as well as ultop.
She tries to walk more very day.
31.10.2011 Natalia Kovaleva
recovered fully after transplantation, but she has a serious infectious
complication: meningoencephalitis with unclear etiology. She receives
antibacterial, antiviral and antifungal therapies of wide spectrum.
31.10.2011 Larisa Mashevskaya
fully recovered after transplantation and was discharged home.
Soon she will have a thorough evaluation.
31.10.2011 Serezha Kalmykov
underwent radiation therapy locally and came in for planned treatment
at R. Gorbacheva Pediatric Hematology & Transplantation Institute.
He is in complete remission. Serezha has no GVHD and feels well.
He is taking Dasatinib.
31.10.2011 Since the end of August
Svetlana Kotova has been at the hospital.
Svetlana is still recovering after two cycles of chemotherapy.
She is very tired of treatment and misses her children.
A donor is not yet found.
31.10.2011 Gleb Kalinyuk
completed therapy under main regimen and started maintenance therapy.
A donor was not found yet. He still needs Noxafil.
31.10.2011 Dima Zherebyatiev
did not achieve remission. It was decided to administer Dima chemotherapy
to contain blast growth until bone marrow transplantation, which is
scheduled for November 11.
31.10.2011 Serezha Popov's
c-reactive protein count increased again and he takes Meronem medication.
Based on control puncture, Serezha has complete donor's chimerism, but
transplant is insufficiently functional. Serezha needs periodic
blood transfusions.
31.10.2011 Alena Azup
is still being monitored as an outpatient. She has increase in minimal
residual disease and is planned to received chemotherapy under RIST
regimen. Vfend is still needed.
31.10.2011 Natasha Plakhina
came in for planned tests. Based on puncture results, she is in remission
and has no signs of GVHD. Natasha feels great.
31.10.2011 Vika Gladinets
had a change in her maintenance regimen. Donor's lymphocyte
infusion is being discussed.
31.10.2011 Dima Kobzev
has progression of skin GVHD and development of scleroderma.
He will receive several cycles of photopheresis.
31.10.2011 Gleb Bogdanov
feels well. It was decided to postpone unrelated transplantation to
allow him to recover after autologous transplant.
31.10.2011 Sasha Vjunikova
came in for control tests. She was found a tumor in her chest
that has to be operated.
31.10.2011 Gennady Makeev
receives maintenance chemotherapy and Sprycel. He feels rather well,
but only has medications for a month of intake. He cannot receive any
more under free medication program. He may need charitable help.
31.10.2011 Sasha Obertyuk
received donor's lymphocyte infusions. Based on control CT scan, he
has no progression, although he still has lesions in his kidneys.
He is planned to have repeat donor's lymphocyte infusions
and roncoleukin.
31.10.2011 Nikita Makhmatkulov
had a response to ribomustin. He no longer has enlarged lymph nodes or
lesions in his lungs, but bone lesions are still there. On October 21
Nikita underwent unrelated bone marrow transplant. He is now in
cytopenia and receives antibacterial therapy. Unfortunately,
Nikita does not tolerate basic immunosuppressive drugs, so
he receives hormonal therapy.
31.10.2011 Sasha Novokreschenov
is being monitored as an outpatient. His blood counts are normal.
31.10.2011 Arina Baboshina
and her mom came to St. Petersburg. Arina feels well and has no blasts.
It was decided to perform haploidentical transplantation from her mom.
31.10.2011 Vika Dolgova
is in remission. She needs to go for CT scan to evaluate fungal
infection state. Vika feels well. She draws a lot.
31.10.2011 Sveta Boldesova
is in remission and feels well. Sveta and her mom moved to Leningradsky
region and she can now come for regular tests to Oncology Research Institute.
31.10.2011 Alina Irganova
and her mom came to St. Petersburg. Alina is undergoing pre-transplantation
chemotherapy.
31.10.2011 Andrei Zakharchev's
lymph nodes enlarged, and therapy with Campath was stopped. Hospitalization
and further treatment are being discussed.
31.10.2011 Zhenya Zavorotynsky
was diagnosed with chemoresistant relapse. It was decided to perform
bone marrow transplantation. A donor was found already, and
transplantation is scheduled for December 1.
30.10.2011 Olya Ilyuncheva
came in for planned tests. Based on
examinations, she has 100% donor's chimerism. There are no blasts, CSF is
clear of cancer cells, and there is no cytosis. However, cytogenetic
tests in bone marrow and CSF showed minimal presence of one of
oncomarkers, and Olya received donor's lymphocyte infusion again. She
still suffers from chronic bronchitis and medical hepatitis, her
hemoglobin count goes down from time to time and she receives periodic
blood transfusions.
30.10.2011 Katya Yastrebova
is monitored as a day patient. She feels rather well, but periodically has pain
in her spine. Transplantation was not scheduled yet. Katya's mom is asking for
help with buying diapers and wipes. Vfend is also still needed.
30.10.2011 Vika Gladinets
still has minimal residual disease. Vika is receiving maintenance chemotherapy.
30.10.2011 Akop Gulabyan
was in the hospital for a long time due to skin GVHD and loss of weight. He is
very fatigued and cannot walk well. Akop still needs Vfend and inhalations.
In the next few days he will have CT of lungs to determine further treatment.
30.10.2011 Serezha Maltsev
came in for another round of tests. He developed moderate skin GVHD and he was
prescribed hormonal therapy and several ointments. He is in remission.
30.10.2011 Vladimir Frantsev
underwent autologous bone marrow transplantation. He is now recovering and his
blood counts are gradually restoring.
30.10.2011 Tatiana Kanashina
is in remission. GVHD is under control and donor's transplant is working well.
30.10.2011 Daniil Ryabov
recovered fully after transplantation. He is in remission and has no signs of GVHD.
He is now at the hospital as he has hemorrhagic cystitis symptoms, the etiology of
which is unclear.
30.10.2011 Denis Vasilashko
was diagnosed with a relapse. He is coming to St.Petersburg and will be hospitalized
for anti-relapse chemotherapy immediately.
30.10.2011 Olga Maksimenko
is in remission and her bone marrow is working well. Transplantation is being
postponed for now, while a donor is being reserved in case of progression.
30.10.2011 Olga Mikhailova
achieved remission while being immunosuppressed. A donor was found and reserved,
but transplantation is currently not indicated.
30.10.2011 Evgeny Ostrovsky
is being monitored as a day patient. He now has hemolytic anemia (during the
process of change of blood type to donor's type, he developed antibodies to
erythrocytes). He feels rather well and is in remission.
30.10.2011 Asel Panabergenova
is recovering after a cycle of chemotherapy under HAM regimen. She achieved
remission. Unfortunately, a matching donor was not found. Further treatment
is under discussion.
30.10.2011 Oksana Nosik's
donor's transplant did not engraft. Oksana received the third donor's lymphocyte
infusion. Based on planned tests she has 9% of blasts.
30.10.2011 Gosha Makarenko
rested at home for two months and was feeling very well. He is now in St.Petersburg
to continue maintenance chemotherapy.
30.10.2011 Vfend for Danya Zenevich
was replaced by Noxafil. He continues therapy for bronchitis.
30.10.2011 It has been 100 days since
Igor Kechkin's transplant. Control
puncture showed that donor's bone marrow engrafted fully and works well.
Unfortunately, viral infection causes destruction of peripheral leukocyte
cells, and Igor needs continuing therapy with Leukostim and immunoglobulins.
30.10.2011 Olga Kelina
was discharged home for 1.5 months. Based on bone marrow puncture, donor's
chimerism is 80%, and blood counts are normal. Olya feels rather well. She
still needs Mycosyst and prograf.
30.10.2011 Milana Kuzhenova
is already at home. Her control tests are scheduled for December - January.
She continues taking hormones, but in very small doses, for prevention of
skin GVHD. She takes Cortef as replacement therapy. She also still takes Noxafil.
30.10.2011 Zakhar Korpusov
came in for planned tests at R. Gorbacheva Pediatric Hematology & Transplantation
Institute. He has significant improvement with skin GVHD and skin on his feet
almost completely healed. Zakhar is in remission and his blood counts are normal.
He feels rather well. He still needs Gleevec, Cellcept and Vfend.
30.10.2011 Ramil Bulatov
came in for planned hospitalization for 9th cycle of photopheresis. He is in
remission and his blood counts are normal. He still needs to take Vfend
and calcium medications: zometa, miacalcic and fosamax. He feels rather well.
30.10.2011 Irina Prikhodko
developed acute GVHD reaction again. As soon as doctors start lowering the
doses of hormonal therapy, it starts all over again. She has joint pains
(it is hard for her to walk), tachycardy and high blood pressure, but
Irina is in a good mood and ready to fight.
30.10.2011 Sergei Sharov
is monitored as an outpatient. He feels well and his test results are good.
He still needs Noxafil.
29.10.2011 Amir Shataev
underwent tests in University Clinic in Essen: one of the tumors disappeared
and another stayed the same size. There are no new tumors! Unfortunately,
Amir had a bad reaction to anesthesia and ended up in ICU. Amir's family
still needs help with paying for medical services at
the clinic and a prosthesis.
28.10.2011 Karina Kosareva's
tests did not confirm relapse. Karina is monitored as a day patient and feels well.
28.10.2011 Irina Finagina
had acute intestinal GVHD. She is in a hospital in a serious situation
and receives appropriate therapy.
28.10.2011 Magomed Rabadanov
has progression of his disease as well as a fungal infection.
He was added Cancidas to Vfend therapy, as chemotherapy is currently
impossible with the infection in his lungs.
28.10.2011 Sasha Ulanov
feels rather well. A donor was found and transplantation was scheduled
for late November. Sasha needs to continue Vfend therapy.
28.10.2011 Misha Stepanov
was diagnosed with a relapse. Chemotherapy followed by haploidentical
transplantation from his mom are planned. A matching donor was never found.
28.10.2011 Lesha Nesterenko
still suffers from chronic GVHD of skin, mouth and liver. His skin's
condition worsened and requires constant therapy in the hospital
under anesthesia. Photopheresis was temporarily stopped.
28.10.2011 Lera Sukhoverkhova
underwent chemotherapy under FLAG regimen. She is now in deep cytopenia
and suffers from severe mucositis. As soon as she recovers, she will be
evaluated. Haploidentical transplantation from her mom is being considered.
28.10.2011 Vadim Salamatov
underwent control evaluation and it confirmed complete remission.
He feels well.
28.10.2011 Stas Vasiliev
is continuing chemotherapy. During therapy he was diagnosed with
cardiomyopathy and it was treated. His liver
function is also gradually improving.
28.10.2011 Albina Bostanova
was diagnosed with a relapse. Albina was hospitalized at R. Gorbacheva
Pediatric Hematology & Transplantation Institute for anti-relapse
chemotherapy cycle.
28.10.2011 Misha Nikitin
underwent control evaluation and it confirmed complete remission.
He feels well.
28.10.2011 Ivetta Tsabrova
came in for control tests. All is well. A potential donor was found, but
only partially matching. It was decided to monitor her condition.
If relapse does not occur after cancellation of hormonal therapy,
a donor will be reserved and transplantation will not be
performed for now.
28.10.2011 Denis Trufanov
had control tests. There are no signs of minimal residual disease and
blast percentage is normal. Maintenance chemotherapy is continuing.
Noxafil is still needed.
28.10.2011 Rishat Saifullin
has worsening of his lungs' condition. He has breathing difficulty and
is receiving intensive therapy.
28.10.2011 Roma Aseev
has improvement with intestinal GVHD. It was decided to take a break
with photopheresis sessions. Hormonal doses are being gradually reduced.
Roma feels much better.
28.10.2011 Slava Egorov's
condition is worsening as leukemia is progressing and bacterial
infection is not responding well to medications. Slava is in ICU on
a respirator with pulmonary edema. He receives intensive therapy.
28.10.2011 Due to skin GVHD
Danya Zenevich receives therapy with Mabthera
and photopheresis. Currently Danya has bronchitis and is taking antibiotics.
28.10.2011 We need to pay 165,370 rubles
for completed treatment for Varya Vlasova.
Please help us with paying the hospital bill. Varya feels well and
will continue to be monitored in St. Petersburg.
27.10.2011 AdVita Foundation initiated fund-raising
for the treatment of Lyubov Subbotina.
26.10.2011 Alesha Bardusov
continues chemotherapy under maintenance protocol. It will last until
July 2012. Alesha does not tolerate vincristine injections well and
develops serious complications, so he travels to St. Petersburg to
have them done under control of the St. Petersburg specialists.
He is in complete remission based on control puncture.
He now has cough. CT scan is scheduled for November 7th and its
results will help determine treatment needed.
26.10.2011 Kolya Burov's
condition deteriorated rapidly. He is in cytopenia and has high fever.
Kolya has swelling as well. The doctors found herpes infection, but
disease is progressing as well. Kolya was urgently hospitalized in ICU.
He was prescribed albumin, anti-virals and antibiotcs, and receives
blood transfusions. He is in a critical condition.
22.10.2011 The tests in September showed that
Katya Prokuratova is doing well. She will
now be monitored by a pediatrician.
22.10.2011 On October 12th
Sasha Ustinov visited hematologist at the
regional hospital. Control puncture was scheduled for November 1.
Unfortunately, Sasha cannot receive required medications
for free at this time.
22.10.2011 Shedi Buneb
is studying in the 2nd grade with other kids, but with an extra day
off as he gets very tired. He feels well and the tests done in early
October at Oncology Research Institute showed that everything is well.
The next round of tests is scheduled for January.
22.10.2011 Nadezhda Garbuzova
still has moderate GVHD of mouth and esophagus. It is painful for her
to swallow, but skin GVHD symptoms had gotten better.
She also has signs of mild toxic hepatitis and takes medications for
liver protection. In addition, Nadezhda continues taking tacrolimus.
She was examined at Mycology Research Institute, and the dose
of Vfend was kept the same.
22.10.2011 Natalia Kharatishvili
feels rather well. She is not getting fever anymore and her mood had improved.
She is in sustained remission.
22.10.2011 Milana Kuzhenova
was allowed to go home for a month. She feels well, but still needs Noxafil.
22.10.2011 Marina Devyatkova
was in for planned tests and a course of photopheresis. She feels well
and is now back at home. The next round of tests is scheduled for mid-December.
22.10.2011 Diana Vaschenko's
brain tumor has not shrank much, but it has not grown either.
It was decided to interrupt medication intake until November.
In November Diana and her mom will come in for scheduled tests.
A dose and schedule of cladribine will be prescribed for Diana.
She will probably need help with buying it.
22.10.2011 Nino Utiashvili
finished full course of treatment and was discharged in remission.
She was recommended to have a consultation at the specialists in
Turner Institute, as she still has issues with bending her leg.
She is now resting in a rehabilitation center in Olgino.
Control tests at Oncology Research Institute are scheduled for mid-November.
After the tests, Nino and her mom plan to go home, and return for evaluations
every 3 months.
22.10.2011 Based on scheduled tests,
Ira Nikonova is well. Ira was prescribed a pack of
Zometa and 4 packs of Peg-Intron monthly for 3 years.
She cannot receive these medications for free.
22.10.2011 Grisha Bakhvalov
feels well, although he catches colds often. In addition, he has to
take anti-histamines constantly. Grisha had evaluation at ophthalmologist
and it showed that Grisha's vision is unlikely to improve as he
has scarring and retinal dystrophy. Grisha started 1st grade and
he receives individual lessons.
22.10.2011 Vika Smirnova
feels much better. Epidural catheter and drainage were removed and she
no longer needs painkillers. Vika is now at home. On October 24th the
date of transplantation will be decided.
22.10.2011 Egor Moskalenko's
evaluation is scheduled for November 11th, and on November 14th he will
undergo surgery to remove breathing tube. Egor's mom managed to raise money
for the surgery.
22.10.2011 Lera Bychkova
underwent tests: MRI, MIBG and bone marrow biopsy. Part of the lesions is
gone and the others decreased in size. Lera needs to complete RIST
chemotherapy, and then bone marrow transplantation followed by antibody
therapy. There is no new treatment bill yet. Lera feels much better.
22.10.2011 Based on PET-CT scan,
Kolya Markov has tumor progression with growth
into nerve tissues and spread to the other leg. Unfortunately,
chemotherapy is ineffective. Kolya is being monitored by hospice
doctors. Kolya has fever and practically does not eat. During weekend
he was allowed to go home. On Monday Kolya will return to the hospice.
21.10.2011 For Irina Redkova
it's now 55 days past the transplantation. Everything is fine.
There are over 95% of donor cells in the bone marrow. Blood test
revealed a cytomegalovirus, Irina has been administered a course
of Cymevene, now she's on Valcyte and Cyclosporine.
21.10.2011 Sanzhima Lodoeva
has had another chemotherapy couse, she's feleing fine.
20.10.2011 Ksenia Yakovenko
has the whole sum needed for the surgery raised. We only need to raise
another 1,000 euros for the medical examination. The surgery has been
scheduled for November 8.
20.10.2011 Roma Aseev's
condition is getting stable: thanks to the photopheresis the signs of
a skin GVH reaction have disappeared, and thanks to Campath and Cellsept
signs of the stomach and intestinal GVH reaction are almost gone too,
and Roma was allowed to eat regular food. Roma is feeling ok but is
very weak. The boy needs Cellsept, Entocort and intravenous
Vfend all the time.
20.10.2011 Arthur Geroev
is now administered pre-transplantation chemotherapy. Transplantation
has been scheduled for October 26. Arthur is feeling fine and is
in a good mood, the therapy is going well.
19.10.2011 Nikita Burenkov
turned seven! He is feeling fine. His basic disease is in remission,
Nikita is administered therapy against skin GVH reaction as well as Vfend.
19.10.2011 The biopsy for
Nika Baranova was postponed for a month,
and now Nika is administered another chemotherapy course based
on the protocol. Nika is feeling ok.
19.10.2011 Varya Vlasova
has finished the main treatment course and is now going to have maintenance
chemotherapy administered in her home town. Varya's mother refused to
have a bone marrow transplantation performed.
19.10.2011 Kolya Burov
does not meet the criteria to participate in the clinical trials in
Wurzburg, but for a pay he was offered SGN35 therapy (Brentuximab).
At present is administered Afinitor that inhibits tumor cells growth.
Brentuximab has been ordered. The clinic will recalculate expenses
and issue a new invoice. One course of SGN35 treatment is estimated
at 8,000 euros, all in all there will have to be at least 8 courses.
Also, Kolya needs help in paying for the rented apartment. The boy's
condition is stable but he's still very weak.
19.10.2011 Asel Panabergenova
has had 2 high-dose chemotherapy courses in St. Petersburg and is now
having the third one. Unfortunately a stable remission hasn't been
achieved yet. The donor hasn't been found. Transplantation has to
be performed as soon as possible.
19.10.2011 Slava Zhikharenko
has had a Gemzar course. The lymph nodes cannot be seen any more,
CT has been scheduled for October 21 (we need 8,900 roubles to pay for it).
Blood counts are recovering quickly although chemotherapy itself
was very hard.
18.10.2011 Transplantation for
Denis Vasilashko has been scheduled for November 30.
The funds for transplant delivery have not been raised yet. We need your help.
18.10.2011 Sanzhima Lodoeva
was recommended to have one more chemotherapy course with Paclitera.
We need your help with paying for the drug (around 30,000 roubles).
The tumor larket count is normal, ascite is gone.
17.10.2011 AdVita Foundation initiated fund-raising
for the treatment of Maria Li.
14.10.2011 Dima Parmenov's
mother managed to arrange for the American suppliers to ship 2 gastrostomas
for Dima to Russia.
14.10.2011 Diana Mishukovа
is continuing her treatment at the Treatment and Diagnostics Center of
the Berezin International Biological Systems Institute. The treatment
at that clinic is not free of charge. The AdVita fund has already
transferred 100,000 roubles as an advance payment. We will appreciate
your help with paying for Diana's further treatment.
14.10.2011 Varya Vlasova
is doing fine but her appetite has disappeared completely. Varya's
mother is now getting treatment for her hepatitis and cholecystitis.
14.10.2011 Vova Telegin
is now going through his fourth chemotherapy course. He is feeling fine.
Once this chemotherapy course is over, bone marrow sampling for the
autotransplantation will be performed.
14.10.2011 Vika Smirnova
had her tumor removed on October 6. The surgery was very complicated
and large scale. On the seventh day after the surgery the ultrasound
showed that the whole of the tumor had been removed and everything
is fine. The doctors' decision was to start preparing Vika for
a haploidentical bone marrow transplantation.
14.10.2011 Nika Baranova
had a radioisotopic examination and magnetic resonance imaging of the
tumor performed. MRT showed that the tumor had decreased in size a
little, but the radioisotopic examination testifies to a significant
improvement. The decisive factor for determining further treatment
plan will be a biopsy scheduled for October 19.
14.10.2011 Kolya Markov
is feeling ok although his blood counts are still low. Kolya was allowed
to go home, at present he is staying at a country house. PET and CT are
scheduled for October 19, and the results will determine further
treatment tactics.
14.10.2011 Fedya Bolshukhin
had a kidney examination. Unfortunately one of the kidneys (the one with
only 30% left) is not functioning. The doctors plan to monitor it but
it may have to be removed. The other kidney is functioning well.
Fedya is done with half of the post-surgical chemotherapy course.
This week there is no Vincristine. Fedya is at home and feeling
well, his legs are functioning better.
14.10.2011 For Olga Kelina
it's now 100 days after the bone marrow transplantation. Olga is feeling ok,
blood counts are normal. The doctors plan to let Olga go home for 1.5 months.
Olga needs financial help to buy Mycocyst and Prograf (those drugs are not
available at the clinic nor can they be acquired free of charge
on prescription).
12.10.2011 Marina Alyushina
is feeling fine. On October 13 she is seeing a pulmonologist, October 24
is a follow-up puncture and lung CT is scheduled for end of October.
Marina will have to take Vfend until May 2012.
12.10.2011 Nikita Vasiliev
is doing well. Nine chemotherapy courses are over, three more are left.
Home schooling began in September. The boy is doing his best to get only
good and excellent marks. Once the treatment course is over Nikita will
come to St. Petersburg for examinations.
12.10.2011 Slava Chistyakov
is in remission as far as the basic disease goes. The problems with body
mass are still there. The nutritionist prescribed Nutrison. Slava also
takes Purinethol, Biseptol, Orungal and Finlepsin Retard.
10.10.2011 Andrei Malozemov
is doing well. He goes to the 3rd grade at school, so far he's having
home classes. He also attends a swimming pool and ship modeling classes.
Last week's examinations showed that everything is fine. The doctor
appointed PET+CT on December 21 (around 25,000 roubles). We need your help.
10.10.2011 Dima Ryabov
developed a sepsis and lung bleeding. The boy is on ALV in a grave condition.
10.10.2011 Timofei Bychkov
has urgently been transferred to the intensive care unit due to depressed
consciousness and inability to breathe. The boy is on ALV, the doctors
are considering transferring him urgently to the Polenov Neurology
Research Institute for the surgical treatment of the boy's brain tumor.
10.10.2011 Slava Egorov's
transplant failed to take hold. Doctors are considering a transplantation
from one of the boy's parents. Due to cytopenia Slava got pneumonia with
severe pains so he was transferred to intensive care and had to be
administered morphine. At present the boy's condition is stable.
10.10.2011 Anya Andreeva
had a follow-up examination which showed that she is fine. The girl
goes to school with other kids her age and loves to study. Noxafil is
still needed.
10.10.2011 Katya Yastrebova
is coming for examinations and consultation about the possible second
transplantation. The girl is feeling fine.
10.10.2011 Vova Gusev
is at the outpatient facility. He needs
regular blood transfusions and continues the treatment with Noxafil
and Exjade. The counts of ferritin (serum iron) in his blood remains
the same, and the signs of cardiomyopathy are still there too.
However, Vova is feeling well.
10.10.2011 Sasha Ulanov
had an acute intestinal GVH reaction.
Now his condition is stable again, GVH reaction is under control.
There are still breathing problems, plus Sasha has a high
cytomegalovirus and aspergillosis titre. The boy is getting Cansidas,
Vfend and Cymevene. Also, Sasha needs special nutrition - Modulen.
Blood counts remain low but Sasha is feeling a lot better.
09.10.2011 Anya Golubyatnikova
is going to the Hadassa clinic (Jerusalem) on October 10 to
continue with the treatment.
08.10.2011 Galina Gavrilova
is undergoing plasmapheresis. She needs Berlithion, Cytoflavin and Noben
as well as special nutrition. We need your help.
06.10.2011 Elena Plis has
good puncture results. She continues her outpatient treatment course,
with problems like unstable temperature, low hemoglobin count, skin GVH
reaction and general weakness. Today she was diagnosed with cytomegalovirus,
so now she needs the expensive Valcyte.
05.10.2011 Irina Nikonova
is coming to St. Petersburg for a follow-up examination on October 6.
05.10.2011 AdVita Foundation initiated fund-raising
for the treatment of Asel Panabergenova.
04.10.2011 Alina Irganova
is going to have transplantation performed on November 5. On October 17
she and her mother are coming to St. Petersburg. Alina is feeling fine
and has started school.
04.10.2011 Amir Shataev and
his mother have to travel to Essen on October 25 for examinations and eye
prosthesis replacement. Amir's family needs help to cover the
upcoming expenses.
04.10.2011 AdVita Foundation initiated fund-raising
for the treatment of Dima Golubev.
03.10.2011 Planned tests showed that
Yulia Vodopianova has blast growth and Yulia
was hospitalized at R. Gorbacheva Pediatric Hematology and
Transplantation Institute for anti-relapse chemotherapy under
FLAG regimen with plans to proceed to bone marrow transplantation.
03.10.2011 Kolya Burov
is already in Wurzburg's clinic where he started participating in
a clinical trial.
03.10.2011 Irina Prikhodko
is continuing the outpatient treatment course. Skin GVH reaction is
gradually subsiding. The doctors are decreasing hormones doses.
There are some heart problems - a bad tachycardia. Irina's mood is normal.
She needs Tactolimus to continue with the treatment.
30.09.2011 Egor Moskalenko's
surgery went well. There were many papillomas, but all of them were removed with a
laser. On September 30th Yegor and his mom will return home, and a month later they
will have to return to Israel to remove a breathing tube and for control tests.
If new papillomas appear, they will have to be taken out again. This surgery cost
them half of the estimated amount (4350 euros), and they got 4150 euros back.
The clinic billed them for the next visit (8500 euros) - it means they will need
to raise 4350 euros for the next trip plus 9000 hryvnias for the tickets. Please help!
29.09.2011 Elena Plis
had a planned puncture and the initial results are good. Two more test
results are not yet ready. Her return home is being postponed, as
she has skin GVHD and elevated temperature.
29.09.2011 Dima Parmenov is
gradually breathing longer and longer. It is not yet clear where and how
Dima needs to continue therapy. He also needs gastrostomy.
27.09.2011 Marat Bugulov
was discharged from the clinic. He lives in a rented apartment and is
still being monitored by the doctors.
His blood counts are still very low.
26.09.2011 Inna Shakhmayeva
and her mom will fly on October 24th to Moscow and the next morning will
fly to Munich. The treatment bill was prepaid, and Inna and her mom
got visas and bought tickets.
26.09.2011 Danya Zenevich
has an upper respiratory infection and receives appropriate therapy.
For GVHD of skin, Danya was recommended photopheresis.
26.09.2011 Vova Gusev
is monitored as an outpatient and continued therapy for cardiomyopathy.
He needs therapy with Neoton, Noxafil and Exjade.
26.09.2011 Alena Azup
is still monitored as an outpatient. The neurological complications
were taken under control, but she still receives antiviral therapy.
Vfend is still needed.
26.09.2011 Igor Kechkin
receives several antiviral medications as an outpatient. He has signs
of skin GVHD. Igor receives hormonal therapy, tacrolimus and cellcept
and feels rather well.
26.09.2011 Serezha Popov
receives therapy against infection. C-reactive protein has gone
down and he is stable. Blood transfusions are still needed.
26.09.2011 Kira Antonova's
condition worsened dramatically. She had a septic shock and is now in
ICU on a ventilator. She receives intensive therapy and got her
own stem cells.
26.09.2011 Arseny Kochukov
feels well. He is monitored at the day hospital. He has slight
intestinal GVHD. Arseny receives hormonal therapy.
26.09.2011 After BMT,
Rishat Saifullin had a very serious complication -
veno-occlusive liver disease, but fortunately his doctors were able to
get it under control. Donor's transplant is not functioning very well
and the boy is receiving therapy with Leukostim.
Noxafil is still needed.
26.09.2011 Gleb Kalinyuk
feels well. He is planned to be hospitalized for another cycle of
chemotherapy. Gleb still needs Noxafil.
26.09.2011 Serezha Maister
is continuing maintenance chemotherapy. His blast count increased.
26.09.2011 Slava Egorov
had a relapse and urgently underwent bone marrow transplantation from
his older brother. He is now in cytopenia, but recovering.
26.09.2011 Dima Ryabov
is stable. He is still continuing therapy for infectious complications.
Due to hypofunctioning transplant, Dima needs constant blood transfusions.
26.09.2011 Based on MRI scan results, there are no changes in
Timofey Bychkov's brain. Tima's case is being
reviewed by neurosurgeons. For now, he is continuing conservative therapy.
Timosha was hospitalized due to fever and is receiving antibiotics.
26.09.2011 Anya Andreeva
came for scheduled tests. She feels well.
26.09.2011 Vika Kolomytseva
is continuing therapy with Navelbine. She tolerates it well.
Vika plans to start attending school.
26.09.2011 All of Roma Aseev's
test results for infection are negative, while intestinal and stomach GVHD is confirmed.
Roma receives appropriate therapy. He is now in a hospital but feels a bit better.
He is stable and does not have hemorrhagic cystitis.
26.09.2011 Stas Vassiliev
started another cycle of chemotherapy. He tolerates it rather well, but has
issues with liver and needs Heptral. Vfend is also needed.
26.09.2011 Varya Vlasova
finished the main chemotherapy regimen, but she is still in cytopenia and
control puncture was postponed. Based on results of puncture and test for minimal
residual disease, the need for bone marrow transplantation will be evaluated.
26.09.2011 Lera Sukhoverkhova
recovered after a cycle of chemotherapy, but did not respond to it. The blast content
is unchanged. Further treatment options are being discussed.
26.09.2011 Based on control puncture,
Sasha Ustinov has 0.2% of blasts in bone marrow.
In three weeks he will repeat tests to confirm remission and amend his therapy.
Sasha feels well.
26.09.2011 Lilya Klepikovskaya
feels great. She still takes hormonal drugs, but the
dose is already minimal.
23.09.2011 Olya Kelyina
has mild skin GVHD. Planned puncture is scheduled for October 9th
(100th day post-transplant). She feels rather well and still needs Mycosyst.
23.09.2011 Andrei Turik
came in for another course of photopheresis and control tests. He has no
change in lungs based on CT scan, so Vfend is continued at 600 mg a day.
He feels well and will go for another session of photopheresis in a month.
23.09.2011 Vlad Kitaisky
had tests recently and we are now waiting for results and doctor's decision
regarding further treatment. Vlad cannot wait to have his birthday
party!
22.09.2011 Victoria Larina
finished treatment in Italy and returned home. She feels well.
22.09.2011 Varya Smirnova
completed main treatment regimen and started maintenance therapy.
She is in remission and feels well.
22.09.2011 Sasha Yudin
fully recovered after transplantation and is being monitored at
the day hospital. He feels well. He is in remission, but still needs Vfend.
22.09.2011 Unfortunately, donor's bone marrow did not
engraft in Kira Antonova. Kira will now receive
her own stem cells that were harvested before transplantation,
and then she will be considered for either second transplant from
the same donor or haploidentical transplantation from her mom.
The situation is complicated by Kira's intestinal issues for which
she will get appropriate therapy. She also needs Cancidas.
22.09.2011 A donor for
Arthur Geroev was found and transplantation was
scheduled for mid-October. We urgently need to pay off his debt to
the registry and raise money for delivery of transplant.
22.09.2011 Egor Moskalenko
is undergoing tests and preparation prior to the surgery.
22.09.2011 Yulia Vodopianova's
transplantation is scheduled for October 26.
22.09.2011 A donor for
Nastia Pogrebnaya was found and transplantation
was scheduled for October. Money for delivery of transplant
needs to be raised.
22.09.2011 A donor for
Olya Maximenko was found, and
transplantation was scheduled for October.
22.09.2011 Volodya Polyakov
had another two chemotherapy courses. The seventh course was especially
hard for the boy. Now the blood counts are rising. Volodya was so happy
that he was allowed to go home for a few days. The next chemotherapy
course is to start shortly.
22.09.2011 Nikita Makhmatkulov's
transplantation is scheduled for the end of October. Nikita got fever and
he receives antibiotics at the day hospital.
He is starting to get better.
22.09.2011 Vladislav Lanskikh
will undergo donor's bone marrow transplantation today. He feels rather well.
Noxafil is still needed.
22.09.2011 Roma Aseev was
hospitalized to the clinic due to stomachaches. It is suspected to be
related to intestinal GVHD. Roma is fatigued, eats very little,
and lost weight. He will be receiving intravenous nutrition. Roma
also has signs of hemorrhagic cystitis. His skin GVHD is improving.
Roma is now receiving hormonal therapy and Vfend.
22.09.2011 Dima Zherebyatiev
was administered one more cycle of chemotherapy, more intensive, under
anti-relapse regimen. He is now recovering and feeling relatively well.
Further treatment depends on his response to therapy.
22.09.2011 Danya Zenevich
got strong cough and was referred to CT scan of lungs. His skin GVHD is
under control, but he has some problems still. Vfend is needed.
22.09.2011 Nastia Maloryan's
GVHD symptoms are gradually improving and she feels better. She needs
Cellcept and Valcyte.
22.09.2011 Sasha Ulanov's
blood counts are still low and he also has fever. Due to nausea and vomiting,
he cannot eat. Puncture results are not ready yet. A donor search
was initiated. Sasha urgently needs help with paying for donor search!
22.09.2011 Vika Smirnova
has had an anti-relapse chemotherapy course. After the blood counts
had dropped the girl's condition got a lot worse: very high fever,
problems with mucosae, bad nausea. At present Vika's condition is a
little better but the blood counts remain very low, that's why
she needs blood transfusion.
22.09.2011 Nika Baranova
was done with another chemotherapy course on August 28. Test results
show that the tumor has decreased in size. Yesterday another
chemotherapy course began. So far Nika is feeling ok.
22.09.2011 Fedya Bolshukhin
had pneumonia, at present his condition is getting better. Fedya has a
good appetite, he has put on weight and can walk better now.
22.09.2011 Kolya Markov's
blood counts have dropped, the boy is having
a bad fever and he's in much pain. He will have to start with another
chemotherapy course shortly but unfortunately his mother and sister
got a very bad cold. On October 19 Kolya is scheduled for a full body
PET and CT scan at the Pavlov St. Petersburg State Medical University.
That will cost 25,000 roubles. We need your help!
22.09.2011 Igor Simonov's
test results are normal, but he has issues with his legs due to varicose veins.
He had a consultation with neurologist and was prescribed medications.
Overall he feels well. He is continuing Vfend therapy.
21.09.2011 It's the 70th day since
Vanya Novoselov's bone marrow transplantation.
He feels well and is monitored at the day hospital.
Donor's bone marrow engrafted and is working well. According to
control CT scan of lungs and brain MRI study fungal lesions
are stable. Vfend is still required.
21.09.2011 Olya Igosheva
feels well. She has fully recovered after transplantation and is now
monitored at the day hospital. Some manifestations of intestinal GVHD
are present but situation is under control. Vfend is still required.
21.09.2011 Lesha Nesterenko
continues photopheresis treatment. Manifestations of intestinal and
liver GVHD remain, although lung CT showed improvement. Noxafil is
still required. Results of general blood analysis are stable.
20.09.2011 Nastia Sluchaeva
was diagnosed with transformation of aplastic anemia into myelodisplastic
syndrome, which can only be treated by bone marrow transplantation.
As soon as typing results are ready, transplantation will be discussed.
Nastia feels OK.
20.09.2011 Planned tests revealed that
Arsen Arustamyan had a relapse. As soon as
typing results are ready, bone marrow transplantation will be discussed.
Arcen was hospitalized at Children's Hospital No.1 for
anti-relapse chemotherapy.
20.09.2011 Karina Kosareva
was diagnosed with a relapse. She was hospitalized at Children's hospital
No.1 for anti-relapse chemotherapy under FLAG regimen. Afterwards,
donor's lymphocyte infusion is planned.
20.09.2011 Kolya Markov
recovered after anti-relapse chemotherapy cycle and was allowed to
go home for a few days.
20.09.2011 Badma Tsyren-Markhanov
had a relapse. He completed a cycle of anti-relapse chemotherapy and had a
good response. The blasts are gone, but he does not have a donor and there
are slim chances that he or she will be found.
Further therapy is under discussion.
20.09.2011 Volodya Telegin
is undergoing the 3rd cycle of chemotherapy and tolerates it well.
Based on CSF essay as of September 16th, it has no cancer cells.
The next puncture will be scheduled after Volodya finishes
current cycle.
20.09.2011 Varya Vlasova
completed 9th cycle of chemotherapy. She does not feel very well now -
she is worried and does not sleep well. On September 19th she will
have the last puncture under the treatment protocol and then she
will have tests for minimal residual disease. Based on results,
bone marrow transplantation will be discussed. We received a new
bill for Varya's treatment for 259,240 rubles. Please help!
19.09.2011 Regional administration purchased
Evgeniy Senkin enough Tasigna to
last until the end of 2011.
18.09.2011 Oleg Soshin
started 8th grade as a homeschooled student. He finished the 5th
re-induction cycle of maintenance therapy (of 7 total cycles planned)
and continues taking Heptral to support liver function. The family buys
this drug using their own resources. Oleg does not feel too well.
18.09.2011 Galina Gavrilova's
vision worsened, she is fatigued and swollen, and has a difficulty walking
due to dizziness. Next week her hospitalization for plasmapheresis will
be planned. She will need to bring her own medications, syringes, and IV
systems to the hospital.
18.09.2011 Diana Ibragimova's
joint replacement is being postponed, as she will undergo therapy to treat
fluid in her knee and ankle joints. Meanwhile, she received a bill for
post-operative rehabilitation for 5,664 euros. The rehabilitation is
planned to take place in Nuremberg.
18.09.2011 The clinical trial in Italy in which
Olga Shmygleva participated, is over.
She is looking for new treatment.
Currently, she has disease progression.
18.09.2011 Kirill Kuzmin
has a break in Exjade intake and ferritin level rose again.
So he needs Exjade again and will have to take it for a long time.
Once a week Kirill goes for blood transfusions and he also receives
erythropoietin. A full match was not found at the international
registry and further treatment is being discussed.
15.09.2011 Egor Moskalenko
and his mom are in Israel, the flight was good. He had a consultation with Dr. Diro
who said that there are a lot of papillomas, but voice cords are mobile and it is
very good that Egor can talk even in whisper. Surgery is scheduled for September 26th.
15.09.2011 Vitaly Volodin's
condition worsened dramatically: he developed acute graft vs.host disease with
damage to his intestines and liver, as well as severe sepsis due to being in
immunosuppressed state. Vitaly was transferred to artificial lung ventilation.
15.09.2011 Katya Yastrebova
is now at home, in Cheboksary. She developed fungal pneumonia and she receives
therapy with Cancidas.
15.09.2011 Arina Baboshina
is at home and feels well. Her blood counts are normal. During her stay at home
she never needed blood transfusions. It was decided to postpone planned tests
to October. Noxafil is still needed.
15.09.2011 Mila Kuzhenova
is still being monitored at the day hospital. Her doses of hormonal therapy
are being reduced. Mila feels well and is very active.
15.09.2011 Denis Trufanov
feels well. Control puncture showed that blast level is within norm. He is still
receiving maintenance chemotherapy. On September 1 Denis started 1st grade.
We would like to thank Kelly Services for helping get Denis ready for school.
15.09.2011 Dasha Nekozyreva
underwent tests. She has chronic skin GVHD in mild form, so Gleevec therapy is continuing.
Dasha returned home. The next round of tests will be scheduled in two months.
15.09.2011 Sasha Novokreschenov
still shows signs of fungal infection in lungs. He feels well and based on test results,
external breathing function is gradually improving. Noxafil will be needed for the
next 6 months. We would like to thank AiF Kind Heart fund for buying eight
vials of the drug for Sasha.
15.09.2011 Gosha Makarenko
completed planned tests and returned home. Based on control puncture, he is in remission.
His blood counts are normal. The next examination is scheduled in two months.
15.09.2011 During pneumonia therapy Vova Gusev's
response to Vfend did not last long, and it was replaced by Noxafil. Vova was also diagnosed
with cardiomyopathy due to high iron levels, and he was prescribed Exjade.
15.09.2011 Dima Ryabov
was unexpectedly taken to intensive care unit due to neurologic complications.
He is now stable and was transferred out to the unit. Dima still shows signs of
encephalopathy due to toxoplasmosis with damage to CNS and receives appropriate therapy.
He now feels relatively well and wants to go home.
15.09.2011 Sergei Maister
feels rather well and continues low-dose cytosar and etoposide therapy.
Blast count is unchanged.
15.09.2011 Lera Sukhoverkhova
completed the first anti-relapse cycle and is now in cytopenia. She had high
fever for a long time and severe mucositis. Lera receives antibiotics and
Cancidas and now feels better.
15.09.2011 Dima Zherebyatiev
did not respond to therapy with Cytosar. He is planned to undergo haploidentical
transplantation from one of his parents.
15.09.2011 Elena Plis
undergoes therapy at day hospital. She started having skin GVHD but feels OK.
14.09.2011 Unfortunately,
Oksana Nosik's transplant is being rejected.
Based on last puncture, she has close to 10% of donor's bone marrow cells.
She was taken off immunosuppressive drugs and prescribed Sprycel. Donor's
lymphocyte infusion is also planned. Oksana feels relatively well.
14.09.2011 Irina Prikhodko
is still being monitored at day hospital at R. Gorbacheva Pediatric
Hematology & Transplantation Institute. It has been two months since transplantation.
Overall, she feels rather well, but she developed skin GVHD and has a high cytomegalovirus
titer. Irina takes immunosuppressive therapy and Valcyte. She is in remission in regards
to her primary diagnosis.
14.09.2011 Sanzhima Lodoeva
underwent chemotherapy on September 6-7 and it went well. She feels rather well.
14.09.2011 AdVita Foundation initiated fund-raising
for the treatment of Magomed Rabadanov.
13.09.2011 Stas Vasiliev
finished the second chemotherapy cycle under the regimen. He is now recovering
and being followed at the day hospital. He feels rather well. Stas still needs
Vfend - one pack that costs 26,990 rubles lasts him 9 days.
13.09.2011 AdVita Foundation initiated fund-raising
for the treatment of Sasha Ulanov.
11.09.2011 Anastasia Maloryan
has a grave form of skin GVH reaction. She was administered hormones and photopheresis.
Her condition is slowly getting better. She also needs Valcyte for infectious complications.
Her basic disease is in remission.
11.09.2011 Yulia Vodopianova
is monitored at the Raisa Gorbacheva Institute of Children's Hematology and
Transplantology. She is administered Dacogen at the day patient facility.
The donor has been found, transplantation is planned for October or November.
The money for transplant delivery has been found.
11.09.2011 Andrei Arkhireev
has had the fourth chemotherapy course at the Almazov Research Institute and
is now going out of cytopenia. He feels ok. Remission was achieved. The donor
has not been found yet.
11.09.2011 Nastia Pogrebnaya
is going to have another chemotherapy course – this time chemotherapy will be
low dose so it will be administered at the day care facility. Nastia is in
remission and feeling ok. The donor has not been found yet.
11.09.2011 Konstantin Shushlin
was found a donor, transplantation is scheduled for September 30. We urgently
need to pay the debt to the registry and raise 2500 euros for transplant delivery.
11.09.2011 Arthur Geroev
has had the seventh chemotherapy course. He feels ok but each chemotherapy course is
harder and harder to endure. The donor has not been found yet.
11.09.2011 Anya Smirnova
is now at home. Examinations proved she is in remission. Blood counts are good,
no signs of GVH reaction, but she still has problems with high blood pressure.
Anya still needs Vfend.
11.09.2011 Unfortunately Nastia Savarona's
bilirubin counts are rising again. Doctors are now deciding on the right therapy against
liver GVH reaction. The situation is complicated by the fact that Nastia is intolerant
to a number of drugs (convulsive disorder).
11.09.2011 Irina Redkova
had the transplantation performed as planned. She is now recovering and
gradually going out of cytopenia.
11.09.2011 The donor for Ilya Fraier
has been found. Transplantation is scheduled for end of September or beginning of October.
Ilya will be coming to St. Petersburg shortly.
11.09.2011 The donor for Alina Irganova
has been found, transplantation is planned for October.
11.09.2011 Alena Azup
is now monitored at the day care facility. Puncture results prove that she is in remission.
There are signs of skin GVH reaction. The transplant is functioning well but the platelet
count is not stable, so Alena needs blood transfusions every once in a while. There are
minor neurological complications due to the toxic effect of chemotherapy.
Alena still needs Vfend.
11.09.2011 Sergei Sharov
has recovered after the transplantation and has been transferred to the day patient
facility. The donor bone marrow has taken root and is functioning well, follow up
puncture testifies to a remission. Sergei still needs Noxafil.
11.09.2011 Natalia Kovaleva
is already in St. Petersburg, bone marrow sampling is scheduled for
September 12 and transplantation itself will be performed on September 29.
The registry has not been paid yet. The funds for transplant delivery have
been raised.
11.09.2011 Nadya Dorozhko
is feeling ok but keeps having pains in her legs. She has difficulty walking.
Puncture results testify to a remission, the donor bone marrow is functioning
well. There are minor signs of intestinal GVH reaction.
11.09.2011 Arseny Semenov
is feeling fine. He started school this year. His mother's treatment course
is over too so everything is fine.
11.09.2011 Unfortunately Stas Shamaev
shows no response to the therapy, platelet count is too low. The doctors are now
choosing between the two options: treatment with another kind of immunoglobulins or
non-relative bone marrow transplantation. Stas still needs blood transfusions weekly.
11.09.2011 Anna Mirskaya
continues to get treatment for the GVH reaction. Hormones and photopheresis have been
canceled and Anna is now administered Sirolimus and Cellsept. Anna still needs Vfend.
11.09.2011 Elena Kozis
had the transplantation performed five months ago. She is monitored at the
Raisa Gorbacheva Institute of Children's Hematology and Transplantology,
her basic disease is in remission. No manifestations of GVH reaction.
The cytomegalovirus titre is high so Elena is taking Valcyte.
11.09.2011 Vladimir Davydov
continues with maintenance chemotherapy, feeling more or less ok. He is still
in remission. The donor has not been found yet.
11.09.2011 Tatiana Kanashina
had donor lymphocytes transplanted for the second time and is responding to
this therapy.
11.09.2011 Nadezhda Garbuzova's
basic disease is in remission but the skin GVH reaction became chronic.
Nadezhda is now administered Tacrolimus. The doctors are monitoring the dynamics.
11.09.2011 Maxim Merkulov
is going to have an autotransplantation performed next week at City Hospital 31.
He still needs Vfend.
11.09.2011 Larisa Kondratieva
is feeling fine: the donor transplant is functioning well, she's in remission,
with no GVH reaction or infectious complications.
11.09.2011 Nastia Sluchaeva
is going to be hospitalized in a week for a Thymoglobuline course. She is feeling ok.
11.09.2011 Volodya Maslennikov
is having follow-up examinations: pulmonologist, hematologist, mycologist. Blood
counts are not bad. He is feeling ok.
11.09.2011 Slava Zhikharenko
had follow-up examinations which revealed tumor foci. The doctors prescribed
chemotherapy with Gemzar. The course began on September 9. The boy is feeling ok.
11.09.2011 Daniil Ryabov
had the transplantation performed as planned. Daniil is in cytopenia, gradually
recovering. Mucous membranes suffered most from chemotherapy, so Daniil is not
feeling well so far.
11.09.2011 Ksenia Stolyarova
is in remission feeling ok. The lower part of the body is gradually recovering sensitivity,
and Ksyusha can now walk.
11.09.2011 Nikita Burenkov
had a follow-up puncture which confirmed remission. There are manifestations of
a chronic skin GVH reaction, so Nikita is treated with hormones. The boy is feeling ok.
11.09.2011 Kira Antonova
had the transplantation performed as planned. She is now gradually recovering from cytopenia.
The girl had a fever and could not eat for quite a long time. Now her condition has gotten
better: Kira is still weak but can eat and walk around the ward.
11.09.2011 Because of a low platelet count
Igor Pogodaev had a bleeding which could not be stopped.
Igor died on September 11 in a Khabarovsk hospital, the day before his scheduled
follow-up examination in St. Petersburg.
10.09.2011 The money for Irina Chernova
needs to be raised as soon as possible: she already had two blast crises and transplantation
is needed urgently. Irina is now at home. She is monitored as an outpatient and feels rather
well. She is in remission.
10.09.2011 Zhenya Zavorotynsky
completed the fifth chemotherapy cycle, and he is now in cytopenia. Based on puncture prior
to the cycle, he is in remission. Zhenya feels rather well, but a donor has not been
found yet.
10.09.2011 Nikita Makhmatkulov
completed another cycle of ribomustine in late August. The next cycle was scheduled
for early September, but Nikita got fever and is now receiving antibiotics. As soon as his
temperature normalizes, he will have another cycle of chemotherapy. A donor for him was found,
and transplantation was preliminarily scheduled for October.
10.09.2011 Sasha Ulanov
was again having blast growth and on September 6th he underwent haploidentical
transplantation from his mother. He is now in cytopenia. A search for 100% compatible
unrelated donor needs to start as soon as possible.
10.09.2011 Magomed Rabadanov
is being monitored as an outpatient. He receives maintenance therapy that will
continue until a donor is found. His parents loaned 3000 euros and transferred the
money as the first installment to the bone marrow donor registry. The family's
financial situation is dire. Magomed also needs long-term therapy with Vfend.
09.09.2011 Lesha Nesterenko's
infections are under control, but he still has signs of GVHD of lungs, mouth and liver.
He receives Cellcept and sirolimus and continues photopheresis.
09.09.2011 Timofey Bychkov
is being monitored at the day hospital. He continues antifungal therapy.
He has neurological improvements - his arm and face are regaining movement.
Next week he will have control MRI.
09.09.2011 Danya Zenevich
was discharged for day hospital and he feels well. He has signs of GVHD of skin,
and he also tested positive for cytomegalovirus. He receives appropriate therapy.
09.09.2011 Dima Zherebyatiev
will start anti-relapse chemotherapy with low dose cytosar. Dima's parents are undergoing
typing and haploidentical transplantation of bone marrow is being discussed.
09.09.2011 Roma Aseev
is being monitored at the day hospital. He is in remission based on control puncture.
He has slight skin GVHD. Roma receives immunosuppressive drugs and Vfend.
09.09.2011 Gleb Kalinyuk
is recovering after another cycle of chemotherapy. The treatment is proceeding as
planned and he feels well. A donor was not found yet.
09.09.2011 Vika Gladinets
is continuing therapy with Dacogen to prevent relapse. She has no signs of
GVHD and hormonal therapy was canceled.
09.09.2011 Gleb Bogdanov's
unrelated bone marrow transplantation was scheduled for late September.
09.09.2011 Lesha Bardusov
feels well. He is continuing maintenance chemotherapy which will be
administered locally. He is in remission.
09.09.2011 Magomed Aliev
feels well. Based on test results from his place of residence, he is in remission,
and a consultation in person was postponed.
09.09.2011 July's tests confirmed Katya Prokuratova's.
The next round of tests is scheduled for mid-September. Katya feels well. She was in a sanatorium
in Ukraine in summer and had a very good time. She is very happy to continue her studies with
her class.
09.09.2011 Roma Rybkin
feels well. In summer he was in a sanatorium where he rested well and regained his
strength by the time to start school. This year he started 1st grade and he goes
to school with his peers instead of being home schooled. Once a month he goes to Children's
hospital No.1 for tests. He is in remission.
09.09.2011 Kostya Makoveev
feels well, although his summer was somewhat marred by his complex arm fracture after
a fall. At the end of September, Kostya and his mom plan to go to a sanatorium near
Moscow, and on September 1 Kostya will line up with other kids at his 3rd grade.
09.09.2011 Based on monthly tests, Yulia Kolomeets
is in sustained remission. In August she underwent rehabilitation in Olgino. She was diagnosed
with heart problems, and the doctors are now monitoring her condition (every two weeks
she goes for control ECG). From time to time she gets high blood pressure.
09.09.2011 Dear friends, it is now possible to donate money to
Egor Moskalenko by simply sending money to Beeline's phone
number 8 (906) 3141057 in Russia.
09.09.2011 Sasha Obertyuk
is at home. He is receiving maintenance chemotherapy and takes antiviral drugs.
He does not feel very well.
09.09.2011 Katya Shikun's
prosthesis broke - it was 12 cm shorter than Katya's healthy leg. Katya no longer
has the opportunity to move around. Katya and her mom are asking their supporters
for help with raising money for the prosthesis. It is estimated to cost close
to 200,000 rubles.
09.09.2011 Valentina Moschenkova
was discharged home after planned hospitalization. She feels rather well, except
for dizziness and bone aches. The next hospitalization date will depend on her
blood counts.
09.09.2011 Ira Finagina
is monitored at a day hospital. She is completely off hormonal therapy and
GVHD is under control. Unfortunately, aspergillosis is still a problem.
Vfend dosage was increased to 600 mg a day.
09.09.2011 Ksenia Yakovenko's
condition is worsening. She needs surgery as soon as possible. Ksenia still needs
to raise money for surgery. Please help!
07.09.2011 Egor Moskalenko's
mom is asking for help with paying for the air tickets - they need $1,100.
The flight is planned for September 13th.
07.09.2011 Nadya Chernoknizhnaya
underwent MRI that showed the tumor is stable, and it also started developing necrotic
lesions. In other words, medication that Nadya takes is working and tumor is responding
to it and slowly dying. For now, the percentage of necrotic cells is small but the most
important thing is that Nadya is responding. The study results were discussed at a group
meeting and the doctors agreed that therapy should be continued.
07.09.2011 We are grateful to all the supporters.
The first bill for Nika Baranova's
treatment was covered. Russian Help Fund joined the fundraising effort and
it was able to raise 800,000 rubles for Nika's treatment. The next bill will
be paid from that amount. We are temporarily halting fundraising for Nika and
will restart it once the money raised by Russian Help Fund runs out.
07.09.2011 Anya Golubyatnikova
is now recovering after a cycle of chemotherapy at Children's hospital No.1. Her
kidney function improved significantly and the counts rose to the limit that allows
MIBG therapy. Anya's return to London to continue treatment is now under discussion.
07.09.2011 Nadya Chernoknizhnaya
underwent MRI that showed the tumor is stable, and it also started developing necrotic
lesions. In other words, medication that Nadya takes is working and tumor is responding
to it and slowly dying. For now, the percentage of necrotic cells is small but the most
important thing is that Nadya is responding. The study results were discussed at a group
meeting and the doctors agreed that therapy should be continued.
07.09.2011 At the end of August, Serezha Popov
was diagnosed with cytomegalovirus. He received antiviral therapy, but on September 4th he
was hospitalized with high C-reactive protein and a nosebleed. He is now at the hospital
where he is receiving antibiotics and undergoing tests. Donor's bone marrow is working well,
but due to an autoimmune process his platelets and red blood cells are being destroyed and he
constantly needs transfusions of R-mass and plasma.
07.09.2011 Unfortunately, Dima Zherebyatiev
had a relapse. A donor was not found yet. Dima is currently hospitalized at R. Gorbacheva
Pediatric Hematology & Transplantation Institute for anti-relapse chemotherapy.
06.09.2011 Danya Zenevich
completely recovered after transplantation. He is in remission in regards to
primary diagnosis, but is currently in the hospital with acute cytomegaloviral
infection. Danechka needs continuing help with medications such as Cymevene, Vfend,
Heptral and immunoglobulins. He feels rather well.
04.09.2011 Vladislav Lanskikh
is now in St. Petersburg. He is undergoing evaluation prior to bone marrow
transplantation. He feels OK. Vladislav still needs Noxafil and will continue
needing it during transplantation and rehabilitation afterwards.
02.09.2011 Larisa Mashevskaya's
transplantation is scheduled for October 7. She still owes registry
for donor activation.
31.08.2011 Nika Baranova feels
rather well and she was allowed to go for walks. As soon as she started
another chemotherapy cycle, her problems with mucous tissue returned.
Her family received the first bill for treatment for 99,960 rubles.
31.08.2011 Varya Vlasova
is undergoing the 3rd chemotherapy cycle at Municipal hospital No.31.
On August 22nd, bone marrow biopsy showed 2.5% of blast cells, and 3.3% of
myeloblasts. Varya is now not feeling very well. She had a reaction
to asparaginase, fever, cries a lot and is very cranky.
She is also developing stomatitis. Varya eats very little.
She was recommended nutrition Nistagen or Nutrilon Junior,
120 g every 3 hours.
31.08.2011 Vika Smirnova
walks better, although she limps on her right foot. On August 25th she
started a new chemotherapy cycle and she got intestinal problems right away.
Vika developed severe farsightedness and got new glasses.
31.08.2011 Fedya Bolshukhin
underwent five chemotherapy cycles after returning from Poland and he
tolerated them well. He is now receiving weekly Vincristine infusions.
During chemotherapy he developed neuropathy of both of his legs, and he
was referred for physical therapy and massage.
31.08.2011 Olga Kelina
is in 55th day post-BMT. She feels well. Donor's bone marrow engrafted
completely and she is in remission in regards to primary diagnosis.
She only needs help with buying Mycosyst.
31.08.2011 Zakhar Korpusov's
condition improved, but he still has GVHD of skin and mouth.
The next examination is in early September. He still needs Vfend,
Cell-cept, Gleevec, Ursosan and Nutridrink.
31.08.2011 Sasha Obertyuk
is now at home where he is undergoing maintenance therapy under the protocol.
Once a week he goes for tests at the hospital. He can move around
slowly with crutches. Sasha still has neuropathy, febrile fever, and
problems with vision in his left eye. Vfend is still needed.
31.08.2011 Masha Vartsan
returned to Burdenko Institute and her tumor was removed completely.
She will now start radiation therapy.
31.08.2011 Igor Kechkin
was hospitalized at R. Gorbacheva Pediatric Hematology & Transplantation Institute
after his blood counts started to go down and he started feeling unwell. Based on test
results, he has cytomegalovirus infection, but when he started therapy with cymevene,
it turned out that he is allergic to it and therapy had to be canceled. While we are
waiting for test results for other infections, Igor needs immunoglobulins in large doses.
31.08.2011 This year it has been 5 years since
transplantation, and during review, Anton Terekhov's
disability status was discontinued. He feels well and is getting ready to
start 1st grade.
31.08.2011 Egor Moskalenko
will fly to Israel to continue treatment. His treatment and lodging will
be paid for by an anonymous donor, but to buy the air tickets
the family needs $1370. Please help.
31.08.2011 Elena Plis
passed 100 days since BMT. Bone marrow biopsy result is good.
She had successful therapy for kidney dysfunction and low hemoglobin.
She has no fungal lesions in her lungs.
31.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Stas Vasiliev.
30.08.2011 Sanzhima Lodoeva
had an ultrasound - the results are good and improvement was seen.
Ascites is now almost half of what she had before. Her treating doctor
diagnosed inflammation in her kidneys and prescribed appropriate therapy.
The 7th cycle of chemotherapy needs to be completed prior to September 8th.
It means Sanzhima again needs to find 30,000 rubles for paclitera.
Please help!
29.08.2011 Elena Adamyants
is receiving pre-transplantation chemotherapy and transplantation is
scheduled for September 1st.
26.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Yulia Vodopianova.
24.08.2011 Sanzhima Lodoeva's
condition worsened - she has pains in her right side and periodically gets fever.
She urgently needs to undergo tests for oncomarkers (total cost 1850 rubles).
Sanzhima's family needs help to continue her treatment and pay apartment rent.
24.08.2011 Lera Bychkova
underwent evaluation in Greifswald. Her bone marrow is cancer free and
the number of active lesions went down significantly. Lera started
chemotherapy under RIST regimen. Her blood counts are low, but
she feels rather well.
24.08.2011 Volodya Telegin
had a relapse. He is now receiving anti-relapse chemotherapy. He finished
two cycles and has four more to go. Afterwards his stem cells will
be harvested for autologous transplantation. Volodya's condition is
serious and his blood counts are critically low.
24.08.2011 Kolya Markov
feels better and started to walk a little. His pain is much lower now.
24.08.2011 Nino Utiashvili
is not tolerating another cycle of chemotherapy very well. She needs
actovegin in ampoules.
24.08.2011 Sasha Ustinov's
blood counts are continuing to improve. There are no blasts. Sasha has
gone without transfusions for two weeks already! Based on such a good
response to purinethol and hydrea therapy, it was decided to increase
the doses to therapeutic. Sasha is now at home and he feels well.
24.08.2011 Ilya Kirillov
has significant improvement of lymphostasis in his legs. In September
he will have MRI of his head and a puncture. Ilya feels well
and is in remission.
24.08.2011 Dima Ryabov
feels rather well and he is at the day hospital. He still has some
issues with intestines and neurologic issue. Blood counts are low
and he needs periodic transfusions of platelets and blood components.
He finished a cycle of Mabthera and still takes Vfend.
24.08.2011 Katya Markova
recovered fully after transplantation and was discharged for outpatient
monitoring. She feels rather well.
24.08.2011 Ramil Bulatov
was in for another cycle of photopheresis and evaluation. Thanks to
photopheresis he has improvement of skin and mucous tissues.
He still takes Vfend and calcium supplements. The next cycle of
photopheresis is scheduled for September.
24.08.2011 Anya Andreeva
completed therapy with photopheresis. She has improvement with GVHD
and was allowed to go home. Noxafil is still needed.
24.08.2011 Igor Zhuikov's
lungs and kidney function is continuing to improve. The current concern
is about an infiltrate that he got on his left cheek, high fever
and constant pains in his spine. CT scan showed compression fracture
of vertebrae 7, 8, and 12, spondylitis of thoracic 8th vertebra and
advanced osteoporosis.
24.08.2011 Anya Korol
feels well and started walking. She completed another chemotherapy
cycle and will have control MRI.
23.08.2011 Yulia Dikan
is doing well and started daycare.
23.08.2011 Control tests showed that
Lera Sukhoverkhova has disease progression and
blasts in peripheral blood. Lera was hospitalized at R. Gorbacheva
Pediatric Hematology & Transplantation clinic for anti-relapse chemotherapy.
A donor is not yet found.
23.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Ksenia Yakovenko.
22.08.2011 Nilufari Sharifbek
completed planned tests. All is well and all blood counts are normal.
Nilufari feels great.
22.08.2011 Dima Zherebyatiev's
family was able to raise remaining amount necessary to pay off the bill
for the donor search and delivery of transplant.
22.08.2011 A donor for
Larisa Mashevskaya was found. Transplantation is
preliminarily scheduled for end of September - early October.
Larisa is still being monitored at day hospital at R. Gorbacheva
Pediatric Hematology & Transplantation Institute.
She feels rather well.
22.08.2011 Oksana Nosik
fully recovered after transplantation and was discharged for outpatient
monitoring. Donor's bone marrow engrafted and Oksana feels well.
22.08.2011 Unfortunately,
Gleb Bogdanov's unrelated transplantation
was canceled. During pre-transplant chemotherapy, Gleb was diagnosed
with an infection that would endanger engraftment of donor's bone marrow.
After chemotherapy Gleb was transplanted his own cells that were harvested
previously. He is now recovering and feeling well. Based on latest puncture,
he is in complete remission. Unrelated bone marrow transplantation
was rescheduled for fall. Gleb still needs Noxafil.
22.08.2011 Gleb Kalinyuk
is undergoing the 4th cycle of chemotherapy and feels well.
He still needs Noxafil.
22.08.2011 Kira Antonova
came to St. Petersburg. Transplantation was scheduled for August 24th.
She is now undergoing a cycle of pre-transplant chemotherapy.
22.08.2011 Vova Gusev
has improvement in regards to pneumonia. Vova is continuing to take Vfend,
and was also prescribed Fungizone. Volodya recovered with his own cells.
Second transplantation was postponed until pneumonia
is completely cured.
22.08.2011 Timofei Bychkov
had a consultation with a neurosurgeon and it was decided to continue
conservative therapy with antibacterial and anti-fungal drugs.
22.08.2011 Serezha Maister
is continuing maintenance therapy in low doses.
His blast count stabilized.
22.08.2011 Serezha Vasiliev
recovered after a cycle of chemotherapy. He is stable and his blast count
is on the same level. He is receiving maintenance therapy.
22.08.2011 Anya Golubyatnikova
returned to St. Petersburg. She will continue maintenance chemotherapy
and therapy to improve renal function. As soon as she improves, MIBG
therapy followed by donor's cell infusion will be considered again.
22.08.2011 Sasha Zipenkov
completed control tests in Essen, and all is well.
20.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Danya Zenevich.
19.08.2011 Amir Shataev's
eye prosthesis broke. He urgently needs to replace it. Amir's mom is
asking for help with flights, installation of prosthetic eye, tests,
lodging and meals.
18.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Roma Aseev.
18.08.2011 Today Egor Moskalenko's
stitches were to be removed, but since Egor is still coughing,
the procedure was postponed.
16.08.2011 Kolya Burov
has disease progression. It was decided to start therapy with thalidomide.
16.08.2011 Slava Zhikharenko
was diagnosed with fungal and strep infections. Slava is receiving
Vancomycin, as well as inhalations of fluimucil and Orungal.
His temperature normalized and Slava feels much better.
15.08.2011 Kolya Markov
is planned to undergo the following treatment: chemotherapy followed by
radiation on sacrum, and finally - autologous bone marrow transplantation.
15.08.2011 Nika Baranova
had a very hard time tolerating post-operative anesthesia and the first
chemotherapy cycle. After her blood counts dropped, she could not recover
for a long time. The second cycle was a little easier than the first.
Nika feels relatively well, but cannot eat at all.
15.08.2011 Vika Smirnova
is starting to walk, although very carefully. She has been recovering
from a cycle of chemotherapy for the last four weeks. She has fever
and her blood counts are low.
15.08.2011 Nino Utiashvili
had a radioisotope study on August 11th. She has no lesions with contrast
uptake, and her bones and tissues are cancer free. However, she is
accumulating fluid near her ankle and knee joints. She started
another cycle of chemotherapy.
15.08.2011 Diana Ibragimova
will travel to University clinic in Tubingen, Germany for installation
of prostheses in Diana's both hip joints. The clinic estimated surgery
to cost 19,000 euros. In addition, Diana and her mom will need help
with buying air tickets, lodging and food, as well as translator's
services and a course of rehabilitation. Please help!
12.08.2011 Ira Nikonova
is at home, in Novgorod, where she is continuing immunotherapy.
12.08.2011 Lera Bychkova
is already at the clinic in Greifswald. It was decided to start her therapy
with RIST regimen.
11.08.2011 Galima Bolshakova
feels rather well. The swelling is gone, but her blood pressure is
unstable again. She is monitored as an outpatient. In early September
she will go for examination by a hematologist, and a sterile puncture
is scheduled for October. She still needs Vfend.
11.08.2011 Anya Smirnova
has acute GVHD (hemorrhagic cystitis). She has fever and was urgently
hospitalized at the clinic for tests and selection of therapy.
Vfend is still needed.
11.08.2011 Nino Utiashvili
completed 12th cycle of chemotherapy. She is planned to have MRI and isotope study.
Hospitalization for the 13th cycle is scheduled for August 15th.
Nino is very tired and suffers from headaches.
11.08.2011 Valentina Moschenkova
is still at home. She had several tests, but hospitalization is still uncertain.
She takes Vfend.
11.08.2011 Galina Gavrilova's
condition worsened. She suffers from heat, and it is hard to walk, as her
legs ache. She sees black dots in front of her eyes, is very depressed
and unable to sleep.
11.08.2011 AdVita Foundation initiated fund-raising
for the treatment of Nika Baranova.
11.08.2011 Arisha Yakimova
is adjusting to breathing on her new machine for the second day.
10.08.2011 Dasha Nekozyreva
came in for control tests. She has slight symptoms of chronic skin GVHD.
Hormonal therapy was canceled, and Dasha is now treated with Gleevec.
She feels well.
10.08.2011 Dima Ryabov
was referred for a lumbar puncture and additional tests. He also still
has autoimmune cytopenia and hypofunction of transplant. Dima needs to
continue Vfend therapy.
10.08.2011 Serezha Popov
still has signs of autoimmune cytopenia. He is continuing Mabthera therapy.
Serezha feels OK.
10.08.2011 Arseny Kochukov
was discharged for outpatient monitoring. He has no signs of GVHD or
infections. He feels well, is active and happy.
10.08.2011 Tatiana Vostrikova
underwent a second transplantation 16 days ago. She is in a serious
condition due to severe mucositis and veno-occlusive hepatic disease.
10.08.2011 Marat Bugulov is
in a serious condition due to grade IV intestinal GVHD. He receives
therapy with Remicade.
10.08.2011 Daniil Ryabov
is now in complete remission. Bone marrow transplantation was rescheduled
for September 7th.
10.08.2011 Oksana Nosik
is in the second week post-transplant. She is in cytopenia,
but feels rather well.
10.08.2011 Igor Simonov
feels well and GVHD symptoms are under control.
He is continuing Vfend therapy.
10.08.2011 Sergei Sharov
will undergo a conditioning regimen FLAMSA. Transplantation will follow.
Noxafil is still vitally necessary.
10.08.2011 Tatiana Kanashina
got symptoms of intestinal GVHD and was prescribed Budenofalk.
In the next few days she will undergo a full evaluation.
10.08.2011 Maxim Merkulov
underwent another cycle of chemotherapy and feels rather well.
The autologous transplantation is scheduled for September.
Vfend is still needed.
10.08.2011 Olga Igosheva
underwent second haploidentical transplantation from her sister.
Today is the 11th day post-transplant. Olga is in cytopenia for now.
10.08.2011 Vladimir Frantsev
has new lesions, based on tests, and a disease progression is suspected.
Vladimir is fatigued and has difficulty with swallowing. In the next few
days he will be hospitalized so that new therapy can be selected.
10.08.2011 Akop Gulabyan
still has significant skin GVHD. He continues to need Vfend.
10.08.2011 Marina Alyushina
was diagnosed with upper respiratory infection and she has a strong cough.
Marina is undergoing therapy at pulmonologist. She is in remission in
regards to the primary diagnosis.
10.08.2011 Irina Prikhodko
recovered after transplantation and was discharged for outpatient monitoring.
She does not feel very well yet due to fatigue. She will be tested for
cytomegaloviral infection.
10.08.2011 Evgeniy Ostrovsky
was discharged for outpatient monitoring. He has slight skin GVHD and
receives hormonal therapy. He still needs Vfend.
10.08.2011 Igor Kechkin's
transplantation went on schedule. He successfully recovered and was
discharged for outpatient monitoring. Control puncture showed complete
engraftment of transplant and complete remission.
He shows no signs of GVHD.
10.08.2011 Edik Movsesyan's
condition worsened: he has neurologic complications, and his speech suffered.
He was transferred to intensive care unit, and will have a brain MRI.
He still has symptoms of intestinal GVHD and proteins are not being
digested. Edik needs continuing therapy with albumin. He is improving
in regards to GVHD of liver. Mabthera therapy was put on hold.
Edik was prescribed Cancidas as antifungal therapy.
10.08.2011 Fedya Bolshukhin
feels relatively well. After the last cycle of chemotherapy, his doctors
allowed him to go home to rest for several days.
10.08.2011 Kolya Markov
underwent MRI that showed rapid tumor growth. In the next few days
doctors will consider further treatment options. Kolya is now at
dacha with his family. He does not feel very well due to fever,
difficulty walking and pain.
10.08.2011 In early July
Masha Bolokhova was hospitalized at hospital No. 31
and underwent a cycle of chemotherapy. She did not tolerate it well: she
had fever and needed blood transfusions and therapy with antibiotics.
As soon as Masha felt better, her mom took her home and
refused further treatment.
10.08.2011 Zhenya Vasilenko
had almost a year since the last chemotherapy cycle. Zhenya's platelet
count is still somewhat low and he continues having problems with his legs:
it hurts when he tries to walk, and he needs to have a whole hip joint
prosthesis, or a replacement of the head of the joint. Zhenya enrolled
into Engineering and Economics College in St. Petersburg.
10.08.2011 Aif-Kind Heart charity transferred
68,868 euros to a clinic in Germany for Inna Shakhmayeva's
therapy. The funds for her treatment are raised.
10.08.2011 Sanzhima Lodoeva
completed the 6th cycle of chemotherapy with paclitera and carboplatin,
and she feels rather well. Colonoscopy showed that all is clear.
Her treating doctor recommended to check liver as well and referred
Sanzhima for oncomarker tests. Sanzhima's family is asking for help with
paying apartment rent.
09.08.2011 Serezha Maister
completed another cycle of chemotherapy. His blasts level is unchanged.
He was prescribed maintenance therapy with Purinethol,
Cyclophosphane and Dexamethasone. He feels rather well and on
weekends he stays at home.
09.08.2011 Based on MRI results,
Timofei Bychkov has improvement
with the lesion in his brain. He receives intravenous
Vfend and Meronem. In the next few days he will have a lumbar puncture.
09.08.2011 Alexei Nesterenko
is at the hospital again. He had worsening of infection in his lungs
and he shows signs of GVHD of lungs. He receives appropriate therapy.
09.08.2011 During lengthy cytopenia,
Vova Gusev developed pneumonia. He receives
Vfend and antibiotics. In a week he will go for control CT scan.
Based on control puncture, his bone marrow is gradually recovering
with its own cells.
09.08.2011 Lisa Belova's
condition improved and she was moved out of intensive care unit. GVHD of her skin
and liver was taken under control. All her blood counts are now normal, although she has
slight intestinal GVHD. She still needs medications to treat infectious complications:
Cymevene, Neocytotect and Vfend.
09.08.2011 Alena Azup
is continuing to recover after second transplantation. Based on control puncture, her
blast count is within norm. She continues having signs of skin GVHD. Swelling is now
controlled and she is taken off pain control.
09.08.2011 Milana Kuzhenova's
doses are being reduced. She feels well.
09.08.2011 Nadya Dorozhko
is being monitored as an outpatient. She has neurologic complications after
transplantation. It is difficult for her to walk and she has hand tremor.
Nadya needs long term therapy with neuromedin, thioctacid, lyrica and neuromultivit.
Her infections are under control, and she is in remission in regards to leukemia.
09.08.2011 Ira Finagina
is doing about the same: she feels rather well and her hormonal therapy doses are
being reduced. She still needs Vfend and CellCept.
08.08.2011 Vika Gladinets
underwent the first cycle of Dacogen. She feels rather well and is
getting ready for the second injection. Due to skin GVHD, she is
receiving hormonal therapy again.
08.08.2011 Vika Kolomytseva
is in cytopenia - all her blood counts plummeted and she has a fever.
Another infusion of navelbine had to be postponed. Vika receives blood
transfusions and antibiotics. As soon as she recovers, therapy will continue.
08.08.2011 Karina Kosareva
is in 72nd day after unrelated BMT. She is in remission and feels well.
She still needs Vfend and CellCept.
05.08.2011 Sasha Mylnikov
completed treatment. He is now recovering at Solnechnoe sanatorium.
05.08.2011 Olya Ilyuncheva
came for another evaluation at R. Gorbacheva Institute. Based on puncture
results, she is in complete remission, but her blood counts are low.
She has low hemoglobin and needs periodic R-mass transfusions. In
early November she will have to come for another series of tests.
05.08.2011 Serezha Vasiliev
is gradually recovering after a cycle of chemotherapy. He is stable and was
transferred out of intensive care. He still needs Vfend and entocort.
05.08.2011 Maxim Bannitsyn
was at R. Gorbacheva Institute for control tests. He is in remission in
regards to primary diagnosis, but he still needs Vfend and therapy
with immunoglobulin. The next evaluation is scheduled in 3 months.
05.08.2011 Seraphim Ovcharenko's
old fungal lesions are gone, but a new one appeared. It was decided to continue
therapy with Vfend (600 mg daily). The next tests are scheduled for mid-November.
Seraphim feels well and is in remission in regards to leukemia.
03.08.2011 Vlad Kitaisky
had examination: after two cycles of chemotherapy he has improvement.
Bone marrow has fewer cancer cells, and CT and MIBG images look better.
It was decided to administer two more cycles of chemotherapy with
slight modification of protocol.
02.08.2011 Dear friends! We URGENTLY
need blood donors B(III) Rh(+) for Rinata Haritonova,
the single parent of Anton, with grade II autism. Please help her recover
and come back to her son! You can donate blood for Rinata at the blood
transfusion unit of City Hospital 31. Unfortunately the hematology unit
of City Hospital 31 is closing on August 5, and Rinata is now in a bad
cytopenia, and yesterday she had a bleeding. If the doctors manage to
stabilize the situation before Friday Rinata will spend the time between
chemotherapy courses at one of the hospices in St. Petersburg, until
the hematology unit reopens. If blood counts don't rise to safe
figures Rinata might be transferred to the therapy unit.
02.08.2011 Follow-up PET for
Levon Karagezyan showed that the tumor has
decreased and the contrast accumulation intensity is now lower too.
The doctors consider it to be a late response to radiation therapy.
A couple of days ago Levon had a fever and was urgently hospitalized.
Ultrasound revealed a focus with fluid in his liver. It turned out to
be a hematoma which appeared because Levon is constantly on anticoagulants.
Therapy has been administered. The hematoma is decreasing in size.
Levon is feeling fine.
02.08.2011 Oksana Nosik
had the transplantation performed on August 1. All blood counts have
dropped but she is feeling ok.
02.08.2011 Katya Markova
had the transplantation performed. All blood counts have dropped.
Katya is feeling ok but is on pain killers due to a bad mucositis.
02.08.2011 A donor has been found for
Irina Redkova. Transplantation is
scheduled for August 28.
02.08.2011 Transplantation for
Vova Gusev is scheduled for August 19.
02.08.2011 Sasha Ustinov
has been discharged from hospital. He is taking Hydrea and Purinethol.
Once a week he is getting erythrocyte mass and platelets transfusions.
02.08.2011 Sergei Sharov
has been admitted to the Raisa Gorbacheva Institute of Children's
Hematology and Transplantology. Unfortunately the follow-up puncture
before the transplantation revealed blasts in the bone marrow, but
the doctors decided not to postpone the transplantation. Since Sergei's
aspergillosis is only susceptible to Noxafil he will have to take that
drug all through the transplantation and posttransplantation periods.
At present Noxafil is not available at the clinic. Sergei needs 6 bottles
a month, one bottle costs 40,000 roubles.
02.08.2011 The invoice for donor search for
Artem Karnishin has been paid by Artem's parents.
The search has been initiated.
02.08.2011 Egor Moskalenko
had his tracheostoma tube changed again. Unfortunately the granulomas
have started to grow again, so in two weeks Artem is to have a surgery
to remove them. Prior to the surgery he has to recover from the
viral infection.
30.12.2011 
