31.01.2012 Lyudmila Krasikova
was diagnosed with insufficient transplant function. She needs donor's
lymphocyte infusion. Infusion was scheduled for February 24th. We urgently
need to raise 2,500 euros for delivery of transplant.
31.01.2012 Sanzhima Lodoeva
feels well overall, and her legs no longer hurt or swell, except for
occasional bone aches. Her physician recommended another chemotherapy
cycle for February 17th. Sanzhima needs Paclitera and it costs 30,000 rubles.
Please help!
30.01.2012 Roman Belsky
responded very well to FLAG regimen and achieved remission. Hospitalization for the
second cycle of FLAG is planned for January 31. Based on preliminary search, Roman
has 11 potential donors at the international registry, and after a consultation with
specialists at R. Gorbacheva Institute, it was decided to initiate a search for the
matching donor. A bill will be issued shortly.
30.01.2012 Evgeniy Ostrovsky
is being monitored by hematologists in Vologda. Once a month he comes for tests
to St. Petersburg. Based on the last puncture, he is in remission, with 100% donor's
bone marrow engraftment. However, he is now having a fever, the reason for which is
being clarified. Vfend is still needed.
26.01.2012 Svetlana Kotova's
viral encephalitis was taken under control thanks to Octagam. Svetlana is
now better, and of her complications, the most problematic is severe mucositis.
She can barely eat and is in a lot of pain. She is in remission.
26.01.2012 Lyubov Subbotina's
transplantation took place today. Lyubov is now recovering. She still owes
registry for the donor search.
26.01.2012 Equipment for haploidentical transplantation for
Alla Korotich was purchased. She started pre-transplantation
chemotherapy. Alla feels relatively well.
26.01.2012 Denis Vasilashko's
transplant engrafted. He is in remission. However, he had serious issues with
liver, the cause of which could not be determined for a long time.
The right therapy has been found eventually, and Denis's bilirubin went down.
26.01.2012 David Arshakyan
is completing the 6th cycle of chemotherapy under HyperCVAd regimen.
He is in remission. A donor search is continuing. David really needs
help with paying for the treatment.
26.01.2012 Igor Mishin
is in the 4th day post-transplant. He still owes the registry
for the new donor search.
26.01.2012 Stas Pryakhin
needs Sprycel. The hospital is currently out of it, and applying for a
federal quota can take several months. Medication will have to be purchased
privately during that time. A pack of the medication that lasts a month
costs 200,000 rubles. Please help!
25.01.2012 Danya Zenevich
had drastic loss vision in one of his eyes. MRI is scheduled for tomorrow.
His hemoglobin and platelet counts are low still, and in addition Danya continues
having chronic skin GVHD. He is in remission. Noxafil was replaced by Vfend again.
25.01.2012 Varya Vlasova
feels well. She regularly comes for tests and undergoes maintenance chemotherapy.
Her liver indicators are stable now. Until February 15th Varya and her mom are staying
at Rehabilitation Center in Olgino.
25.01.2012 Vika Smirnova
underwent the third cycle of chemotherapy and she feels rather well. CT scan showed
reduction of tumor mass, and she only has one of four previously seen lesions remaining,
which has fluid in it. In 2-3 weeks Vika will undergo repeat CT scan and further
treatment will be determined.
25.01.2012 The clinic in Israel billed
Egor Moskalenko $48,815 for
plastic surgery of larynx.
24.01.2012 Zhenya Derenchuk's
condition worsened. It was decided to perform surgery followed by radiation
therapy. Surgery will take place at Burdenko Neurosurgery Institute in Moscow,
under federal quota. Zhenya can only travel by ambulance. Cost of
transportation is 72,000 rubles. Please help!
24.01.2012 Danya Lutokhin
underwent second cycle of chemotherapy. Based on PET, there is significant
improvement, as cells accumulate less contrast.
24.01.2012 Vova Telegin
feels well. He is now at the hospital where he had a cycle of chemotherapy
with Atriance. Once more cycle is planned. One cycle of Atriance costs
220,500 rubles. Vova is responding very well to Atriance. His blast
count dropped to 5% from 90%. To strengthen results, Vova needs DepoCyt
which will need to be imported. Tepadina, drug for transplantation,
was paid by AdVita fund using donations sent to all patients.
24.01.2012 Ruslan Kholmatov
is undergoing the 3rd cycle of maintenance chemotherapy. He feels well.
Ruslan can now speak Russian on a good level and he plays with other kids.
24.01.2012 Lera Bryukhacheva
completed the 3rd cycle of chemotherapy and her blood counts plummeted.
She receives hypoallergenic formula HAH. Lera's mom is asking for help
with buying diaper of size 3.
24.01.2012 Akop Gulabyan
feels much better. Cellcept was canceled, but Vfend is still needed.
Akop was discharged for outpatient monitoring.
24.01.2012 Dasha Nekozyreva
underwent planned tests. She is in remission, feels well, and skin GVHD
is under control. It was decided to keep Dasha on low doses of hormonal
therapy and Gleevec for some more time. Dasha returned home.
24.01.2012 Denis Trufanov
feels well and his blood counts are fine. However, he again shows signs
of minimal residual disease. If there is a progression, a new therapy
will be discussed. A matching donor was not found yet.
24.01.2012 Diana Vaschenko
is being transferred for monitoring and treatment at Pediatric Hematology,
Oncology and Immunology Center in Moscow. Planned tests showed that her
brain tumor is unchanged. Decision regarding therapy with cladribine
was not made yet. Diana feels well despite symptoms of developing
steroid diabetes. She is receiving appropriate therapy.
24.01.2012 Igor Zhuikov
was diagnosed with sepsis during an intestinal infection and he received
appropriate therapy. He is now in a stable condition and was transferred
out of ICU.
24.01.2012 Marina Devyatkova
successfully completed planned tests and photopheresis sessions and
returned home. The next session and tests are scheduled for March.
Marina feels well.
24.01.2012 Serezha Popov's
condition is unchanged. He is still on a ventilator with signs of kidney
failure, in a serious condition.
24.01.2012 On January 5th
Nika Baranova started the next chemotherapy cycle.
Her blood counts are still low, although she feels relatively well.
Nika's dad came to see her. Nika's parents plan to stay in St. Petersburg
during the maintenance chemotherapy. They rented an apartment and Nika's dad
is looking for a job in St. Petersburg.
20.01.2012 Natasha Nikitina's
disease is progressing. The old lesions grew, and multiple new lesions appeared.
Nevertheless, Natasha feels OK, although she takes analgesics at times. She
plans to go see her oldest daughter Lidochka, while she leases her apartment
in St. Petersburg.
19.01.2012 Due to appearance of blast cells in bone marrow,
Irina Redkova was taken off immunosuppressive drugs
and administered donor's lymphocyte infusion. As a result, she achieved remission.
Irina is under doctors' monitoring. Twice a week she goes for blood tests.
She has skin, eyes and mouth GVHD symptoms.
19.01.2012 On December 21, 2011
Adelya Faritova underwent bone marrow transplantation.
Adelya feels pretty well, and control puncture showed complete engraftment
of bone marrow, although there are symptoms of hemorrhagic cystitis.
18.01.2012 AdVita received an invoice for
Lera Bryukhacheva's treatment for 264504.19 roubles.
18.01.2012 AdVita received an invoice for
Ruslan Kholmatov's treatment for 107865.37 roubles.
18.01.2012 Arina Baboshina
is at the day patient facility, the date of the transplantation has not been
chosen yet. She is feeling ok. The girl still needs Noxafil.
18.01.2012 Anya Burilova
still has a chronic skin GVH reaction. She does hippotherapy and there is
progress in the treatment of acrocontracture, and her mood has improved
greatly too. The girl does very well at school.
18.01.2012 Serezha Popov
condition has become a lot worse, the boy is now on ALV and there are signs
of a kidney failure.
18.01.2012 Almira Tashmetova
is in Israel where she's had a medical examination but not all results are ready yet.
Based on the results the doctors already have they say that the
remission is "formal" and not stable. Additional tests are required.
18.01.2012 Karina Kosareva is at the
day patient facility with an eye GVH reaction, she's administered CellCept. The AIF
Dobroe Serdtse fund provided Karina with Vfend until the end of January. Starting from
February AdVita will resume raising the funds for Vfend for Karina.
18.01.2012 Roma Ignatovich had the
bone marrow transplantation performed as planned, everything went ok, Roma is now
in cytopenia. The girl still needs Noxafil.
18.01.2012 Katya Yastrebova
is at the day patient facility getting blood transfusions. The doctors are considering
the second bone marrow transplantation.
18.01.2012 Vladimir Maslennikov
is done with another maintenance chemotherapy course, he is feeling fine. The
decision on the bone marrow transplantation hasn't been made yet.
18.01.2012 Sasha Novokreschenov
is at home feeling great. The examination has been rescheduled to a later date.
18.01.2012 Stas Vasiliev
is feeling ok, the treatment is going as per the protocol. There were problems with
the venous access, so a "deep venous line" catheter was installed.
18.01.2012 Anya Andreeva
had a medical examination performed and photopheresis administered. She went back
home feeling fine. Noxafil hasn't been canceled yet.
18.01.2012 Anton Veretennikov
is still at the day patient facility, the doses of hormones are being
reduced gradually. The boy is feeling fine. Vfend hasn't been canceled yet.
18.01.2012 Alina Irganova has
fully recovered after the transplantation, discharged from hospital and transferred
to theday patient facility. The signs of a skin GVH reaction are still there butthe
response to the Enbrel therapy is quite good so the hormone doses are now
being decreased.
18.01.2012 Yulia Vodopianova
is still in hospital struggling with the cytomegalovirus. Vfend is still needed.
18.01.2012 Igor Kechkin
developed acute neurologic symptoms including impaired states of consciousness.
MRI revealed a focus in the brain so Igor has urgently been transferred to the
Polenov Research Institute for a diagnostic surgery and biopsy.
18.01.2012 Igor Zhuikov
got into intensive care, the reasons why his condition got dramatically worse
are to be found yet.
18.01.2012 Nikita Vasiliåv
has had a follow-up examination at City Hospital 31, everything is fine.
18.01.2012 Based on the matching results
Veronika Nikulina's brother can be her donor! There
is a potential problem with the weight difference between Veronika and her
younger brother,because the number of cells the doctors will be able to collect
from Misha might not be enough for the transplantation. Veronika is now
administered the second anti-relapsechemotherapy course, and altogether
there is going to be six of them. Once she's done with all of them Veronika
is going to have a full examination, and the doctors will consider a bone marrow
transplantation.
18.01.2012 Unfortunately, planned tests discovered that
Stas Pryakhin had a relapse. Stas will be hospitalized at
City Hospital No.1 for anti-relapse chemotherapy with Sprycel and several medications
that will be administered intrathecally due to signs of CNS involvement. Depending on
response, possibility of transplantation will be considered. Unfortunately, there are no
fully matching donors at the international registry.
17.01.2012 Elena Adamyants
feels rather well, but she was discovered to have Epstein-Barr virus
infection and suspected arthritis of hands. Elena receives appropriate
therapy and goes for regular tests.
17.01.2012 Diana Mishukova
completed a cycle of chemotherapy and radiation therapy. She feels rather well.
16.01.2012 Svetlana Kotova
developed an infectious complication. The doctors suspect viral neural
infection. There are also symptoms of toxic damage to liver. Sveta
is now in ICU where she receives appropriate therapy.
Blood counts are still low.
16.01.2012 It has been a year since
Lilya Klepikovskaya's transplantation!
She is doing well. She is supplied with Vfend by Grant Life fund.
16.01.2012 Nikita Burenkov
continues therapy for thrombosis and will be monitored by surgeons at
Pediatric Academy. He is in remission. Skin GVHD is progressing slightly,
but is controlled by hormonal therapy. Russian Help Fund provided Nikita
with Vfend for 4 months.
16.01.2012 Maxim Rybakov
still needs full doses of Ampholip and Noxafil. He feels well.
15.01.2012 Fedya Bolshukhin
is on a ventilator and receives all necessary treatment, but is still in a critical
condition. Unfortunately, he developed bedsores. As his blood counts are more stable,
the doctors allowed turning him over every two hours to heal existing bedsores and
prevent appearance of new ones.
15.01.2012 Lera Bryukhacheva
rested at home until January 8th. She then returned to the hospital and resumed
chemotherapy. She feels great and her tummy is almost not enlarged. Lera is learning
to crawl and tries very hard. She is making progress.
15.01.2012 Zhenya Derenchuk
completed the 4th cycle of chemotherapy. With his dad's help he tries to get up
and walks a little. In the next few days further treatment will be discussed.
Radiation therapy is being considered.
15.01.2012 Just before the New Year, Ruslan Kholmatov
was allowed to spend a few days outside the hospital. Ruslan was very happy and felt great!
On January 10th Ruslan returned to the hospital to continue therapy.
13.01.2012 Igor Karev
returned to St. Petersburg and continued his treatment at Berezin Institute.
He is undergoing the 3rd cycle of chemotherapy. If his blood counts allow,
he will start the 4th cycle right after.
Igor feels well and his temperature is normal.
12.01.2012 Nastia Pogrebnaya
is still at the hospital. Based on control puncture, bone marrow engrafted,
but she developed serious complications. She receives appropriate therapy.
12.01.2012 Danya Zenevich
is being monitored as a day patient. His skin GVHD is improving. Danya receives
therapy with Enbrel and CellCept, as well as hormonal therapy. Noxafil is still needed.
12.01.2012 Based on Lesha Laptev's
control puncture, percentage of donor's bone marrow increased somewhat, to 50%.
Blood counts are low for now. Lesha feels rather well.
12.01.2012 Roma Aseev
continues therapy for intestinal GVHD with medications, such as Campath, Enbrel
and hormonal drugs. His skin GVHD is almost completely under control. Roma feels
well, but Vfend is still needed.
12.01.2012 Based on planned tests,
Nastia Dominikova's
minimal residual disease indicators have increased. She was prescribed
purinethol and methotrexate. In addition, donor's lymphocyte infusion
is planned to prevent a relapse. Nastia is now undergoing consultations
in regards to fingers' contracture (hand deformity) and surgery is being
considered.
12.01.2012 Vova Gusev
is being monitored as a day patient. He receives blood transfusions and feels well.
A doctor's Board is planned to discuss repeat bone marrow transplantation.
12.01.2012 Levon Karagezyan
will undergo 6 cycles of chemotherapy with trabectedin. Yesterday Levon had the
first infusion.
12.01.2012 Unfortunately, planned tests at the
end of December discovered that Volodya Telegin
had a relapse. Volodya is now undergoing anti-relapse cycle of chemotherapy at
City Hospital No.31. The bill for tepadina was paid from donations sent to all
patients. As soon as Volodya achieves remission, transplantation will be
performed immediately.
12.01.2012 A donor for Artem Karnishin
was found and transplantation scheduled for January 20th. The money for delivery of
transplant was also raised.
12.01.2012 On January 11th Lera Sukhoverkhova
underwent haploidentical transplantation from her mother.
12.01.2012 Slava Zhikharenko
had a very good response to therapy with revlimid and bendamustine. Visually, no lymph
nodes are seen. Slava is now undergoing the second cycle and he tolerates chemotherapy
very well. After finishing the second cycle he will have planned evaluation and discussion
of further treatment.
12.01.2012 Egor Moskalenko
returned home from Israel after evaluation, injection of cidofovir and
surgery to remove papillomas. He may need plastic surgery of his throat.
It will be determined upon evaluation and doctors' meeting in March 2012.
11.01.2012 We received a bill for SGN-35 for
Anna Marchenko.
The cost for 6 vials is 965,147 rubles.
11.01.2012 Fedya Bolshukhin
was urgently operated. He had intestinal bleeding at the post-surgical
scars and intestinal paralysis as complication after Vincristine therapy.
Fedya is currently at ICU. He had feeding tube and colostomy installed.
During surgery, Fedya had severe blood loss and he is receiving blood
transfusions. Due to intestinal bleeding, Fedya needs NovoSeven medication.
He is in a critical condition.
08.01.2012 Petr Mikhailov's
relatives were able to raise the full amount needed for donor search, and
the donor search was started. Petr still needs help with raising funds
for delivery of transplant. He is continuing maintenance chemotherapy
and it will continue until a donor is found. Petr does not feel well due
to high blood pressure, constant fatigue and weakness.
08.01.2012 Evgeny Shumakov
is being monitored by hematologists in Tula. He is on maintenance
chemotherapy and his blood counts are good. The fundraising is going
slowly, and the first installment to the registry has not been made yet.
08.01.2012 Victor Uryadnikov
is being monitored by hematologists locally, in Yaroslavl, and his
blood counts are low. Therapy with Dacogen (possibly, self-pay) is being
discussed to control blast growth until transplantation. The funds
for the first installment to the registry of 5000 euros were raised,
but additional 10,000 euros are required to pay for harvesting of
bone marrow from a donor, and 2500 euros for delivery of transplant.
08.01.2012 Oleg Gagulin's
friends and relatives were able to raise the full amount of money to pay
the bill from the registry. The donor search was started. Now Oleg
needs to raise money for delivery of transplant. He is undergoing
intensive chemotherapy according to anti-relapse protocol
locally, in Samara.
08.01.2012 Marina Dobrova
is being monitored at Pediatric Academy in St. Petersburg. Twice a month
she receives immunoglobulins, and she feels relatively well.
08.01.2012 A donor search for
Victor Didenko was started. Victor needs to
raise 9,000 euros to pay off the bill, as well as 2500 euros
for delivery of transplant. Victor is now monitored at City Hospital
No.31 where he receives maintenance chemotherapy and blood transfusions.
He feels relatively well.
08.01.2012 Igor Mishin
got ulcer and pre-transplantation chemotherapy was postponed. He is now in
a stable condition and was scheduled for complete evaluation. The results of
it will be used to discuss possibility of chemotherapy and a new date
for transplantation. There is a chance that transplantation may be
performed as previously planned. A donor was found urgently, on a loan,
under financial guarantee from AdVita fund, and we urgently need to pay
14,500 euros to the registry.
08.01.2012 It was decided to perform another
donor search and transplantation to Oksana Nosik
from a different donor. A bill for 14,500 euros was issued and it needs
to be paid as soon as possible.
08.01.2012 German doctors recommended
Maxim Rybakov to continue conservative
therapy with Ampholip and Noxafil. Maxim returned to St. Petersburg
and will be monitored at R. Gorbacheva Institute. Monthly cycle of
Ampholip and Noxafil costs 900,000 rubles. Help is still needed.
08.01.2012 Levon Karagezyan
was diagnosed with a relapse. Levon is now undergoing evaluation at The
Harley Street Clinic in London.
08.01.2012 Marina Knyazeva
fully recovered after surgery. Based on test results, she is in
remission and feels well. She plans to return to work. Marina will be
monitored at Petrov Oncology Institute.
07.01.2012 Ksenia Yakovenko
feels great, plans to start attending a gym and began studying English
by herself.
07.01.2012 Roma Ignatovich
started pre-transplantation chemotherapy on January 3. Roma is tolerating
it well for now. Transplantation is scheduled for January 12th.
Noxafil is still needed.
07.01.2012 Albina Bostanova
is undergoing the 4th cycle of anti-relapse chemotherapy. She feels rather
well and her temperature is normal. However, she is very tired of treatment.
A donor search was paid for, but a donor was not yet found.
06.01.2012 Olga Shmygleva
finished the 3rd cycle of bendamustine. She does not feel very well.
06.01.2012 Based on Alesha Laptev's
puncture results as of December 20th, donor's bone marrow engrafted at 30-40%.
On December 30th Alesha received donor's lymphocyte infusion. Blood counts
are still very low. Lesha is on continuing blood component transfusions,
and receives antibiotics, antiviral drugs, Vfend, ampholip and Octagam.
He feels rather well, eats by himself and has no mucositis or fever.
03.01.2012 Olya Shmygleva
had two cycles of therapy with bendamustine. She has improvement: the lesions
in her liver and lungs are smaller and take up less contrast. The plan is to
administer 6 cycles of bendamustine locally.
02.01.2012 Dina Samigullina
is doing well, except for mild mouth GVHD. In February 2012 she and her
mom plan to come to St. Petersburg for control tests.
01.01.2012 Lera Bychkova
finished a cycle of therapy with antibodies. It was not easy, but still
better than the first one. The next cycle is scheduled for January 23rd.
On January 6th Lera and her mom plan to travel home.
01.01.2012 Based on last test results, close to 50% of
Nadya Chernoknizhnaya's brain tumor disintegrated.
The tumor is responding well to chemotherapy.
31.01.2012 
