06.09.2010 Natalia Nikitina
finished another chemotherapy cycle. She had great results: complete remission!
Natasha needs to undergo two more chemotherapy cycles.
06.09.2010 Sanzhima Lodoeva
did not tolerate chemotherapy well. This week, she will need to start the second cycle.
Sanzhima will need financial help again. Her daughter Natasha will be very grateful for any job offers.
03.09.2010 Vika Polukhina
came to St. Petersburg for examination and surgery at Pediatric Academy.
Vika is a student at St. Petersburg's Informations Technology, Mechanics and
Optics University, but she had to take a medical leave for this year.
She has to use crutches for now.
03.09.2010 Health Ministry of Ukraine
approved payment for Vika Donina's
transplantation. However, Vika still owes 1,000,000 rubles to
Russian Medical Science Academy where she is undergoing
chemotherapy.
02.09.2010 Ira Nikonova
underwent surgery at Oncology Research Institute to remove
tumors on her leg.
01.09.2010 Kirill Vazhenin
completed five cycles of immunosuppressive therapy and he has three more
cycles to go. It means Kirill will stay in Italy for at least two more months.
He is still planned to participate in the clinical trial
with radioimmunotherapy.
31.08.2010 Yulia Dikan
underwent the 11th re-induction without complications. The next hospitalization
is planned for September 10th.
31.08.2010 AdVita Foundation initiated fund-raising
for the treatment of Marina Gofman.
27.08.2010 Andrei Malozemov
completed the third chemotherapy cycle. He had recovered and went home to
recover. In September he will need to undergo PET imaging that costs
25,000 rubles.
27.08.2010 Nastia Gordeeva
has 48% of blasts in myelogram. She will likely continue chemotherapy.
27.08.2010 Inna Shakhmayeva
breathes on Mark IV stimulator for four hours already. The doctors told us
that once she can breathe on it the whole night, we would be able to go home.
Training will take two more weeks. Inna is also undergoing a course of
therapy to restore her immune system and intestinal microflora.
26.08.2010 Artem Revyagin
had a relapse. Urgent haploidentical transplantation from one of the
parents is under discussion. Artem's mom was already typed, and his father
was called in and he will be tested on Monday. The donor search at the
registry is put on hold for now. Artem's family will need close to 500,000
rubles to pay for the special equipment.
25.08.2010 Arseny Provorov
developed bacterial sepsis. He is receiving colistin and is now in a
stable condition.
25.08.2010 Based on control puncture results,
Andrei Turik is in remission and he feels well.
25.08.2010 Sergei Ozerov
is recovering after bone marrow transplantation.
He was prescribed Vfend (400 mg a day).
25.08.2010 Sasha Obertyuk
has two new lesions with contrast uptake.
Radiation therapy is being discussed.
25.08.2010 Serezha Kalmykov
recovered after transplantation and was discharged for outpatient monitoring.
He feels well.
25.08.2010 It has been 100 days since
Kirill Lukoyanov's transplantation.
He is undergoing complete examination. Kirill feels well.
25.08.2010 Dima Kobzev
was prescribed MabThera medication that costs 118,000 rubles to treat
chronic GVHD. Please help Dima.
25.08.2010 Sasha Vjunikova
was found to have two neoplasms. Their nature is not yet established.
A surgery to biopsy the tumors was scheduled. The puncture results are
normal and there are no blasts. However, Sasha suffers from severe
pain syndrome.
25.08.2010 Ira Nikonova
has a neoplasm on her leg. She is being referred back to Oncology Research
Institute for more tests.
25.08.2010 Yuliana Rozhkova's
condition is critical: she has sepsis and is on artificial lung ventilation.
She receives antibiotics and antifungals, but has not responded to treatment
yet.
25.08.2010 Gulyuzum Tuisina
is going home to continue therapy locally. She takes Tacrolimus and hormones,
and hormonal therapy dosage is gradually decreasing. The next examination
will be next month.
25.08.2010 Vika Voeva
is recovering after the second chemotherapy cycle. She feels rather well
but in cytopenia for now. She is continuing Vfend therapy and takes
medications for heart support.
23.08.2010 During aphaeresis, the doctors
failed to collect enough stem cells from Ira Nikonova's
bone marrow. Tomorrow the procedure will be continued. Ira feels unwell.
She got a new tumor in her leg. Ira's family is in a financial catastrophe,
and Ira and her mom do not have any warm clothes with them.
23.08.2010 Vika Smirnova
still needs regular blood transfusions.
20.08.2010 Vanya Chernozub
completed the last chemotherapy cycle! Now the cancer treatment is over.
A debt of 30,000 euros for Vanya's treatment needs to be paid off. He also
needs to check his eyes and ears, Ommaya reservoir needs to be taken out
and he needs general checkup and MRI. This will require additional expenses.
Please help!
20.08.2010 Nastia Agapitova
underwent brain MRI: all is well, no significant change.
20.08.2010 Ksyusha Khomenya's
remission was confirmed. She successfully passed college entrance exams
and enrolled into the first year.
20.08.2010 Based on test results,
Serezha Orlov is doing well. The next
checkup is scheduled for October.
20.08.2010 The doctors were unable to collect
sufficient volume of stem cells from Ira Nikonova
for autologous transplantation. Ira and her mom live at the rented
apartment. Twice daily they come to the clinic for stem cell stimulation
with Neupogen. On August 23rd Ira is scheduled for collection of cells
by aphaeresis, without the surgery. Ira does not feel very well.
20.08.2010 Diana Mishukova
underwent second cycle of chemotherapy and feels well. The MRI showed that
her tumor shrank in three times.
19.08.2010 Egor Egorov
underwent a scheduled cycle of chemotherapy with some complications.
He is planned to have two more cycles of chemotherapy.
18.08.2010 Nilufari Sharifbek
has had a complex examination and went back home.
The girl is feeling great.
18.08.2010 Husein Turaev
has a sepsis after the second chemotherapy course and urgently needs
Meronem and Pentaglobin.
18.08.2010 Ira Grushevskaya
came to St. Petersburg for scheduled examinations.
18.08.2010 Misha Nikitin
is feeling fine, puncture results testify to a remission.
Brain MRI scan is scheduled for August 23.
18.08.2010 Marina Devyatkova
is feeling ok but her hemoglobin count is low. She has been prescribed
Erythropoietin. Marina is now administered photopheresis once a month,
and the last session is scheduled for September. The situation with the skin
GVH reaction is gradually improving.
18.08.2010 Dasha Nekozyreva
is feeling ok. She comes to hospital twice a week for tests. Otherwise she's
spending much time outside with her mother and is glad her diet is not so
strict any more. At the end of August or beginning of September Dasha
is to undergo a photopheresis course.
18.08.2010 Sasha Novokreshchenov
was prescribed immunosuppressive therapy and hormones. Immunosuppression
resulted in decreased ALT and AST counts. Sasha should also undergo
photopheresis shortly.
18.08.2010 Sergei Didukh
came back from Moscow on August 17 to continue with the treatment. He is in
for and autotransplantation.
18.08.2010 Anton Gasnikov
is feeling fine, the blood counts are normal, he is now in day hospital.
18.08.2010 Sasha Bykova
had a spontaneous pneumothorax aggravated by bacterial sepsis. She is on ALV.
She badly needs Cansidas - one bottle per day. One bottle costs around 18,000
roubles.
18.08.2010 Yuliana Rozhkova
was admitted to hospital due to a dramatic decrease of the amount of oxygen
in blood. The girl is on ALV and the doctors are trying to find the reasons.
18.08.2010 Tanya Suchkova
has been administered a course of Holoxan and there are positive dynamics.
Another course is planned. Tanya is now at hospital. She is feeling ok except
for a bad cough.
18.08.2010 German Kuzmin
is done with the basic chemotherapy course and is now at home on a maintenance
protocol. His basic disease is in remission.
18.08.2010 Dima Ivanov
has been discharged from hospital and is feeling fine. He will need regular
examinations but Pegasis has been canceled.
18.08.2010 For the first time hepatitis test results for
Kolya Karpov are negative. In order to consolidate the
results Kolya will have to take Baraclude for another few months.
18.08.2010 Natasha Plakhina
still has manifestations of liver GVH reaction, she is administered Mabtera
and hormones. The girl is feeling fine.
18.08.2010 Egor Patsera
is done with the basic treatment course and is now in remission. He is at
home in Podporozhie, where he is administered maintenance therapy under
the doctors' control.
18.08.2010 Alena Azup
came for examinations which revealed a chronic skin GVH reaction.
Treatment therapy has been prescribed, and the next examination has
been scheduled for September. Alena is feeling fine.
18.08.2010 Kostya Makoveev
is still administered maintenance therapy. Since examination testified
to changes in the lung tissues again Orungal has been substituted by
Vfend (400 mg per day).
18.08.2010 Galina Molodtsova
has been discharged and went home where she will be controlled by local
doctors. Examination results are good.
18.08.2010 Milana Kuzhenova
had intestinal and skin GVH reaction (grade IV). The doctors managed to cope
with the problem. At present only residual effects of GVH reaction remain
on mucous membranes. Milana is now in hospital under the doctors' control
and is feeling ok.
18.08.2010 Gayane Vardanyan
is administered maintenance therapy at home, and a matching donor hasnot
been found yet.
18.08.2010 The surgery on the second pelvis joint for
Nastia Chipak has been postponed till autumn. Nastia
is feeling fine.
18.08.2010 Dasha Smetanina
had an autotransplantation. Due to a weak immunity system the girl now has
bacterial sepsis. She is in intensive care on ALV. We need help to be able
to hire a nurse.
18.08.2010 Danya Pavlov
has emerged from the coma caused by meningitis, but the left side of his
body is not functioning and the boy cannot see. He badly needs diapers
No. 4 and 5.
18.08.2010 Slava Egorov
came to St. Petersburg for a bone marrow transplantation. The boy is
feeling fine.
18.08.2010 Sasha Agapitov
has been discharged after the transplantation to a day patient facility.
There appeared the first manifestations of a skin GVH reaction. Sasha is
feeling fine and his blood counts are good.
18.08.2010 Anya Fedotova
undergoes photopheresis therapy monthly. In August Anya's hemoglobin
dropped to 79. Anya needs help from blood donors with blood type
B(III) Rh(+). Anya again has dehydration in severe form, and her blood
pressure has been unstable.
18.08.2010 Sanzhima Lodoeva's
oncomarker grew drastically. She needs Paclitaxel urgently.
17.08.2010 Nastia Burkova
had a relapse of aplastic anemia. She needs to undergo a second cycle of Atgam,
and possibly also bone marrow transplantation in the future. Nastia
currently needs financial help to pay for renting an apartment in St. Petersburg,
medications and expensive tests.
17.08.2010 It has been a year since
Anya Kudryavtseva's transplantation. She feels OK
and is now in St. Petersburg where she will undergo tests.
17.08.2010 Ivan Nechaev
is treated as a day patient. His test results are good. He has residual
skin GVHD and the doctors are planning photopheresis.
17.08.2010 Vika Smirnova
received additional stem cells. Her blood counts are still low. She receives
Neupogen and needs regular platelets transfusions. She is now at home, but
comes to the clinic for procedures and tests. She feels well, has great
appetite and is in a happy mood.
17.08.2010 AdVita Foundation initiated fund-raising
for the treatment of Arseny Provorov.
13.08.2010 Denis Osokin's
bone marrow test results are good. Leukocyte count has increased, and
platelets are close to norm. However, CT scan showed that fungal
infection in his lungs is not completely cured.
Denis still needs Vfend therapy.
13.08.2010 Alla Sinkevich
completed the first cycle of chemotherapy at Oncology hospital at pr. Veteranov.
She did not tolerate it well. She is now at home and feels unwell due to serious
side effects. Alla is scheduled for control tests on August 31. It is not yet
known when Alla will undergo the second chemotherapy cycle, as she is seriously
malnourished.
12.08.2010 AdVita Foundation initiated fund-raising
for the treatment of Igor Sheetik and
Vaan Muradyan.
11.08.2010 A decision was made to initiate the
unrelated donor search for Denis Trufanov at
the international registry. An invoice was requested.
11.08.2010 Marina Tukan's
mother's cells did not engraft after transplantation. She is now planned
to undergo cell transplantation from her father, which means one more set
of equipment for haploidentical stem cell transplantation needs to be
purchased, while they still owe for the set for previous transplantation.
Help is needed urgently, as Marina has been in cytopenia for a long time,
and it may cause very serious complications.
11.08.2010 Danya Golovkin
responded well to a chemotherapy cycle. It was decided to refer him for
second bone marrow transplantation, this time from his mother. Danya's
parents will need to pay close to 500,000 rubles for the special equipment
to process donor's stem cells. The invoice will be issued in a few days.
11.08.2010 After infusion of donor's lymphocytes,
Dasha Palnikova's donor's bone marrow content
rose to 40%. Additional donor's lymphocyte infusion is planned.
Dasha feels well.
11.08.2010 Evgeniy Andrianov
will need to pay 500,000 rubles for the special equipment to process donor's
stem cells. The invoice will be issued in a few days.
11.08.2010 Anya Golubyatnikova
is improving. She is now hospitalized at Pediatric Hematology & Transplantology
Institute for nk-cell infusion. She feels well.
11.08.2010 Lisa Evdokimova
needs to undergo surgery to remove lesions. Next week she is expected for a
consultation with a surgeon in Moscow. If they cannot operate, she will
need to travel to the UK for the operation.
11.08.2010 Katya Ganke's
condition worsened. She is now looked after by hospice specialists.
11.08.2010 Stas Chernobilsky
had disease progression. He is in a coma.
11.08.2010 A donor for
Grisha Barchenko was found, but his parents refused
transplantation. Grisha is now at home. He is in remission, but has intestinal
problems, based on a preliminary diagnosis they are caused by
ulcerous colitis.
10.08.2010 Gulnaz Isyandavletova
was confirmed to be in complete remission. She is now at home where she is
undergoing maintenance therapy. The next consultation is scheduled in
three months.
10.08.2010 Dima Ustinov
underwent two cycles of photopheresis and he feels well.
He is now at home. The next checkup is scheduled for September.
10.08.2010 Nikita Alekseev
is undergoing a final chemotherapy cycle under the protocol.
Afterwards, he will have full examination.
10.08.2010 Ira Alexeeva
underwent 5-day course of radiation, with good results. On one of her eyes,
all lesions are gone, and the other one has a single inactive lesion.
She is now at home. Ira feels well and sees well too. Her control tests
are scheduled for October 5th.
10.08.2010 Zhenya Ivanova
had a relapse. She is now undergoing radiation therapy.
Her documents were forwarded to several clinics for consultations.
10.08.2010 A donor for
Serezha Maister was found, and transplantation
was scheduled for August 26th. Prior to that date, Serezha needs to
undergo dental treatment and be examined by otolaryngologist.
10.08.2010 Denis Osokin
feels rather well. He still needs Vfend.
10.08.2010 Nastia Sluchaeva
did not respond to Atgam therapy. In September - October she will undergo
a second cycle.
07.08.2010 Vanya Chernozub
recovered after pneumonia and started the final cycle of maintenance therapy.
The debt to Helios clinic is 9,111 euros as of August 4th. This amount does
not include the final chemotherapy cycle. Please help this little boy!
07.08.2010 Yulia Dikan
underwent re-induction cycle without complications. Next hospitalization
is planned for August 9th.
06.08.2010 Sasha Novokreschenov
is taking medications to protect his liver function, and also continues therapy
on his eyes. The puncture results were good, but he again got minimal residual
illness.
06.08.2010 Gulyuzum Tuisina
was diagnosed with GVHD in liver and was prescribed hormonal therapy.
The blood tests are now showing decrease in bilirubin, so the hormonal doses
are being gradually reduced. Gulyuzum feels well.
05.08.2010 After Andrei Turik
was taken off immunosuppressive therapy, blasts went down to 2% based on
repeat puncture. Control puncture will take place in two weeks.
05.08.2010 Nastia Dominikova
was found to have cytomegalovirus and aspergillosis infection in lungs.
She was prescribed Valcyte in addition to Vfend. Nastia feels relatively well.
She coughs a little, but does not have high temperature. With hormonal
therapy, Nastia became less active or happy. In a few days
Nastia will undergo CT scan of lungs.
05.08.2010 AdVita Foundation initiated fund-raising
for the treatment of Victoria Donina.
05.08.2010 Ira Nikonova
was referred for a consultation and autologous bone marrow transplantation
at R. Gorbacheva Pediatric Hematology & Transplantology Institute.
Today she underwent tests. All is well, except for a crack in her bone
at the joint with endoprosthesis that was found during tests.
On August 9th Ira will be expected at the clinic for stem cell
collection.
05.08.2010 Nastia Gordeeva
responded well to Dasatinib therapy. The level of blasts dropped to 1%.
04.08.2010 Karina Panikhidina's
bone marrow from a donor never engrafted. Today Karina had the third stem cell
infusion. She is not feeling well and suffers from leg pains.
04.08.2010 Olya Ilyuncheva
underwent planned tests. The next checkup is scheduled for the end of September.
Olya has sustained remission and donor's bone marrow is functioning well.
She is planned to start taking lower doses of Dasatinib.
Olya also need to continue liver treatment. She feels well.
04.08.2010 Misha Volkov
was prescribed Vfend again. In addition, he takes Purinethol and Methotrexate.
The boy does not tolerate maintenance therapy well. He does not feel well
and cannot sleep properly, possibly also due to heat. He is in remission
in regards to leukemia.
04.08.2010 Vanya Novoselov
is undergoing the second chemotherapy cycle. Vanya feels rather well.
04.08.2010 Nino Utiashvili
had completed three cycles of chemotherapy out of six expected. Nino is not
tolerating them well. She has serious side effects: psoriasis and severe
stomatitis. Nino is very depressed. She is having nervous breakdowns and
is very fatigued.
04.08.2010 Vika Dolgova
is still being monitored as an outpatient at the clinic. She feels well.
Of the expensive drugs, she takes Cyclosporine and Vfend.
04.08.2010 Gosha Makarenko's
bilirubin level is not going down yet. He was prescribed additional drugs.
Gosha was referred for bronchoscopy to determine the nature of the lesions
in his lungs. He feels well and still takes Vfend, Heptral and Albumin.
04.08.2010 Denis Bychkov
is now at home. He takes Reaferon and waits for the donor to be found.
His blood counts are good and he feels rather well. Unfortunately,
there is no money to pay for the donor search.
04.08.2010 Based on PET imaging results,
Slava Zhikharenko still has a lesion in his chest
that is not, however, accumulating contrast. He is planned to have a biopsy
of the lesion to determine its nature, as well as immunohistochemistry and
tests for viruses. Slava feels great and he is enrolled into Alexandrovsky
school.
04.08.2010 Alina Valiakhmetova
is now undergoing chemotherapy in Ufa. The procedure at Military Medical
Academy is scheduled for September. The cost of therapy is estimated at
250,000 rubles for one lung. Alina's family needs financial support.
04.08.2010 Igor Krivchuk
was hospitalized at R. Gorbacheva Pediatric Hematology & Transplantology
Institute. Haploidentical transplantation from his mother is scheduled
for the end of August.
04.08.2010 Pasha Chizhikov
completed two cycles of chemotherapy at R. Gorbacheva Pediatric Hematology
& Transplantology Institute. He then had radiation at Petrov Oncology
Research Institute. Next week he will be admitted to R. Gorbacheva
Pediatric Hematology & Transplantology Institute for autologous bone
marrow transplantation. Test prior to radiation therapy showed very
good response. Pasha feels well.
04.08.2010 Alladin Gasanov
was taken to Therapy Unit of State Medical University with fever. He is in
remission in regards to lymphoma. Mycology tests showed improvement,
but Alladin still needs to take Vfend.
04.08.2010 Marina Tukan
is still in cytopenia. She does not feel well due to stomatitis.
She cannot eat and is very fatigued. Several times she had fever and her
catheter was replaced.
04.08.2010 Alexander Borisenko's
friends and relatives were able to raise and transfer additional 4,000 euros
for bone marrow donor search. Sasha is now in Moscow, he is in remission.
Unfortunately, during treatment he was found to have thrombosis at the heart
valve wall. Sasha is now taking Clexane to dissolve the thrombus. He also
has residual effects of a stroke. Other than that, he feels relatively well.
He was switched to Orungal from Vfend.
02.08.2010 Ludmila Krasikova
is now at home. Twice a week she goes for blood tests and to see a doctor.
She is in a satisfactory condition. Ludmila still needs to take Vfend.
02.08.2010 Gosha Makarenko
has GVHD in his liver and has high bilirubin. He needs therapy with Heptral.
CT scan of his lungs showed changes, and Gosha is receiving Cancidas.
Overall, he is in a good condition. Gosha stays at the day hospital.
02.08.2010 Oksana Gladunova
has problems with liver GVHD (although she is improving), high blood pressure
and swelling. However, blood counts are increasing, and Oksana was allowed to
eat and walk a little to work on her leg muscles.
02.08.2010 Yulia Kolomeets
completed the second cycle of chemotherapy. She was discharged home in
satisfactory condition. She is feeling better: she is getting her appetite
back, smiling, and playing.
02.08.2010 Akop Gulabyan's
condition improved and he can now walk. He is monitored as an outpatient.
Akop takes Cellsept, Quamatel, Valcyte, and Prednisolone.
02.08.2010 Vitaly Vorontsov
underwent high-dose chemotherapy and achieved remission. He will be discharged
for recovery and maintenance therapy in Omsk.
02.08.2010 Katya Saifutdinova
underwent transplantation. Katya does not feel very well. She cannot eat well
due to nausea. Her bilirubin count increased.
02.08.2010 Nilufari Sharifbek
is undergoing control tests. CT scan showed no lesions.
Nilufari feels well.
02.08.2010 Lesha Nesterenko
is monitored as an outpatient. His skin GVHD is now stable, but he continues
photopheresis therapy. The last puncture results showed chimerism
of 90-95%.
02.08.2010 Aleksei Krinichenko's
friends and relatives raised and transferred 5,000 euros to Morsch registry.
The donor search was initiated. Aleksei went home to continue
chemotherapy.
02.08.2010 Vika Smirnova
needs regular blood transfusions. We need help from blood donors
with blood type I(+).
02.08.2010 Danya Malygin
needs an unrelated bone marrow donor. His sister did not
match as a donor.
02.08.2010 Sasha Obertyuk
feels well and gained some weight. He continues going to the clinic for IV
infusions daily. Sasha receives an antibiotics, Cymeven, and gradually
his cyclosporine doses are decreasing. Sasha still takes Vfend. The
pulmonologist decided to continue therapy for lungs with Pulmicort and
Hemomycin. Control CT scan is scheduled for August 9th.
30.07.2010 Yan Korchenkov
feels great. He comes to the clinic once a month for monitoring.
Yan can eat practically anything. He started speaking in sentences,
and is catching up in development that was delayed by treatment.
30.07.2010 Sasha Sheligan
is in remission. In September he will undergo control tests. Sasha had
therapy for bronchus and lungs, had CT scan of lungs and visited a
TB specialist. His results are good. Sasha feels well and is in a
positive mood.
30.07.2010 Ramil Bulatov
suffers from stage III skin GVHD. He underwent six courses of plasmapheresis
and has one last one left to go. He also developed necrosis of hip and
shoulder joints. Ramil was prescribed Zometa and Miacalcin.
Ramil lost weight and has not been able to gain it back.
30.07.2010 Kirill Lukoyanov
feels well. The test results and puncture results were good.
Transplanted stem cells are working well. He has a good appetite, goes
for walks and is in a good mood.
30.07.2010 Today Olga Kovaleva
underwent bone marrow transplantation.
30.07.2010 Nastia Sluchaeva's
therapy with Exjade to lower iron levels will be postponed (iron levels have
not grown significantly compared to the previous test results).
Nastia feels well. Her hemoglobin count is 83 g/l.
30.07.2010 It has been six months since
Dinara Samigullina's transplantation.
Dina feels well. Her platelets are low, but for now she does not need
a transfusion. Dina had some issues with her mouth and GVHD of mucous
tissues is suspected, but she is now better. Dina and her mother
will travel to St. Petersburg for control tests after August 10th.
29.07.2010 Dasha Smetanina
started pre-transplantation chemotherapy. Dasha and her mom still need
financial help.
28.07.2010 Vika Smirnova
still has elevated temperature (37.2C). Other than that, she feels well
and is in a good mood. Her stomatitis is almost gone. Vika receives
platelet transfusions, and she needs help from blood donors with
blood type I(+).
28.07.2010 Andrei Malozemov
feels much better. He is resting between the chemotherapy courses,
and spends a lot of time outside and biking. Andrei will go for a
consultation at R. Gorbacheva Pediatric Hematology & Transplantology
Institute. Collection of stem cells for autologous transplantation will
be discussed.
28.07.2010 Serezha Ozerov
came to St. Petersburg with his mother. He is now undergoing tests.
On Friday, he will be hospitalized. Bone marrow transplantation is
scheduled for August 12.
28.07.2010 Stas Pryakhin
is undergoing the final cycle of chemotherapy. He feels unwell and suffers
from mucositis. After chemotherapy he will be on maintenance therapy
until October when transplantation is scheduled.
28.07.2010 Miroslava Petrinina
completed radiation therapy. The clinic billed Mira's parents for the next
treatment stage, six chemotherapy cycles, for 30,000 euros.
As of today, only 4,000 euros have been raised. The help is much needed.
27.07.2010 Volodya Maslennikov
is now at home, but he is monitored by a hematologist and mycologist.
He takes Vfend (600 mg a day). In the next few days, he needs to undergo
CT scan on 4 zones, and in September Volodya will need to go for PET.
27.07.2010 Dasha Nekozyreva
is monitored as an outpatient. Her leukocytes are little low, but this is
due to decrease in the hormonal therapy doses. Overall, Dasha feels well.
She goes out, reads and draws.
27.07.2010 Ivan Nechaev
has had fever for four days. He feels weak in his legs and cannot walk.
Ivan does not eat well and has no appetite.
27.07.2010 Volodya Kurdyukov
feels better. He is still bothered by GVHD in his eyes. He will be allowed
to go home for two months. In October he will need to return for a course
of photopheresis and control tests.
27.07.2010 Anton Koltunov
is in intensive care unit on artificial lung ventilation. He is in remission
in regards to his primary diagnosis, and GVHD is stable. However, he has
very high titer of hepatitis C. Anton received four courses of plasmapheresis,
and continues therapy with antiviral drugs and drugs to protect
liver function.
27.07.2010 Dasha Palnikova
recovered after transplantation with blasts in her blood. Donor's bone marrow
percentage dropped to 20%. She will undergo chemotherapy followed by
donor's lymphocyte infusion.
27.07.2010 Andrei Turik
has 5.7% of blasts based on control puncture. He was taken off all
immunosuppressive drugs. Based on results of repeat puncture, chemotherapy
followed by donor's lymphocyte infusion will be decided upon.
27.07.2010 Serafim Ovcherenko
underwent related bone marrow transplantation from his brother ten days ago.
His blood counts plummeted, possibly due to a fungal infection.
Serafim receives therapy with Fungizone and he also needs blood
donations from donors with blood type O(+).
27.07.2010 Ilya Kirillov
needs medications to support his liver and anti-seizure drugs.
Ilya is undergoing planned tests at R. Gorbacheva Pediatric Hematology &
Transplantology Institute. He is in remission in regards to leukemia.
His family is still in a very difficult financial situation.
27.07.2010 Alena Kuznetsova
is finishing pre-transplantation chemotherapy. She will undergo
haploidentical transplantation from her brother in the next few days.
Alena has cytopenia, but other than that she does not have complications.
Alena needs Neupogen, which the clinic does not currently have.
27.07.2010 Katya Saifutdinova
underwent haploidentical transplantation from her mother today. She has
fever and receives antibiotics. Katya needs Neupogen, which the clinic
does not currently have. Katya also needs help from blood donors with
blood type I (-).
27.07.2010 Dima Sobin
is in a moderately serious condition. He suffers from invasive aspergillosis
in his sinus and reactivation of CMV. Dima receives Albumin, antibiotics,
Cymevene and Vfend. He is seriously fatigued, but is in remission in
regards to primary diagnosis.
27.07.2010 Natasha Nikitina
completed another chemotherapy cycle and had CT scan that showed improvement.
She feels well.
27.07.2010 Diana Ibragimova
completed radiation therapy in Moscow and she is now recovering.
Unfortunately, her mother is having a hard time getting chemotherapy
and anti-fungal drugs for free.
27.07.2010 Artem Bychin
is now at home. The main therapy is continuing according to the schedule:
twice a month Tema needs to be hospitalized for therapy. His disease is
now stable and he shows signs of improvement.
27.07.2010 Sasha Kurenkov
was taken to Regional Clinical hospital with high bilirubin and ALT count.
The specialists of Pediatric Hematology and Transplantology Institute
believe it is caused by GVHD in his liver. Appropriate therapy was started.
Sasha is in remission in regards to leukemia, and the puncture results
are good.
27.07.2010 Vadik Salamatov
is continuing maintenance therapy with Methotrexate and hormones. He
feels rather well, but still does not have an appetite and is not
gaining weight. Vadik supplements his diet with Nutridrink.
26.07.2010 Kolya German
will undergo complete examination at Bekhterev Institute. He will be
billed for MRI and Doppler test, for the total cost of 7,300 rubles.
Kolya feels rather well, but he needs long-term therapy with Depakine
and Neuleptil, which he is unable to get for free.
26.07.2010 Inna Shakhmayeva
will undergo second surgery after August 10th.
25.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Aleksei Krinichenko.
23.07.2010 Masha Vartsan
will continue therapy in Belgium, at the University clinic in Leuven,
where she will participate in a clinical trial of an anti-cancer vaccine,
which is designed to prevent a relapse. On July 28th she needs to be at
the clinic to start the therapy. Masha feels well. A course of treatment
in Leuven will be paid for by the Belgian charities, but Masha's
family also needs money for tickets, hotel stay and food for six
weeks - which will total 4,000 euros. They also still owe money
for treatment in Germany.
23.07.2010 Husein Turaev
completed the first cycle of anti-relapse chemotherapy. Based on test results,
he has no blast cells in bone marrow. He is planned to undergo a second
cycle of chemotherapy followed by typing of his twin brother.
23.07.2010 Artem Kalnitsky
completed a course of treatment. He is in remission in regards to
his primary illness. The boy feels well.
23.07.2010 Slava Chistyakov
is undergoing a rehabilitation course with osteopathic specialist.
He can walk well and is in remission in regards to his primary illness.
Slava's family needs help with buying Heptral and Orungal and for
the trips to the clinic in St. Petersburg.
23.07.2010 Sasha Zipenkov's
next examination in Essen is scheduled for September 14th. Unfortunately,
there is no money to pay for it. Sasha needs 2,000 euros. Please help Sasha's
family with paying for his trip.
23.07.2010 Vika Smirnova
is in 15th day post-transplant. Previous few days she was feeling unwell:
she had fever for three days, developed stomatitis and a skin rash.
Vikusya is now feeling a little better.
23.07.2010 Serafim Ovcherenko
underwent bone marrow transplantation on July 16th. For now, donor's cells
did not engraft and Serafim feels unwell. He needs antifungal and
anti-nausea drugs.
23.07.2010 After high-dose chemotherapy,
Gosha Makarenko's test results worsened.
He urgently needs Heptral.
22.07.2010 Nastia Gordeeva
recovered after a cycle of chemotherapy and was allowed to stay at
home until July 28th. After chemotherapy she felt so unwell that the
doctors did not risk performing lymphocyte infusion. Her blast percentage
went down to 20% from 40%.
22.07.2010 Nastia Dominikova
had a puncture and CT scan of lungs on 110th day post-transplant.
Based on puncture results, she is in bone marrow remission. However, CT
scan results are not quite as good. Nastia has a spot in her lungs.
She will undergo bronchoscopy to test these changes and receive proper
and timely treatment.
22.07.2010 Kirill Tutunnik
did not respond to the latest chemotherapy protocol. Kirill lives with
his parents at Ronald McDonald's House but he goes to the hospital for
various procedures every day.
22.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Denis Osokin.
21.07.2010 Two weeks ago,
Ksyusha Masloboeva suddenly started feeling unwell -
she had headaches and vomiting. Based on MRI results, she has extensive
relapse. Further treatment is under discussion.
20.07.2010 Gulyuzum Tuisina
came to St. Petersburg for examination. In regards to primary diagnosis,
she is in remission. However, she has high bilirubin and is now being
tested to determine the reason for it. She was also referred for CT of lungs.
20.07.2010 Ramil Bulatov
is undergoing therapy for GVHD with photopheresis. He feels better already,
but treatment will be lengthy. Unfortunately, he was diagnosed with
aspergillosis infection in his lungs during the tests, and was
prescribed Vfend.
20.07.2010 Alla Kozhevnikova
was prescribed a course of therapy with MabThera. Doses are being verified.
20.07.2010 Riyaz Bulyakanov
completed tests. He is doing well: his test results are normal and he is
feeling great. Riyaz plans to enroll into Polytechnic Institute
in Magnitogorsk.
20.07.2010 Olya Vyatkina
came for planned tests to Gorbacheva Pediatric Hematology & Transplantology
Institute. She is doing well: her test results are normal and she
is feeling great.
20.07.2010 Sergei Voropaev
is now being monitored by a pulmonologist. He has issues with his lungs,
although the reason for them is unclear. Sergei is now taking hormonal
therapy and broncholytics, and he has had small improvement based on
the last CT scan. He is in remission in regards to primary diagnosis.
20.07.2010 Danya Golovkin's
platelet counts plummeted and the neoplasm had enlarged again.
Danya was hospitalized for a cycle of chemotherapy.
20.07.2010 Olya Ilyuncheva
came for an examination at State Medical University in St. Petersburg.
The puncture results are normal, but she has heightened liver counts
and needs therapy. Olya feels rather well.
20.07.2010 Based on MRI scan,
Andrei Kazakov has no lesions accumulating contrast.
However, two more cycles are planned to strengthen the result.
20.07.2010 At Levon Karagezyan's
planned examination, it was noted that the tumor has grown again somewhat.
Levon started therapy with Campto. Based on PET results after two cycles of
chemotherapy, the tumor responded to therapy.
20.07.2010 Serezha Vasiliev
is continuing chemotherapy under the protocol. He was switched from Vfend
to Orungal. Serezha feels well.
17.07.2010 Igor Krivchuk
had a relapse. There is no time left for donor search. Igor and his mom are
coming to St. Petersburg for haploidentical bone marrow transplantation.
The equipment for the transplantation will be paid for by the
Russian Help Fund.
17.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Serafim Ovcherenko.
15.07.2010 Oksana Gladunova
got fever. She does not feel very well.
15.07.2010 Vanya Novoselov
feels better and can walk slowly and with a walking stick.
He is continuing chemotherapy. Vanya is still on Vfend therapy.
15.07.2010 After the third cycle of chemotherapy,
Andrei Malozemov will
need to go for CT scan on July 27th. It will cost 9,000 rubles. Please
help Andrei's family with paying for it.
14.07.2010 Misha Volkov
completed main course of treatment and is now on maintenance therapy
with Purinethol. He is monitored as an outpatient. Misha is in remission
in regards to primary illness and was taken off Vfend.
Misha started walking!
14.07.2010 Sasha Novokreschenov
is still monitored as an outpatient. Donor's bone marrow still requires
stimulation, but Neostim therapy was postponed temporarily due to heightened
transaminase. Sasha is receiving appropriate therapy and feeling well.
14.07.2010 Danya Golovkin
is monitored as an outpatient. This week he will have a puncture and MRI scan.
He feels rather well.
14.07.2010 Vanya Nechaev
is in remission and GVHD was taken under control as well. However, his
kidneys are not functioning well still, and he needs to take Albumin regularly.
Due to atrophy of leg muscles, Vanya can barely walk.
14.07.2010 Yan Korchenkov
feels great. He was taken off all medications.
14.07.2010 Anton Koltunov's
condition is still very serious. Once again his hepatitis reactivated.
Anton has very high bilirubin and neurologic problems.
He still needs Vfend.
14.07.2010 Ilya Kupriyanov's
treatment proceeding as planned, and all is well. Ilya is now at home, he is
on a break between chemotherapy cycles. He still needs Vfend.
14.07.2010 Zhenya Titarenko's
family is in a very difficult financial situation: both she and her mother
lost their jobs.
14.07.2010 Kolya Burov
recovered after autologous bone marrow transplant. He achieved stabilization.
However, his condition is complicated by a serious herpes infection.
Kolya was referred for treatment at his place of residence, Orel.
14.07.2010 Irina Gavrisheva
was operated and the infected electrode was removed while her lung was preserved.
Irina is still in intensive care.
14.07.2010 On July 8th
Dima Yablochkov had tests: lumbar puncture and CT scan.
Based on the test results, he is in remission. He is now at dacha, and he
takes Methotrexate and Purinethol, and Hepa-Merz for liver support.
14.07.2010 Serezha Popov
was allowed to stay at home until September 2010. However, he still
continues to take the same medications, including Vfend.
14.07.2010 Natasha Plakhina's
liver indicators have increased and she was prescribed Heptral. She is also
planned to receive a course of MabThera. Natasha needs 400 mg of the drug.
14.07.2010 Irina Ligai's
percentage of donor's bone marrow is decreasing. She is planned to undergo
donor's lymphocyte infusion. Cytomegalovirus titer is lower too.
She is planned to have repeat CT scan and bronchoscopy.
14.07.2010 Olya Voitenko's
trip was good. Based on test results, she is doing well.
13.07.2010 Nastia Gordeeva
needs to undergo high-dose chemotherapy under FLAG protocol in combination
with Dasatinib therapy. A course of therapy costs 200,000 rubles.
Please help Nastia!
13.07.2010 Akop Gulabyan
is at the day hospital, he is in remisison. He cannot walk by himself yet.
Akop takes Vfend and hormones for skin GVHD, as well as antiviral drugs
and Albumin.
13.07.2010 Katya Saifutdinova
was referred for haploidentical transplantation from her mother.
Katya feels rather well, but her blood counts are low.
13.07.2010 Vika Voeva
is improving, based on CT scan results. She needs to continue Vfend therapy.
Vika's family needs financial support.
13.07.2010 Vika Smirnova
underwent high-dose chemotherapy cycle. She did not tolerate it well.
On July 9th she received autologous stem cell transplant.
She now feels well, has a good appetite and is in a good mood.
Vika's family needs financial support.
14.07.2010 Ira Nikonova
is recovering after surgeries. She had a few stitches taken off her leg
and was allowed to go for walks. For now Ira can only whisper, as she
still has pain in her throat and rib cage, but she is much better overall.
14.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Danya Malygin.
12.07.2010 At the end of June,
Katya Larionova underwent planned
examination in Singapore. All is well. The next checkup will be in six months.
12.07.2010 Alla Sinkevich
was taking Xeloda at home for 1.5 months. However, it was ineffective, and
Alla now has metastases in her liver and lungs. She will be switched to
more harsh chemotherapy. Alla lost a lot of weight, and she has constant
pains in her arm, shoulder and chest. She needs continuing pain control.
Alla will be transferred to the City hospital.
12.07.2010 Kirill Vazhenin's
liver counts started to go down. Next Monday he will be administered a test
injection, and by Wednesday we will know what further treatment he
will receive.
11.07.2010 Sergei Ozerov's
BMT is scheduled for early August.
11.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Alina Valiakhmetova.
08.07.2010 On June 25th
Alla Kozhevnikova came to St. Petersburg for
planned tests. In May she got sick and felt unwell for almost a month.
She is now better. Alla studies at home and receives only good grades.
She transferred to 6th grade. Alla became more active and sociable.
08.07.2010 Based on PET scan results,
Tanya Suchkova is doing better.
Tanya started fifth cycle of chemotherapy with Dasatinib, Hycamtin and
Temodal. She feels rather well.
08.07.2010 Dasha Nekozyreva
feels better and she already goes outside. She underwent two photopheresis
procedures and had some improvement. The doctors are gradually reducing
her hormonal therapy doses.
08.07.2010 Danya Pavlov
was diagnosed with meningitis. He is now receiving appropriate therapy.
The bone marrow transplanted from his parent is not working well, and
his sister did not match a as donor. A search for an unrelated donor
is now underway at the international registry.
08.07.2010 Volodya Kurdyukov
has a cold and shingles. He does not feel very well and has pains in his
waist due to herpes. He needs therapy with Valtrex and Oxyal.
08.07.2010 Katya Kukhareva
successfully completed her treatment.
08.07.2010 Yesterday, Nastia Agapitova
had severe seizures and was hospitalized in a hospital in Vsevolzhsk. There
she was put on artificial lung ventilation right away. Today Nastia feels
better, she is conscious and breathes by herself. She will be visited by a
neurologist.
08.07.2010 Masha Petrova
had PET and there was no signs of metabolic activity of the disease.
Masha feels rather well, except for elevated temperature (37C).
Full examination is scheduled for September.
08.07.2010 Egor Egorov
needs additional course of massage to overcome neurologic complications.
It will cost 7,000 rubles. His mother is asking for help with paying for it.
The previous three courses already brought significant improvement and
massage needs to be continued.
08.07.2010 Oksana Gladunova
had internal bleeding after BMT. She is now a little better.
08.07.2010 Anya Andreeva
is at the rented apartment. She feels well.
07.07.2010 After re-induction,
Oleg Soshin has low hemoglobin,
and high transaminase and sugar in blood. He was prescribed
therapy by an endocrinologist and a supporting drug for his liver (Heptral).
Oleg will stay at the hospital for some time.
07.07.2010 Denis Osokin
was found to have a lesion on his leg. A biopsy was done, but
cancer cells were not found. Histology results will be verified.
Denis is still taking Vfend (600 mg).
07.07.2010 Alexander Mikheev
completed 4th cycle of chemotherapy and he is starting to prepare for
transplantation. He needs to make a prepayment of at least 2,000 euros
to initiate the donor search.
07.07.2010 Egor Starostin
came for planned tests at City hospital No.31. Based results of tests
and scans, he is doing great. The boy feels very well.
07.07.2010 Today Masha Vartsan's
stitches will be taken off. All the samples were sent to Belgium for a
consultation. On July 10th Ira and Masha will fly back to St. Petersburg.
06.07.2010 Olya Bogatova
dreams of learning to play a guitar. She will be very happy if someone
could give her guitar lessons in their home.
06.07.2010 Artem Bychin
was hospitalized due to intestinal infection. Primary therapy was interrupted.
06.07.2010 Karen Safaryan
will go to Israel for bone marrow transplantation.
06.07.2010 Andrei Kazakov
underwent second cycle of chemotherapy. He is now in cytopenia and
is recovering. Afterwards he will have to have MRI and further therapy
will be discussed. Unfortunately, unit where Andrei is on treatment will
be closed in August, so he will need to find a hospital that will
take him in.
06.07.2010 Kirill Lukoyanov's
transplantation took place on May 28th and on June 18th Kirill was discharged
for outpatient monitoring. Bone marrow engrafted, and his blood counts are normal.
CT scan and MRI results were normal too. Kirill feels well and takes walks.
06.07.2010 During planned examination in Essen clinic,
two new lesions were found in Ira Alexeeva's both eyes.
One lesion was removed, but the second one is inoperable, and Ira needs
to undergo radiation therapy. She already had two sessions.
Ira feels well.
05.07.2010 Due to pleural bleeding,
Irina Gavrisheva was urgently hospitalized.
The surgery was postponed.
05.07.2010 The donor search for
Kirill Belov was paid in full
by an anonymous supporter.
05.07.2010 After a course of Atgam, the results
are not yet discernible. Nastia Sluchaeva
still depends on blood transfusions. She is continuing therapy with
Cyclosporine. The last test result showed elevated iron levels in her
blood due to frequent transfusions. A therapy is under discussion.
05.07.2010 Ilya Kirillov
needs to undergo MRI next week. The test costs 3,500 rubles. Ilyusha also
needs continuing therapy with AndroGel. One package that lasts a month
costs 3,000 rubles.
05.07.2010 On July 1, Ira Nikonova
had surgery to remove a metastasis in her leg. She recovered after surgery and
feels rather well. On July 8th she is planned to have surgery to remove a
metastasis in her lung.
04.07.2010 We are very grateful to Irina and
Sander Van Leeuwen and Vlad and Elena for their urgent help!
Without them, we would not be able to purchase in Finland vitally
important medications for four of our patients.
04.07.2010 Vanya Chernozub
turned 3 on June 30th. The situation with finances is very bad.
Vanya's debt to the clinic is increasing every day. Vanya's further
treatment may be interrupted due to lack of funds.
03.07.2010 Alla Kozhevnikova
came to St. Petersburg for planned tests.
03.07.2010 Sergei Samorodov
is treated as outpatient and he is continuing Noxafil therapy. He is in
remission in regards to leukemia, and a control CT scan of his lungs showed
an improvement. Noxafil may be replaced by Vfend.
03.07.2010 Volodya Maslennikov
is now at home and he is continuing Vfend therapy. After transplantation, he
achieved partial remission. Next month he is planned to undergo PET, which
will cost 16,000 rubles.
03.07.2010 Sultan Rakhmanaliev
is continuing maintenance therapy with Purinethol and he feels well. Based
on results of planned tests, he is in remission.
03.07.2010 Olga Voitenko
fully recovered after transplantation and is in remission. Her blood test
results are normal. Unfortunately, after a viral infection, Olya has serious
neurologic issues: she cannot walk well and has problems with speech. Olya
will need to undergo long-term rehabilitation at home. Olya and her husband
are already at home.
03.07.2010 Nilufari Sharfbek
underwent planned tests. She is doing well.
03.07.2010 Dima Ustinov
came for planned examination with acute GVHD of skin and mucous tissues.
He was prescribed therapy with Cellsept, Glivec and Cyclosporine for a
month. Afterwards he will undergo photopheresis and will need to pay for
supplies for the photopheresis machine.
03.07.2010 Katya Kukhareva
had surgery on a second joint. She feels rather well and is getting up
already.
03.07.2010 Fedya Masloboev
has grown taller and his prosthesis was replaced by a larger one. This
time the prosthesis was paid for by federal quota. Fedya learned to bike
and feels great.
03.07.2010 Sherzodbek Sharipov
had a relapse. His father decided to take him home. They need help with
buying air tickets.
03.07.2010 Husein Turaev's
parents agreed for his hospitalization. He was started chemotherapy under
FLAG protocol.
03.07.2010 Katya Saifutdinova
relapsed. She is planned to receive an anti-relapse course of chemotherapy
and haploidentical transplantation from one of her parents.
03.07.2010 Sasha Agapitov
arrived to St. Petersburg and was hospitalized for pre-transplantation
chemotherapy. However, during tests he was found to have sinusitis and
he is now undergoing therapy with antibiotics.
03.07.2010 Due to some issues with
Dasha Shamanskaya's
donor, her transplantation was postponed.
03.07.2010 Vladimir Efimov's
transplantation took place on schedule. Vladimir is now in cytopenia,
but he feels relatively well.
03.07.2010 A donor for
Masha Veselova
was found, and the transplantation was scheduled for mid-July. However,
Masha still owes the registry for the bone marrow collection and has
no money to pay for delivery of transplant.
03.07.2010 Olya Ilyuncheva
is coming for planned examination in St. Petersburg. She feels well.
03.07.2010 Nastia Chipak
is preparing for the surgery on the second hip joint which is scheduled
doe the second half of July. Endoprosthesis will cost 110,000 rubles.
Nastia is also continuing Vfend therapy. She feels well.
03.07.2010 The whole amount required for
Irina Gavrisheva's
surgery was raised. We are very grateful to all her supporters!
03.07.2010 Dima Ivanov
is undergoing planned tests to evaluate Pegasys therapy results. He feels
well. Dima is currently receiving the drug at the hospital.
01.07.2010 Anya Seryukova
came to St. Petersburg for planned tests and injections of medications.
At this time, her blood test results are good, and she is planned to undergo
donor's lymphocyte infusion to strengthen the result.
01.07.2010 Kirill Vazhenin's
first injection of the drug was postponed due to his elevated ALT.
He had a liver biopsy.
01.07.2010 Irina Ligai
is at the day hospital. Her blood counts had recovered. She feels well,
even though her temperature is somewhat elevated. Irina is receiving
therapy for cytomegalovirus and its titer is decreasing. Based on
the last puncture results, she is doing well.
01.07.2010 Egor Egorov
cannot yet start chemotherapy because of a viral infection. As soon as
infection is taken under control, Egor will need to undergo two more
chemotherapy courses with four cycles in each. The family needs help
with paying for current medications and food.
01.07.2010 Vika Dolgova's
transplantation took place on June 9th on schedule. The blood counts have
grown by now and Vika was discharged for out patient monitoring.
She feels well, goes for walks and has a good appetite.
01.07.2010 Sasha Bykova
spent a month at the hospital due to symptoms of GVHD. She is now
transferred to outpatient monitoring. Sasha feels better and she
started eating and going for walks. GVHD symptoms are gone, but
Sasha is bothered by cough. The doctors diagnosed her with
laryngotracheitis. Based on results of puncture, she is in remission.
Donor's bone marrow is working well.
01.07.2010 On June 3rd
Katya Yastrebova underwent surgery to install
siphon in the shunt and drain hematoma. It was successful. On June 11th
Katya was transferred for treatment to Pediatric Oncology Institute and
she is now being monitored as an outpatient. She is starting
to walk by herself.
01.07.2010 Yana Bogdanova
had a course of therapy with neocytotect at Pediatric Infections Research
Institute. She was then discharged. Yana will return for control tests
in three months. She feels well, but still has neurological issues.
01.07.2010 Dasha Palnikova
received bone marrow transplant from her mother on June 16th.
She is now recovering. Dasha is still in cytopenia, but her blood counts
are gradually growing. Dasha's family needs financial support for
living expenses, tests and medications.
01.07.2010 Alexander Mikheev
was hospitalized for the 4th cycle of chemotherapy at City Hospital No.31.
He feels relatively well. Unfortunately, he received very few donations and
we cannot initiate a donor search for him.
01.07.2010 Arina Baboshina's
transplantation was postponed due to aspergillosis infection. Arina is
taking Vfend and needs frequent blood transfusions. Arina feels well
and is being monitored as an outpatient.
01.07.2010 Vyacheslav Egorov
is now in Archangelsk Children's Clinical hospital. He is undergoing
planned chemotherapy cycle under the protocol coordinated with
the doctors from St. Petersburg. Once the cycle is completed, he will
undergo bone marrow transplantation from his brother who is a 100% match,
based on typing results.
01.07.2010 Nikolai Belov
was implanted a cardiostimulator and he is now at home. Autologous
transplantation is no longer an option.
Further treatment is under discussion.
01.07.2010 Pasha Lipunov
was discharged from City Hospital No.31 where he received chemotherapy
and radiation. He is in a stable condition and started speaking more
words and move better. PET is scheduled for July 22 and will cost
14,000 rubles. In addition, Pasha will need MRI. His family needs
help with paying for these tests.
01.07.2010 Kirill Belov
will need to start a new search for bone marrow donor. It will cost
15,000 euros.
01.07.2010 Denis Osokin
feels relatively well, except for fatigue and shortness of breath.
In hematologic terms, he is stable.
01.07.2010 Vitalik Vorontsov
did not tolerate high-dose chemotherapy well. He is now in cytopenia after
the first anti-relapse chemnotherapy cycle.
01.07.2010 Andrei Turik
feels well. He started showing minimal skin GVHD symptoms.
01.07.2010 Maxim Zuban
feels rather well, but his blood counts are dropping again.
Bone marrow transplantation is being discussed.
01.07.2010 Svetlana Lukicheva
finished another cycle of chemotherapy. She feels rather well.
01.07.2010 AdVita Foundation initiated fund-raising
for the treatment of Elena Zheleznova.
30.06.2010 On July 5,
Vika Polukhina will come to St. Petersburg
for planned control tests. Vika graduated from high school with honors
and had excellent exit exam scores!
29.06.2010 Gosha Makarenko
was planned to undergo donor's lymphocyte infusion, but he developed skin
GVHD and the infusion was postponed.
29.06.2010 Elya Petrova
feels well and is in a positive mood.
She takes Methotrexate and Purinethol.
29.06.2010 Sima Kochetova
arrived for the scheduled tests. Her test results and PET images are
all good. Simochka feels well and is very active. She needs to come to
the next round of tests in early January 2011.
29.06.2010 Nastia Dominikova
is at the hospital and receives therapy with antibiotic Meronem, Solumedrol,
Entocort and Advantan ointment to fight skin GVHD.
29.06.2010 Vitalik Vorontsov
underwent anti-relapse chemotherapy. His family is in a dire financial
situation. Please help Vitalik.
29.06.2010 Since June 21
Zhenya Vasilenko is undergoing scheduled re-induction.
He does not feel very well. He can't sleep and gets irritated easily,
but he eats well.
29.06.2010 On June 21,
Lena Gavrilyuk had a consultation with
Prof. Klimko at Mycology Research Institute and it was decided to
keep me on Vfend until Glivec therapy is over. In general, she
feels well and is now taking exams at the college.
28.06.2010 Today Diana Mishukova
was taken by ambulance to Petrov Oncology Research Institute for chemotherapy
administration.
27.06.2010 Kolya Karpov
was provided with Baraclude for almost a year. He feels well.
We are enormously grateful to everyone who has helped!
26.06.2010 Kirill Vazhenin
and his mom arrived in Naples for participation in a clinical trial.
25.06.2010 Maxim Matycin
completed therapy and is now in remission. He needs to get prosthesis.
The bill for the prosthesis will be received shortly.
25.06.2010 Yesterday Masha Vartsan
was operated. Today's MRI results are good. Masha was taken off the ventilator and
transferred to the regular room. She feels rather well and takes naps.
25.06.2010 Irina Kireeva
needs Eprex (4 syringes at 10,000 units) - to increase hemoglobin.
24.06.2010 Dima Zaitsev
completed treatment under the main protocol, and he is in remission.
The doctors are letting him go home, to Kansk, while the bone marrow
donor search is underway.
24.06.2010 Dasha Kuznetsova
is in a serious condition. She is in intensive care unit on artificial
lung ventilation. Leukemia is not responding to treatment.
24.06.2010 Marina Tukan's
transplant from an unrelated donor did not engraft. Haploidentical
transplantation from Marina's mother is under discussion.
24.06.2010 Anton Gasnikov
underwent transplantation on schedule. He is for now at the clinic,
under the doctors' watch. He feels well and is in a good mood.
24.06.2010 Haploidentical bone marrow transplantation
of Sergei Kalmykov was scheduled for June 26th.
23.06.2010 Based on PET imaging results as of June 18,
Nastia Agapitova is stable in regards to primary
diagnosis. However, after cancellation of hormonal therapy, she developed
swelling, so next week she will have her kidneys examined. Nastia still
suffers from vomiting.
23.06.2010 Nastia Opochitskaya's
transplantation took place on schedule, but unfortunately, on the 3rd day
post-transplant, Nastia started having severe vomiting that cause rapture
of esophagus. Nastia is now in intensive care unit. She needs Neupogen
to stimulate leukocyte growth, as well as albumin and Vfend.
23.06.2010 Kirill Tutunnik
was transferred to a different chemotherapy combination, because the
test results confirmed that the tumor stopped responding to the previous
protocol. He is continuing radiation therapy as well, and may
receive radiation on his leg, where he has a lot of pain.
23.06.2010 Nastia Gordeeva
was diagnosed with blasts in her bone marrow. Nastia will be traveling
to St. Petersburg for chemotherapy and donor's lymphocyte infusions.
23.06.2010 Yulia Dikan
completed 9th re-induction cycle. Her mom is asking for help with
buying a nebulizer.
23.06.2010 Masha Vartsan's
surgery was rescheduled again for June 24th.
Masha's mood and appetite have improved.
22.06.2010 Egor Patsera
is now undergoing chemotherapy with Purinethol and Methotrexate, he
is in the 4th week. Yegor feels well.
22.06.2010 Olga Kovaleva's
bone marrow transplantation was scheduled for July 30th. Olya is now in
remission and she is undergoing tests.
She needs an antifungal drug Noxafil.
22.06.2010 On June 1 Alena Azup
received donor's lymphocyte infusion. She now feels well and was discharged.
She will now come to the clinic once a month for control
punctures and tests.
22.06.2010 Alesha Nesterenko's
blood counts are rising very slowly after the transplant, and only now their
growth is no longer stimulated with Neupogen. Lesha has skin GVHD, but it
is under control. He needs Vfend, one package a week.
22.06.2010 On June 14-17,
Maxim Zuban had a second cycle of therapy with Atgam.
His blood counts are recovering slowly, but he still needs blood transfusions.
As soon as his condition allows, he will be discharged for outpatient monitoring
and the doctors will wait for the effect from the second injection of the drug.
Normally, three courses of immunoglobulins are administered, and if there
is no response, bone marrow transplantation is planned.
22.06.2010 Marina Devyatkova
has a break from photopheresis due to bronchitis. She is receiving therapy.
Photopheresis was effective and her skin condition had improved, but six more
courses are planned to complete therapy. She is gradually being taken off
hormonal drugs.
22.06.2010 Dima Sobin is
still in the clinic where he is receiving complex therapy for GVHD and
infections. His family really needs help with living expenses. For six
months, Dima's mom was not able to receive his disability pension.
22.06.2010 On June 11th
Vitaly Shushmarchenko received second donor's
lymphocyte infusion. Despite therapy with Neostim, the donor's bone
marrow percentage continues to go down (it is now close to 50%).
If conservative methods fail, second bone marrow transplantation may
be considered, either from the same donor or one of the parents.
Vitalik feels rather well and goes outside a lot.
22.06.2010 Transplantation of NK-cells and the
recovery were on schedule. Alesha Dolgopolov
is in remission and he feels well. The doctors allowed him to go home.
Alesha will now come to St. Petersburg only for control tests.
22.06.2010 Colitis was taken under control, but
Dasha Nekozyreva was again hospitalized due to
worsening of skin GVHD. She started a course of photopheresis and her
family needs help with paying for various tests and ointments. The
donated bone marrow is working well and blood counts are normal.
21.06.2010 Masha Vartsan
will undergo surgery tomorrow in Germany.
21.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Sergei Didukh.
20.06.2010 Sasha Chernysh
will likely need second bone marrow transplantation. In this case, a new
invoice for stem cell collection will be issued.
20.06.2010 Omari Arkani
needs to have PET and CT done at Military Medical Academy on June 30th,
at the total cost 25,000 rubles. Please help Omari!
20.06.2010 Vanya Chernozub
completed two more chemotherapy cycles. Based on MRI results as of May 12th,
Vanya is still in remission! Vanya's tracheostomy was taken off and can now
walk by himself. Vanya has one last chemotherapy cycle left. The issue with
paying for his treatment is still pressing. As of now Vanya's family owes
25,000 euros for his treatment. This amount does not include the final
examination, surgery to remove tracheostomy and Omaya device from his brain,
and rehabilitation.
20.06.2010 Miroslava Petrinina
completed four cycles of severe chemotherapy in four months, on schedule.
On June 3, Mira turned 2 years old, and on June 8th she started radiation.
For now, Mira is tolerating radiation well.
Mira's family needs 300 euros to cover radiation therapy, and they also need
help with paying for living expenses and food.
20.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Irina Kireeva.
19.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Svetlana Andreeva.
18.06.2010 Inna Shakhmayeva
and Dima Parmenov's surgeries were successful!
The children are recovering in the same room.
17.06.2010 Yan Korchenkov
is now an outpatient. He feels well, and his blood counts are normal.
17.06.2010 Lisa Leushina
arrived for another puncture. However, Lisa's temperature rose again
and puncture was postponed.
17.06.2010 Akop Gulabyan
was transferred to a regular room from intensive care unit.
He does not have skin GVHD now, so he was taken off hormones.
Akop receives intravenous Vfend, Albumin and Quamatel.
17.06.2010 Natasha Nikitina
is undergoing the 3rd cycle of chemotherapy.
She is scheduled for CT scan next Friday.
17.06.2010 Dinara Samigullina
will go home for 1.5 months. She is doing well, feels well and has
donor's chimerism.
16.06.2010 Ksyusha Masloboeva
underwent 11th cycle of Temodal. She tolerated it well. Ksyusha transferred
to the 6th grade.
16.06.2010 Ira Nikonova
was diagnosed with a relapse.
16.06.2010 Oleg Soshin
turned 13. He was sick with chickenpox. On June 15th he resumed
primary treatment.
16.06.2010 Sergei Ozerov
developed serious mucositis in his mouth. It is already very advanced,
and Serezha has swelling that covers most of his face. Antibiotics
are not helping and Serezha's temperature is fluctuating daily.
15.06.2010 Yulia Chernenko
is doing pretty well. Had CT scan and it shows all is well.
The last, 8th injection of MabThera is scheduled for July.
11.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Alexander Mikheev.
11.06.2010 Denis Alenichkin
completed planned tests and returned home. His remission was confirmed.
Denis feels well. He takes hormones, Entocort and Cellsept, as he still
has chronic skin GVHD. Denis developed adrenal insufficiency.
10.06.2010 Sveta Ivshina
completed eight courses of photopheresis with positive results. The blood
tests showed positive antigen to aspergillosis, and Sveta was
prescribed Vfend (400 mg daily). MRI of joints showed bone necrosis,
but the surgery is not yet possible due to GVHD.
10.06.2010 Diana Vaschenko
underwent examination at R. Gorbacheva clinic. A possibility of stem cell
transplantation was considered, but after an examination it was decided
that since the tumor responded well to high-dose Methotrexate, therapy
at Petrov Oncology Institute will be continued. Diana was allowed to
go home for 10 days.
10.06.2010 Slava Zhikharenko
came for planned tests. He feels well. PET is scheduled for July 25, and
then further therapy will be under discussion. PET will cost 10,000 rubles.
10.06.2010 Ludmila Krasikova
is in the hospital in a satisfactory condition. She receives therapy.
10.06.2010 Igor Zhuikov's
condition improved and he has positive dynamic in regards to his lung condition.
A thrombus is at the resorption stage and his kidneys returned to normal shape.
The swelling is gone and protein levels went down to 6 (from 35). Skin
condition improved, although a few problem areas remain in Igor's hands,
feet and face. Igor is doing physical therapy and recovering movement in
his arms and legs. He is full of optimism.
10.06.2010 Anton Koltunov
is in a serious condition. He suffers from recurrent grade III skin GVHD,
and during therapy with immunosuppressive medications he developed fungal
infection. Anton receives antifungal therapy with Cancidas (50 mg a day)
and Vfend (400 mg a day).
10.06.2010 Natasha Plakhina
had grade II GVHD in her skin and mucous tissues. She is in remission in
regards to her primary diagnosis. The last puncture results showed for
the first time no residual disease.
10.06.2010 Ksyusha Ozhegova
was allowed to go home for a month. Her test results are normal and she
feels well. She goes for walks, eats well and is very active. The planned
tests are scheduled for July 20, 2010.
10.06.2010 Andrei Malozemov
completed the first cycle of chemotherapy. He feels well. If his test
results are good, he may be allowed to go home. After the second cycle,
he is planned to undergo PET.
10.06.2010 Inna Shakhmaeva's
mom managed to get the equipment!
09.06.2010 Kirill Tutunnik
finished radiation therapy on his abdomen and next week will start more
targeted radiation. Last week he also had another cycle of chemotherapy,
but unfortunately, it is now less effective than it was in the beginning
of the trial, so Kirill is planned to be switched on a different combination.
Kirill's knees ache and he cannot walk. He is on constant pain control
medications.
09.06.2010 Dima Parmenov's
mom managed to get the equipment! The surgery is scheduled for June 11th.
08.06.2010 Rima Akhmetova
returned home. She feels well, and finally started eating and sleeping well.
Her blood counts are practically normal.
07.06.2010 Vika Smirnova
was hospitalized at BMT clinic. In the next few days she will have tests.
She is also planned to have more stem cells harvested, and afterwards
Vika will have high-dosage chemotherapy. Vika feels well now and
is in a great mood.
07.06.2010 Ksyusha Khomenya
is confirmed to be in remission. She will go to the next checkup
in a month.
07.06.2010 Nastia Opochitskaya
will undergo second haploidentical transplantation on June 15th.
06.06.2010 Grant Life fund will host Champions
Games in Moscow dedicated to World Blood Donor Day (June 14th).
Children who beat cancer will compete in these Games. The Games will
be preceded by summer photography school where professional
photographers and volunteers will teach children, who will
then report from the Games.
We are happy to say that this year the delegation from AdVita fund
will take part in the festivities for the first time.
Danya Timoshkin, Kirill Pochukaev,
Rita Radzik and Zhenya Golovina will
go to the photography school, and
Ilya Alekseev, Alisa Marakueva,
Zhenya Volchenkov, Nadya Smirnova, Denis Shilov,
Mitya Murinov, Gosha Avdochenok,
Maxim Bogdashkin, Dima Yegorov,
Kirill Belyaev,
Artem Ermolaev, Zhenya Zakharov,
Andrei Urmancheev, Anya Naryshkina, Maxim Sivtsev,
Sasha Zhukov and Masha Kaidalova will join
the Champions Games. We will report about the kids' participation
in the Games and will post photos taken by the photography school students.
We are wishing good luck to all of them!
06.06.2010 News regarding transplantations: Vladimir Efimov is scheduled to undergo
transplantation on June 24. Vladimir owes 10,000 euros to the registry.
He also has no money to pay for delivery of transplant. Marina Mayorova's
transplantation is scheduled for June 25. Oksana Gladunova's
transplantation is scheduled for June 30. Andrei Reshetnev's
transplantation is scheduled for July 1. Milana Kuzhenova's
transplantation is scheduled for July 7. Sasha Agapitov's
transplantation is scheduled for July 10.
06.06.2010 Slava Chistyakov
does not eat well. He is underweight and for that reason he was again prescribed
enteral nutrition NutriZone as formula. A can of NutriZone lasts him 3 days,
and he needs support with buying this nutrition. His arm does not work very
well still. It needs to be exercised. The doctors recommended buying special
equipment that costs 10,000 rubles. Slava also needs to travel to Peterhof
once a week to visit osteopathic specialist. The roundtrip in a taxi
costs 2,200 rubles (including waiting time). If someone could help Slava
with paying for taxi or bring him there in a car, it would
be very helpful.
06.06.2010 Diana Vaschenko
is undergoing tests in St. Petersburg. She had MRI of her head and it showed
no negative changes. Diana feels well. On June 3 she turned 3 years old.
Further treatment is under discussion.
06.06.2010 Pasha Mazhara's
drawing was displayed at an auction dedicated to the 10th anniversary
of Maxim fitness club. The drawing was purchased by Pavel Astakhov
(Children's Rights Presidential Representative) for 50,000 rubles.
Pasha came to our fund and donated part of the money to all patients.
05.06.2010 Ilya Kirillov
had another checkup and all is well with him. Ilya feels rather well,
but he gained extra weight, which is likely due to endocrine issues.
05.06.2010 Irina Gavrisheva
had pleural bleeding again. The surgery to remove infected electrode,
therapy with antibiotics and installation of a new one will cost at
least 15,000 euros. The help is needed urgently!
04.06.2010 Unfortunately,
Nikas Kossov has not achieved remission.
Based on test results, the surgery was not indicated. Nikas and his
grandmother returned to Russia. Nikas is now on maintenance therapy.
04.06.2010 Husein Turaev
decided against anti-relapse therapy. Husein is now at home
on palliative therapy.
04.06.2010 Maxim Zuban's
blood counts are plummeting. He will undergo a second course of therapy
with immunoglobulins.
04.06.2010 Karen Safaryan
has fungal infection in his lungs and he needs Cancidas. The second cycle
of Atriance should be administered next week.
04.06.2010 Volodya Kurdyukov's
GVHD in mucous tissues is almost gone. His temperature was rising to 39C
and he had therapy with antibiotics.
04.06.2010 Svetlana Ivshina
is undergoing a course of photopheresis, and has visible improvement
in skin GVHD. She feels rather well.
04.06.2010 Gosha Makarenko
is doing well, except for persisting limited skin GVHD symptoms.
04.06.2010 Serezha Popov
is being taken off hormones gradually. His sugar level is normal and insulin
injections were canceled. If he feels well and has good test results after
hormonal therapy is canceled, Serezha will be allowed to go home for two
months. He still needs Vfend.
04.06.2010 Vanya Zatona
and his mom came for tests at the end of April. The little boy is doing well.
His counts are normal and he was taken off Vfend.
04.06.2010 Elya Petrova
continues maintenance therapy. She feels well.
04.06.2010 Nastia Chipak
has a tutor, as she will have to sit for exit exams. She has no problems
with her leg that was operated, but her other leg hurts very much, so
Nastia is using a walking stick for now.
04.06.2010 Sasha Martynov
is at home, on maintenance therapy. He was switched from Vfend to Orungal.
04.06.2010 Anya Seryukova
feels well. She is at home and is being monitored locally as an outpatient.
She still needs Vfend.
04.06.2010 Dima Krymov
finished the 4th grade, and now he and his mom are planning to go to dacha.
After the transplantation, Dima had many dental issues and he constantly
has to have treatment. Other than that he is well.
04.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Nastia Sluchaeva.
03.06.2010 Zhenya Vasilenko
graduated from high school. Zhenya's legs are in bad shape and the family
is catastrophically low on money even for food.
03.06.2010 Sanzhima Lodoeva
completed another cycle of chemotherapy with complications and pain.
The family's financial situation is very difficult. They can't afford to
pay apartment rent. Please help.
03.06.2010 AdVita Foundation initiated fund-raising
for the treatment of Egor Egorov and
Karen Safaryan.
02.06.2010 Ilnur Yulaev
came to St. Petersburg for a checkup. He was diagnosed with GVHD
of skin and soft tissues. He takes hormones and waits for the
course of photopheresis.
02.06.2010 Andrei Kazakov
underwent PET. There was no signs of metabolic activity of tumor tissue.
Today he will start another cycle of chemotherapy. Andrei needs help
with buying Carboplatin and Etoposide.
31.05.2010 Karina Panikhidina
was diagnosed with a relapse post-transplant. On May 28th Karina had
donor's lymphocyte infusion. She developed skin GVHD and her skin
is very itchy now. Her leukocyte count jumped drastically and the
doctors believe that it is due to blast crisis.
30.05.2010 Serezha Kalmykov
with his mom traveled to Wurzburg University clinic for haploidentical
bone marrow transplantation. Unfortunately, during the tests at the clinic,
it was discovered that Serezha had a relapse. After undergoing anti-relapse
chemotherapy, Serezha is recovering while the doctors are waiting for
the puncture results.
28.05.2010 Nastia Agapitova
went for brain MRI and stomach fibrogastroscopy. Based on MRI scan, she is
stable. However, fibrogastroscopy showed that Nastia has two small
erosions and chronic gastritis. She was very dehydrated. Her doctor
prescribed her therapy for gastrointestinal problems. The next
examination will be PET with methionine and it will take place on June 18th.
28.05.2010 Sergei Goncharov
is in City hospital No. 31 in a critical condition. Due to disease progression,
he has strong pain syndrome and is on narcotic painkillers.
28.05.2010 Based on histology test results,
Ira Nikonova had granuloma removed, which
means it is not a metastasis. Ira's mom lost her job and now she
and Ira are left without any money.
28.05.2010 Lisa Belova
completed the full course of anti-relapse chemotherapy. She was
diagnosed with a remission. While a search for a donor for Lisa
is underway, she will be on maintenance therapy.
28.05.2010 On May 26th
Olya Bogatova was taken to
Children's hospital No.1 with temperature of 40C.
She has problems with her kidneys. Olya is undergoing tests.
The ultrasound did not show any stones in her kidneys.
28.05.2010 Olga Shmygleva
had the first CT scan, a month after the therapeutic injection.
The results are amazing! Almost all the lesions are gone, except for
two lymph nodes in abdomen, up to 18 mm. She is flying to
Italy for the next injection on June 8th.
27.05.2010 Sergei Bolshakov
was discharged from the hospital after the surgery. He is taking antibiotics
and his temperature is gradually getting back to normal. His leg is better:
he can now bend it and straighten it out. Serezha is now preparing
for his exams.
27.05.2010 Ira Gavrisheva
is now undergoing examination at the clinic in Galle. Based on the test
results, the electrode leading to the pacemaker is infected, which
was the reason for the severe infectious complications after the surgery.
The electrode may need to be removed, so that infection can be cleared
and the electrode re-installed. We are waiting for the new bill for
the upcoming surgery.
27.05.2010 Damir Nasyrov
was supplied with Leukostim for six months. We are very
grateful to everyone!
27.05.2010 Danya Timoshkin
has severe hearing loss due to aftereffects of chemotherapy. He needs
hearing aid that costs 30,000 rubles.
27.05.2010 Ludmila Krasikova's
transplantation took place on May 19th. She is now in cytopenia and feels
relatively well. She was prescribed Vfend to prevent
infectious complications.
27.05.2010 Ksyusha Ozhegova
is now monitored as an outpatient. She feels well.
27.05.2010 Alesha Nesterenko's
transplantation took place on schedule. Right now is the most difficult period:
Lesha has cytopenia, mucositis and fever. He needs intravenous Vfend and
Intraglobin.
27.05.2010 The percentage of donor's bone
marrow decreased, so Vitaly Shushmarchenko
received donor's lymphocyte infusions. Unfortunately, he has allergy
to Orungal, so it was replaced by Vfend again.
26.05.2010 Alena Azup
feels rather well despite sinusitis. She is undergoing tests and still
receives Vfend and Intraglobin. In two weeks, she is planned to undergo
donor's lymphocyte infusion from her father.
26.05.2010 Ira Nikonova
had surgery during which a tumor from her leg was removed. She is being
discharged home today. In a month she will have to return to the clinic
for the tests. She feels rather well.
26.05.2010 Vladimir Maslennikov
does not feel very well: he has problems with his kidneys and was diagnosed
with a fungal infection again. He needs Vfend. Volodya is being monitored
by the specialists from Mycology Research Institute.
26.05.2010 Marina Lavrentieva
feels well overall, but at times she has shortness of breath. She needs to
have several courses of Wobenzym and Pantogam and would appreciate help
with buying these medications.
26.05.2010 After the last chemotherapy cycle
Gera Kuzmin had serious neurologic problems.
He started having pains in his legs, could not get up and stopped
walking. After treatment by neurologist, he had improved and can
walk again. However, the next chemotherapy cycle was postponed so
that the boy could recover. Gera is taken off Vfend for now.
26.05.2010 Katya Yastrebova
was taken by ambulance to Children's hospital No.5 due to worsening of
hydrocephaly. Transplantation would not be possible in her current condition.
The neurosurgeons will install a siphon in her shunt.
The cost of the supplies is 45,000 rubles.
26.05.2010 For a long time
Vanya Nechaev has been losing protein.
His kidneys are not working well, so he receives Albumin injections
in large doses. He has difficulty walking due to swelling.
Vanya constantly needs Albumin, enteral nutrition and Modulen.
Vanya is in a very difficult condition.
26.05.2010 Anton Koltunov
is in a serious condition. He is in intensive care unit with symptoms of
multiple organ failure. Artem is receiving intensive therapy.
26.05.2010 Artem Kalnitsky
is starting planned cycle of chemotherapy. He feels well. The cycle will
be followed by CT scan at Pediatric Academy that will cost 10,000 -
12,000 rubles.
26.05.2010 Dasha Kuznetsova
underwent a cycle of anti-relapse chemotherapy under FLAG protocol, but
did not respond. A possibility of second transplant and Clofarabine
therapy are under discussion. Dasha still needs Vfend.
26.05.2010 Alla Sinkevich
is undergoing chemotherapy with Katadolon. She suffers from severe pains
in her arm that are only alleviated by Tramal.
26.05.2010 On May 22nd
Oleg Soshin returned from
intensive care to the unit. The level of Methotrexate in
his blood had normalized. Oleg is now in a stable condition.
26.05.2010 We received a bill for 10,000
euros for surgery and a new prosthesis for
Sasha Kislichnaya
from Aachen University Clinic.
25.05.2010 Danya Golovkin
completed a course of anti-relapse chemotherapy. Visually, the tumor
seems to be gone. Danya is now recovering, but very slowly. He
is still in cytopenia. A few days ago, he had donor's lymphocyte
infusion. After the examination, Vfend was canceled and Danya was
prescribed an antifungal drug Ampholip.
25.05.2010 Dasha Kuznetsova
completed a course of anti-relapse chemotherapy under FLAG protocol.
However, she did not achieve remission. Donor's chimerism decreased and
the disease is progressing again. Dasha is now on chemotherapy to control
the leukemia. She is planned to undergo transplantation again
(possibly, from her father). She is taking Vfend.
25.05.2010 We received a bill for
Masha Vartsan's surgery from Wurzburg
University Clinic for 17,135.50 euros.
25.05.2010 We received a cost estimate
from University Clinic in Tubingen for
Kirill Vazhenin's treatment
totaling 52,960 euros.
24.05.2010 Riyaz Bulyakanov
is feeling well and his test results are good. In early July he plans to come
to clinic for control tests.
24.05.2010 With cancellation of hormonal therapy,
Gosha Makarenko's sugar levels retuned to normal.
He does not need insulin now. Gosha started to walk. The skin GVHD is
gradually improving. Gosha still needs Vfend.
24.05.2010 Dasha Smetanina
finished the 6th cycle of chemotherapy. Next week she is planned to have
surgery to remove the tumor. After surgery, if everything goes according
to the plan, bone marrow transplant will take place. Dasha feels well
after chemotherapy.
24.05.2010 Olya Ilyuncheva
underwent donor's lymphocyte infusion and returned home. Her bone marrow and
CSF are clear. Liver indicators are slowly improving too. The next trip
is planned for the end of June.
24.05.2010 Vika Voeva
was diagnosed with a relapse. She was prescribed chemotherapy locally.
Once she achieves remission, she is planned to undergo second unrelated
transplantation, so a donor search needs to be initiated. Vika continues
taking Vfend and Omacor.
24.05.2010 Misha Nikitin
is undergoing re-induction. He feels rather well.
24.05.2010 On May 11th Andrei Kazakov
completed the second cycle of chemotherapy. He is in cytopenia. Based on MRI
results as of May 21, the tumor is stable. PET imaging was scheduled for
May 31, and its cost is being verified.
24.05.2010 Marina Devyatkova
had two sessions of photopheresis and she feels well.
24.05.2010 Katya Ganke
takes Vepeside at home. She is feeling much stronger and is in a good mood.
Katya has appetite and gained 1.6 kg. Katya can also walk better.
24.05.2010 Sasha Zukov
was hospitalized at Children's hospital No.5 due to sinus infection.
He is already discharged. Sasha will soon go for planned MRI.
24.05.2010 Sveta Shchelokova
is continuing Cyclosporine therapy. Her blood counts are good and she feels well.
She volunteers for Red Cross and is now preparing for tests at college.
24.05.2010 Dima Sobin
developed GVHD. He is seriously fatigued and is on large doses of hormones.
A decision was made to start lowering the doses gradually. In parallel,
cytomegalovirus titer had grown and Dima is undergoing therapy with Cymevene.
He still needs Vfend. If Dima is discharged from the hospital, he will
also need Valcyte.
24.05.2010 Based on recommendation from a neuropathologist,
Grisha Bakhvalov's re-induction was postponed.
He is now on maintenance therapy with 6MP and Purinethol. Grisha has
no appetite, so he does not eat much and lost weight. The neurologist
prescribed homeopathic preparations to improve appetite.
24.05.2010 Nastia Dominikova's
remission was confirmed. She feels well and takes immunosuppressive drugs.
Nastia still needs Vfend.
24.05.2010 Anya Andreeva
feels well. Her blood counts are normal. Anya still needs Vfend.
23.05.2010 Nilufari Sharifbek
is now in St. Petersburg. She feels well. Nilufari is undergoing tests
and on Monday she will have an ultrasound and an x-ray.
23.05.2010 Vadik Salamatov
was discharged from the hospital where he was due to tonsillitis.
He feels well. On Monday he will have a planned injection of Methotrexate
in Tikhvin where he lives.
23.05.2010 Stas Chernobilsky
is at Children’s hospital No.5 where he was taken urgently when he started
feeling unwell. Based on MRI results, he needs to have a shunt installed.
For now Stasik does not feel well: he is fatigued, does not eat well
and stays in bed.
23.05.2010 Shedi Buneb
underwent transplantation yesterday. He did not tolerate the procedure well.
Today he is feeling better.
23.05.2010 Vika Smirnova
finished the 8th cycle of chemotherapy and was discharged. She is now
at home with her parents and her sister. Vika feels well. In
the next few days, transplantation date will be established, but
beforehand, Vika will need to undergo high-dosage chemotherapy.
23.05.2010 Based on MRI results,
Fedya Masloboev is doing well.
20.05.2010 Yulia Dikan
was on scheduled re-induction from May 8th to May 20th. The next
hospitalization is planned for June 7. On May 27th Yulia will
turn 3 years old.
20.05.2010 Sasha Bykova
is in 27th day post-transplant. On the 19th day she was discharged
for outpatient monitoring. She feels rather well, but has no appetite at
all. Sasha was diagnosed with osteoporosis, but has not yet started
therapy for it.
20.05.2010 Stas Pryakhin
was discharged home after the 4th cycle of chemotherapy. According to the
protocol, Stas needs to complete five cycles of chemotherapy followed
by bone marrow transplantation.
20.05.2010 Nikolai Belov
is at Almazov Federal Center. He is planned to have cardiostimulator
implanted.
20.05.2010 Ira Ligai
feels rather well. Her family is in a very difficult financial
situation and needs help with buying current medications.
20.05.2010 Sonya Egorycheva
feels well. The surgery on Sonya's second kidney was postponed.
She was discharged home to regain her strength.
20.05.2010 Anton Gasnikov's
bone marrow transplantation is scheduled for May 21.
20.05.2010 Nastia Opochitskaya
was diagnosed with a relapse. She was hospitalized and in the next few
days she will start anti-relapse chemotherapy and lymphocyte infusion.
She still needs Vfend.
20.05.2010 Natasha Nikitina
successfully completed the first cycle of chemotherapy.
20.05.2010 Diana Ibragimova
is receiving therapy with Zometa and hyperbaric oxygen therapy. On May 28th
and June 2nd Diana will have exit tests for the 9th grade.
20.05.2010 Andryusha Malozemov
had a relapse. To determine the right treatment, he needs to have PET
imaging and CT scan at Military Medical Academy. The cost of the
examination is 25,000 rubles. Please help!
20.05.2010 Sergei Ozerov's
fungal infection was taken under control. Today he will return to Hematology
unit for another cycle of chemotherapy. A donor for Serezha
was not found yet.
20.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Karina Panikhidina.
19.05.2010 Vika Voeva's
blood counts are recovering: hemoglobin is 90 and leukocytes are 3. She
was sick with pneumonia. Vika urgently needs to go for CT of lungs
(2,500 rubles) and a consultation with a pulmonologist. Vika started
having problems with her heart and a cardiologist diagnosed her with
myocarditis. She needs to take Omacor, 1 capsule daily. In addition,
due to a newly diagnosed fungal infection, Vika will need long-term
therapy with Vfend.
19.05.2010 Igor Zhuikov
is now at nephrology unit of Pavlov State Medical University. He still
loses protein rapidly and the reason for that is unknown. His skin GVHD
is stable, and his lungs are clear, but Vfend therapy has to continue
due to high doses of immunosuppressive medications.
19.05.2010 Based on PET imaging,
Kirill Belyaev had no changes.
19.05.2010 Anya Seryukova
achieved remission and is now stable. She was allowed to go home for two
months to be under local hematologists' monitoring. She still needs Vfend.
19.05.2010 Olya Ilyuncheva
and her donor sister have come to the clinic for scheduled lymphocyte
infusion. Olya feels well.
19.05.2010 Husein Turaev
was diagnosed with a relapse. Further treatment is under discussion.
19.05.2010 Dasha Nekozyreva
suffers from infectious colitis and severe pains. She was prescribed
antibacterial therapy.
19.05.2010 Kirill Lukoyanov
and his mom arrived to St. Petersburg and in the next few days he will
be hospitalized for pre-transplant chemotherapy.
19.05.2010 Tanya Suchkova
wil undergo transplantation from an unrelated donor.
19.05.2010 Kirill Vazhenin
had a relapse. Two treatment options are now under discussion: either
therapy with Atriance or surgery followed by radiation.
19.05.2010 Nikas Kossov
completed chemotherapy and radiation therapy. He feels well. The results
of MRI will help determine the possibility of surgery to remove remaining
tumor. Nikas has no money left on his account. He needs help to continue
treatment in Germany.
19.05.2010 Yuliana Rozhkova
came to St. Petersburg. In a few days she will be hospitalized for
pre-transplantation chemotherapy.
19.05.2010 Olga Voitenko
recovered after transplantation and was discharged for outpatient monitoring.
19.05.2010 Maxim Zuban
feels well. He responded to therapy with Atgam and his blood counts are
normalizing.
19.05.2010 Arina Baboshina
is now at a rented apartment. She is preparing for transplantation.
Russian Help Fund decided to raise funds for Arina for a cylinder for
cleaning of the donor's transplant. Arina was prescribed Vfend, 100 mg
daily.
19.05.2010 Vladimir Sivukha
had a relapse. Further treatment is under discussion.
19.05.2010 Tatiana Solomatina's
condition worsened dramatically due to activation of cytomegalovirus.
She is now in intensive care unit on artificial lung ventilation. Her
condition is very serious, since her lungs are damaged by zygomycosis
and she had one lung lobe removed. She urgently needs Cymevene.
19.05.2010 Shamil Gazymzade,
unfortunately, did not start treatment in Azerbaijan. The clinic where
the therapy was planned had closed for repairs. We have not been able
to get in touch with Shamil's relatives.
19.05.2010 Kirill Belov's
relatives and co-workers raised the rest of the amount for the donor search
and delivery of transplant.
19.05.2010 Andrei Reshetnev's
relatives and co-workers raised the required amount for the donor search
and delivery of transplant.
19.05.2010 Thanks to a publication at
Metro newspaper, lacking money
for the donor search for Masha Tikunova
was raised. A donor is not yet found.
19.05.2010 Grisha Barchenko's
mother was hospitalized due to a stroke after distress of the recent months.
This family really needs help.
19.05.2010 Sergei Samorodov's
condition improved somewhat, but he still needs Noxafil.
19.05.2010 Maria Veselova
was discharged from the hospital. Masha's life depends on blood transfusions
and the intervals between the transfusions are getting shorter. Unfortunately,
a donor has not been found yet.
19.05.2010 Sasha Obertyuk
is recovering after transplantation. His blood counts plummeted, and he
suffers from mucositis. Sasha still needs Vfend.
19.05.2010 A matching donor was found for
Vladimir Efimov and transplantation was
scheduled for June. He urgently needs to raise 13,000 euros to pay off
the debt to S. Morsch registry.
19.05.2010 Egor Patsera
is starting 10-day course of hormonal therapy. He now has low protein
count, so he had injections of Albumin.
19.05.2010 Alesha Dolgopolov
is now at home, at the rented apartment, today he will be hospitalized
for bone marrow transplantation. He feels well and his test results are
good. The equipment for cell selection was delivered and Alesha's mom was
matched as a donor.
19.05.2010 Sasha Zipenkov
returned from Germany, where he had planned checkup. Sasha still has a
lesion remaining, so he will need to travel to Germany again in September.
Together with the cost of tickets, the trip will cost about 2,000 euros.
19.05.2010 Sasha Kurenkov
is recovering after transplantation. He was discharged for outpatient
monitoring. He feels rather well except for chronic cough. He needs to
take Orungal to prevent aspergillosis.
19.05.2010 Masha Petrova
completed radiation therapy. She feels rather well. Masha needs to go for
PET imaging scheduled for June 24th. It will cost 6,000 rubles.
19.05.2010 Akop Gulabyan
is now treated as outpatient. He goes for tests to the clinic. Based on
the test results, he was diagnosed with aspergillosis and needs Vfend
therapy.
19.05.2010 Rima Akhmetova
underwent second bone marrow transplantation on May 17th.
19.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Sasha Bykova
and Stas Praykhin.
18.05.2010 May 17th the long-awaited certification
of Mark IV breathing pacemaker was completed.
Inna Shakhmayeva's and
Dima Parmenov's surgeries are scheduled for May 31, and
Lisa Kuchina's - for June 3-4.
18.05.2010 Oleg Soshin
completed two cycles of therapy with Methotrexate. Due to complications
he developed, on May 14th Oleg was transferred to intensive care
unit where he is receiving therapy with Leucovorin.
13.05.2010 The doctors decided to allow
Galina Molodtsova to go home for two months.
Galina still needs Vfend.
13.05.2010 Serezha Orlov
feels well. At the end of May he will come for an examination
in St. Petersburg.
13.05.2010 Ilya Kirillov
underwent tests that confirmed remission. However, Ilya's liver
indicators are very high and his dose of maintenance therapy with
Purinethol had to be reduced. Heptral in pills did not help Ilya,
so he needs at least 10 ampoules. Please help.
13.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Ksenia Ozhegova.
12.05.2010 Nastia Agapitova
will undergo PET on June 18th and it will cost 18,000 rubles.
MRI was scheduled for early July and will cost 6,500 rubles.
12.05.2010 Natasha Nikitina
now at the Oncology Center on Veteranov prospect.
Tomorrow she will have IV drip started that will last two days.
12.05.2010 Olya Shmygleva
returned from Italy. The next trip is planned for July 8.
12.05.2010 Zhenya Ivanova
had a surgery to remove a lymph node. In a few days, Zhenya will come
to St. Petersburg for a consultation.
12.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Vika Dolgova.
10.05.2010 Elena Adamyants
was at the hospital since April 18th. Her constant fever was caused by fluid
in pleural area and viruses in it. It was drained three times, but Elena
still has some left. She is trying to get all of it out at home with Valtrex.
Elena also had to stop taking vitally needed Dasatinib for 1.5 weeks.
09.05.2010 Vladimir Maslennikov
is at Almazov clinic. He underwent several chemotherapy cycles, and the last
cycle was with high dosage chemotherapy. Volodya felt very unwell after it.
Bone marrow transplantation was performed on March 26th.
The procedure was successful and Volodya is now gradually recovering.
09.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Alesha Nesterenko.
07.05.2010 Nastia Opochitskaya
is monitored as an outpatient and she lives in a rented apartment. She feels
well and is in a great mood. Her blood counts are normal. Nastia takes
Cyclosporine for now, so we go for blood tests twice a week.
She is continuing immunosuppressive therapy and still needs Vfend.
On May 6th Nastia's remission was confirmed.
07.05.2010 Andryusha Malozemov
underwent CT scan at Children's hospital No.5. There was no pathology noted
in abdominal organs. However, CT scan showed enlarged right subclavicular
lymph node. During the consultation in City hospital No.31 it was decided
to biopsy the lymph node.
07.05.2010 On May 5th Ira Nikonova
and her mom were admitted to the hospital. Ira's surgery is planned for
May 13th. Her mom broke her arm and got a bad cold with high fever.
07.05.2010 Diana Mishukova
was successfully operated at Pediatric Academy. She is in intensive care unit
where she is recovering.
06.05.2010 Yulia Dikan
had acute respiratory illness. She is now at home. The plan is to get
Yulia's cough under control and get hospitalized next week for
another re-induction.
06.05.2010 AdVita Foundation initiated fund-raising
for the treatment of Kolya Karpov.
06.05.2010 Lera Sukhoverkhova's
parents are asking for financial support with continuing Lera's treatment
in Munich. Lera needs to travel to Munich once every three months until her
blood counts stablize. Every trip costs about 10,000 euros.
04.05.2010 Dinara Samigullina
is in 95th day post-transplant. The puncture results showed complete
engraftment of donor's bone marrow. Dina is still on immunosuppressive
therapy. Cytomegalovirus infection reactivated in Dina's blood.
04.05.2010 Natasha Nikitina
will be admitted for chemotherapy at Oncology clinic on Veteranov Ave.
on May 11. Due to lack of free beds, she will have to pay for her hospital
stay. It costs 1,000 rubles a day. Natasha will need to stay there
for at least 5 days. We will be grateful for your help.
03.05.2010 Based on test results,
Kirill Tutunnik's disease is stable.
However, due to low leukocyte count, he will not be able to start
chemotherapy this week. Kirill's treating doctor offered
to sign him up for another Phase I clinical trial in the hope
of getting a better response. There was only one spot left in
the trial, and if Kirill is eligible, he could start therapy
next Monday.
01.05.2010 Katya Shikun
is now at a sanatorium. She received prosthesis and is learning to walk on it.
Katya has many rehabilitative procedures at the sanatorium.
The conditions are very good and Katya and her mom are happy
to be there.
30.04.2010 Dima Trifoev
was allowed to go home. In the doctors' opinion, continuing chemotherapy
would be dangerous due to serious life-threatening complications. Dima
was prescribed maintenance therapy and recommended courses of neurologic
and orthopedic rehabilitation.
30.04.2010 Anton Zaitsev’s
condition is somewhat better, and the improvement was confirmed by x-ray
results. Anton's cough subsided and his general condition improved as well.
Anton was prescribed Dexamethasone and Diacarb.
30.04.2010 Roma Rybkin
feels well and his blood counts are normal. Since Roma has flat feet,
he needs special orthopedic shoes. His mom is asking for help with buying them.
30.04.2010 Misha Markov
feels well. Today he will undergo the last puncture.
30.04.2010 Egor Starostin
will come to the clinic on May 16th for scheduled tests.
30.04.2010 Kostya Novitsky
feels well. He will go for MRI imaging at City hospital No.31 on May 12.
30.04.2010 Sasha Obertyuk
started pre-transplantation chemotherapy.
30.04.2010 Lisa Kudasova
feels well and is happily getting ready for school. Lisa's family ordered
tickets to Moscow for prosthesis installation for May 15. The cost of
prosthesis was covered by Russian Help Fund.
30.04.2010 Shedi Buneb
recovered after a cycle of chemotherapy. After the planned examination,
he will undergo autologous transplantation.
30.04.2010 Zhenya Kinnonen
feels well. The platelet count rose to 200, so an infusion of Intraglobin was postponed.
30.04.2010 Echocardiogram test had discovered that
Ira Kondratieva has some heart problems. On May 4th
Ira will need to have cardiomonitoring that will last the whole day. The
cost of this test is 1,300 rubles.
30.04.2010 Masha Petrova
is undergoing radiation therapy. Afterwards, Masha will go for PET scan
and MRI. Unfortunately, Masha cannot afford to pay for them.
30.04.2010 Katya Stepanchuk
was shown to have a lesion accumulating contrast agent during PET imaging. Katya
will need to undergo three more chemotherapy cycles, after which she will
have to repeat the test.
30.04.2010 Vika Smirnova’s
pneumonia was taken under control. On Tuesday Vika started another chemotherapy
cycle. She feels well and is in a great mood.
30.04.2010 Katya Saifutdinova
is doing well. Katya's general condition is good except for remaining fatigue.
Katya will come to the clinic for a checkup at the end of June.
30.04.2010 Nastia Chipak
was allowed to get up. She feels rather well and continues
to prepare for tests.
30.04.2010 Nastia Pimenova
suffers from stage IV intestinal GVHD. She is in intensive care unit on
enteral nutrition and receives painkillers around the clock.
Nastia needs Intestamine, intravenous Vfend and Albumin constantly.
30.04.2010 Olya Kapytsa's
condition stabilized, but she still needs Salofalk and Intestamine.
With Cancidas therapy, she still continued to develop fungal pneumonia,
so it was replaced by intravenous Vfend.
She was also tested for tuberculosis.
30.04.2010 Anya Andreeva
had high temperature for several days, but her condition had stabilized.
She is gradually being taken off hormonal drugs. Anya feels well.
30.04.2010 Misha Nikitin
was discharged. He will undergo maintenance therapy locally.
30.04.2010 Sasha Golubovsky
had second transplantation. He does not feel well.
30.04.2010 Akop Gulabyan's
transplantation took place on schedule. Akop is now recovering, and he
developed skin GVHD. He is planned to undergo therapy with photopheresis.
30.04.2010 Dasha Shamanskaya's
transplantation is scheduled for the end of May.
30.04.2010 Tanya Suchkova is
undergoing another cycle of chemotherapy with Hycamtin and Cyclophosphane.
She feels well and is in a positive mood.
30.04.2010 Dasha Kuznetsova
had a relapse. She underwent anti-relapse chemotherapy under FLAG protocol
and donor's lymphocyte infusion. The doctors are waiting for her response
to treatment. Dasha still needs Vfend.
30.04.2010 Misha Volkov
was allowed to go home between the chemotherapy cycles. He feels well,
but still needs Vfend.
30.04.2010 Pavel Dolgachev
is in intensive care unit. He tested positive for Pseudomonas infection.
30.04.2010 Danya Pavlov
was discharged for outpatient monitoring. He needs therapy
with Neupogen and Vfend.
30.04.2010 Sasha Novokreschenov
was taken off Neostim, but he continues Roferon therapy. He is monitored
as an outpatient.
30.04.2010 Danya Golovkin
had extramedullary relapse. He was prescribed anti-relapse chemotherapy
under FLAG protocol. He still needs Vfend.
30.04.2010 Ivan Nechaev
continues antiviral therapy and takes Albumin. He is still seriously fatigued.
30.04.2010 Yan Korchenkov
suffers from stage IV intestinal GVHD. He is in intensive care unit
in a serious condition.
30.04.2010 Dasha Nekozyreva
feels well. She is monitored as an outpatient.
30.04.2010 The tests showed that
Volodya Kurdukov does not have any more
lesions in his lungs. He was taken off Vfend.
30.04.2010 Kostya Makoveev
is now at home, being monitored as an outpatient. He still has cough.
30.04.2010 Zhenya Belyaev
is now at home on maintenance therapy.
30.04.2010 Marina Devyatkova
started a course of photopheresis. She feels well. We are sincerely
grateful to Polimetall Company for a donation that was used to pay
for supplies for photopheresis procedure.
30.04.2010 Sasha Zhukov
feels well. In the next few days he will need to have MRI.
30.04.2010 Based on test results,
Slava Chistyakov still has low
leukocytes since last week – 1.8, as well as low hemoglobin – 77.
The doctors are now looking into the reasons for that. Slava is
scheduled to go for CT scan and MRI, as well as lumbar puncture in June.
30.04.2010 After a scheduled course of chemotherapy,
Artem Kalnitsky was allowed to go home. He feels well
and has very good appetite.
30.04.2010 Tatiana Solomatina
recovered and was transferred to outpatient monitoring. She still has a
problem with fungal infection in her lungs and needs Noxafil therapy.
30.04.2010 Masha Kokshina
is undergoing a course of chemotherapy prior to haploidentical transplantation.
Based on the typing results, Masha's father will be her donor. The equipment
for the transplantation was provided based on a guarantee letter from our
fund and it has not been paid for yet.
30.04.2010 Sasha Martynov
is returning home after the examination and donor's lymphocyte infusions.
He will be monitored at Voronezh regional Clinical hospital.
He still has lesions accumulating contrast.
30.04.2010 Gulyuzum Tuisina
feels well. Her condition is stable and she was allowed to go home.
30.04.2010 Shamil Gasymzade
needs to undergo two more chemotherapy cycles prior to autologous
transplantation.
30.04.2010 Natalia Smolyar
was discharged from the hospital.
30.04.2010 Nikita Vassiliev
a course of radiation therapy and was allowed to stay at a rented apartment
for a month. Afterwards, he will have tests, which will be followed by
chemotherapy. Russian help Fund agreed to pay for chemotherapy for Nikita.
30.04.2010 On April 22,
Kolya Burov
received bone marrow transplant. He is now in cytopenia and has fever.
30.04.2010 Oleg Soshin
started the third high-dosage cycle of Methotrexate IV and asparaginase
injections. Oleg's condition is relatively good.
29.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Katya Ganke.
27.04.2010 Serezha Ozerov
underwent CT scan and was found to have fungal infection in his lungs
and liver. He is receiving antifungal drugs with wide range of action.
27.04.2010 Svetlana Lukicheva
finished the third chemotherapy cycle at a hospital in Bishkek.
She feels well.
27.04.2010 Sanzhima Lodoeva's
oncomarker results significantly exceed the norm. She urgently needs
Paclitaxel drug. The therapy has to start tomorrow.
Please support Sanzhima!
26.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Masha Tikunova.
24.04.2010 Larisa Bodrilova
received Noxafil for free from the Municipal Health Committee that
provides prescription medications to certain categories of patients.
Larisa no longer needs help with buying Noxafil.
22.04.2010 Arina Pavlova
was discharged from Kashkin Institute of Medical Mycology. She is
in remission - both in terms of the primary diagnosis and mycology.
She was taken off Vfend. Arina feels very well.
21.04.2010 Nastia Opochitskaya
was discharged for outpatient monitoring. She feels well and goes for
tests regularly. All is well.
21.04.2010 Diana Mishukova
has two metastases in her colon, based on CT scan results. A surgery to
remove metastases is being planned.
21.04.2010 Grisha Barchenko
was referred for bone marrow transplantation from an unrelated donor.
The donor search requires 15,000 euros, and the dleivery of transplant
to St. Petersburg will cost 2,500 euros.
21.04.2010 Diana Ibragimova
is in complete remission in regards to her primary diagnosis. Unfortunately,
during Dexamethasone therapy Diana developed hip joint necrosis and
she cannot walk. Dexamethasone therapy had to be canceled. Diana
receives maintenance therapy with Purinethol and Methotrexate, and
soon she is planned to undergo radiation therapy. The fungal lesions
are not yet gone completely, although there was response to Cancidas.
Diana may need Cancidas therapy again soon.
20.04.2010 On April 27th
Olga Shmygleva will receive a
therapeutic injection and on May 3 she will be able to fly home.
Forty days later she will need to return to Italy
for control tests.
20.04.2010 Natalia Smolyar's
surgery was long and there were some complications, but now everything
is well. Natasha is already in the room and in a couple of days she will
be allowed to get up.
20.04.2010 Nastia Chipak's
surgery was uncomplicated. Nastia is now in intensive care unit where
she will stay for a day, and then she will be transferred to the room.
She was operated at Pavlov State Medical University. If the
rehabilitation process goes well, the surgery on the other joint
will take place in three months.
19.04.2010 Katya Shikun
is still in Germany. She is waiting for the trip to sanatorium.
The stay in a sanatorium and manufacturing of prosthesis are already
paid for. However, Katya and her mom need help with buying food.
19.04.2010 Olya Kapytsa
needs 10 bottles of Cancidas for the total cost of 150,000 rubles.
18.04.2010 Sveta Shchelokova
is doing well. She continues coming to the hospital for control tests.
18.04.2010 After chemotherapy,
Vika Smirnova's blood counts stayed low for
a long time. She had nosebleeds for several days and needed platelet
transfusions. Then she got a bad cough and was diagnosed with pneumonia in
her left lung. Vika is feeling better now and her blood counts are
increasing gradually. However, due to pneumonia the last chemotherapy cycle
was postponed.
18.04.2010 Sherzodbek Sharipov's
father is very grateful to everyone who has helped their family.
Sherzod is doing well and he is in a great mood.
18.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Olga Kovaleva and
Maxim Zuban.
17.04.2010 Vitya Bashkatov
sent us a letter and his new photo. Vitya is an intern at Sochi
Department of Investigations. He feels very well.
17.04.2010 Nadya Zheleznaya
has died. She had an extensive stroke in the brain stem and died instantly.
16.04.2010 Atriance for
Sasha Obertyuk was purchased out of donations
sent to all patients. The course of treatment will start on April 16th.
Bone marrow transplantation is scheduled for May 6th. Sasha feels well.
16.04.2010 Yuliana Rozhkova's
transplantation is scheduled for the end of May.
16.04.2010 A donor for
Kirill Lukoyanov was found. Transplantation
was scheduled for the end of May.
16.04.2010 A donor for
Ludmila Krasikova was found. Transplantation
was scheduled for May 21. We are announcing an urgent fundraising to
pay off Ludmila's debt to Morsch registry. We need to pay 9,700 euros
for the transplant and 2,500 euros for its delivery.
16.04.2010 We are sincerely grateful to
Grant Life fund for paying for donor search for
Sagid Endreev. We now need to raise
2,500 euros for delivery of transplant.
16.04.2010 Even though
Kirill Belov had many potential
matching donors based on a preliminary search results, a 100%
match has not yet been found. We are sincerely grateful to
DKMS registry for performing donor search for Kirill for free.
We only need to raise money for collection of transplant
and its delivery.
16.04.2010 Fortunately,
Olga Voitenko was able to receive
financial aid from municipal administration and she transferred
the necessary amount to the registry. We paid for delivery of
transplant using donations sent to all patients.
Transplantation took place on April 8th, as planned, and Olya
is now recovering. She does not feel very well yet.
16.04.2010 After lengthy consultations
with experts in Europe and the US, it was decided that
Masha Kokshina will undergo
haploidentical transplantation from her mother. Masha's mom
is now being examined as a potential donor. The transplantation
will require special cylinders for cleaning of the donor's
transplant that cost 508,476 rubles.
16.04.2010 On April 19th
Igor Verbitsky will travel to Germany
for diagnostics and therapy. We are sincerely grateful to
Happy World Fund for paying Igor's treatment bill.
16.04.2010 Andrei Kazakov
completed the first cycle of anti-relapse
chemotherapy and is now recovering. After the second cycle he will undergo
control tests.
15.04.2010 Masha Vartsan
had PET and MRI of the brain: no dynamics. There remain two microscopic
foci which accumulate contrast moderately. The girl had a consultation
at the Burdenko hospital in Moscow. The doctors recommended to avoid
surgery and suggested a new Temodal treatment scheme.
15.04.2010 Artem Kalnitsky
is in hospital being administered a rather hard chemotherapy course.
Fortunately the boy can eat, even though he is weak.
15.04.2010 Sasha Zipenkov
had serious breathing issues, at present his condition is stable again.
In 2 weeks Sasha and his mother are to go to Germany for an examination.
The tickets have already been ordered.
15.04.2010 Ekaterina Stepanchuk
has gotten sick, she has sinus trouble, so PET was rescheduled for April 20.
The girl is now treated with antibiotics and is feeling somewhat better,
but she's still having headaches in the evenings.
15.04.2010 Mitya Murinov
is feeling fine, as far has the basic disease goes all is fine, there
are some minor kidney problems, the boy is under a nephrologist's
control.
15.04.2010 Nilufari Sharifbek
is at home. She is feeling fine and is in a good mood. The platelet count
has gotten normal. Her appetite is good. Examinations at home showed
that all is fine. The next examination is going to take place in St.
Petersburg after April 20.
15.04.2010 Vasya Semenov
is feeling ok. He is under a neurologist's and cardiologist's control
and is getting the necessary maintenance therapy. Vasya's vision
has deteriorated a lot. As far as his basic disease goes the next
examination at hospital 31 is scheduled for may.
Vasya's mother is on sick leave, she has serious health issues
(related to gynecology and hemogenesis). Consultation with a
hematologist is scheduled for April 14. Vasya's father is feeling
a little better, he has been discharged from hospital and is
beginning to talk. Vasya's uncle has broken his hip.
The family still needs financial support badly!
15.04.2010 Diana Bairamova
is on maintenance therapy. Once every two weeks she comes to hospital
for blood counts. The recent blood tests testified to a low leukocyte
count. Diana is feeling fine.
15.04.2010 Liza Belova
has had a hard anti-relapse FLAG chemotherapy course and is now
recovering. Liza's father cannot work at the moment so the family
needs financial support to buy food and drugs. The invoice from
the registry has not been received yet, and we're starting to
raise money for a donor search for Liza.
15.04.2010 Sasha Martynov
was administered a radiation therapy course and one more chemotherapy
course in his home town of Voronezh. He now came to St. Petersburg
for an examination. He might need another chemotherapy course and
donor lymphocytes transplantation since the foci are still there.
Sasha still needs Vfend.
15.04.2010 Anya Kudryavtseva
is in remission but she has a skin and intestinal GVH reaction.
On April 25 Anya is coming to St. Petersburg for an examination.
She still needs Vfend.
15.04.2010 Olya Bogatova
is recovering after another chemotherapy course. She had serious
complications – kidney bleeding – which the doctors managed to overcome.
Fortunately the last lung tomography and blood counts allowed the doctors
to cancel antifungal drugs, and Olya does not need Noxafil any
longer.
15.04.2010 Marina Devyatkova
was recommended to undergo photopheresis which will allow the girl to
overcome the chronic skin GVH reaction and stop taking hormones.
Unfortunately expendables for the photopheresis machine are not
covered by the state and have to be paid for. A set for each session
costs 31,920 roubles. It is not clear yet how many sessions Marina
will need.
15.04.2010 Pomogi.Org had raised the full
amount needed for finding a donor for Sergei Ozerov!
Thank you very much!
14.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Damir Nasyrov.
13.04.2010 Olga Shmygleva's
flight went well. She was met at the airport. On Monday she was hospitalized.
She had a blood test and was installed a catheter. Today Olga underwent
PET imaging.
11.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Vitaly Shushmarchenko.
10.04.2010 Sergei Mikhailovich Mironov paid for
manufacturing and installation of prosthetic arm for
Marina Kochemarova. Thank you very much!
09.04.2010 Nastia Agapitova
underwent MRI on April 7th, which showed stable disease. PET is scheduled
for June 2010 and will cost 14,000 rubles. Nastia also needs help with
buying medications to improve brain vessels circulation.
08.04.2010 Yulia Dikan
had planned re-induction and was discharged home. The next re-induction
is planned for April 24th.
08.04.2010 Ilya Kirillov
comes to St. Petersburg for examinatons once a month. The next checkup
is scheduled for the end of April. Ilya stil needs to take many
medications: antiviral, antifungal and for liver support.
The family's financial situation is still very difficult, as
they still don't get alimonies from Ilya's father.
07.04.2010 After the second course of photopheresis,
Anya Fedotova had worsening of scleroderma.
GVHD involving lungs is suspected, as pleural function is low, and Anya
is breathing with only half of the capacity. She also has mild heart
failure, and as a result - drastically increased blood pressure.
Please help Anya with buying current medications.
06.04.2010 Katya Shikun
underwent a serious operation and will need to have 2-month-long
rehabilitation at a sanatorium in Germany.
06.04.2010 Olga Perova
managed to get a quota for treatment with radio-iodine. She does not
need financial help at this time.
06.04.2010 Olya Kapytsa
was moved to intensive care unit. She developed intestinal and skin GVHD.
Olya needs Salofalk, Zovirax and Intestamine, enteral nutrition.
Please help us with buying these medications, as Olya will
need them for a long time.
06.04.2010 Zhenya Ivanova
completed second cycle of therapy under a new protocol. The third cycle
will start on April 12. The tumor is responding well and after the
fourth cycle Zhenya will be tested and based on the results BMT
will be considered.
06.04.2010 Kirill Tutunnik
is still feeling nauseous despite taking several anti-nausea medicaitons.
He is not eating well and lost some weight. His eye is getting better,
however, and soft tissue around the eye is looking more normal.
06.04.2010 AdVita Foundation initiated fund-raising
for the treatment of Vyacheslav Egorov.
05.04.2010 A week ago,
Vanya Chernozub was diagnosed with serious
multi-resistant infection in lungs. He now receives antibiotics 4 times a
day at the hospital. Vanya feels better already.
04.04.2010 Olga Iluncheva
came for a checkup on March 17th. The liver indicators (ALT and AST)
improved somewhat, but are still far from normal. The bone marrow
punctures showed that all is well. The infusion of the second dose of
lymphocytes was rescheduled to April 5th.
03.04.2010 Dima Trifoev
started swallowing by himself and he was taken off the feeding tube, although
he is on a liquid diet for now. He still has severe muscular weakness.
He is in bed all the time, and does not get up, but can sit better.
03.04.2010 Stasik Chernobilsky's
blood counts recovered and he started chemotherapy. Due to low appetite,
Stas was prescribed additional enteral nutrition.
03.04.2010 Slava Chistyakov
is undergoing a course of therapeutic massage and he had some response.
However, since he still does not have movement in his arm, he was referred
to osteopathic specialist. Slava feels rather well and continues Vfend
therapy.
03.04.2010 Igor Verbitsky's
condition is unchanged. He was found to have new aspergillosis lesions
in his bones and he is continuing Vfend therapy. He received an invitation
from a clinic in Germany for examination and diagnostics. Igor and his
mom are preparing for the trip to Germany and are very worried.
03.04.2010 Since Monday
Vadik Salamatov
has had high temperature that does not go down. He was prescribed hormonal therapy.
Vadik had a visit to neuropathologist and was diagnosed with post-radiation encephalopathy.
He was prescribed Mexidol.
03.04.2010 Katya Stepanchuk
completed the 4th cycle of chemotherapy and already recovered. She feels
well and was allowed to go home. PET scan was scheduled for April 8th and will
cost 16,000 rubles. Please help Katya with paying for it.
03.04.2010 Unfortunately,
Andrei Kazakov
was diagnosed with a relapse. He was hospitalized at City hospital No.31 for
anti-relapse chemotherapy.
03.04.2010 Anya Seryukova
completed anti-relapse therapy. The testing of spinal fluid did not show any blasts.
Further treatment is under discussion.
03.04.2010 Elya Petrova
is still having issues with her teeth and she is undergoing dental treatment.
She is also receiving maintenance therapy. The tests were showing heightened
transaminase and Elya received therapy with Heptral. She now feels well.
03.04.2010 Slava Zhikharenko
is undergoing chemotherapy at R. Gorbacheva Institute, which will be followed by
donor's lymphocyte infusion. He does not feel very well, but is still in a
positive mood.
03.04.2010 Based on test results,
Sasha Sheligan
was confirmed to be in remission in regards to primary disease, but he
has residual mycotic lesions in his lungs. Sasha is still taking Vfend.
He was allowed to go home to be under doctors' watch in Chita. The next
checkup is scheduled for summer.
03.04.2010 Natasha Plakhina
developed symptoms of skin GVHD. She is now monitored as an outpatient.
Due to GVHD, she was taken off Roferon and Neostim.
03.04.2010 Serezha Popov
is continuing immunosuppressive therapy. He was transferred to outpatient
monitoring. Serezha needs NovoRapid insulin pens for insulin injections.
He complains of pains in his legs and has difficulty walking.
03.04.2010 Arina Pavlova
feels well. She is planned to have her next checkup at Kashkin Mycology
Institute. Arina still needs Vfend.
03.04.2010 Dasha Nekozyreva's
transplantation took place on schedule. She feels rather well.
03.04.2010 Sasha Novokreschenov
feels rather well. Sasha is continuing immunotherapy and still needs Vfend.
03.04.2010 Gayane Vardanyan
came in for another consultation. The search for a donor in the international
registry is continuing.
03.04.2010 Shamil Gasymzade
suffers from severe type of stomatitis. He was also diagnosed with a
fungal infection and needs therapy with intravenous Vfend at 400 mg a day.
03.04.2010 On April 1-2
Nastia Dominikova's mom's stem cells were harvested.
Nastia does not feel very well: she was diagnosed with a bacterial infection
and was prescribed Rovamycine for it.
03.04.2010 Due to hormonal therapy,
Anya Andreeva developed steroid diabetes. She
needs NovoRapid insulin pens for insulin injections.
03.04.2010 Ilnur Yulaev
feels well. The doctors are letting him go home for a month. We are sincerely
grateful to Grant Life fund and Aeroflot for providing Ilnur and his mom
with free tickets as part of Charity Miles program.
03.04.2010 Dima Sobin
had difficulty breathing. He is now in a stable condition, but is still
at the hospital under doctors' watch.
03.04.2010 Yuliana Rozhkova
is being monitored by local hematologists. She feels rather well.
The donor search is continuing.
03.04.2010 Egor Patsera
is still on maintenance chemotherapy. He needs Methotrexate for the next
injection, as the clinic is out of this drug.
03.04.2010 Akop Gulabyan
was diagnosed with a relapse. He is urgently starting pre-transplantation
chemotherapy. Stem cell harvesting from his sister who will be the donor
is scheduled for April 9. The hospitalization and cell harvesting will
cost them 67,000 rubles, because Karina is not a Russian citizen.
03.04.2010 Sasha Kurenkov
is at the hospital for now, but he feels rather well. The doctors suspect
that he may have invasive aspergillosis in his lungs. Sasha was tested
and the doctors are waiting for the results to start the therapy.
03.04.2010 Nadia Zheleznaya
had planned surgery to remove her spleen. She is already transferred out
of intensive care unit and today she got up for the first time.
03.04.2010 Anton Koltunov
still has difficulty walking, as he loses feeling in his legs until his knees.
The treatment is continuing.
03.04.2010 Alesha Dolgopolov
was allowed to stay at the rented apartment. He is monitored as an outpatient.
AdVita Fund had paid for the equipment for nk-cell selection for immune
therapy. As soon as equipment is delivered, the treatment will start.
03.04.2010 Nastia Konycheva's
last puncture results showed neuroblastoma cells in bone marrow. She
got ascites and is developing hepatomegaly. She is feeling unwell.
03.04.2010 Galina Molodtsova
feels better. She no longer has swelling and her condition is stable. The
doctors transferred her to outpatient monitoring. She now lives at the
rented apartment and still needs Vfend.
03.04.2010 Ivan Nechaev's
condition in regards to GVHD stabilized, but he got a viral infection
and was started on antiviral therapy.
03.04.2010 Yan Korchenkov's
leukocyte count is back to normal. He feels rather well, has a good appetite
and is in a good mood.
03.04.2010 Danya Pavlov's
leukocyte count increased and his bone marrow had started functioning. He
was discharged for outpatient monitoring and lives in a rented apartment.
03.04.2010 Nastia Pimenova
is in cytopenia after transplantation, but she feels well and has a good
appetite. She will be very happy to get cross-stitching sets.
03.04.2010 Ira Nikonova
had tests that showed she is well. The next checkup is scheduled for
April 27th. Since Ira is already 18, the cost of the exams is not
covered anymore and Ira will be billed for the expense.
02.04.2010 On March 31,
Pasha Lipunov underwent surgery at City
hospital No.5 to remove a tumor. The operation lasted 5 hours.
Yesterday Pasha was transferred to a regular room. Today he smiled
and started eating a little.
01.04.2010 The travel date for Dr. Kafanova
and Dr. Sirota for their training on breathing pacemaker implantation
for Inna Shakhmaeyva,
Dima Parmenov and
Lisa Kuchina in Munich, Germany was set
for April 13th. We urgently need to raise money for their travel expenses!
01.04.2010 Sergei Samorodov
urgently needs Noxafil. He only has enough medication to last for 9 days.
31.03.2010 Evgenia Titarenko
is taking Gleevec. She feels well. Evgenia has difficulty with
paying apartment rent. Please help!
31.03.2010 Ilnur Yulaev
is being discharged home for a month. He feels well. We are very
grateful to all the blood donors and those people who helped Ilnur
with medications.
31.03.2010 Diana Vaschenko
is now at Petrov Oncology Research Institute on treatment. After an
examination, another lesion was found in the rib bones. Diana is
undergoing a chemotherapy course that will last 6 days.
30.03.2010 Vladimir Efimov
is continuing chemotherapy in pills. His leukocyte count increased,
although platelets are still low. He feels rather well.
30.03.2010 Akop Gulabyan
was hospitalized at R. Gorbacheva Pediatric Hematology & Transplantology
Institute and he is preparing for the transplantation. He feels well.
The bill for the columns for cleaning of the donor's transplant is not
yet paid off. Please help Akop!
30.03.2010 Vika Voeva
feels very unwell. She has high temperature and very
low blood counts. Vika was diagnosed with fungal infection and has no
appetite, which is causing weight loss. Vika is receiving therapy with
antibiotics and re-transplantation is being discussed.
30.03.2010 Stasik Chernobilsky
is at the hospital. He came in for chemotherapy, but the course had to be
postponed due to low blood counts. In April he is planned to undergo MRI,
which may be paid for under a quota.
30.03.2010 Vladimir Sivukha
is recovering after transplantation. He feels well, but still needs Vfend.
30.03.2010 Shedi Buneb's
cells were harvested for transplantation. He underwent another course of
therapy with Vepeside and is now in cytopenia, as his blood counts
plummeted. Shedi received two transfusions of blood components and
receives antibiotics several times a day.
30.03.2010 Ksyusha Homenya's
radiation therapy is over. She is at home, studying for the exit tests.
The next checkup will be in May.
30.03.2010 On March 26th
Vika Smirnova was installed a catheter, and today
she started 7th chemotherapy cycle. After the 8th cycle, bone marrow
transplantation is planned. Vika feels well and has good appetite.
30.03.2010 Oleg Soshin
completed the second cycle of chemotherapy. On Friday he is planned to have
a lumbar puncture. Oleg does not feel very well.
30.03.2010 Maxim Matytsin
completed 5th chemotherapy cycle and was allowed to go home to recover.
He feels rather well. The 6th cycle is planned to start in two weeks,
and Maxim will need Holoxan.
30.03.2010 Alesha Potapov
recovered fully after autologous bone marrow transplant and the doctors
allowed him to go home. He feels well, studies and has normal test results.
In April he will have a planned CT scan, which Alesha will also
undergo locally.
30.03.2010 Fuad Abbasov
is in a serious but stable condition. He lost a lot of weight and sleeps
around the clock. Fuad receives chemotherapy, antibiotics, other medications
and intravenous nutrition. His catheter was replaced. At times, Fuad's
temperature rises. Fuad's condition is complicated by continuous
bleeding in his bladder. The doctors are doing everything they can to
stop it. Fuad receives platelets and other blood components. When Fuad
feels better he talks and tries to keep a conversation.
He wants to live very much. Fuad fights hard for his life. At times he
even gets up to exercise with a physical therapist. Fuad started to eat
a little by himself. His father stays with him at the hospital.
Fuad's treating doctor said that he now has better chances, so we are
all hoping and praying for Fuad's recovery. His condition improved somewhat
after his sister Lala spent a week with him. The bill for Fuad's treatment
is still unpaid. The remaining amount is very large.
30.03.2010 Olya Malkova asked us to thank
everyone who has helped her. The treatment is over. Olya is feeling
well and is preparing for exams in her school. Based on her request,
we will take Olya's page off the site.
30.03.2010 Unfortunately, based on test results,
Sasha Obertyuk has blasts again. He urgently
needs to undergo therapy with Atriance. Sasha needs 9 gm of this
medication, which will cost hundreds of thousands of rubles.
We are re-starting raising money for Sasha.
30.03.2010 Alena Azup
is feeling rather well. She is continuing Vfend therapy. We are sincerely
grateful to Happy World fund, which purchased this medication for Alena
for several months.
30.03.2010 Grisha Barchenko
completed the second anti-relapse chemotherapy course. He is responding
to the therapy and is planned to receive four courses of treatment.
29.03.2010 Tamara Zavradashvili
is still in a coma. She needs diapers (adult size 1).
29.03.2010 Shakhmayevs,
Parmenovs and Kuchins
families are asking for help with paying for travel expenses of a team of
doctors from Novosibirsk who need to go for 5-day training in Munich.
This training will benefit Inna, Dima and Lisa and other children who
need implantation of breathing pacemakers.
27.03.2010 Vika Polukhina
completed examination in Murmansk. All is well.
She is preparing for the exit tests.
27.03.2010 Katya Larionova
was examined in Singapore. She is confirmed to be in remission! We are
continuing raising funds for anti-relapse therapy. The children with stage
IV neuroblastoma (Katya's diagnosis) who undergo this procedure double
their survival chances.
27.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Nikolai Belov.
26.03.2010 Nastia Pimenova
started pre-transplantation chemotherapy. The transplantation is scheduled
for March 27th. Nastia feels well. We are very grateful to Russian Help
Fund for paying for around-the-clock sitter for Nastia.
26.03.2010 Danya Pavlov
is still at the hospital under doctors' watch. His blood counts are very
low.
26.03.2010 Tatiana Solomatina
was hospitalized at BMT clinic. She started pre-transplantation chemotherapy
course. Tatiana still needs Noxafil.
26.03.2010 Pasha Dolgachev’s
GVHD symptoms were taken under control, but Pasha still has very low protein
levels and needs Albumin.
26.03.2010 Zhenya Belyaev
completed a course of radiation therapy. At the area of the burn he developed
swelling, which bothers Zhenya very much. He is being monitored at the hospital.
26.03.2010 Serezha Vassiliev
was hospitalized due to high transaminase levels. He is undergoing therapy
with Heptral and feels rather well.
26.03.2010 Olga Voitenko
came to St. Petersburg and she is now undergoing all the necessary tests
prior to transplantation. The debt to the bone marrow donor registry is not
paid off yet, and money for delivery of transplant is not raised.
Transplantation is scheduled for April 8th. Please help Olga, as there
is very little time left until transplantation that she vitally needs.
26.03.2010 Misha Volkov
is undergoing therapy according to the protocol, and now he is receiving
another re-induction. He is tolerating chemotherapy well and is in a good
mood.
26.03.2010 Sergei Voropaev
is at home and feels well. However, he tested positive for aspergillosis again.
He was prescribed Vfend at 400 mg a day.
26.03.2010 Sasha Golubovsky
is still at the hospital. After the first infusion of cells from his mother,
there was no improvement. On March 17th he had a second infusion. Sasha
has skin GVHD and he receives hormonal therapy. He feels better, but is
very tired from being treated for a long time.
26.03.2010 Dima Ivanov
feels well and his liver indicators are normal. His temperature goes back
to normal after taking analgesics. Dima continues therapy with Pegasys.
26.03.2010 Natasha Plakhina
is still receiving Roferon and Neostim. The last control puncture results
confirmed remission.
26.03.2010 Lyudmila Krasikova
is at home and she feels rather well. The donor search is practically
over and we now need to raise money urgently to pay off Lyudmila's debt
to the registry and perform transplantation on schedule.
26.03.2010 Dasha Kuznetsova
is monitored as an outpatient. She takes immunosuppressive therapy and
Vfend. She feels well.
26.03.2010 German Kuzmin
was hospitalized for scheduled chemotherapy.
26.03.2010 Volodya Kurdyukov
feels better. GVHD of mucous tissues is now less pronounced, so Volodya
was transferred to outpatient monitoring.
26.03.2010 Gosha Makarenko
is now monitored as an outpatient. He still needs Vfend at 400 mg a day.
Due to intake of hormonal medications, Gosha developed steroid diabetes.
He needs Lantus and NovoRapid insulin pens.
26.03.2010 Kostya Makoveev
is at home, with his father and grandmother. His mom will be at rehabilitation
center in Sestroretsk for 6 weeks. Kostya has been having constant cough,
and he is being monitored by pulmonologist and otolaryngologist. He is still
taking Vfend at 400 mg a day. Kostya is in a good mood and enjoys being
on a spring break.
26.03.2010 The money for
Sasha Obertyuk’s
transplantation was raised, but the procedure was postponed due to donor's
illness. Sasha is in a great mood and he feels well too.
26.03.2010 Danya Patent
was hospitalized at Central District hospital in Vyborg due to fever. He
underwent treatment for an infection and is now back at home. He feels
well.
26.03.2010 Dima Sobin
was hospitalized at BMT clinic due to worsening condition. He still needs
Vfend therapy.
26.03.2010 Arsen Takaev
is undergoing examination at Oncology Research Institute.
26.03.2010 With immunosuppressive therapy,
Denis Trufanov’s
blasts percentage in his bone marrow increased. He was taken off
immunosuppressive therapy and the blasts level normalized. The doctors
plan for him to undergo donor's lymphocyte infusion.
26.03.2010 Based on CT scan results,
Sherzodbek Sharipov
is doing well. Vfend was canceled and he now has only one more chemotherapy
cycle, followed by lumbar puncture, after which the main course of treatment
will be completed. Sherzod will only take maintenance therapy in pills
(6MP and Purinethol). He is being discharged for outpatient monitoring.
26.03.2010 Roma Rybkin
is undergoing re-induction. He is at the hospital where he is taking Dexamethasone.
26.03.2010 Artem Kalnitsky
feels well. CT scan was rescheduled for the end of April/early May.
26.03.2010 Tanya Suchkova
finished a chemotherapy cycle. She is now at home where she is resting and recovering.
26.03.2010 Nastia Chipak
started preparing for enrollment into Baltic Tourism Academy. She will
need to take standardized tests for Russian language, math and social
studies. If someone could help Nastia prepare for the math and social
studies exams, she will be very grateful.
26.03.2010 Anton Zaitsev
completed a course of treatment and returned home. He feels rather well
and even goes to school. In a month, he will have examination at Oncology
Research Institute.
26.03.2010 Lisa Kudasova
completed a series of tests that confirmed remission. She is feeling
well and is preparing for school and drawing. In May Lisa and her mom
will travel to Moscow for installation of prosthesis. Russian Help Fund
expressed their readiness to pay for the prosthesis.
26.03.2010 Marina Devyatkova
still suffers from skin GVHD. She was prescribed immunosuppressive therapy
with hormones and Cyclosporine. For now she will be monitored at BMT clinic.
26.03.2010 Anton Koltunov
developed steroid diabetes during hormonal therapy. In addition, he has
pain in his legs. Ultrasound test showed fluid in his knee joints and Anton
was prescribed Thioctacid.
26.03.2010 Based on preliminary donor search,
Kolya Burov
does not have matching donors at the registry. As he does not have bone
marrow involvement, he is preparing for autologous bone marrow transplantation.
26.03.2010 Diana Vaschenko
is undergoing a course of treatment that was postponed due to a cold.
It will last six weeks and will be followed by tests.
26.03.2010 Vika Voeva
was urgently hospitalized due to transplant rejection and low blood counts.
Her mother is undergoing typing, as haploidentical transplantation is being
considered.
26.03.2010 Nastia Dominikova
finished a course of anti-relapse chemotherapy. She is now recovering.
On March 31 she will undergo haploidentical transplantation from her mother.
26.03.2010 Igor Zhuikov’s
skin and lungs situation is now stable, although he still has issues with
kidneys due to severe loss of protein. Nephrobiopsy results are not yet
ready. Igor will be transferred to Nephrology Research Institute at State
Medical University for extensive examination of his kidney function.
26.03.2010 Alla Kozhevnikova
underwent planned tests at Pediatric Hematology Institute. All is well.
Although she has some digestive problems, she does not have GVHD. Alla
returned home.
26.03.2010 Dima Kobzev
had planned tests. All is well.
25.03.2010 Nastia Chipak
will be operated at State Medical University rather than Mariinskaya hospital.
The surgery was rescheduled again.
24.03.2010 Larisa Bodrilova
had re-started IV course of Amphotericin B. She urgently needs financial
help to continue therapy with Noxafil.
24.03.2010 Ira Nikonova
underwent ultrasound and an x-ray. Both of them showed that everything
is well. However, four days ago Ira started having serious pains in
her leg, and then got a red spot and a pea-sized lump. Next week Ira
will need to travel to St. Petersburg to find the reason for this.
Ira's family urgently needs financial support, mostly due to them
having to frequently make trips from Novgorod to St. Petersburg
and back.
23.03.2010 Dasha Smetanina
completed tests. The fibrogastroduodenoscopy had shown positive dynamic,
which along with the results of CT scan gave doctors the grounds to allow
Dasha stay as an outpatient at the rented apartment. She feels well. We
are asking to help Dasha's mom with apartment rent. It will be rented for
at least a year, as Dasha is scheduled for several chemotherapy courses
and bone marrow transplantation.
23.03.2010 Roma Gronsky
had a stroke. He is in intensive care unit.
23.03.2010 Danya Pavlov's
condition improved, his temperature went down and leukocyte count
increased – possibly due to engraftment of donor's bone marrow.
23.03.2010 Ivan Nechaev's
will fly to Italy on April 6th for a clinical trial.
23.03.2010 Anya Seryukova's
condition stabilized and she was transferred out of intensive care unit.
The test results, unfortunately, show that she developed CNS involvement
of leukemia that caused seizures. Anya is now undergoing a course of chemotherapy
(injection of Cytosar in cerebrospinal fluid), and may also need an expensive
medication, DepoCyt.
23.03.2010 Shamil Gasymzade
underwent another course of therapy with MabThera and was hospitalized at
BMT clinic where his stem cells were harvested for autologous bone marrow
transplantation. The doctors plan to administer him another cycle of chemotherapy
and after complete examination hospitalize him at BMT clinic for autologous
bone marrow transplantation.
23.03.2010 Alisa Petrova
completed maintenance therapy. She will now come to the clinic once a month
for checkups.
23.03.2010 Pavel Mazhara
completed maintenance therapy and he feels well.
23.03.2010 On March 13th
Sasha Zhukov
turned 9 years old. The tests were postponed again due to herpes infection
on his lips. Sasha feels well. His grandmother, however, still suffers from high
blood pressure.
23.03.2010 Sasha Zipenkov
is undergoing tests. The test results showed high liver indicators, but
ultrasound did not show any pathology. The next week Sasha will have MRI
scan. He feels well now. In a month, he is scheduled to travel for a checkup
to Germany.
23.03.2010 Next week
Masha Petrova
will start a course of radiation therapy under a quota. She will be hospitalized
for a month. She feels the same, and keeps running high temperature.
23.03.2010 Olya Shmygleva
will fly to Italy on April 6th for a clinical trial.
23.03.2010 Dina Samigullina
was prescribed hormonal therapy to control skin GVHD, and she now has much
less of a rash and itching. Her legs ache and she has a hard time going
up the stairs. Dina is on a strict diet. Yesterday she turned 10.
23.03.2010 Olga Veselkova feels well, and
since she no longer needs help, she requested that her page is
removed from our site. We are very grateful to everyone for their help!
23.03.2010 Kirill Tutunnik
flew to Orlando, Florida, for participation in a different clinical
trial for neuroblastoma in MD Anderson Cancer Center Orlando. On Monday,
March 22nd, he started chemotherapy with an experimental drug and a
medication for osteoporosis. Last week Kirlll had high
temperature, but, fortunately, no pain.
22.03.2010 Andryusha Malozemov
had ultrasound of his abdomen at Children's hospital No.1. It did not find
any pathology. The blood test results for immunostatus are normal. The CBC
showed increase in ESR. The repeat blood test and ultrasound were scheduled
for March 30th.
20.03.2010 Vitya Bashkatov
was hospitalized at R. Gorbacheva Institute due to pneumonia and
endobronchitis. He had visits from a pulmonologist and otolaryngologist.
Yesterday he was discharged. Vitya is doing well in
regards to his primary illness: he is in sustained remission and donor's
transplant is fully engrafted.
20.03.2010 Nastia Konycheva
is undergoing the 10th cycle of chemotherapy. She is taking Dasatinib
and Temodal (pills).
16.03.2010 Violetta Moteva
needs help for testing and treatment of allergy. Her mom was laid off
and she is looking for a new job.
16.03.2010 We received invoices for NK-cell
separation system for Alesha Dolgopolov and
haploidentical transplantation for Akop Gulabyan.
They urgently need help with paying the bills.
14.03.2010 Masha Vartsan
started the 12th chemotherapy cycle. She feels relatively well, but as
usual during the cycle she does not want to eat much. After this chemotherapy
cycle, Masha will need to undergo MRI on March 24th, and on March
26th - PET imaging.
14.03.2010 Katya Stepanchuk
was sick and a cycle of chemotherapy had to be postponed for a week. She
now feels well and if her test results are good, she will start another
chemotherapy cycle.
14.03.2010 Masha Petrova
feels rather well, although she still has heightened temperature. She
feels stronger and gained some weight(10 kg). Her condition now allows
her to start radiation therapy.
14.03.2010 Anton Zaitsev
completed two-week long chemotherapy cycle and was allowed to go home.
He feels well and his blood counts are recovering already.
14.03.2010 Sherzodbek Sharipov
feels rather well. He is completing radiation therapy and there is only
one procedure left. Afterwards, he will have a lumbar puncture. Sherzod
will need to go for CT scan that is estimated to cost 13,600 rubles. He
is not taken off Vfend yet, and will also need to take Purinethol and 6MP
for a year. His family needs financial support.
14.03.2010 Sonia Morozova's
tests did not confirm aspergillosis and she was taken off Vfend. She is
continuing treatment of bacterial pneumonia and feeling better already.
14.03.2010 Anya Seryukova
completed all tests. She is in complete remission in regards to her primary
diagnosis. Anya and mom were already preparing to go home, but the night
before their flight Anya had severe seizures. She is now at the clinic under
the doctors' watch.
14.03.2010 Nastia Chipak's
hospitalization at Mariinsky hospital is scheduled for the next week, and
the surgery itself - for March 24.
14.03.2010 Masha Rozhdestvenskaya
is receiving maintenance therapy. She is in remission in regards to primary
diagnosis.
14.03.2010 Anya Andreeva
is still monitored as an outpatient. She is continuing immunosuppressive
therapy. Anya still needs Vfend. She also needs a wheelchair to go outside.
Please help!
14.03.2010 Unfortunately, donor's bone
marrow did not engraft. Danya Pavlov is
continuing therapy for cytomegalovirus
infection. Further treatment is under discussion.
14.03.2010 Sergei Scheblykin's
condition is worsening. He was transferred under intensive care doctors' watch.
14.03.2010 Dinara Samigullina
is recovering after transplantation and receiving immunosuppressive therapy.
She feels rather well.
14.03.2010 Nadia Zheleznaya
recovered after transplantation and was discharged for outpatient monitoring.
14.03.2010 Sasha Kurenkov's
transplantation took place on schedule. He is now under the watch of intensive
care specialists.
14.03.2010 Yan Korchenkov's
transplantation took place on schedule, on March 13.
14.03.2010 Tatiana Solomatina
recovered after surgery and she is monitored as an outpatient at BMT clinic.
She receives Fungizone IV and Noxafil.
Please help Tatyana with buying Noxafil, as a bottle of this drug that lasts
6 days costs 70,000 rubles.
14.03.2010 Roma Gronsky's
condition is stable and he has minimal intestinal GVHD. However, he still
needs Salofalk and enteral nutrition.
14.03.2010 Ilya Smirnov
completed all tests and the results show that he is doing well.
13.03.2010 Vanya Chemov's
surgery was successful. He feels well.
11.03.2010 Slava Chistyakov
underwent CT scan of his chest and MRI of his head. Based on CT scan results,
Slava has a new lesion in his right lung and needs Vfend therapy. He had a
surgery to remove gastrostomy and a port. Slava feels well and will be
allowed to go home.
11.03.2010 On March 11, Theater Center on Kolomenskaya
held Ballet Night and donated proceeds to benefit three of our patients:
Sasha Agapitov,
Dasha Shamanskaya and
Igor Verbitsky.
The ticket sales generated
15,000 euros for the donor search and delivery of transplants for
Sasha and Dasha, with the money raised by Russian Help Fund we no
longer need to raise more money for these children.
The cash box at the theater collected 56,050 rubles and $500, which will
be used to buy Vfend for Igor Verbitsky. We are sincerely grateful to
Theater Center on Kolomenskaya and Irina Moiseevna personally, as
well as ballet soloists from Mariinsky and Mikhailovksy theaters:
Denis and Anastasia Matvienko, Irma Nioradze, Irina Perren, Marat Shemiunov,
Maxim Zyuzin, Aleksey Timofeev, Elena Evseeva, Alexander Sergeev and Irina
Kosheleva, thanks to whom this event was made possible.
11.03.2010 Natalia Smolyar
needs urgent brain surgery that will cost 155,000 rubles. It will take
place at Burdenko Institute in Moscow.
10.03.2010 Olga Shmygleva
went for a consultation with several hematologists in Moscow who confirmed
the need for her to enroll in clinical trials. They also believe Olga is
in a very good condition and she can go without chemotherapy for at
least six months. Olga's documents were also sent for another
clinical trial.
10.03.2010 Husein Turaev
underwent another re-induction and feels well. The next re-induction was
scheduled for March 18th. For now, he needs to take 6MP in 1.5 times
normal dose because his leukocyte count is somewhat heightened.
10.03.2010 Grisha Bakhvalov
completed re-induction with complications. Despite his pre-treatment with
neuroprotectors, he still developed severe Vincristine-related neuropathy.
The boy was in much pain and was on painkillers around the clock.
The doctors decided to cancel second injection of Vincristine. Grisha
is now at home where he is finishing Dexamethasone therapy, but still
needs painkillers at night.
10.03.2010 Lisa Leushina
did not start re-induction due to low counts of protective blood cells.
In addition, Lisa has some neurological problems. Lisa was allowed to stay
at home for the holidays and on March 10th she will return to the hospital
where she will be examined by a neurologist. Lisa's family is now in
serious financial difficulties. Her father will be very grateful for help
with finding a job.
10.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Sergei Ozerov.
08.03.2010 MRI scan results confirmed that
Vanya Chernozub is in remission.
However, he was diagnosed with hearing loss and herpes infection
in his eye.
07.03.2010 Vladimir Efimov
is in Slantsy where he is taking Dasatinib in pills. His blood counts
improved somewhat. He has received barely any donations for
the donor search.
07.03.2010 Akop Gulabyan
needs to pay for the special equipment for cleaning of the donor's transplant.
We expect the cost of the cylinders to be over 500,000 rubles.
07.03.2010 Vladimir Sivukha's
condition is good. His blood counts improved already. However, Vladimir still
has problems with lungs, as he needs to treat aspergillosis and needs
Vfend for that.
07.03.2010 Sergei Samorodov's
condition worsened and he is seriously fatigued. CT scan showed negative
progression. If earlier one of his lungs was affected partially, now both
lungs are involved. Due to Vfend therapy, Sergei had some side effects and
he rarely gets up now. He may need to be switched from Vfend to Noxafil.
07.03.2010 Kostya Novitsky
is feeling well and is in a good mood. He is at home. CT scan of two zones
is scheduled for the end of March.
07.03.2010 Sherzodbek Sharipov
feels well. He started radiation therapy in parallel with Cytosar therapy.
07.03.2010 Sasha Zipenkov's
condition improved somewhat, despite a cold. He is now taking Anaferon.
07.03.2010 Artem Kalnitsky
was sent home to recover after he last cycle of chemotherapy and he feels
rather well. In a week, he will undergo ultrasound test and based on
the results, control CT scan may or may not be needed.
07.03.2010 Ilya Smirnov
was at the hospital for examination and consultation. The tests for
oncomarkers came back negative. Ilya feels well.
07.03.2010 Yulia Dikan
had another re-induction. The next hospitalization is planned for March 24th.
07.03.2010 Masha Kokshina is
recovering after another cycle of Atriance, which she has a very hard time
tolerating. Masha has no appetite and does not eat anything. She
feels unwell, but for now there are no alternatives to Atriance.
07.03.2010 Vanya Zatona is
at home and feels well. In the near future he has to travel to St. Petersburg
for examination.
07.03.2010 Nastia Chipak
underwent tests, and no contraindications to the installation of endoprosthesis
were found. The surgery is scheduled to take place at Mariinskaya hospital.
07.03.2010 Misha Nikitin is
continuing therapy under the protocol. In addition to the other medications,
he will also need to take calcium folinate.
07.03.2010 Although Ivan Nechaev is
still in intensive care, his condition is stable enough that soon he will
be transferred to the unit.
07.03.2010 Pavel Dolgachev is
still in intensive care unit. He needs Cellsept, Albumin and enteral nutrition,
Intestamine. Pavel lost a lot of weight and also suffers from pains
in his legs.
07.03.2010 Vika Smirnova
has no cancer cells in bone marrow based on the test results, and her stem
cells were harvested for autologous transplantation. She is now at home
and feels well. In the next few days Vika will be admitted to City
hospital No.31 for two cycles of chemotherapy, and afterwards she will
be transferred to R. Gorbacheva Pediatric Hematology and Transplantology
Institute for autologous bone marrow transplantation.
07.03.2010 Based on PET imaging results,
Stasik Chernobilsky still has areas of
tracer intake. Stasik is continuing treatment and had a five-day
course of therapy with Temodal. He is now feeling relatively well,
but has no appetite at all. Soon Stasik will be discharged home
and he will be coming to the hospital for tests. In 20 days he
will start another 5-day course of Temodal. These courses are
scheduled to be repeated for 7 months.
07.03.2010 Shedi Buneb
is at BMT clinic, as he needs to have his cells harvested for autologous
transplantation, but due to low blood counts it is not yet possible.
After a surgery on his leg, he needs care of a specialist to recover
lost function and such specialist is not on staff at Oncology
Research Institute.
07.03.2010 On March 4th
Serezha Orlov's IV line was taken off and he
was allowed to go home for the holidays. His blood counts are still low.
Next week he will have several tests: blood tests, cardiogram, ECHO
and others. At the end of the week he may finally be allowed to
stay at home.
07.03.2010 Dinara Samigullina
is in 37th day post-transplantation. She has a difficulty walking as
her legs ache. She also needs to be on a strict diet. Dina and her mother
live in a rented apartment, and twice a week they go to the clinic for tests.
07.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Marina Kochemarova.
06.03.2010 Sasha Kislichnaya
needs to travel to Uniklinik in Aachen, Germany, for surgery and new
prosthesis. Sasha was billed 3,500 euros. Please help Sasha!
06.03.2010 Larisa Bodrilova
was allowed to stay at home during holidays where she will continue
Noxafil therapy. She tolerated Therapy with Amphotericin B well,
even in a higher dosage. The last CT scan showed improvement.
06.03.2010 Kirill Tutunnik's
parents have decided to take Kirill for a clinical trial with an experimental
drug at MD Anderson clinic in Orlando, Florida, based on recommendation
of Kirill's treating doctor. The cost of the trial is estimated at $81,000.
06.03.2010 AdVita Foundation initiated fund-raising
for the treatment of Vika Voeva and
Vladimir Efimov.
04.03.2010 Nastia Gordeeva
was tested, and everything is well. The next visit is scheduled for May.
03.03.2010 Roman Gronsky
feels better, but he still has GVHD symptoms, and the therapy with Salofalk
was continued. He still needs enteral nutrition with Intestamine
and Lipo Plus.
03.03.2010 Igor Verbitsky
needs to undergo examination at Phtisiology & Pulmonology Research Institute.
He was referred for scintigraphy. The doctors increased his Vfend dosage
to 600 mg a day. We are sincerely grateful to Happy World fund for joining
our efforts to raise money for Igor's treatment.
03.03.2010 Nadia Zheleznaya
was found to have an infection and was prescribed Amoxiclav. She feels rather
well, but lost her appetite and suffers from nausea. Nadia still needs Vfend.
03.03.2010 Galina Molodtsova
was transferred to intensive care unit. To deal with swelling, she needs two
bottles of Albumin a day.
03.03.2010 Tatiana Solomatina
is recovering after surgery. Her condition improved somewhat.
Unfortunately, she has pharyngitis and has difficulty speaking, but her
cough has gotten better. Tatiana is now at the clinic. Based on test
results, her blood counts are good and bone marrow is normal.
03.03.2010 Masha Petrova
had CT and PET scans that showed lesions accumulating contrast in mediastinum.
She was referred for radiation therapy at Oncology Research Institute.
03.03.2010 Nastia Konycheva
developed swellings and had some seizures. She is being monitored by the
intensive care specialists.
03.03.2010 Based on post-operative histologic study results,
Grisha Barchenko was diagnosed with secondary lymphoma.
It may have been provoked by re-activated Epstein-Barr virus. He is still in
remission in regards to leukemia. Grisha is now undergoing chemotherapy
at R. Gorbacheva Pediatric Hematology & Transplantology Institute.
Grisha receives Cancidas. His family's financial situation is still very
difficult. Please support Grisha's family.
03.03.2010 Denis Alenichkin
is is doing well. Based on planned test results, he has minimal GVHD and is
in remission for leukemia. It was decided to postpone photopheresis, as
the doctors will allow him to go home for two months. Denis is still
continuing therapy with Entocort and Diflucan.
03.03.2010 On March 4,
Yan Korchenkov will be hospitalized at BMT clinic
to start preparing for transplantation.
03.03.2010 Sergei Popov
is at the hospital under the doctors' watch. He feels well and his blood
counts are stable. Sergei is continuing long-term immunosuppressive
therapy, during which he needs to continue taking Vfend.
03.03.2010 Igor Zhuikov
is continuing photopheresis. He was referred for detailed examination of
kidneys due to fluid retention.
03.03.2010 Sasha Sheligan
came in for scheduled examination and is undergoing tests. He is still
taking Vfend.
03.03.2010 Sonia Morozova
is doing well and her remission was confirmed. Since she was previously ill
with aspergillosis, she was prescribed Vfend to prevent recurrence of
aspergillosis, at 400 mg a day.
03.03.2010 Danya Pavlov
was transferred to the room from intensive care unit. He is continuing
Neo-Cytotec therapy.
03.03.2010 Ilnur Yulaev's
intestinal GVHD re-activated and he was prescribed Salofalk.
03.03.2010 Albina Bastanova
completed main chemotherapy course and radiation therapy. Based on test
results, she is in complete remission. She already returned home and is now
undergoing maintenance therapy locally.
03.03.2010 Tanya Suchkova
completed the first cycle of chemotherapy under an
experimental protocol.
03.03.2010 Sveta Boldesova
completed a course of radiation therapy. Based on test results, she is
in remission. She returned home and will be monitored locally. We are
very grateful to everyone who helped Sveta!
03.03.2010 Anya Scherbenko's mom asked our
fund to take Anya's page off the website. The treatment has been
completed long time ago. Anya feels well, goes to the regular daycare
and they would like to forget about all the troubles they had been through.
We are very happy to hear such news and will fulfill Anya's mom's request.
We are grateful to all the doctors, nurses, supporters, blood donors
and volunteers who have helped Anya to become a normal healthy kid.
Thank you!
02.03.2010 Dasha Smetanina
underwent surgery, during which a tube was placed in her esophagus in
the narrow area. Dasha feels well.
01.03.2010 Svetlana Lukicheva
is recovering after chemotherapy. She received a bill for 151,965 rubles,
which needs to be paid off within 2 weeks.
28.02.2010 Yan Korchenkov's
transplantation is scheduled for March 15th. Within a week, we need to
raise 2,500 euros for delivery of transplant.
28.02.2010 Omari Arkania
was hospitalized with sinus infection. Now, after surgery, he
feels better.
28.02.2010 Olesya Chebakova
feels well. She and her mom went to sanatorium for a month.
28.02.2010 Karina Kosareva
feels well. Once a month she goes for tests at Children's hospital No.1.
She studies at home for now, but plans to return to school someday.
28.02.2010 It was decided to combine revisionary
and main surgeries for Serezha Bolshakov.
The operation will require pads for the prosthesis.
28.02.2010 Sasha Karimov
is being monitored at Hematology and Transfusiology Institute. He goes
for planned tests once every six months. He feels well and has a job.
28.02.2010 Grisha Barchenko
is undergoing chemotherapy. Under the new protocol, he will need to receive
four more cycles of chemotherapy, and then (after tests), possibly two more.
In addition, Grisha receives Cancidas. The family's financial
situation is still very difficult.
28.02.2010 Sherzodbek Sharipov
is feeling a little better and his temperature is normal already. He still
needs Vfend.
28.02.2010 Andrei Ivanov
was diagnosed with radiculoneuropathy and prescribed Berlithion 300 in
pills and Cerebrolysin in ampoules. The total cost of medications is
4,500 rubles. Andrei's mom is asking for help with buying medications.
28.02.2010 During the last month,
Olya Bogatova had pains due to stones in her ureters.
She had surgery to install shunts in ureters and she now feels better.
Olya was able to start another cycle of maintenance therapy.
She still has fungal infection in her lungs, and CT scan even showed
some worsening. Olya needs to continue Noxafil therapy: 1 bottle lasts
her 5 days. The search for the bone marrow donor is ongoing.
28.02.2010 Artem Bychin
came to the clinic for planned two week-long course of therapy. Based on
scintigraphy test results, he has positive dynamic, so he will continue
therapy under the same protocol until November 20th. Artem will still
come to the clinic once every three weeks for two days. He is continuing
to take Sandimmune Neoral in syrup.
28.02.2010 Nilufari Sharifbek's
platelet counts are finally rising. She feels well and is in a good mood,
but still wants to go home. Nilufari still has a large debt to the clinic
for her treatment.
28.02.2010 Mitya Murinov
underwent tests and he is doing well. Mitya feels well too.
28.02.2010 Anton Zaitsev
started another cycle of high-dosage chemotherapy with Ifosfamide.
He feels well.
28.02.2010 Ekaterina Stepanchuk
underwent a course of chemotherapy and already recovered. The doctors
allowed her to go home for a week. Afterwards, she will start the next cycle.
In about a month, Katya will need PET imaging that costs 16,000 rubles.
Katya is asking for help with paying for PET.
28.02.2010 Ira Kondratieva
feels well, but her father got seriously sick with lung cancer. He is
undergoing chemotherapy and cannot provide for Ira anymore. Ira's mom
disappeared without a trace back in early fall. Ira took an academic
leave from college and is trying to find a job. If someone could help
Ira with finding a job, we will be very grateful! Ira has a high school
diploma and experience in working as a cashier and a salesperson.
28.02.2010 Roma Rybkin
recovered after the re-induction and feels rather well, except for a
stuffy nose that requires a visit to the otolaryngologist.
Roma will need short monthly chemotherapy cycles (re-inductions)
for a long time.
28.02.2010 Sasha Zipenkov
will be hospitalized for an examination. He has serious health issues:
vomiting in the morning and temperature rises. He needs to undergo testing.
28.02.2010 Ksyusha Khomenya
is continuing radiation therapy. Ksyusha lives at home and comes to the
hospital for procedures and tests. She feels well.
28.02.2010 Serezha Orlov
is at home, but does not feel very well. He suffers from stomatitis
and high blood pressure. He takes Mildronate and Fungizone
to fight stomatitis.
28.02.2010 Vika Smirnova
feels well and has a good appetite. She gained a bit of weight.
27.02.2010 Hayal Ibaev's blood
counts dropped and he got fever. He received platelets transfusion and
antibiotics. Radiation therapy is postponed for now.
27.02.2010 Sima Kochetova
had PET imaging. The results are good.
27.02.2010 Oleg Soshin
feels much better. He is continuing the 2nd chemotherapy cycle that
was interrupted.
27.02.2010 The utrasound scan still shows lesions on
Andrei Malozemov's spleen, although CT scan does not
indicate presence of any pathologic areas. The nature of the lesions is
unclear. The doctors believe that these lesions, if they indeed exist,
are not related to Andrei's main diagnosis. He will need additional testing.
24.02.2010 Lena Gavrilyuk
underwent planned examination. The remission was confirmed and she feels
well. Lena continues taking Vfend and Glivec with Prograf to control
skin GVHD.
23.02.2010 Ira Nikonova
underwent tests that confirmed remission. Now Ira will need to come for
ultrasound test at Oncology Research Institute on March 9-10.
A week later, she will need to go for an x-ray, second ultrasound and
EKG. CT scan is scheduled for the beginning of April. If one of the
volunteers could bring Ira and her mom to St. Petersburg on March
9-10 or help with paying for the trip on a rental car, we will be
very grateful.
23.02.2010 Vadik Salamatov
underwent radiation therapy. His leukocyte count is low and he
has a runny nose.
23.02.2010 Alesha Potapov
underwent autologous transplantation on February 10th. He is currently
feeling rather well - has good appetite and is in a better mood.
22.02.2010 Ira Gavrisheva
is already at home. All the bills from the clinic were paid for.
Unfortunately, she is still fighting post-operative complications.
Irina is continuing therapy with antibiotics and other
medications. Her pacemaker is working well.
22.02.2010 Zhenya Ivanova
completed the first cycle of chemotherapy under an experimental protocol,
and there was a response! The second cycle will start on March 5th and
by then Zhenya needs to buy three more Velcade bottles, each of which
costs 40,000 rubles. Please help!
22.02.2010 Slava Chistyakov
is feeling a little better, as transaminase levels went down significantly.
He has appetite and can eat by himself. Slava is continuing maintenance
therapy in pills - 6MP, and he still needs therapy with Vfend, Heptral and
Depakine. His mom is asking for help with buying these medications.
22.02.2010 Marina Devyatkova
is being monitored locally. She still has chronic skin GVHD and stomatitis,
but she feels well.
22.02.2010 Dima Koba
feels well. He is in remission, based on results of tests he had in
November 2009. The next round of tests is scheduled for the
beginning of March.
21.02.2010 Artem Kalnitsky
completed another chemotherapy cycle and is now recovering. After the
next chemotherapy cycle, he is planned to go for CT scan of abdomen
and lungs. The cost of CT scan with contrast will exceed 10,000 rubles.
21.02.2010 Kostya Novitsky
is at home and feels well. His test results are good too. Kostya is being
home schooled. In March he is planned to go for CT scan of his spine
and head that will cost 7,000 - 10,000 rubles.
21.02.2010 Masha Vartsan
is recovering after another cycle of chemotherapy and feeling well.
By the next cycle, she needs to have anti-nausea drug, Zofran.
Once chemotherapy is over, she will need to have PET imaging
that costs 14,000 rubles.
21.02.2010 Larisa Bodrilova
was at home and had a course of therapy with Posaconazole (Noxafil).
On February 22, she will start another course of antimycotic therapy
with Amphotericin B.
21.02.2010 Ira Alekseeva
and her mom returned to St. Petersburg to continue therapy at City Hospital
No.31. The planned examination in Essen was scheduled for June.
Ira and her mom have enough money for the next trip. We are
enormously grateful to all Ira's supporters!
21.02.2010 Ilya Kirillov
completed the main course of treatment and lives in a rented apartment.
Once a week he goes for tests. A puncture was scheduled for Wednesday.
Kirill's mom needs a consultation from a family law attorney.
21.02.2010 Alena Azup
recovered after transplantation, and her blood counts increased. She
shows first signs of light form of skin GVHD. Her mom would be very
grateful for helping them buy Nutrizon Vanilla nutrition,
because this is the only type of food that Alena agrees to eat.
21.02.2010 Anya Andreeva
was discharged from the hospital. She lives in a rented apartment and
is being monitored as an outpatient. Her blood counts had finally
started to grow. For now, her potassium and protein are low, so he
receives immunoglobulins and albumin. Since Anya is still taking
Cyclosporine, she is tested twice a week. Anya still needs Vfend.
21.02.2010 Anton Yakushenkov
is at home. He feels rather well, despite heightened temperature that does
not go down. Anton studies at the 4th grade level as a home-schooled
student.
21.02.2010 On February 15th
Maxim Matytsin had his birthday. That day he had
a course of high-dose Methotrexate, while his photos were at the exhibit
"We live on this Earth" that was opened in Moscow by Grant
Life fund with participation of Advita fund.
20.02.2010 Nastia Konycheva
is having a very hard chemotherapy course which she has serious problems with.
20.02.2010 Dima Trifoev
is in intensive care. He has developed a serious muscular weakness. Dima is
being examined, consultation with a neurologist has been scheduled. Doctors
suspect intoxication resulting from chemotherapy.
20.02.2010 Sasha Golubovsky
had his mother's cells transplanted. Sasha is not feeling well: he is very
weak and had a nosebleed a while ago.
20.02.2010 Alexei Dolgopolov
is recovering after the autotransplantation. He is feeling as good as one
can with low blood counts. But he is already eating well and going for walks
every day. CT is normal, no changes. PET is scheduled for February 25.
20.02.2010 Shamil Gasymzade
achieved stabilization but there is no remission so far. He will now have his
cells harvested for autotransplantation and then go back to the Research
Institute of Oncology for two chemotherapy courses.
20.02.2010 Liza Belova
is in intensive care in a grave condition: a viral infection had lung
complications. Liza is getting oxygen and is being administered antibacterial,
antiviral and antifungal therapy plus Pentaglobin. Based on the matching
results Liza has potential donors in the registry.
20.02.2010 A donor was found for
Olga Voitenko
transplantation is scheduled for mid April. Before end of March we have
to pay the registry for the donor search and cell harvesting, and that is
13,000 euros (AdVita paid 2,000 euros from donations to all patients to
start the search), plus 2,500 euros for the transplant delivery have to
be raised yet. The situation is aggravated by the fact that there is no
Dacogen at hospital to help suppress blast growth, and Olga's condition
has gotten worse.
20.02.2010 Rossiisky Fond Pomoschi fund offered to
raise 10,000 euros needed for donor cell harvesting for
Sasha Agapitov
as well as the money needed to buy drugs required for the transplantation.
We must urgently raise 5,000 euros for the donor search and another 2,500
for the transplant delivery.
20.02.2010 Danya Golovkin
is continuing with the 3-months' immunotherapy course with Roferon and
Neostim. Please help us buy Neostim. Danya needs 3 vials per week, each
one costs 3,500 roubles.
20.02.2010 Podari Zhizn fund will be taking part
in raising the money needed to find a donor for Kirill Lukoyanov.
The donor has not been found yet.
20.02.2010 Valcyte for Ira Grushevskaya
has been bought and sent to Khabarovsk. The girl is feeling better.
20.02.2010 Sasha Sheligan
is coming to St. Petersburg for examinations.
20.02.2010 Sasha Novokreschenov
is soon to start a 3-months' immunotherapy course with Roferon and Neostim.
Please help us buy Neostim. Sasha needs 3 vials per week, each one costs
3,500 roubles.
20.02.2010 Kostya Makoveev
comes to hospital once a week for tests and is getting maintenance
therapy. Kostya's father returned to his job, and his mother is going
on with the rehabilitation course. Kostya still needs Vfend.
20.02.2010 Tatiana Solomatina
uwas hospitalized to the Research Institute of Phthisiopulmonology where
she has a surgery regarding aspergillosis loci in her lungs. Tatiana has
already been transferred from intensive care to a regular ward. She will
need intravenous Vfend for a long time. Please help us buy it!
20.02.2010 Ekaterina Stepanchuk
had PET which testified to loci in bone tissue. The doctors decided to
continue with high dose chemotherapy. Katya is going to have two more
high dose chemotherapy blocks which will be followed by PET again so that
the doctors could decide on further treatment.
20.02.2010 Gaik Ishkhanyan
is feeling fine and is regularly having blood counts done in his home town.
Examination in St. Petersburg has been postponed till spring. Gaik is now
having professional training (he is going to graduate from a law school soon)
and is going to start working on his diploma shortly.
20.02.2010 Iliya Ipkeev
came to St. Petersburg for an examination.
20.02.2010 Roma Rybkin
got sick with the flu right after the reinduction. For 3 days now Roma
has had a fever and bad stomatitis.
20.02.2010 On February 4
Igor Verbitsky
had a consultation with a surgeon, the decision on the surgery has been
postponed for a month. Then the boy will need an examination followed by CT.
After the examination he will need to consult a surgeon again. Igor still
needs vfend.
20.02.2010 Zhenya Kinonen
continues to get Intraglobin once every three months. Zhenya feels ok and
goes to school but the platelet count is still not very high, she has lots
of bruises on her body. We still have Intraglobin for the next injection.
20.02.2010 Yulia Ilyina's
platelet count is still somewhat low, the girl comes to hospital for tests
every once in a while. She is feeling ok.
20.02.2010 Omari Arkania
had CT done which showed that everything is clean in the lungs as well as
mediastinum and thymus. Omari is feeling fine and is in a good mood.
20.02.2010 Sveta Ivshina
had been admitted to the Bone Marrow Transplantation Clinic with serious
signs of skin GVH reaction. Treatment is being administered.
20.02.2010 A donor was found for
Sasha Obertyuk!
Podari Zhizn fund is ready to take part in raising the money for Sasha
since there is no time left to pay off the debt.
20.02.2010 Volodya Kurdyukov
still has GVH reaction which affected eye mucosa, the doctors are working
on immunosuppressive therapy for him. He also constantly needs Vfend, 400 mg
per day.
20.02.2010 Milana Kuzhenova
is done with the fourth course of Dacogen. According to the puncture her
condition is better.
There are very few potential donors for Milana in the international registry,
the search is conducted every week as the data are renewed, for now the
decision is to continue with Dacogen since the girl is responding to it
very well and to keep track of the situation with donors.
20.02.2010 Sherzodbek Sharipov
is done with the fifth and last chemotherapy course which is also the
hardest one, radiation therapy is next, but Sherzodbek has serious
complications: fungal sepsis. He urgently needs Vfend!
20.02.2010 Vika Smirnova
is being examined at the BMT Clinic. Next week she is scheduled for a puncture,
i.e. bone marrow sampling for analysis. The girl is feeling fine, her mood
and appetite are great.
20.02.2010 For Sergei Orlov
today is the last day of chemotherapy, then he will be examined. Sergei
is not feeling well due to drugs and hormones he is taking.
20.02.2010 Radiation therapy began for
Ksenia Khomenya,
she has already had three sessions. She is feeling ok. Radiation therapy
will last for 1-1.5 months.
20.02.2010 Ivan Nechaev
has fewer signs of GVH reaction but he is still in intensive care due to
a grave form of undernourishment. Ivan needs enteral and intravenous nutrition.
We need help with buying Intestamine, Modulen, Lipofundine, Omegaven.
20.02.2010 Roman Gronsky
has fewer signs of GVH reaction but he cannot eat on his own and needs
enteral and intravenous nutrition: Intestamine, Modulen, Lipofundine,
Omegaven. We also need help with buying Salofalk (in tablets and enemas).
20.02.2010 Ilnur Yulaev's
ucatheter has not been removed because his liver counts have risen dramatically.
It might be signs of a liver GVH reaction. Ilnur is still in hospital under
the doctors' control.
20.02.2010 Natasha Plakhina
is going to have immunotherapy with Roferon and Neostim administered shortly.
20.02.2010 Vadim Vinogradov
came to St. Petersburg for examinations, photopheresis is being considered
since Vadim still has a chronic skin GVH reaction.
19.02.2010 Rima Akhmetova
underwent bone marrow transplantation on December 21, 2009. Rima's test
results are now good and within norm, and she is already at home.
Rima will need to travel to St. Petersburg for planned control
tests soon.
17.02.2010 Hayal Ibaev
completed the 10th cycle of chemotherapy. He feels well. He now needs to
go for radiation therapy.
17.02.2010 Nikita Petrachkov
underwent the last examination in summer and all was well. Nikita
feels well and studies in the 2nd grade. In March, Nikita will have
a surgery due to hernia. The next round of tests is scheduled for May.
Nikita will need to go for ultrasound and MRI scan.
17.02.2010 Anton Zaitsev
an x-ray that showed that he does not have fluids in his lungs anymore,
but his lymph nodes are enlarged, and one of them is pressing on a
bronchus, which causes Anton to have a bad cough. On Friday, Anton is
planned to start 14-day chemotherapy with Ifosfamide.
17.02.2010 Serezha Bolshakov
undergoes testing every six months, and he is doing well in regards to
the main diagnosis. However, he feels pain in his leg, which may be due
to prosthesis fracture.
17.02.2010 Zhenya Vasilenko
will need prosthesis after completion of maintenance therapy. The orthopedic
doctors recommended bed rest with a daily hour of walking on crutches,
physical therapy, swimming pool, whole body massage and electrophoresis.
The family urgently needs financial support.
17.02.2010 Lisa Leushina
is undergoing maintenance therapy. The family is in a financial difficulty.
They only have one income earner, and their middle son Vanechka (he is 4)
has dental problems. All of his top teeth were taken out and he needs
artificial teeth installation that costs 5,000 rubles.
17.02.2010 Grisha Bakhvalov
comes to Children's hospital No.1 for tests and Methotrexate injection
once a week. His family is in a difficult financial situation.
Grisha's father has been actively looking for a job, but
unsuccessfully so far.
17.02.2010 Unfortunately, the transplant
did not engraft again and Danya Pavlov
received a new cell infusion. He is now at the intensive care
unit under the doctors' watch. Danya urgently needs NeoCytotect
to fight cytomegalovirus infection. Each bottle costs 12,000
rubles, and Danya needs several bottles before his response
to the therapy can be assessed.
17.02.2010 Gosha Makarenko
suffers from acute skin and mucous tissue of his eyes GVHD. He receives
immunosuppressive therapy and is now at the clinic under the doctors'
watch. CT scan showed presence of an infiltrate in his lungs and
Gosha was prescribed Vfend (200 mg a day).
Please help us with buying this medication!
17.02.2010 Dima Ivanov
is continuing to take Pegasys. He again has a side effect due to
therapy – heightened temperature.
16.02.2010 Today
Shamil Gasymzade was transferred to
R. Gorbacheva Pediatric Hematology and Transplantology
Institute for further treatment. After an examination,
Shamil is planned to go for autologous transplantation.
16.02.2010 Today
Katya Saifutdinova was discharged home.
She is doing well. After autologous transplantation she achieved
complete remission. She will be monitored by the hematologist
locally until her full recovery.
16.02.2010 Zhenya Vasilenko
broke his leg, right where he has necrosis of head of his hip joint
and needs to stay in St. Petersburg for some time.
Zhenya and his mom urgently need financial support!
15.02.2010 Sveta Schelokova
got re-instated after the academic leave and goes for studies at the
university. She feels well and in the good mood. Her test results are normal.
15.02.2010 Tamara Zavradashvili
was transferred from intensive care unit to intensive therapy room and her
great-grandmother is now with her at all times. Toma is still in coma,
but she breathes by herself. She needs wipes and adult diapers (size small 1).
15.02.2010 Sherzodbek Sharipov
is at the intensive care unit. He was receiving antibiotics and antifungal
drugs. Today he feels better.
15.02.2010 Sergei Goncharov
underwent CT scan that showed enlargement of retroperitoneal lymph nodes
and presence of fluid in his lungs. Sergei has fever and will probably
need new cycle of chemotherapy.
15.02.2010 Danya Vlasov
feels well. He plays and draws. Once a month Danya comes for examination
to Children's hospital No.1. All the test results are normal.
15.02.2010 Diana Bairamova
is at home and feels well. On February 18th she will go to the
clinic for examination.
15.02.2010 Arsen Arustamyan
is now sick with a cold. He will continue maintenance therapy
until September.
12.02.2010 The test results showed
the reason for which Oleg Soshin was
having gastrointestinal problems: he suffers from toxic
hepatitis due to treatment side effects. Oleg's second cycle
was temporarily put on hold. He was prescribed supporting therapy.
12.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Elena Adamyants.
11.02.2010 Alla Sinkevich
completed planned examination. She is doing well in regards to her main
diagnosis. However, she still suffers from gastrointestinal
complications and constant pains in her arm.
Alla was recommended the following: Lyrica (14 pills that last 3.4
days and cost 500 rubles), Katadolon (10 pills cost 500 rubles).
Alla really needs help with buying medications!
10.02.2010 Sasha Pakhomi
recovered fully after the autologous transplantation. The doctors found
it possible to let him go home to be monitored locally.
10.02.2010 Gulyuzum Tuisina's
transplantation went on schedule. She feels well, expect for total lack
of appetite. In the next few days, the doctors plan to transfer her to
the outpatient monitoring.
10.02.2010 Ilnur Yulaev
has slight symptoms of skin GVHD, but he feels well and was discharged
to stay at the rented apartment. On February 11th his infraclavicular
catheter will be removed. Ilnur was taken off suppressive therapy,
so at this time he only receives antibiotics and Mycosyst.
10.02.2010 After two courses of therapy
under VIDE protocol, Tanya Suchkova achieved
partial remission. In the next few days, she will start another
cycle of chemotherapy.
10.02.2010 Sasha Obertyuk
feels well. On February 9th, he started a second course under FLAG protocol.
10.02.2010 Alesha Dolgopolov
is recovering after autologous transplantation. In the next few days,
he will undergo CT scan (for free) and PET on two zones (it will
cost 10,000 rubles).
10.02.2010 Anton Koltunov
was diagnosed with aspergillosis. He needs 400 mg of Vfend a day.
10.02.2010 Nadia Zheleznaya
feels better and she is no longer nauseous. Unfortunately, she was diagnosed
with aspergillosis and needs 400 mg of Vfend a day.
10.02.2010 Kolya German
went for a review by Disability panel and received disability status
until he is 18 years old. Kolya needs Depakine chrono, which costs
3,000 rubles a month.
10.02.2010 Nastia Agapitova
underwent PET imaging. She is stable.
10.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Oleg Soshin.
09.02.2010 Masha Petrova
needs to go for CT and PET imaging on February 23 and February 25, for the
total cost of 26,080 rubles. Masha's condition since worsened: she developed
constant cough, runs temperature all the time, and her blood counts are
not normal.
09.02.2010 Nilufari Sharifbek
underwent tests (U/S and CT) and all is well. She still has low platelets,
but Nilufari really wants to go home. The family friends promised to come
to St. Petersburg and take her home, where she will be cared for by her
aunt.
09.02.2010 Serezha Kazarezov's
condition stabilized and he feels relatively well. However, he is bothered
by aseptic necrosis of joint head.
09.02.2010 Dasha Smetanina
was transferred to surgical unit of Children's Regional hospital. She
was diagnosed with a crack in esophagus wall and prescribed treatment.
09.02.2010 Anya Golubyatnikova
is at home. She is recovering after a round of chemotherapy and will soon undergo
the next cycle of experimental therapy at Oncology Research Institute in Pesochny.
09.02.2010 Denis Trufanov
is planned to undergo immunotherapy with Roferon and Neostim.
09.02.2010 Ivan Nechaev
is still in intensive care with stage IV GVHD, but he is now stable. Ivan
urgently needs Albumin and enteral nutrition Intestamine.
09.02.2010 Based on examination by otolaryngologist,
Pavel Toptalo retains sounds transmission in one of
his ears, but not in the other. He was also prescribed Vfend again due
to suspected aspergillosis.
09.02.2010 Nastia Dominikova
was diagnosed with a relapse. She started chemotherapy under FLAG protocol.
09.02.2010 Sultan Rakhmanaliev
will now come for tests once a month. Sultan feels well and has
good blood counts.
09.02.2010 Oleg Soshin
prescribed NutriZone, nutrition for feeding tube, 0.5 l (3 bags at 107 rubles),
and Kabiven Central, 1.5 l – around the clock, intravenously (7 bags at
1,740 rubles each). The tests to determine the reasons for intestinal
dysfunction are ongoing.
09.02.2010 Egor Patsera
is on maintenance chemotherapy. His blood counts are staying good and
he feels well.
09.02.2010 Sasha Golubovsky
had complete engrafting of donor's transplant, but there are not enough
cells. This causes low blood counts. Sasha is still at the hospital.
09.02.2010 Zhora Smolyar
feels well. He is asking to help his mother who was diagnosed with a
brain tumor.
09.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Maria Veselova.
08.02.2010 Based on PET imaging results,
Slava Zhikharenko has small progression of
his disease. He was recommended BIM chemotherapy followed by donor's
lymphocyte infusion.
08.02.2010 Sasha Zhukov
feels well. He studies and also draws. Sasha's grandmother with whom
Sasha lives now suffers from high blood pressure.
08.02.2010 Masha Petrova
had CT scan that showed no changes in the lesions. Masha needs to go
for PET imaging. She does not feel very well: has low blood counts and
constantly runs febrile temperature.
08.02.2010 Vlas Ekster
recently completed testing at hospital No.31. He is doing well.
The next round of tests is scheduled in four months. Vlas feels
well and enjoys studying.
08.02.2010 Zhenya Vasilenko
and his mom will come to St. Petersburg on February 10th. His mom is very
grateful to St. Petersburg's Parents Club for raising money for the fuel
surcharge (6,000 rubles) and help with buying medications.
08.02.2010 Maxim Dobrynsky
is continuing maintenance therapy and once a month he comes for re-inductions.
Maxim already completed 8 re-inductions out of 18 planned. He feels well and
is being home schooled. Maxim needs Depakine enteric.
08.02.2010 Lena Smelova's
maintenance therapy was finished in fall of 2009. Lena with her sister Vika
goes to preschool, to the 24-hour daycare, because their mom works shifts.
The girls stay at daycare for two days and at home for the other two.
The family is still in a very difficult financial situation. They need
clothes and shoes for the girls.
08.02.2010 Maintenance therapy for
Nazar Nesterov was planned to last until
April 5, 2010. Once every two weeks he comes for testing to the clinic.
He takes 6MP pills and Methotrexate.
06.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Larisa Bodrilova.
05.02.2010 After the consultation with the
specialists of Pediatric Hematology and Transplantology Institute of
State Medical University, Vitaly Bukatiki
was switched from Dasatinib to Nilotinib (Tasigna) that costs
200,000 a package. Tasigna affects different types of mutations
than Dasatinib and it gives us a chance to fix the genetic mutations
that Vitaly currently has.
05.02.2010 Serezha Orlov
is now at home and he feels well. In the next few days, he will undergo
CT scan. Please help Serezha with paying for the test (7,000 rubles).
05.02.2010 Dima Trifoev
and his mom returned to the hospital today. He has low blood counts and
fatigue. Dima lies down and does not feel very well.
He cannot study for now.
05.02.2010 Tamara Zavradashvili's
condition has not changed – she is still in a coma.
05.02.2010 Sherzodbek Sharipov's
blood counts are low. He feels unwell and weak and has no appetite.
He does not leave the room and sleeps most of the time.
05.02.2010 Vika Smirnova
is at home. She feels well and is in a happy mood. On Monday she will
be hospitalized at the day unit of Gorbacheva center. Then she will
undergo stem cell collection for the autologous bone marrow transplant.
05.02.2010 The ultrasound showed that
Andrei Malozemov's splenic lesions have shrunk.
He will continue therapy with antibiotics.
04.02.2010 Ivan Nechaev
is at the intensive care unit due to worsening of intestinal GVHD.
He was put on enteral nutrition, Intestamine, which has to be purchased.
04.02.2010 Alexei Cherniy
underwent testing and he is doing well. Based on puncture results,
donor's bone marrow engrafted fully.
04.02.2010 Due to hormonal therapy,
Serezha Popov developed steroid diabetes.
He is at the hospital where he receives insulin.
He also still needs Vfend.
04.02.2010 Alena Azup
underwent transplantation from her father. She feels well,
except for mucositis.
04.02.2010 Ira Grushevskaya
was hospitalized at a hospital in Khabarovsk due to low platelet count and
high temperature. She receives antibiotics and urgently needs Valcyte!
04.02.2010 Dasha Smetanina
was hospitalized at Oncology Research Institute. Further treatment will be
decided upon after control tests – CT scan and a puncture.
04.02.2010 Hayal Ibaev
completed 9th chemotherapy cycle, after which his blood counts dropped.
For a long time, the counts stayed low and he had fever. Now Hayal is
more or less stable. He needs to finish the 10th cycle and then go
for radiation therapy.
04.02.2010 Olya Ilyuncheva
completed a course of radiation therapy. Based on control test results,
she will get donor's lymphocyte infusions from her sister once a month
to stmulate GVHD and prevent possible relapse.
04.02.2010 Vika Polukhina
underwent testing in Murmansk. Vika will go for regular testing locally.
Vika feels well. She is studying at home and quickly catching up with
the school program. She is in her last high school year and needs
to prepare for the final tests. The surgery will probably take place
after the exams.
03.02.2010 Andrei Ivanov
had the last reinduction. Andrei has grave hypoplasia and needs blood
transfusions.
03.02.2010 Vladik Murlin's
maintenance therapy is going to be over in a couple of days.
03.02.2010 Misha Markov
had a biochemical blood assay and based on the results he must take
hepatoprotectors for a long time. Misha is studying at home.
03.02.2010 Tima Yamin
has had an examination, everything is fine.
03.02.2010 German Kuzmin
is feeling fine, he is getting ambulatory treatment. The boy still
needs Pulmicort.
03.02.2010 Sveta Dedova
was prescribed Ampholip. Sveta is now in intensive care on ALV with low
leukocyte counts and a serious mycotic lesion. She needs donor
blood of group A Rh+.
03.02.2010 Dima Sobin
is feeling ok and has been transferred to the day patient facility.
03.02.2010 Vladimir Maslennikov
is now going through a chemotherapy course at the Almazov center and is feeling
ok. Autotransplantation has been postponed.
03.02.2010 Roma Gronsky's
condition has become stable, the bleeding has stopped but there remain
signs of a GVH reaction. Roman has become very weak since he is only
getting enteral nutrition. We need help with buying Intestamine.
03.02.2010 Alexei Dolgopolov
had an autotransplantation on January 20. He is now is cytopenia and is
not feeling well.
03.02.2010 Sasha Obertyuk
achieved remission after the first FLAG chemotherapy course. He must now
repeat the FLAG course for which he needs Fludara (2 bottles).
Please help buy it.
03.02.2010 Dmitry Safonov
is still in intensive care, he's on ALV. His condition is extremely grave,
he has bad edema and a grave intestinal GVH reaction. Dmitri constantly
needs Albumin, 2 bottles per day. One bottle costs around 2,500 roubles.
03.02.2010 Kostya Novitsky
completed treatment under his protocol. He is now at home and comes to the
hospital for tests. He feels well and is in a great mood.
The next round of tests is scheduled for March.
03.02.2010 Ludmila Krasikova
finished a course of Dacogen and will start the second one in a week. Please
help Lyudmila with buying Mycosyst.
03.02.2010 Slava Chistyakov
has positive dynamic and much fewer lesions. He is now at home. Once a week
he is visited by an osteopathic specialist and massage therapist.
Slava still needs therapy with Valcyte, Vfend, Heptral (pills), and Depakine
chronosphere (750 mg). His mom is asking for help with buying them. Slava
has gastrostomy, so he needs enteral nutrition, such as Nutrizone energy or
Nutrizone with fiber. He is running out of nutrition and needs help with
buying it.
03.02.2010 Tatiana Solomatina
needs to undergo transplantation, but at first she needs to get therapy
for aspergillosis with intravenous Vfend (300 mg twice a day). Tatiana
urgently needs Vfend - please help!
03.02.2010 Ekaterina Stepanchuk
was diagnosed with lymphogranulomatosis (stage 4 with bone metastases). She
started high-dosage chemotherapy. Ekaterina underwent two cycles of chemotherapy
and fully recovered. She now feels well. Ekaterina needs to undergo PET
imaging. It was scheduled for February 9 and will cost 16,000 rubles. Please
help with paying for the test.
03.02.2010 On February 1 Olya Malkova
started the first re-induction. She takes Dexamethasone and Vincristine. During
the break between the Vincristine injections, she was allowed to go home.
03.02.2010 Anton Yakushenkov
was prescribed Cellcept as immunosuppressive therapy. It will be needed
for a long time.
03.02.2010 AdVita Foundation initiated fund-raising
for the treatment of Ira Alexeeva
and Maxim Matytsin.
03.02.2010 Marina Lavrentieva
completed treatment. She will now look for a job and take her older daughter
to a doctor.
03.02.2010 Sasha Zipenkov
underwent planned tests and he has no areas accumulating contrast.
For the first time in two long years of traveling to Essen for
treatment and control, the doctors lengthened the time between
the control tests to three months.
03.02.2010 Svetlana Lukicheva
completed the second cycle of chemotherapy. She is now recovering.
Svetlana is at the hospital where she takes Vfend. Her son has to
purchase platelet mass for transfusions. Svetlana still needs
help with paying for the treatment.
02.02.2010 Diana Ibragimova
needs Cancidas again, for the total cost of 225,000 rubles.
02.02.2010 Last week blood donors from Kronshtadt
visited hospital No.31. These young people continue donating blood for
our kids and bring them presents. This time, Elena Grigorieva and
Svetlana Nikolaenko, as well as children and parents of elementary
school #427, collected art sets, paints and toys. Pictures
01.02.2010 Ira Sukhova
came for scheduled testing. Based on CT scan, there are no changes.
After getting sick with tonsillitis, Ira is bothered with leg pains.
She was referred for a consultation with an immunologist and a
rheumatologist. The consultations will not be covered by insurance,
and Irisha also needs a new corset that costs 7,000 rubles.
Ira's family is still in a difficult financial situation. Please help!
01.02.2010 Danya Pavlov
had second transplantation and is now recovering. At first he felt relatively
well, but his condition somewhat worsened afterwards. His leukocyte count
went down and he lost a lot of weight. The donor's bone marrow is being
stimulated by Neupogen.
01.02.2010 Ilya Kirillov
had a consultation with endocrinologist, and had CT scan of adrenal glands
scheduled for February 18th to better diagnose the reason for the
malfunctioning of endocrine system. Ilya does not feel very well.
He has a hard time recovering after chemotherapy and can barely walk.
01.02.2010 Ira Nikonova's
histology results weren't very good. There are live tumor cells.
On February 16th Ira has to come to the clinic and based on the
results of tests further treatment will be determined.
01.02.2010 Diana Vashchenko
has a new tumor. She is planned to be hospitalized on Wednesday.
01.02.2010 Maxim Bazulin
underwent examination. All is well. The next examination is scheduled
for March 2.
01.02.2010 Vika Alexandrova
did not have enough bone marrow collected. On February 3rd she is planned to
be admitted to hospital No.31 for a course for Cyclophosphane therapy,
followed by stem cell collection.
31.01.2010 Vitaly Bukatik
is at the hospital. He suffered from hemorrhagic syndrome, spontaneous
bleeding in the frontal lobe of his brain with seizures, hematomas and
splenic infarction, and worsening of pneumonia in both lungs. He is not
producing any platelets, and lives only on blood transfusions.
The blasts are also growing - they are now at 25-35%, and their
increase is restrained by Dasatinib only. Transplantation remains
an open question. Vitaly only has enough Dasatinib for two weeks.
31.01.2010 Matvei Baburov
was purchased hearing aids. He needs help with paying for hearing therapist's
visits. Matvei's family is still in a difficult financial situation.
31.01.2010 Vanya Mamai is
being monitored at State Medical University. Once a month he goes for
blood tests, and once a quarter has a puncture.
31.01.2010 Vika Fedorina
will receive maintenance therapy until June 2010. She is doing well.
Once every two weeks she comes to the clinic for tests.
31.01.2010 Dasha Grigorieva
completed mintenance therapy in October 2009. Dasha feels well and studies
at school under an individual plan.
31.01.2010 Anya Ryaboshapka
looks and feels well. Once a month she comes to the hospital
for control tests.
31.01.2010 Violetta Matveeva
was discharged for maintenance therapy, which is scheduled to last until
May 2011. Every Monday she travels with her mom from Kronshtadt for
tests and therapy. The family is in a difficult financial situation,
and Violetta's mom will be grateful for any help.
31.01.2010 Karina Vasilieva
is well. She got over the cold and goes to daycare. Once every three months
she comes to the clinic for tests. She still has heightened
titers of CMV and EBV.
31.01.2010 Lera Stepanova
is undergoing maintenance therapy. She comes to the clinic once every two
weeks. Lera feels well.
31.01.2010 Until September
Serezha Svalyavin will receive maintenance
therapy and re-induction once every 6 weeks (i.e. short-term
hospitalization for maintenance therapy). Since his father will
be without work until March, he cannot pay for taxi rides from
Rybatsky and back anymore. The family is in a very difficult
financial situation and needs help for paying for taxis or someone
to take them to the hospital.
30.01.2010 Vanya Chernozub
received the first part of the second cycle of maintenance therapy.
He will have an injection of Vincristine on February 2. Vanya feels
well, his test results are good and his hair is growing back.
The treatment requires 6,000 euros more to be completed.
29.01.2010 The fundraising for
Irina Gavrisheva is now closed.
We are enormously grateful to everyone who has helped!
29.01.2010 Based on results of PET and CT,
Kirill Belyaev does not have areas
accumulating contrast.
29.01.2010 Lisa Belova
had puncture that showed blasts in her bone marrow. She will be
hospitalized at Children's hospital No.1 on Sunday.
29.01.2010 Danya Patent
finished maintenance therapy. He feels well and goes to a daycare.
29.01.2010 Natasha Myasnikova
completed maintenance therapy. Based on control puncture results, she
is confirmed to be in complete remission.
29.01.2010 Anton Yakushenkov's
temperature went down and he started eating better. The test results showed
that he has a fungal infection and he was prescribed Mycosyst.
29.01.2010 Milana Kuzhenova
is at the hospital where she is undergoing therapy with Dacogen.
She feels well.
29.01.2010 Galina Molodtsova
underwent transplantation. She is now in intensive care unit with
severe swelling. She urgently needs Albumin.
29.01.2010 Natasha Plakhina
recovered after chemotherapy. She is planned to receive donor's
lymphocyte infusion.
29.01.2010 Sveta Dedova
is in deep cytopenia and has fever. On Wednesday she will have a consultation
with Professor Klimko from Mycology Institute.
29.01.2010 Anya Seryukova's
doses of hormones are being gradually reduced. For the first time during
treatment, it did not lead to skin GVHD. Anya is at home and feels well.
29.01.2010 Nastia Konycheva
urgently needs to start chemotherapy cycle with Temodal and Dasatinib, but
there is no money to buy Dasatinib.
29.01.2010 Yulia Dikan's
condition had stabilized after she had inflammation of pancreas.
On January 28th she had the last Cytosar injection.
Today her test results are good.
29.01.2010 Hayal Ibaev
completed the 9th cycle of chemotherapy. He now needs to finish
the last, 10th, cycle. Then he will go for radiation therapy.
29.01.2010 Masha Kokshina
was hospitalized at State Medical University for Atriance injection.
29.01.2010 Ksyusha Borisik
underwent planned tests. She is in remission in regards to main illness;
however, she has issues with endocrine system and osteoporosis.
She is now undergoing additional tests.
28.01.2010 Dasha Kuznetsova
recovered after transplantation and was transferred to outpatient monitoring.
She began showing first signs of skin GVHD.
28.01.2010 Anya Andreeva
was urgently hospitalized due to fever. She is now stable, has normal
temperature, receives antibiotics and feels well.
28.01.2010 Serezha Popov
feels well. He was transferred to outpatient monitoring.
During testing, he was diagnosed with aspergillosis, so he now
needs Vfend therapy (400 mg daily).
28.01.2010 Alena Azup
began pre-transplantation chemotherapy. She does not tolerate it well.
28.01.2010 Pavel Dolgachev
was scheduled for second transplantation for February 11.
28.01.2010 Olya Bogatova
started a scheduled cycle of maintenance therapy. On January 27th she had
a lumbar puncture and bone marrow puncture. Due to Dexamethasone therapy,
her blood sugar rose and she was assigned a sugar-restrictive diet.
She also wants to learn to play a guitar and would be very happy if
someone could give her the instrument. Olya's grandmother was hospitalized
due to hypertonic crisis and Olya is looking after by her mother.
28.01.2010 Sasha Tsoi
maintenance therapy will last until May. He comes to the clinic for
tests twice a month. He feels well and is in a good mood.
28.01.2010 Grisha Bakhvalov
was discharged for maintenance therapy. Since Grisha had some neurological
complications after chemotherapy, he undergoes special therapy prior
to re-inductions, so his family still needs financial support with
buying medications.
28.01.2010 Lisa Leushina
was discharged for maintenance therapy. Her family needs help of a volunteer
with driving them to the hospital, or financial support with paying for
taxis.
28.01.2010 Autologous transplantation was successful.
Katya Saifutdinova had already recovered and she
feels well.
27.01.2010 Grisha Barchenko
was operated due to peritonitis. He still has fever, although he tested negative
for fungal and other infections. Grisha's family is in a difficult financial
situation. They need help with paying for living expenses, such as food and
current medications.
27.01.2010 Igor Zhuikov
started a course of photopheresis. After the first two procedures, he has
some improvement. Igor still takes Vfend at 600 mg a day, as well as many
medications to improve liver and kidney function. His family needs financial
support.
27.01.2010 Sasha Trevoga
arrived for tests. Based on the puncture results, he has 10% of blasts in his
blood. The doctors are discussing further treatment. Thanks to Noxafil therapy,
he has much improvement of zygomycosis, so the surgery is not considered
necessary at this time. Sasha still needs Noxafil, as one bottle of this
drug lasts him 6 days and costs 80,000 rubles.
27.01.2010 Galina Alieva
was at the clinic for tests. She was prescribed one more course of Velcade,
which she is receiving now at her place of residence. She feels well.
27.01.2010 Gosha Makarenko
was discharged for outpatient monitoring.
27.01.2010 Pasha Toptalo
feels better. He was transferred to the room from intensive care unit.
27.01.2010 Nastia Chipak
came in for tests. Unfortunately, due to necrosis of hip joints, she can
barely walk and suffers from severe pain.
27.01.2010 Gaik Ishkhanyan
is continuing his studies, taking tests and planning to come for examination
to the clinic.
27.01.2010 Fortunately, Sasha Kurenkov's
sister matched as a donor, so he will not need to search for an unrelated donor.
Sasha was hospitalized at R. Gorbacheva Pediatric Hematology and Transplantology
Institute.
27.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Dasha Shamanskaya.
26.01.2010 Lisa Kudasova
was examined. The tests showed double fold of the liver. She was prescribed
a course of Essenciale. Lisa is monitored by a neurologist after the
tests showed her brain supply is malfunctioning. She was prescribed
therapy with Hypoxen. At the end of November, Lisa's prosthesis was
corrected in Moscow.
26.01.2010 Vasya Semenov
was examined at the Cardiology unit of Pediatric Academy. Nothing serious
was discovered. Vasya feels well and was discharged home already.
26.01.2010 Toma Zavradashvili
underwent surgery, during which part of her tumor was removed. Toma's
condition is still critical: she is in coma and on artificial
lung ventilation.
25.01.2010 Olesya Boronina
was hospitalized due to worsening of chronic pyelonephritis, but today
she was discharged form the hospital. She will be on maintenance therapy
until June.
25.01.2010 Donor search and delivery of transplant for
Yuliana Rozhkova were paid for in full. We are very
grateful to Happy World fund!
25.01.2010 Serezha Goncharov
is undergoing treatment due to an infection. He is in leucopenia. CT scan
results show progression of his disease. As soon as his leukocyte counts rise,
he will continue treatment.
25.01.2010 Denis Trufanov
has blasts growth again. He underwent chemotherapy under FLAG protocol.
Denis is now at the clinic where he is recovering after the chemotherapy.
25.01.2010 It has been 11 days after
Nadya Zheleznaya's transplantation. She is now
in cytopenia, but feels reasonably well.
25.01.2010 Dmitry Safonov
is at the intensive care unit due to severe intestinal GVHD.
25.01.2010 Volodya Kurdyukov's
cystitis stabilized, but he developed symptoms of GVHD of mucous tissues in
his mouth and eyes.
25.01.2010 Unfortunately, donor's
bone marrow did not engraft, so Svetlana Dedova
is being considered for second transplantation from her father.
She needs two columns for cleaning of the donor's transplant.
The total price is 547680 rubles.
25.01.2010 Svetlana Lukicheva
started second cycle of chemotherapy. Her family is in a serious
financial difficulty.
24.01.2010 Serezha Kalmykov
has not been able to receive Gleevec for free, and the supply of the drug
that he received at BMT clinic will run out in a week.
24.01.2010 Denis Alenichkin
and his mom came to St. Petersburg for tests and treatment of chronic skin
GVHD with photopheresis. Denis feels well.
24.01.2010 Seva Korolev
completed main course of treatment under the protocol. He was referred
to a local clinic at his place of residence to undergo maintenance
therapy.
24.01.2010 Serezha Vasiliev
was diagnosed with aspergillosis. He was prescribed Vfend at 400 mg a day.
23.01.2010 Umid Pulatov
with his mom and sister flew back home. Umid is taking medications
according to the protocol offered by his treating doctor.
23.01.2010 Anya Kramarenko
finished maintenance therapy, and she will now come to the hospital
every six months. The next examination is scheduled for the end of April.
She feels well.
22.01.2010 Arsen Takaev
underwent autologous transplantation and recovered successfully.
He needs to go for series of tests at Petrov Oncology Institute
followed by a course of immunotherapy with Interleukin.
22.01.2010 Nastia Konycheva
was hospitalized at R. Gorbacheva clinic. Nastia needs Sprycel (Dasatinib).
A monthly course of therapy requires two packages, with each of
them costing 200,000 rubles.
22.01.2010 Tanya Suchkova
is undergoing chemotherapy under VIDE protocol. She feels rather well
and is not nauseous anymore.
22.01.2010 Lisa Belova
completed a course of rehabilitation therapy at the specialized clinic
in Kolpino and she will return with her father home to Ulyanovsk.
Lisa feels well and she is in remission.
22.01.2010 Dima Sobin's
transplantation took place on schedule. However, Dima now suffers
from GVHD in kidneys (hemorrhagic cystitis). He needs
Intraglobin and Albumin.
22.01.2010 Kostya Lee
came for control tests. He is doing well.
22.01.2010 Dasha Chernova
is at home and feels well. She goes to school and undergoes regular
testing.
22.01.2010 Andryusha Malozemov
had an ultrasound of abdominal organs that showed lesions in his spleen.
The doctors believe that they are due to infection and have no relation
to Andrei's main diagnosis. He was prescribed a course of two antibiotics
for 20 days.
22.01.2010 Dasha Smetanina
was discharged from Children's hospital No.1.
22.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Svetlana Lukicheva.
21.01.2010 Olesya Chebakova's
port was removed and she is already at home.
21.01.2010 Ilya Smirnov
completed planned tests and he is doing well.
21.01.2010 Based on PET results,
Masha Kokshina has a lesion accumulating
contrast. She is planned for hospitalization at BMT clinic for a
course of therapy with Atriance.
21.01.2010 Kirill Ivanov's
condition stabilized somewhat after injections of Contrical.
21.01.2010 Anya Andreeva
recovered after transplantation and was discharged to stay at the
rented apartment.
21.01.2010 Masha Rozhdestvenskaya
started maintenance therapy. She feels well and is monitored as an outpatient.
Masha would be very happy to get a set of Little Doctor tools.
21.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Nadya Zheleznaya.
20.01.2010 Andrei Golovin
had PET imaging of whole body. The test showed he has no tumor cells in
his body.
20.01.2010 Roman Gronsky
suffers from stage IV GVHD with internal bleeding. He receives Tranexam
to control bleeding and medications, inhibiting GVHD.
20.01.2010 Dasha Kuznetsova
is in the 10th day after haploidentical transplantation from her mother.
She is in cytopenia, but feeling well, except for a small rash.
20.01.2010 Kostya Makoveev
feels well. He is on maintenance therapy, and receives Ampholip and Vfend
to treat aspergillosis. Kostya's parents were discharged from the hospital
and undergo a rehabilitation course after a traffic accident.
20.01.2010 Tanya Suchkova
is recovering after the 2nd cycle of chemotherapy.
She was prescribed Vfend.
20.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Sasha Chernysh.
15.01.2010 Ilnur Yulaev
is in the 34th day post-transplantation of bone marrow. He feels well.
15.01.2010 Tanya Bolshebryukhova
feels well. At the end of January she will travel to Krasnodar for
planned tests.
15.01.2010 On January 19th
Aleksei Cherniy will come to the clinic
for another round of tests. Alesha feels well and was taken off
Vfend therapy for now.
15.01.2010 Sasha Kaminsky
is supposed to go for planned examination at the end of January. He feels well.
His family's financial situation is desperate. Please help them with
paying for tests.
15.01.2010 Sasha Pakhomi
is in the 28th day post-transplantation of bone marrow. He feels mostly
well, except for cystitis.
15.01.2010 Andrei Ivanov
had the final re-induction. He will soon be discharged for outpatient
monitoring.
15.01.2010 Dima Krymov
feels well and attends school. His liver function improved and his
liver is gradually recovering.
15.01.2010 Nastia Agapitova
has positive dynamic based on MRI results. On February 4, Nastia is
scheduled to go for PET and it will require 14,000 rubles.
Please help!
15.01.2010 Nastia Dominikova's
leukocyte count rose and she was allowed to go home, to the apartment where
she stays with her family.
15.01.2010 Based on tomography test results,
Nikas Kossov will be administered chemotherapy
first to reduce the volume of surgery. Nikas will now be installed
Hickman catheter and on Tuesday he will start therapy.
14.01.2010 Umid Pulatov
has widespread relapse. All the treatment protocols have been tried
previously. Umid's condition is such that his mom decided to take him
home to Uzbekistan. In the next few days the doctors will select
medications that will alleviate his condition and Umid will be
able to travel.
14.01.2010 The results of trepanobiopsy of
Ksyusha Khomenya that
became known just prior to the New Year are encouraging:
there are no lymphoma cells. Tomorrow Ksyusha will start
the 6th cycle of chemotherapy.
14.01.2010 Sasha Obertyuk
had a relapse. He is now undergoing anti-relapse chemotherapy under
FLAG protocol at R. Gorbacheva Pediatric Hematology and Transplantology
Institute. A decision was made to initiate search for unrelated donor
at the international registry. We need to raise 15,000 euros for
the search and 2,500 euros for delivery of transplant.
13.01.2010 AdVita Foundation initiated fund-raising
for the treatment of Katya Minyukhina.
13.01.2010 Olga Shmygleva's
disease is progressing. In Russia she is only offered palliative treatment.
Olga is hoping to get enrolled into a clinical trial abroad with a new
promising treatment method - radioimmunotherapy. The treatment will be free,
but Olya will need money for visas, air travel and living expenses.
Please help!
12.01.2010 Sasha Zipenkov
needs to travel for another planned examination and a course of treatment
at Essen. From the previous trip, his mom has 1,200 euros left, so she
needs additional 1,500 euros.
12.01.2010 Katya Shikun
will fly to Germany on February 8th for endoprosthesis. Katya and her
mom need help with paying for medical insurance, visas and tickets,
as well as living expenses in Germany. Katya's family is completely
out of money.
12.01.2010 A donor for Yan
Korchenkov was found. Transplantation was scheduled for February.
We urgently need to raise 2,500 euros for delivery of transplant.
12.01.2010 Dinara Samigullina's
transplantation was scheduled for January 27th. The money for the delivery of
transplant was raised.
12.01.2010 A donor for Nastia Moklyak
was found. Transplantation was scheduled for beginning of February and actual date
is being verified.
12.01.2010 Petya Maltsev
relapsed. He underwent second transplantation, this time from his mother.
It is now the second week post-transplant. Petya is in a serious condition
at the intensive care unit.
12.01.2010 A donor for Dasha
Nekozyreva was found. Transplantation was scheduled for beginning of
February and actual date is being verified. The money for the delivery of
transplant was raised.
12.01.2010 Ilya Kirillov
needs financial support with buying medications and paying for the tests.
12.01.2010 Shamil Gasymzade's
family needs help with paying for treatment and renting an apartment.
12.01.2010 Matvei Baburin's
hearing has gone down significantly. He needs hearing aids made
by Istok Audio Trading that cost 60,000 rubles.
10.01.2010 Arina Miteleva
is at home and doing well. She achieved complete remission and was taken
off Roaccutane. Arina will now be monitored locally in Vologda, and will
come to St. Petersburg for tests in spring.
10.01.2010 On January 27th
Nilufari Sharifbek is planned to go for CT scan,
which will cost 18,000 rubles. Please help!
10.01.2010 Marina Lavrentieva
will need to go for CT scan at the end of January. The tests will cost close
to 8,000 rubles.
10.01.2010 Hudoidod Yazonov's
family urgently needs financial support.
10.01.2010 Sergei Scheblykin
still needs help with paying for rented apartment.
10.01.2010 Slava Chistyakov
was discharged for outpatient monitoring. He continues Vfend therapy.
Slava and his mom need financial help with paying for CT scan and taxi
ride from Siverskaya to the hospital and back.
01.01.2010 Dear friends,
The year end turned out to be so difficult that all the celebratory
words somehow faded to the background. It is always hard when someone
passes away... And this is why we do not want to talk about how we -
doctors, patients, blood donors, volunteers and supporters - somehow
got through this difficult year, gained priceless new experience, and
found new supporters and partners...
Dear friends! You are very important to us because you did not leave
our patients alone, despite everything. You know that almost everyone
who writes, calls or comes to our fund with a request for help,
receives an opportunity to address potential supporters. We do not
feel that we have the right to choose who is more promising, and who
is less. The patients we support are often very difficult, or most
difficult cases who could not get help anywhere else. We do not hide
the gravity of the situations and try to inform you about all the
events - happy and sad...
Charitable work can be organized in different ways. It is easier to
call on everyone and together raise the required amount and buy
medication or pay for surgery or a donor search for a certain patient.
It is much harder when we have to be close by every day and pay for
the prosaic and mostly anonymous (needed by many patients) reagents
for the lab, platelet equipment for the donors, disposable gloves and
probes, endless tests and examinations, rent apartments and fix
infusomats...
And here we would like to note one achievement that we consider very
important: the volume of unnamed donations had grown significantly.
It means that you trust the fund volunteers and are ready to join us
in this daily routine work - support of seriously sick patients in
many different ways - with the understanding that there are no
unimportant things in such a complex and multi-faceted undertaking.
You are ready to endure our difficulties and be with our patients in
the times of joy and suffering too. You share our convictions, which
really come down to an important principle: everyone has the right to
get help and live - despite their age, citizenship, and medical
prognosis. We are happy that many people feel the same way.
We are grateful to all of you! Good luck!
08.09.2010 
