Yan Domanovsky is 16 months old. He has a rare disease: Wiskott Aldrich
syndrome. It is a congenital disease that affects only boys. Yan had a
brother that had the same diagnosis. He died when he was 2, before he had a
chance to undergo transplantation. Yan can still be saved. However, we
have very little time.
Yan lives with his grandmother. His mother started drinking heavily after
the death of his brother and she lost her parental rights. Yan's grandmother's
pension is 5,400 rubles. She cannot afford to pay 15,000 euros for the donor
search. Thanks to help of Russian Help fund, she raised 10,000 euros for the
donor search. Therefore, we now need to raise additional 5,000 euros, and 2,500
euros more for the delivery of transplant.
Update as of November 13, 2009.
Yan is monitored at Gorbacheva clinic. He feels rather well, but his
blood counts fluctuate, as well as hemoglobin levels.
Update as of December 9, 2009.
Yan was at Children's hospital No.1 from November 15 to November 25
for treatment of lymphadenitis. We are now at home, and Yan's
condition is relatively good. Once every two weeks we come for
tests to R. Gorbacheva Institute.
Yan started speaking, is very curious about everything and enjoys
helping me with various little tasks. He is a very kind and happy
boy. We are enormously grateful to everyone who responded to
our request for help.
Yan's mom
Update as of January 12, 2010.
A donor for Yan was found. Transplantation was scheduled for February;
the exact date is being verified. We urgently need to raise 2,500 euros
for delivery of transplant.
Update as of February 4, 2010.
Yan will soon be hospitalized at Children's hospital No.1 for tests
prior to transplantation.
Update as of February 28, 2010.
Transplantation is scheduled for March 15th.
Within a week, we need to raise 2,500 euros for delivery of transplant.
Update as of March 3, 2010.
On March 4, Yan will be hospitalized at BMT clinic to start preparing
for transplantation.
Update as of March 14, 2010.
Transplantation took place on schedule, on March 13.
Update as of April 3, 2010.
Yan's leukocyte count is back to normal. He feels rather well,
has a good appetite and is in a good mood.
Update as of April 30, 2010.
Yan suffers from stage IV intestinal GVHD. He is in intensive
care unit in a serious condition.
Update as of June 17, 2010.
On May 6th we were transferred from intensive care unit.
We won!
On June 17th we were discharged home from the hospital.
Yan feels well, and his blood counts are normal. He talks a lot,
and he runs around happy and joyful. He is now an outpatient.
Thank you very much for your help! I see my little treasure and
my soul is rejoicing. He is currently taking antifungal drug Vfend,
and a package of it lasts us 12 days.
Yan's mom
Update as of July 14, 2010.
Yan feels great. He was taken off all medications apart from Vfend.
Update as of July 30, 2010.
On behalf of our whole family, we would like to express our enormous
gratitude to all the personnel of R. Gorbacheva clinic, AdVita fund,
blood donors and our supporters.
Our son feels great now. We come to the clinic once a month for
monitoring. Ian can eat practically anything. He started speaking
in sentences, and is catching up in development that was delayed
by treatment. Once again - thank you very much!
Yan's father
Update as of October 4, 2010.
Yan's grandmother's custody was lifted. Yan lives now with
his mother and father. He now has a different last
name - Domanovsky.
Update as of January 15, 2011.
Yan feels great. He is now asking lots of questions: "Mama, why?"
He really looks forward to contact with kids his age, and I am
hoping that soon, thanks to your help, therapy with Vfend will
be completed and we will start taking Yan to daycare.
We are endlessly grateful to everyone who is helping us!
Wishing you good health! Merry Christmas and Happy New Year!
Update as of March 12, 2011.
Yan is at home. Every week we go for blood tests. Yan is a happy boy,
he runs around and jumps all day long. He loves playing with other
kids at the playground and dreams of starting preschool.
Yan still needs Vfend.
Yan's dad
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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