Another Yulia's photo

Hello!
I am the mother of Yulia Vodopianova who needs your help. My dear daughter, my only child had been just enjoying life like any other young girl. She finished school and became a student of the St. Petersburg University of Civil Aviation.
But in February 2011 she got sick with myelomonoblastic leukemia - a very grave type of leukemia. At present we have five months of a very difficult treatment course at City Hospital 1 of St. Petersburg behind us: intensive care, numerous complications after the chemotherapy... Thanks to the doctors' efforts the disease subsided, but in order to overcome it completely my daughter needs a donor bone marrow transplantation.
The search in the International Registry has been initiated. Our friends and relatives helped us raise 5,000 euros, so we have already made the first payment to the registry. Based on preliminary search results Yulia only has 13 donors, but we do believe that a 100% compatible donor we be found!
However, Yulia has one more problem now: she's had too many blood transfusions in the past, so her body is overloaded with iron - the count exceeds the norm significantly. In the meantime, the success of the transplantation is largely determined by on the patient's condition.
Yulia has to take Exjade on a regular basis. One pack costs 90,000 roubles and lasts for 42 days. We cannot afford such an expensive drug. We will be thankful for any help to our Yulia we can get. Your support will give her a chance to have a future of her own.

Elena, Yulia's mother
Telephone:
+7 (905) 258-90-65
e-mail: voda_5@mail.ru

Medical conclusion

Update as of August 18, 2011. The funds needed for the bone marrow donor search have been raised. Thank you so much Vladimir Stefanovich Litvinenko for your charitable help and Svetlana Yurievna Agapitova for making this help possible.
Yulia's mother

Update as of September 11, 2011. Yulia is monitored at the Raisa Gorbacheva Institute of Children's Hematology and Transplantology. She is administered Dacogen at the day patient facility. The donor has been found, transplantation is planned for October or November. The money for transplant delivery has been found.

Update as of September 22, 2011. Yulia's transplantation is scheduled for October 26.

Update as of October 3, 2011. Unfortunately, planned tests showed blast growth and Yulia was hospitalized at R. Gorbacheva Pediatric Hematology and Transplantation Institute for anti-relapse chemotherapy under FLAG regimen with plans to proceed to bone marrow transplantation. Transplantation will be performed as planned.

Update as of November 2, 2011. Yulia underwent transplantation on October 26th, as scheduled. She is now recovering. Her blood counts are very low, and during chemotherapy her mouth tissue was damaged. She cannot eat and receives nutrition intravenously.

Update as of January 18, 2012. Yulia is still in hospital struggling with the cytomegalovirus.Vfend is still needed.

Update as of February 8, 2012. Yulia's CMV infection was taken under control. She is being monitored as a day patient and receives hormonal therapy for skin GVHD (she has good response and doses are being gradually reduced). Yulia also takes Vfend and Entocort. Based on puncture results, she is in remission. Donor's bone marrow s functioning well, but in the last CBC lower platelet count was observed, and a puncture was repeated. The results of it are not yet ready. Yulia feels well.

Update as of February 29, 2012. Unfortunately Yulia's platelet and hemoglobin counts continue to fall so she's getting blood transfusions. Based on the puncture results Yulia is in remission and there are no blasts, but the transplant is not functioning sufficiently. Yulia is now administered a number of drugs that stimulate bone marrow, as well as immunoglobulins and albumin. The doctors are considering transplantation of donor lymphocytes. Yulia is feeling ok.

Update as of March 27, 2012. Unfortunately, control puncture discovered a relapse. On March 26th Yulia was hospitalized at Gorbacheva Institute for anti-relapse chemotherapy cycle, which will be followed by donor's lymphocyte infusion. Vfend is still needed.

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