Dispensary Reference
Epicrisis from 1st Children City Hospital: page 1, page 2, page 3.

Invoice from DKMS
Reference from St. Petersburg State Medical University

Update as of July 18, 2005.
My daughter Violetta does not feel very well. In the last three months, she could not go without Etamsilat, the medicine that prevents the loss of blood. She has low thrombocytes, particles that are responsible for blood clotting. They are at 20 – 30 – 40. I am forced to stay at my daughter's side 24 hours a day.
It is summer now, and it's very hot. My daughter has to stay inside all day, and only in the evening we can go for a walk. Our doctor keeps asking me why we delay the operation. Violetta's illness, myelodysplastic syndrome, can at any moment transform itself into acute leukemia, the disease that is very hard to treat and is very dangerous.
Unfortunately, we do not have the money to pay for the donor search, and all our efforts to find the sponsors, either governmental or private, were fruitless so far. We are grateful to DKMS registry that agreed to perform the search on the reduced cost basis; however, we do not have 10,000 euro, or even 5,000 euro.
Please help us. My daughter is a very fun, cheerful girl and she appreciates every minute of her life.
Please help us collect the money to search for the donor.
Thank you very much.
Violetta's mom

Update as of July 27, 2005.
I would like to thank the people who provided us with help for their kindness and compassion, and also those people who are helping us to collect the money. These people are father Bogdan (Nikolsky cathedral), Svetlana Kravchenya and Irina (Baltijskij plant), and Natasha Kozlova (childcare no. 5).
The last donations we received were from Irina for 10,000 rubles and Svetlana for 100 rubles. We also received bank transfers for 2,000 rubles and 1,000 rubles.
Violetta is not well. The lymph node in her left groin area is enflamed. Based on our doctor’s recommendation, we are using gentamicin ointment. If it does not help, Violetta will have to take antibiotics.
We are still in need of funds to start the search for the bone marrow donor. Please help us!
Violetta's mom

Update as of July 29, 2005.
Today we forwarded 2,200 euro to Germany as a partial payment for the donor search. Once again we would like to thank everybody who has helped us to collect this money!

Update as of August 8, 2005.
I would like to thank the workers of Baltijskij plant: Andrei donated 200 rubles, Julia - 150, Workshop #30 - 3800, Evgenia - 200, Natalià - 500, Lubov V. Zaletkina - 3200, Arkady - 100, Vasily - 500, UZ - 300, anonymous donor - 2100, Workshop #27 - 1750, Workshop #35 - 2550, Workshop #14 - 700, Samotsvetova - 500, Colleagues - 500, Tatiana Tolstobrodova - 1000, Lilia - 500.
Lodgers of Gavanskaya str. 43 - 2600, Olga and Igor - 1000, Father Pavel Krasnotsvetov (Kazanian Cathedral) - 710.
Viktor donated 23000 rubles.
Money was converted in euro (1560) and banked in our account.
Violetta's mom

Update as of September 2, 2005.
Violetta feels well. She was missing school and her friends a lot, and today she went to school. The rest of the school year she will be studying at home. She is currently taking the following medications: Etamsilat, Ascorutin, Lineks and Stomatofit.
We are very grateful for the donations and your support! Thank you very much!
Violetta's mom

Update as of September 15, 2005.
Violetta and her mom are staying at the rehabilitation sanatorium in Solnechny. The search for the donor was paid for in full.

Update as of October 11, 2005.
The donor for Violetta has been located. Violetta is scheduled to receive bone marrow transplant on November 2005.

Update as of November 8, 2005. Violetta is scheduled to receive bone marrow transplant on November 29, 2005.

Update as of December 7, 2005. Violetta received her transplant on schedule. The operation took a toll on her, but she feels much better now. We are concerned about her heightened transaminase levels (she was prescribed Heptral, which was paid for by her parents). We also need to buy her special food for parenteral infusion (the cost is 4,000 rubles for 10 days and it has to be purchased by parents) and thrombocyte systems (the cost is 8,500 rubles apiece, and, as of today, the parents paid for two of them, and the hospital provided another one).

Update as of January 5, 2006. Violetta was discharged from the BMT department of State Medical University and transferred to the Children's hospital No.1. Based on her condition, she could have been discharged home, but her living conditions (communal apartment) do not allow that. After receiving the transplant, Violetta's immune system will be inhibited for a long time; therefore, sharing the apartment with other people is very dangerous for her.
For that reason, we are looking for a separate apartment. We will be very grateful for any offers.

Update as of February 13, 2006. Violetta will need to take costly drugs, Cyclosporine and Diflucan, for at least six months. We are hoping for your support.

Update as of March 21, 2006. Violetta is being discharged from the hospital. Her mom is planning on taking her to the sanatorium.

Update as of March 28, 2006. Violetta got herpes-like rashes that quickly spread all over her body. She needs to take Zovirax on a long-term basis (the cost of treatment is 5,400 rubles a month). In the beginning, it should be injected intravenously.
Violetta's mom would prefer to not hospitalize her at the Children's hospital No.1. She is looking for a doctor or nurse who work or live near Vassilievsky island and could administer the medicine at home (for a fee). We will be very grateful for help.

Update as of April 3, 2006. "AiF – Kind Heart" charitable fund donated 248 capsules of Diflucan (150 mg each) to Violetta, which will cover full course of treatment.
In addition, Victor donated 12,000 rubles to buy Zovirax, while Anya sent 450 rubles for Violetta's treatment.
Thank you very much for your help!

Update as of March 13, 2008 It has been 2 years and 3 months since bone marrow transplantation. Fortunately, all is well with us. Every year, Violetta goes for complete testing. She is home schooled, reads a lot and enjoys beading.
She is still recovering from the transplantation. It is very difficult for us to live in a communal apartment, especially in summer. I would like to take Violetta for rehabilitation course to the Cardiology Center, but we have to pay full price for it.
If someone could help us with that, we will be very grateful. I would like to thank everyone for all the help we received. Thank you very much!
This is a new photo of Violetta.
Violetta's mom

Update as of June 30, 2009 In November 2005, my daughter Violetta underwent bone marrow transplantation at Gorbacheva clinic.
We are very grateful to the doctors of the Institute and Children's hospital No.1 who quickly prepared Violetta for the operation. Thank you very much!
Violetta is doing well now. She finished seventh grade of school #12 in St. Petersburg. She is a very patient and hard-working girl. While she was ill, my daughter could not study or see her friends for two years, because she was taking very serious medications that lowered her immunity.
From June 1 to June 30, Violetta was at the Solnyshko sanatorium for disabled children. She will spend July and August in the city. I would like to find tutors for her for English, Russian and math so that she does better at school. I will be grateful to everyone who can help us. I cannot afford it because I am a single mother.
We have one more issue. The orthodontist recommended Violetta to get braces, so that she could have a beautiful smile. Unfortunately, it is very expensive and I cannot pay for it. I am sorry for writing to you about this. I am enormously grateful to everyone who has helped and continues to help others. With you in it, the world is becoming brighter and kinder.
Lena, Violetta's mom

Update as of March 16, 2010 Hello! I have not written news in a while. I am bringing up Violetta by myself and have to work a lot.
Yesterday we had upsetting news: I was laid off due crisis and not enough work. I was working as a florist and enjoyed my job. But now we have no income and I have to ask for help.
Violetta needs to go for testing. She has issues with allergy, so she needs to see a specialist and be tested. This is very expensive for me, especially now - the cost is 9,800 rubles. We will be very grateful for help!
I will be enormously grateful if someone could help me find a new job!
Lena, Violetta's mom

Update as of November 8, 2011. Dear AdVita fund, we are very grateful to all the people who have helped us in the difficult year 2005. We remember everyone who supported us and are very thankful.
We really appreciate support of the people who have helped us survive then. In addition, 18 months ago when I had issues with work, I received help from caring people. We are very grateful to AdVita fund and its volunteers who helped us during difficult times.
Now all is well in regards to Violetta's primary diagnosis. Every year she has tests at St. Petersburg Medical University. We are now monitored at Allergy Unit of Children's hospital No.2 as Violetta was diagnosed with asthma. Fortunately, she does not need medical treatment.
This year we would like for Violetta to get braces on her teeth. She just had her lower molars taken out and the upper ones will be removed as well. The braces are also expensive and although I have two jobs, I cannot pay for this procedure.
Violetta is in the 10th grade and her dental issues form problems that may stay with her for the rest of her life. We would like to ask our supporters to help us raise money for braces. We will be very grateful for your help.
Violetta's mom

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