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Volodya died on August 21, 2011

 


Hello!
My name is Margarita Petrovna. I would like to ask for help for my son. Volodya is 18, and he has been sick for six years. He now needs to undergo bone marrow transplantation. A donor has already been found, and Grant Life fund has paid 5,000 euros for the donor search at the international registry. However, we still owe 10,000 euros for the collection of transplant material and its delivery to Russia. The money is needed urgently!
Please help Volodya is you have such an opportunity! Thank you in advance for your response.

Margarita Petrovna,
Volodya's mom


 

Bill for the donor search in Germany
Medical report
Epicrisis: page 1, page 2, page 3, page 4

 

Update as of May 25, 2009. We are sincerely grateful to the donors to the Russian Help Fund for agreeing transfer 10,000 Euros raised for collection of transplant for Nastia Ilder to Volodya Kurdukov's needs. Nastia will not need this money. Unfortunately, she has no matching donors at the international registry.
We need to urgently raise 2,500 Euros for delivery of transplant for Volodya, as his transplantation is scheduled for the beginning of June.

Update as of May 29, 2009. The transplantation was scheduled for June 24.

Update as of August 8, 2009. Volodya recovered after bone marrow transplantation, but he needs Vfend to prevent aspergillosis.

Update as of September 8, 2009. Volodya was discharged for outpatient monitoring. He still takes Vfend to prevent aspergillosis. Volodya and his mother also need help with paying for taxis or volunteer help with transportation, as Volodya still has difficulty walking and he is not allowed to use public transportation.

Update as of October 1, 2009. Unfortunately, donor's bone marrow did not engraft, and Volodya needs second transplantation that was scheduled for October 13th. We urgently need to raise 9,700 euros for collection of stem cells and 2,500 euros for delivery of transplant. Volodya is also continuing Vfend therapy.

Update as of December 29, 2009. Volodya recovered after transplantation and was discharged for outpatient monitoring. He has some complications (hemorrhagic cystitis) and needs Albumin.
Volodya's family needs continuing help with paying for trips on taxi, since Volodya and his mother stay with their relatives in Kupchino and Volodya is not yet allowed to use public transport.

Update as of January 25, 2010. Volodya's cystitis stabilized, but he developed symptoms of GVHD of mucous tissues (in his mouth and eyes). On Tuesday, doctors' council will discuss the possibility of photopheresis therapy for GVHD.

Update as of February 20, 2010. There remain signs of GVH reaction which affected eye mucosa, the doctors are working on immunosuppressive therapy for him. He also constantly needs Vfend, 400 mg per day.

Update as of March 26, 2010. Volodya feels better. GVHD of mucous tissues is now less pronounced, so Volodya was transferred to outpatient monitoring.

Update as of April 30, 2010. The tests showed that Volodya does not have any more lesions in his lungs. He was taken off Vfend.

Update as of June 4, 2010. Volodya's GVHD in mucous tissues is almost gone. His temperature was rising to 39C and he had therapy with antibiotics.

Update as of July 8, 2010. Volodya has a cold and shingles. He does not feel very well and has pains in his waist due to herpes. He needs therapy with Valtrex and Oxyal.
Volodya's mother

Update as of July 27, 2010. Volodya feels better. He is still bothered by GVHD in his eyes and he has to use OxyCalm drops constantly. We will be allowed to go home for two months. In October we will need to return for a course of photopheresis and control tests.
Volodya's mom

Update as of September 22, 2010. Volodya is now at home, in Nevel. GVHD of mouth still remains. Volodya takes Cellsept and Oxyal and feels well.

Update as of November 14, 2010. Volodya came to St. Petersburg for control tests and a course of photopheresis. He feels rather well, but still has issues with GVHD of mouth.

Update as of November 24, 2010. Volodia underwent planned tests: hematological indicators are fine, the results of the tests are good. Photopheresis has been cancelled for a time being. The liver maintenance medications were prescribed as a result of the tests. The main problem is still the eyes: Oxyal drops are still needed.

Update as of December 24, 2010. Volodya is now at home, feels well and takes Exjade. In January he needs to come back for a planned course of photopheresis.

Update as of March 10, 2011. Volodya has come for an examination. The transplant is functioning the way it should, there are some signs of skin GVH reaction. The doctors are considering decreasing immunosuppression.

Update as of April 19, 2011. Based on examination results, remission was confirmed. Test results are good and it was decided that photopheresis is not needed. The next planned examination is in May. Volodya feels pretty well and already returned home.

Records of money received
 Name  Sum  Transferred from  Date
Nadezhda Kogan $50 paypal 17.05.2009
Konstantin 500 rub webmoney 19.05.2009
Maria Semenova 2000 rub wire transfer 05.06.2009
  - - 500 rub qiwi 09.06.2009
  - - $34 webmoney 03.10.2009
Alexandra Shatilova $50 paypal 19.10.2009
K.S.Tyamusheva 500 rub wire transfer 21.10.2009
Optical components and systems 500 rub wire transfer 23.10.2009
EuroEnergo 9700 euros wire transfer 27.10.2009
V.I.Shchegolev 4000 rub cash 14.04.2010

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