Hello!
My daughter Victoria Gladinets was born on February 24, 2009.
At the age of 14 months Vika got seriously ill. She lost her appetite,
temperature rose, she started to feel fatigued, weak and had other
symptoms. We immediately consulted the doctor. Vika and I were
hospitalized at Infectious Diseases unit of the district hospital. After
two weeks of treatment, however, the doctor was unablel to diagnose
Vika. So we were referred to Tver regional hospital, where Vika was
examined, tested and diagnosed with acute lymphoblastic leukemia.
I was horrifed! Such a small baby with such a scary diagnosis.
Vika was treated for two weeks and then the head of the hospital offered
us to go to Moscow to Russian Children's Clinical Hospital, and we agreed.
In Moscow she was examined again, and Vika's diagnosis was changed to
acute myeloblastic leukemia. The doctors said that bone marrow transplantation
was necessary and that the procedure would be done in St. Petersburg. They started
to search a donor for Vika and, fortunately, a donor was found shortly. At Russian
Children's Clinical Hospital Vika underwent 3 cycles of chemotherapy and at the end
of January 2011 we were referred to R. Gorbacheva Institute of Pediatric Hematology
and Transplantation in St. Petersburg.
We were hospitalized on January 31, and on February 9 bone marrow transplantation
was already performed.
I would like to ask for your help! Vika has to take very expensive medication, Vfend.
We also need money to pay the rent. Vika's father is a policemen, and his salary is very
low, and I do not work as I have to be with Vika during her treatment.
Please help my little daughter!
Update as of March 17, 2011.
It has been 33 days since transplantation. Vika was discharged for
outpatient monitoring and feels rather well. She was diagnosed with
cytomegalovirus infection, and her platelets are low. Vika needs
therapy with Neocytotect as well as Vfend.
Update as of May 4, 2011.
Vika is now in the day care unit and has blood counts done once a week.
The latest puncture shows signs of minimal residual disease. Vika is
administered Cymevene and Noxafil.
She feels fine and loves to go for walks. The girl can cover big distances
when someone is holding her hand. We are grateful to all of you for your help!
Thank you so much.
Vika's mother and grandmother New Vika's photo
Update as of June 11, 2011.
Vika feels well and is still monitored at the day hospital.
Every day she and I go to the park to feed ducks and enjoy
the swings. Vika has a good appetite. She likes watching cartoons,
playing and being active. Vika still needs Noxafil.
Vika's mom
Update as of July 7, 2011.
Based on control tests, Vika is in remission, but she still
has minimal residual disease. She needs a course of therapy
with Dacogen. If she responds, one more cycle will be offered.
She still needs Noxafil.
Update as of July 23, 2011.
Vika feels well. Injection of Dacogen to treat minimal residual
disease is scheduled for the next week.
Update as of August 8, 2011.
Vika underwent the first cycle of Dacogen. She feels rather well
and is getting ready for the second injection. Due to skin GVHD,
she is receiving hormonal therapy again.
Vika's mom
Update as of September 9, 2011.
Vika is continuing therapy with Dacogen to prevent relapse.
She has no signs of GVHD and hormonal therapy was canceled.
Update as of October 30, 2011.
At the end of September, Vika had a repeat puncture. She still
has minimal residual disease. Vika is receiving maintenance chemotherapy.
Twice a week she goes for control blood tests.
Vika's mom
Update as of October 31, 2011.
Vika has a tendency to increase of minimal residual disease, and
it was decided to change the maintenance regimen. Instead of Dacogen,
Vika receives 6MP and Cytosar.
Donor's lymphocyte infusion is being discussed.
Update as of December 18, 2011.
Vika had a Dacogen treatment course and is now administered maintenance
chemotherapy with low doses of Cytozar and Purinethol. The levels of minimal
residual disease became lower, but the skin GVH reaction got worse, so Vika
is now on hormones. The girl also needs Noxafil for antifungal therapy.
Vika is feeling ok.
Update as of February 22, 2012.
Vika is being monitored at the day hospital. She feels well.
GVHD is under control and her hormonal doses are being reduced.
However, she still shows minimal residual disease.
Noxafil is still needed.
Update as of April 5, 2012.
Vika developed GVHD with significant liver involvement.
Her bilirubin count is quite high.
Update as of April 10, 2012.
To overcome GVHD with liver involvement Vika received Enbrel.
The response to this therapy has been good, and her liver counts
began to decrease.
Update as of April 28, 2012.
Vika is monitored as an outpatient. The girl is receiving Heptral,
Enbrel and Mabthera to control the liver GVHD. She responds well
to treatment. Bilirubin level is considerably decreasing.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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