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Hello!
I am a father of Shamil Gasymzade.
On May 20th while playing at his preschool, Shamil fell down and got jaw trauma with large swelling. We went to a doctor who removed one of Shamil's teeth and installed drainage. We were told to return for a checkup in a month. When we came back, we were told that we better go to see an oncologist in Baku.
After biopsy and other tests, Shamil was diagnosed with Ewing's sarcoma. He had operation and radiation therapy. Then the doctors told us they did everything they could and that Shamil now needed chemotherapy. However, there are no pediatric oncologists in Baku. We were advised to travel to Russia for treatment.
We came to St. Petersburg and underwent testing. Here Shamil got a new diagnosis: malignant b-cell lymphoma with metastases in neck and supraclavicular lymph nodes and skull bone. It means the initial diagnosis was wrong and our son received inappropriate treatment. We are currently on treatment at Petrov Oncology Research Institute where Shamil is receiving chemotherapy.
Since we are foreign citizens, we pay full cost of treatment. I am the only breadwinner in the family. Shamil's mother stays with him at the hospital. In Azerbaijan we have three more children who are now with their grandmother.
Please help us with paying for treatment and medications. We are very grateful to you for any help in advance.

Dzhabir, Shamil's father
Contact phone:
+7 (953) 357-73-73

Medical report #1
Medical report #2

Update as of December 10, 2009. My son is undergoing another round of chemotherapy with Doxorubicin and Vincristine. He feels well. His temperature and blood test results are normal.
We would like to thank everyone for help!
Shamil's father

Update as of January 12, 2010. On January 13th Shamil will start third chemotherapy round. He feels well, eats well, plays, draws, sings and reads. We are hoping he will stay just as positive until the end of treatment.
However, with the start of the new course, we have new problems. We need money for medications and tests.
Since October 2009 we paid 70,000 rubles for treatment. Our family catastrophically lacks money. Please help us with paying for treatment and renting an apartment.
Thank you in advance!
Shamil's father

Update as of January 27, 2010. Shamil is undergoing another cycle of chemotherapy. He was prescribed Diflucan to prevent fungal infection.

Update as of February 16, 2010. We were transferred to R. Gorbacheva Pediatric Hematology and Transplantology Institute for further treatment. After an examination, Shamil is planned to go for autologous transplantation.
Shamil's father

Update as of February 20, 2010. Examination results testify to stabilization but Shamil is not in remission yet. He will now have his cells harvested for autotransplantation, after that the boy will go back to the Research Institute of Oncology for two more chemotherapy courses. Then there will be another examination which will help make a decision on the transplantation.

Update as of March 23, 2010. Shamil underwent another course of therapy with MabThera and was hospitalized at BMT clinic where his stem cells were harvested for autologous bone marrow transplantation. He is now at the rented apartment where he is recovering. The doctors plan to administer him another cycle of chemotherapy and after complete examination hospitalize him at BMT clinic for autologous bone marrow transplantation.

Update as of April 3, 2010. Shamil suffers from severe type of stomatitis. He was also diagnosed with a fungal infection and needs therapy with intravenous Vfend at 400 mg a day.

Update as of April 30, 2010. Shamil needs to undergo two more chemotherapy cycles prior to autologous transplantation. We are sincerely grateful to Mehriban Bagirova, a volunteer of Azerbaijan Association of Leukemia Patients and Mireldar Babaev, chief pediatric hematologist of Azerbaijan, for agreeing to work with the doctors in St. Petersburg.
This will allow initiating a discussion regarding coordinated treatment of our son locally, in Baku. We are also grateful to Grant Life fund and Aeroflot airline for providing us with free tickets under Charity Miles program (we only had to pay for the fuel surcharge).
Advita Fund's donations sent to all patients were used to pay for the medications necessary to complete treatment. After the two more chemotherapy cycles, Shamil will be examined and autologous transplantation will be discussed.

Update as of May 19, 2010. Unfortunately, Shamil did not start treatment in Azerbaijan. The clinic where the therapy was planned had closed for repairs. We have not been able to get in touch with Shamil's father to find out whether he plans to look for another clinic or return to St. Petersburg, as his contact phone number does not work. We do not know what is Shamil's condition right now. The plan was for him to undergo two more cycles of chemotherapy, after which autologous transplant was to be discussed.

Update as of September 22, 2010. We got a call from Shamil's father: he feels well and there is no progression. Shamil has stable disease and tumor has not grown. At this time, Shamil is not receiving any treatment. He goes to school (1st grade). Since he is not in remission, although disease is stable, treatment continuation is still considered. Shamil had very hard time tolerating chemotherapy and had many complications that threatened his life. Currently, Azerbaijani specialists are monitoring his condition and if progression is seen, further treatment options will be discussed. Shamil's parents asked to thank everyone who has been helping them with Shamil's treatment in Russia.

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