Sergei died on September 9, 2011

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Hello!
Our names are Dmitry and Natalia. We are parents of Sergei Vasiliev. We live in Shlisselburg in Leninigradsky region. In 1997 our son Sergei was born. We were very happy. Serezha was growing up healthy and lively kid. He brought joy to everyone in the family.
On March 23, 2009 Serezha felt unwell. This concerned us because he practically never got sick. When we went to the local hospital, Serezha was tested and issued a preliminary diagnosis of acute lymphoblastic leukemia.
We were referred to Raisa Gorbacheva Institute of Pediatric Hematology and Transplantology for testing, and we were horrified when the diagnosis was confirmed. Serezha was urgently hospitalized.
For a week, he was prepared for the course of chemotherapy, and it started on April 3, 2009. The course will last for a long time. Serezha will need expensive and rare medications, which we are unable to afford.
We are asking to provide us with financial support to buy expensive medications and afford further treatment.
Our family will be grateful to everyone who responds to our request!

Dmitry and Natalia

Medical conclusion

Update as of July 23, 2009. Serezha is undergoing another course of chemotherapy (consolidation) and he feels relatively well.

Update as of September 8, 2009. Serezha has a break between the chemotherapy rounds, but he stays at the hospital due to fever.

Update as of October 26, 2009. Serezha is continuing treatment according to the plan. He receives Purinethol and feels well.

Update as of January 24, 2010. Sergei is continuing maintenance therapy according to the protocol. During CT scan, he was diagnosed with aspergillosis. He was prescribed Vfend at 400 mg a day.

Update as of March 26, 2010. Serezha was hospitalized due to high transaminase levels. He is undergoing therapy with Heptral and feels rather well.

Update as of July 20, 2010. Serezha is continuing chemotherapy under the protocol. Once a week he comes to the hospital for injection of the medication. He was switched from Vfend to Orungal. He feels well.

Update as of October 9, 2010. Serezha is continuing treatment under the protocol. He had some problems with his liver. He is now taking Hepamerz and feels rather well. Serezha is studying at home successfully and once a week he comes to the hospital for the injections. Serezha still needs Orungal.
Serezha's mom

Update as of November 11, 2010. Unfortunately, Serezha had a relapse. He was hospitalized at R. Gorbacheva Pediatric Hematology & Transplantation Institute for anti-relapse chemotherapy. Based on preliminary testing at the international registry, Serezha has only two potential donors. His parents are now undergoing typing. Haploidentical bone marrow transplantation is planned.

Update as of November 14, 2010. Serezha had bad seizures and on Tuesday he was transferred to intensive care unit. He now feels better, and seizures were taken under control. He can get up and walk. An invoice for haploidentical transplantation was requested and is estimated to be close to 500,000 rubles.

Update as of December 9, 2010. Serezha started anti-relapse chemotherapy cycle with Cytosar and mitoxantrone to strengthen his remission. After the cycle is over, he will be allowed to go home for two weeks. After the New Year, haploidentical transplantation date will be discussed. The bill for equipment will be received in the next few days. Serezha feels well and he no longer has seizures. He was transferred out of intensive care unit.

Update as of May 3, 2011. Serezha's condition improved and the seizures were taken under control. He was transferred to the room from intensive care unit. Serezha then developed skin GVHD, but due to allergy to tacrolimus and cyclosporine he is currently treated with hormonal therapy only. Campath therapy is being discussed.

Update as of May 20, 2011. Serezha's skin GVHD is worsening. He also has symptoms of hemorrhagic cystitis. He was started on photopheresis and received also hormonal therapy and Cymevene (due to high titer of cytomegalovirus). Based on control puncture, there are no blasts. However, blood counts are low due to viral infection. Serezha lost a lot of weight and is very tired.

Update as of June 7, 2011. Serezha feels better and his skin condition improved. He started eating and is slowly regaining weight. Photopheresis was canceled and Serezha is now receiving hormones and Enbrel. He also takes Cymevene, Vfend and antibiotics for infectious complications.
Based on control puncture, he has 100% engraftment of bone marrow and no blasts. Serezha is in remission.

Update as of June 26, 2011. Unfortunately Serezha has blasts in his bone marrow again. The doctors plan to administer a course of anti-relapse chemotherapy and then transplant donor lymphocytes.

Update as of July 7, 2011. Serezha underwent chemotherapy cycle under FLAG protocol. Due to appearance of GVHD symptoms, infusion of donor's lymphocytes was postponed.

Update as of August 5, 2011. Serezha is gradually recovering after a cycle of chemotherapy. He is stable and was transferred out of intensive care. He still needs Vfend and entocort (budenofalk).

Update as of August 22, 2011. Serezha recovered after a cycle of chemotherapy. He is stable and his blast count is on the same level. He is receiving maintenance therapy.

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