Other Svetlana's photos

Hello,
I would like to tell you my story. My name is Svetlana Luchinskaya. I am 37 and live in Murmansk. I missed the first signs of the tumor appearance. Although I suffered from headaches for six months, the doctors explained them away by hypertension, exhaustion, and so on. The first obvious symptoms appeared in May 2009, but even then the diagnosis was established as neurology-related, and my treatment included physical therapy, massages and injections. When I had to literally drag my leg when walking and I loss all function in my arm, I was just advised to go to the seaside and swim a lot. At that point I made a decision to go for MRI myself. On July 13, 2009 a new stage of my life began: I was diagnosed with glioblastoma of left thalamus.
On August 20, 2009 I had a surgical removal of a tumor. Since September 3rd, I went through radiation therapy and 13 cycles of chemotherapy. I lost 26 kg, and my liver, kidneys, and stomach were affected.
In January 2011 two tumors were removed from my arm. But I am alive! I am happy that my family is by me. My family is my backbone. Unfortunately, my financial resources have been depleted in the fight with an invisible enemy. And regular examinations take a lot of money. Brain MRI costs 8,500 rubles and PET costs 16,000 rubles; I also often have to pay for consultations, encephalograms, and other tests. I need complete workup every three months. This is why I would like to ask for help. The tumor must be closely monitored, because it is like a mine with fuse which can explode any minute. In case I need Gamma-Knife surgery, there is nobody we can count on, since the government does not pay for such operations. And I have a teenage daughter who needs me.
Thank you for reading my story. Take care of yourself and your family!

Svetlana Pavlovna Luchinskaya
Home address:
183071 Murmansk,
Ul. Maklakova 28, kv. 7
Contact telephon:
+7 (815) 227-65-13 (home)
+7 (911) 301-11-89 (Svetlana)
e-mail: luchinskay@mail.ru

МRI

Update as of July 27, 2011. I came for MRI and PET on July 13th. I had those studies as well as a consultation with a neurosurgeon and an encephalogram. I was prescribed a three-month course of treatment with hormonal therapy and immunomodulators. If the next MRI and PET confirm remission, a necrotic lesion will be considered for surgical removal. The next evaluation is in October. Thank you for your help - without your support I would not have been able to have control tests.
Svetlana

Update as of November 22, 2011. Hello! I would like to share results of the last examinations and opinion of neurosurgeons in regards to new lesions. MRI images were reviewed at Burdenko Institute and for now they cannot determine with certainty whether the lesions represent a relapse or necrosis, as PET scan is not conclusive at this size.
Therefore, it was decided to perform the next MRI study in late December, but due to holidays, I made an appointment for January 13th. I pray that it is not a relapse.
I still have a problem with paying for expensive venotonics and immunomodulators, as well as antispastics. I also developed acne, as my immune system is too weak. I don't feel very well and spasticity had increased. I am hoping that AdVita fund will help me with paying for MRI.
Svetlana

Update as of April 13, 2012. In January I had an MRI scan performed at the N.P.Bekhtereva Institute of Human Brain. Things remained the same, the lesion has not increased in size and was not found during the PET. I felt very bad after the contrast agent infusion, having come home with an edema on my face. I had to see a number of doctors.
That's when a new trouble came: I was diagnosed with papillary thyroid carcinoma with metastases in the lymph nodes. I am going to have a surgery on Murmansk because I was refused a quota for treatment at the V.A.Almazov Federal Heart, Blood and Endocrinology Center - I was told that such surgeries can be performed in my home town.
The fact that this is my second cancer and no one knows how the tumor in my brain is going to behave was not taken into consideration. After the surgery I will need computed tomography of the whole body to track the possible metastases.
This requires a huge sum. I am kindly asking all my supporters for help. I am going to struggle till the end. Thank you all so much!
Svetlana

Update as of May 3, 2012. I have an MRI scheduled on May 10, the approximate cost is 17,500 rubles. The proper time for thyroid surgery and the subsequent treatment with radioactive iodine depend on the MRI results.
Svetlana

Donate online >>>

Wire transfer to AdVita Charitable Foundation bank accounts

  * - Please specify your name and how we can keep in touch with you. We also need the letter from you with the following data: your full name (name of organization), address, phone (fax), goal of donation, date, signature (seal).
Please use on of the following applications: in russian, in english, in german.

** - If money amount are transfered by the third party we kindly ask you to show in the letter which firm would transfer the sum of money (by our request money transfer would be performed by firm....

If you would like to transfer money through Western Union, please contact site administrator.

If something wrong in the table below or you don't see reference on your donation, please keep in touch with site administrator.

If you would like to help us collect money for Svetlana's treatment, please e-mail to the site administrator and write your name, or company name, payment number, time and place of money transfer. This information will help us to account for money collection and inform you about every donation. Please don't forget to tell us about your donation. We need to make sure that every donation reaches its intended recipient.

Other Svetlana's photos

List of Patients

Search: