Renata's Pictures

Medical Conclusion

Updated as of December 14, 2006. Renata is in a serious but stable condition. She is now receiving both Vfend and Cancidas, and is expected to respond to the treatment in a few days. Renata's mother would like to express her sincere gratitude to all the donors and supporters, and especially to the employees of Influenza Research Institute who responded to Renata and found several donors amongst them.
Renata still needs blood donations and money for the medications! The donations were used by Renata's mom to buy thrombocyte pool (4,900 rubles), Nutridrink nutritional drinks and mouthpieces for the nebulizer.
Thank you for helping Renata!

Updated as of December 18, 2006. On December 15, the hospital received Cancidas, which was bought on the donation from OOO "Gazprom Neft Invest" received during the charitable marathon.
Thanks to the donation, Renata is continuing Cancidas and Vfend therapy. She is still stable, but she is in a very serious condition. She urgently needs blood donations – blood types III (-) and IV (-).

Update as of December 19, 2006. Cancidas and Vfend therapy led to significant improvement in Renata's lungs. As soon as her lungs are clear, Renata will start anti-relapse protocol. She will continue on Cancidas and Vfend for at least 10 more days.

Update as of December 26, 2006. Renata's condition had stabilized, and she has positive dynamic in her lungs. She is still receiving Cancidas and Vfend intravenously. Renata was transferred to the common area. She still needs help with paying for medications.
We are enormously grateful to all the blood donors who responded and gave their blood for Renata! By doing this, you have saved her life.

Update as of January 11, 2007. Renata feels well, and her lungs are clear. On January 23, she will start anti-relapse chemotherapy.

Update as of January 25, 2007. Based on the latest test results, Renata is free from any lesions. Her further therapy is currently under discussion.

Update as of February 1, 2007. Renata needs to have PET scan that costs 16,000 rubles to verify the results of her treatment. The test needs to be paid for as soon as possible.

Update as of February 8, 2007: Based on PET scan results, Renata was found to have a lesion in her lung. The CT scan that followed discovered that Renata’s lungs are retaining fluids again. The scenarios are being discussed: possibility of aspergillosis or relapse of lymphogranulomatosis.

Update as of February 19, 2007 . Renata is undergoing polychemotherapy course. She feels relatively well, and her temperature is now normal. Renata needs help from blood donors with blood type III(-) and IV(-).

Update as of March 7, 2007. After receiving therapy, Renata has been discharged and she will be going home to Kazan in the next few days. Thanks to everyone for their help!
Renata will have all the control tests at home. The first test will be in 28 days. However, Renata needs to keep her aspergilla infection under control. Even though she does not have any infected areas now, she needs to take Amphotericin and Orungal for infection prevention. She may need future help with buying antifungals.
We will be waiting for the news from Renata once she gets home to Kazan.

Update as of March 25, 2007. Renata is undergoing planned chemotherapy in her hometown, Kazan. She urgently needs Orungal for a long-term intake to prevent aspergillosis (1 package for every 4.5 days). The cost of each package in the pharmacies in St. Petersburg is 1,418 rubles.
The pharmacies in Kazan do not carry Orungal at all. We would like to ask all Renata’s supporters to send their donations to AdVita fund’s bank account, as we plan on purchasing the drug here and transporting it to Kazan.

Update as of May 3, 2007. Renata completed planned chemotherapy at a hospital in Kazan. She was in a severe cytopenia, but her blood counts have recovered. Renata has had temperature for some time, and although the x-ray did not show any problems with her lungs, she is suspected of having aspergillosis infection again.
Renata needs Vfend. Ideally, she would need Vfend for intravenous injections, 2 bottles a day for a week. The medication would cost 98,000 rubles. Renata's doctors are currently consulting with transplantologists.

Update as of May 28, 2007. Renata is coming to St. Petersburg on May 30th. She urgently needs help with paying for apartment rent. She will be examined by several specialists at the BMT clinic, after which further treatment will be determined. Most likely, Renata will be hospitalized at the Mycology Research Institute for testing and treatment from aspergillosis, which will have to be followed by chemotherapy.

Update as of June 9, 2007. Renata came to St. Petersburg where she is undergoing the required examinations. The preliminary assumption is that her fungal infection is currently inactive, while her lungs are infected with bacteria. Until the test results are ready, Renata has to take antibiotics and Vfend. She also needs help with buying medications, paying for tests and apartment rent.
Renata is staying in St. Petersburg with her grandmother, while her mother returned to work in Kazan. For that reason, please send your donations to AdVita fund’s bank account or contact Renata directly (rather than sending them to Renata' mom bank account).
Renata feels relatively well, although her temperature is slightly elevated.

Update as of June 28, 2007. Renata's hepatitis C reactivated, and she needs therapy with Roferon and Heptral. She may also need hospitalization at Botkin hospital. Since she is an out-of-town patient, she would have to pay for her treatment in full.

Update as of July 6, 2007. Renata needs to continue Vfend therapy. We are sincerely grateful to Anna for donating two packages of this drug, which will last for two weeks. Meanwhile, we need to raise more money to ensure Renata continues the therapy.
She needs to take 2 capsules a day (200 mg each) for the next few months. A package of Vfend that lasts a week costs 29,000 rubles.

Update as of August 5, 2007. Renata's hepatitis is still active. She is now injected with Roferon, and in the near future she will also need 2 packages of Rebetol (200 mg dosage). The cost of a package is 5,700 rubles.
Renata has enough Vfend until August 14th, but she needs to continue the therapy. She is planned for a liver biopsy in the next few days.

Update as of August 14, 2007. Renata was hospitalized at Botkin hospital for liver biopsy. She still needs help with paying for Vfend and apartment rent. It is also likely that she will be prescribed new medications based on the biopsy results.

Update as of August 19, 2007. Renata had a liver biopsy, results of which are not yet known. She urgently needs to find syringe-pen Roferon-Pen for injections. So far we were unable to locate it in the pharmacies of St. Petersburg.

Update as of August 27, 2007. Renata was purchased a syringe pen Roferon-Pen with a set of needles. She started Roferon therapy. The specialists are reviewing the results of her liver biopsy.

Update as of September 9, 2007. Renata is feeling worse. Her lymph nodes are enlarged and she has a lot of fluid in her lungs. She is hospitalized at BMT clinic.

Update as of September 16, 2007. After the therapy, Renata's condition improved, but she still needs Vfend and Ampholip (2 bottles a day). The cost of 1 package of Vfend (14 capsules) that lasts a week varies from 25,000 - 28,000 rubles. A bottle of Ampholip costs 6,000 rubles. Renata has not received any donation for a while.

Update as of October 12, 2007 Renata is scheduled for six chemotherapy sessions. All that time she will need to take Vfend and Ampholip. One package of Vfend in capsules of 200 mg costs 28,000 rubles and it lasts a week. A bottle of Ampholip costs 6,000 rubles, and Renata needs a bottle a day. Therefore, Renata needs 60,000 rubles a week for the next four months.
She also needs help from blood donors with blood type III(-) and IV(-).

Update as of November 7, 2007 Based on the test results, Renata has strong positive changes. Her lungs are practically clear of fungal infection and contrast agent does not accumulate. However, she has a complication due to chemotherapy. She developed tachycardia and her blood pressure is low. Renata is now at BMT clinic and she needs blood transfusions from blood donors with blood type I(-), III(-) or IV(-).
After a week she will be examined and possibly hospitalized at Deep Mycosis Research Institute. As of now, Renata is off Ampholip. She takes only Vfend.

Update as of November 11, 2007. Renata's condition worsened again. She has fluid in her lungs and high temperature. She is now at intensive care unit in BMT clinic where she is receiving antibiotics and antiviral drugs.

Update as of November 13, 2007. Renata's condition somewhat improved after therapy with antibiotics. Her temperature is back to normal. However, Renata is still at intensive care unit.

Update as of November 19, 2007. Renata needs 20 bottles of Ampholip that costs 6,000 rubles a bottle. Her doctors are starting her on chemotherapy, which has to be accompanied by antifungal medications because of Renata's condition.

Update as of December 5, 2007. Renata was prescribed Roferon therapy three times a week for the next few months. A cartridge for Roferon foam that lasts two weeks costs 7,000 rubles.

Update as of December 10, 2007. Renata will need a bottle of Ampholip a day for the next several months. A bottle of the drug costs 6,000 rubles.

Update as of December 30, 2007. Renata was discharged from the clinic for the outpatient monitoring. She feels relatively well.

Update as of January 24, 2008. After the New Year, Renata's leukocyte counts fell and she developed a lump on her leg.
She is now receiving antibacterial therapy with Zyvox and Meronem and antifungal therapy with Vfend. Renata is also continuing hepatitis C therapy with Roferon and Rebetol and stimulates her blood cell production with Granocyte and Eprex.
Renata feels relatively well. She stays perky.

Update as of January 30, 2008. Based on the results of PCR test, Renata has undetectable viral load of hepatitis C, which means she responded well to therapy with Roferon. The infectious diseases specialist is happy with the results. The therapy will continue for six months to strengthen the result.
Renata has not made progress on her main illness. Her hemoglobin counts rose slightly to 78.

Update as of February 9, 2008. Renata did not tolerate well the last injection with Vinblastine. All of her blood counts dropped and she had severe nosebleeds. She critically needs help from blood donors with blood type III(-) and IV(-).

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