My son Kolya was born on May 31, 1994. We live in a small town Hapo-oe in Vsevolzhsky district of Leningradskaya oblast.
In March 2006 he got sick with epilepsy. Since June 2007, Kolya's condition worsened. He now has seizures up to 4 times a day. In June, Kolya had a tomogram that cost 20,000 rubles. I sold everything I had to pay for this expensive test.
Kolya now needs another test, which I cannot afford. I had to leave my job to be with my son and help him during the seizures. Due to lack of money for the medications, Kolya cannot go to school (specialized school No. 22 in Nevsky district of St. Petersburg).
I would like to ask everyone for help with buying medication for Kolya.
He now needs the following medications:

- Topamax (50 mg), 3 packages a month. Each package costs 1,000 rubles. Or the same drug in 100 mg dosage, 1.5 - 2 packages a month (2,200 rubles a package).
- Rispolept, 2 bottles a month (1,200 rubles a bottle).

I will be very grateful to everyone who will find the opportunity to help my son.

Tatiana German
Home address:
188681, Leningradskaya oblast,
Vsevolzhsky raion, selo Hapo-oe,
Ozerkovsky pereulok, d. 14
Cell: +7 (960) 242-7753.

Update as of January 17, 2008. Kolya and I need to visit medical and labor expert commission. Due to holidays and Kolya's doctor illness, it has been rescheduled several times.
Kolya had a Doppler examination and encephalogram. The encephalogram results showed that Kolya has not improved and the Topamax dosage was increased. We now need 9 packages of this drug a month, at a cost of 890 rubles a piece. We have not been able to get this medication for free, even though we are eligible for this benefit.
In the next few days we also need MRI scan that costs 2,800 rubles. We will be very grateful for any help.
Kolya's mom

Update as of March 13, 2008. Kolya's mom broke her leg (she has a complex double fracture) and will be bedridden for two months. Please help Kolya with buying Topamax, a monthly course of which costs 6,900 rubles.

Update as of March 17, 2008. Kolya's mom needs an operation to install four titanium plates at the site of fracture. The operation itself will be free, but she needs to pay 50,000 rubles for the plates. We have two weeks to raise this amount.
Please help!

Update as of August 4, 2008. Kolya's mom recovered after the operation and can now move around by herself. The titanium plates were paid for by AdVita fund from the donations made to all patients.
Kolya had an examination at Bekhterev Institute and his therapy was adjusted. For a month now, he had no epileptic attacks. Kolya still need Topamax, 4 packages a month. Each package costs 2,200 rubles.

Update as of September 23, 2008. Kolya had another severe attack. He is planned for hospitalization at Bekhterev Institute. The treatment itself will be free, but Kolya's mom will have to cover the cost of the consultation with a professor and series of tests, including MRI.
In addition, Kolya again needs Topamax, a monthly course of which costs 8,800 rubles. Please help.

Update as of October 14, 2008. Kolya needs to change his treatment protocol. He requires hospitalization at Bekhterev Institute.
We have to pay full price of testing and hospital stay – 590 rubles a day. The course of treatment will last three weeks. Therefore, just the hospital stay will amount to 12,390 rubles. Kolya will also need the following procedures:

MRI – 5,000 rubles,
TCDG – 1,200 rubles,
X-ray – 200 rubles,
EEG – 1,350 rubles,
Monitoring – 5,000 rubles,
Total: 12,750 rubles.

I do not have this much money, because I cannot work due to Kolya's serious condition. I always stay with him and I really need help.
I will be very grateful!
Kolya's mom

Update as of December 23, 2008. Kolya underwent testing at Bekhterev Institute. Unfortunately, the encephalogram showed that his condition worsened, and MRI scan discovered numerous affected areas.
Kolya's treatment protocol was changed completely. In particular, Kolya was taken off Topamax and put on Benzonal and Depakine. His mom noticed immediate improvement. Kolya's next checkup is scheduled for spring 2009.

Update as of June 25, 2009. Kolya is still taking Depakine and Benzonal. The results are better than with Topamax therapy, but unfortunately, Kolya still suffers from seizures, even if less frequently than before.
Kolya will soon need to undergo MRI, for which we have to pay. Our family's financial situation is still very difficult. We will be grateful for any help.
Kolya's mother

Update as of August 12, 2009. Unfortunately, Kolya again suffers from periodic seizures. On Monday, we will go for encephalogram and to get a new prescription for Benzonal. Soon Kolya will need to also undergo MRI scan, for which we have to pay.
Kolya needs 2 packages of Neuleptil (1,360 rubles a package) and 2 packages of Depakine Chrono at 300 mg (1,300 rubles a package).
Kolya's father stopped paying child support and we plan to file a suit. And now, we have no money even to get Kolya ready for school. We will be very grateful for any help.
Kolya's mom

Update as of October 5, 2009. Kolya feels well and had no seizures any more. He studies well, but at times acts aggressively. The tests, including MRI and a test for the vascular permeability, were postponed until the school break (end of October - beginning of November). MRI costs 3,500 rubles. We will be very grateful for your help.
Kolya's mom

Update as of October 10, 2009. We plan to go for examination around October 15th. We already signed up for MRI, transcranial Doppler study and encephalogram. The total cost of tests will be 5,000-6,000 rubles. In addition, we will need to buy Neuleptil again. Please help us.
Kolya's mom

Update as of November 17, 2009. Kolya completed examination. There were no significant changes. The only change was that the doctors increased the Neuleptil dose somewhat.
In January Kolya will go for the Disability status review, and in February he will be hospitalized at Psychiatric hospital No.3 for more detailed examination. Unfortunately, Kolya periodically displays aggression.
Kolya's mom

Update as of February 10, 2010. Kolya went for a review by Disability panel and received disability status until he is 18 years old. The examination at the Municipal Psychiatric hospital No.3 was moved to March. Kolya needs Depakine chrono, but we have a hard time getting it under free medication program. It costs 3,000 rubles a month. We will be very grateful to you for help!
Kolya's mom

Update as of July 26, 2010. This week Kolya will undergo complete examination at Bekhterev Institute. We will have to pay for MRI and Doppler test, for the total cost of 7,300 rubles.
Kolya feels rather well, but he needs long-term therapy with Depakine and Neuleptil, which we still are unable to get for free.
Kolya's mom

Update as of November 24, 2010. Kolya goes to the correctional boarding school, and his mother takes him home on weekends. He continues on stay on medications since the attacks are still present and the aggression level does not go down but even increases. Kolya has a hard time concentrating on something for a long time, but he is trying to attend "Yes" studio's animation classes.

Update as of December 13, 2010. Kolya's mom needs an urgent surgery to remove uterine myoma, left ovary cyst and intramural node. The surgery will take place at hospital No.40 in Sistroretsk and will include open procedure as well as laparoscopic surgery. It is planned for December 20th. Unfortunately, surgery has to be paid for and will cost 29,000 rubles. Please help.

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