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Hello
My name is Nastia, I am 17. I was born in Urals, in a beautiful ancient village Bagariak. I finished the 10th grade with honors, but in summer 2007 I got sick. I was admitted to Chelyabinsk regional hematology hospital and was tested. The next day the doctor came in and told me: "Nastia, you have cancer of blood".
The first chemotherapy course did not help me. I was given a choice: either go home and live what I have left with painkillers or risk and sign up for more aggressive chemotherapy. The unit head warned me that the complications from the therapy could kill me before I reach the middle of the course. However, I took the risk and survived. My parents sold their cottage, car and everything they could during my illness, and they bought a small house near Chelyabinsk to be close to the hospital. After that chemotherapy course I had a few more courses that were just as harsh. In between the courses, I studied at the 11th grade level, took exit tests and enrolled to study Economics and Entrepreneurship at the South Urals State University.
I have now come to St. Petersburg with my mother for bone marrow transplantation. The money that our family had has been spent, and we will still need to buy many medications. My mother and I are asking for help!
Any help will be priceless for us!

Contact phones:
+7 (963) 087-98-76 (Nastia)
+7 (960) 249-30-72 (Galina, Nastia's mom)

Medical conclusion

Update as of September 16, 2008. Nastia underwent bone marrow transplantation 41 days ago. She now suffers from severe skin GVHD. The girl is in a serious condition.

Update as of September 30, 2008. Nastia feels better. The doctors managed to take her GVHD under control.

Update as of October 2, 2008. Nastia's GVHD was taken under control. All the external signs of it are gone. The girl feels well, walks a lot and works on her cross-stitching.

Update as of October 13, 2008. Nastia's GVHD symptoms went away and she feels well. However, her blood pressure rose very high. The doctors managed to bring it down and they are researching the reason for it. Nastia is for now under doctors’ watch.

Update as of October 22, 2008. Nastia needs long-term therapy with Vfend (200 mg twice a day). A package of the drug that costs 25,000 rubles lasts her a week.

Update as of October 31, 2008. Nastia needs four injections of Mabtera (500 mg each), once weekly. The medication needed for each injection costs 60,000 rubles. Nastia also still needs Vfend and Entocort. She now feels relatively well, so she was discharged for outpatient monitoring.

Update as of November 7, 2008. Nastia's GVHD worsened again. She was hospitalized at the clinic.

Update as of November 16, 2008. Nastia's condition improved and she was discharged for outpatient monitoring. On November 14th Nastia turned 18! We are sincerely congratulating Nastia with her birthday! We are very grateful to all her supporters who have helped and continue to help with buying Vfend and Entocort. These medications are still vitally needed.

Update as of December 25, 2008. Nastia still take Vfend and Entocort. She is on outpatient monitoring by the doctors.

Update as of February 17, 2009 Nastia has been admitted to hospital with high blood pressure and a fever. The girl has also been having pains in her joints.

Update as of March 20, 2009 Nastia has high titer of cytomegalovirus and receives Cymevene.

Update as of April 4, 2009 Nastia was discharged for outpatient monitoring, but she has to visit clinic several times a day. She is bothered by aches in her leg, and the reasons for them are being researched.

Update as of June 17, 2009. Nastia was diagnosed with infection in her lungs. In addition to the antibiotics that are available at the unit, she also needs Pulmozyme in large doses.

Update as of July 1, 2009. Nastia was again prescribed Vfend, as infection in her lungs resists treatment.

Update as of July 23, 2009. Based on test results, Nastia is doing well. She is in complete remission in regards to her main illness, and the GVHD symptoms were taken under control. Nastia will be allowed to travel home for three months. Since she still needs to take Vfend, Nastia has to purchase Vfend for at least the first 2-3 weeks, so that she could go home.

Update as of August 4, 2009. The doctors found it possible to let Nastia return home to Kopeisk. Nastia is now taking antibiotics and Vfend. We are sincerely grateful to Alexander for his donation that allowed supplying Nastia with Vfend for a month. In a month, she will have to come back for planned testing.

Update as of August 23, 2009. Nastia came to St. Petersburg for scheduled tests.

Update as of September 1, 2009. Based on planned test results, everything is well. Nastia was allowed to go home for two more months. We are enormously grateful to our continuing supporter, Alexander, who once again paid for Vfend for Nastia.

Update as of October 13, 2009. Nastia is at home. She is continuing her studies at college. Based on the results of the planned tests, Nastia has damage to the heads of both of her hip joints. She needs a surgery to install implants that will be performed at Vreden Institute of Traumatology and Orthopedics. She is now undergoing consultations. The approximate cost of surgery on one of the joints is 300,000 rubles. In addition, Nastia will still need Vfend for the next three months.

Update as of November 5, 2009. Nastia came for examination to Vreden Trauma and Orthopedics Institute to discuss hip joints implants.

Update as of January 27, 2010. Nastia came in for tests. Unfortunately, due to necrosis of hip joints, she can barely walk and suffers from severe pain.

Update as of March 7, 2010. Nastia underwent tests, and no contraindications to the installation of endoprosthesis were found. The surgery is scheduled to take place at Mariinskaya hospital.

Update as of March 14, 2010. In the next few days Nastia will be preparing for the surgery. The hospitalization at Mariinsky hospital is scheduled for the next week, and the surgery itself - for March 24. Nastia will be operated on by Professor Neverov, the head of Orthopedics faculty at Vreden Research Institute.

Update as of March 25, 2010. Since Nastia is in a difficult condition to operate (due to aspergillosis and low blood counts) it was decided that Professor Neverov will operate her at State Medical University rather than Mariinskaya hospital, with a team of intensive care specialists and anesthesiologists, and in coordination with hematologists and pulmonologists. The surgery was rescheduled again.

Update as of March 26, 2010. Nastia started preparing for enrollment into Baltic Tourism Academy. She will need to take standardized tests for Russian language, math and social studies. If someone could help Nastia prepare for the math and social studies exams, she will be very grateful.

Update as of April 20, 2010. The surgery on the right joint was uncomplicated. Nastia is now in intensive care unit where she will stay for a day, and then she will be transferred to the room. She was operated at Pavlov State Medical University.
If the rehabilitation process goes well, the surgery on the other joint will take place in three months.

Update as of April 30, 2010. Nastia was allowed to get up. She feels rather well and continues to prepare for tests.

Update as of June 4, 2010. Nastia has a history tutor, as she will have to sit for exit exams at the end of July. She has no problems with her leg that was operated, but her other leg hurts very much, so Nastia is using a walking stick for now.

Update as of July 3, 2010. Nastia is preparing for the surgery on the second hip joint which is scheduled doe the second half of July.
Endoprosthesis will cost 110,000 rubles. Nastia is also continuing Vfend therapy. She decided to postpone college enrollment to next year so that she could finish the therapy. Nastia feels well.

Update as of August 18, 2010. The surgery on the second pelvis joint has not been performed yet, it has been postponed till autumn. Nastia is feeling fine.

Update as of November 10, 2010. Today Nastia had a surgery to implant the second hip joint. It was done at Pavlov State Medical University and all went well. She is now in intensive care, getting over anesthesia, and receives pain control.

Update as of November 26, 2010. Nastia fully recovered after surgery and was discharged from the hospital. Vfend is still needed, but CT scan is planned in the near future, after which cancellation of Vfend will be discussed. Nastia has been taking Vfend for two years.

Update as of February 28, 2011. Nastia was hospitalized at Kashkin Mycology Institute for complex examination, after which a decision regarding cancellation of Vfend will be made.
CT data was not sufficient to make this decision. Nastia feels well and was examined after the surgery to replace hip joints. She no longer has pains and everything is well.

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