Liza died on August 12, 2011

Other Liza's photos

Hello!
Our daughter Liza was born on June 10, 2006. She was born healthy. She was 50 cm long and weighed 3,150 gr. Liza was happy and sunny baby and never got sick. She already walked well at 10 months of age and started using her first words: mama, papa, baba and give me.
We were so happy when she turned 1! She is the best and most loved child! Unfortunately, the disaster was not far away. At 14 months, Liza developed fever. Her doctors told us it was due to teething. After 5 days of Lisa's high temperature, we called ambulance again.
Liza was taken to the hospital where she had all the necessary testing. Then she received a terrifying diagnosis, acute myeloid leukemia, neuroleukemia, mixed stroke, swelling of brain and lung. Liza was installed tracheostomy, a tube in her throat that allows her to breathe. Still, we hope and believe that we will overcome everything and Liza will live. We just need your help, hope, trust and support.
Thank you in advance.

Elisaveta's dad

During Lisa's treatment, her mother left her. Lisa's father took upon himself responsibility for Lisa's treatment and upbringing and it was later legalized by the court's decision.

Bill for the donor search in Germany
Liza's Epicrisis

Update as of December 3, 2007. Our doctors are recommending us to purchase an inhalator to treat complications with Lisa's breathing. However, the necessary inhaler/nebulizer is very expensive (from 6,000 rubles to 15,000 rubles) and we would like to ask for your help.
Lisa's parents

Update as of December 13, 2007. We would like to thank AdVita fund for nebulizer. It really helps! Lisa started to breathe better and her tracheostoma may be removed.
On December 11th she started the second chemotherapy block and it will last 28 days. Elizaveta is starting to feel better, and I feed her with a spoon.
We really need a child-size chair with an adjustable back. I would like to put it on the bed, because Lisa cannot sit by herself yet. If possible, we would also like to ask for help with buying food and personal hygiene items. Thank you very much for your support and care.
With gratitude, Yana, Lisa's mom

Update as of December 23, 2007. We are very thankful for the baby chair that we received! We like it very much! Lisa can sit and play in it, and she only sleeps in her bed now. Also, we are very grateful for the cell phone, which we received in place of a stolen one. My new number is 8-911-005-99-88.
We have gone through the first week of chemotherapy. Lisa feels well, and she does not feel worse. On the contrary, she is much better. She now communicates and plays more. Her stroke is slowly retreating, but we are still just in the beginning of our journey. We are looking ahead with lots of hope and belief in the better future.
Thanks again for your help. It really makes a difference for us. Thank you for hope, patience, care and support. Elizaveta and I would like to thank all of you!
Yana, Lisa's mom

Update as of December 26, 2007. Thank you very much for help and support! We had New Year celebrations and Lisa enjoyed them very much. She received a lot of developmental toys. The chemotherapy block will be completed on January 9th. On December 24th Lisa was tested and the results were very good.
Happy New Year and merry Christmas to everyone!
Thank you!
Yana, Lisa's mom

Update as of January 14, 2008. Lisa was finally removed tracheostomy (tube from her throat). Lisa can talk now! On January 13th she was prescribed massage to help her walk.
Thank you very much for the gifts! They are very developmental, colorful and very nice!
We would really appreciate help with paying for professional massage and food.
Lisa's mom

Update as of February 25, 2008. Lisa started the last chemotherapy block under her protocol. She feels relatively well. Her family needs help with buying diapers and food.

Update as of March 15, 2008. Lisa completed the last block. At first, all was well, but then she developed complications and was transferred to intensive care unit with the lung swelling. Now everything seems back to normal and Lisa is back in her room. As soon as she is stable, we will be discharged.
Lisa's dad is now staying with her. I am unable to care for her at this time due to my health condition. We would like to thank everyone for the financial support, diapers and toys!
With gratitude,
Lisa's mom

Update as of March 29, 2008. Lisa is recovering. She talks, sits down and actively moves her arms and legs. She also welcomes all her visitors and eats well. Today she made a first attempt to get up on her legs!

Update as of May 9, 2008. On May 4th we were discharged from the hospital. In the future, we will undergo monthly courses of re-induction at Children's hospital No.1. We now have to rent an apartment. We may also need to pay for a masseuse services. We are very grateful to those people who have helped us with paying apartment rent, and to everyone who have helped and continues to support us.
Lisa's dad

Update as of October 2, 2008. From September 29th to October 2nd Lisa received the next, seventh, re-induction. Today we will be discharged home. Lisa had no complications, everything went well. Before the re-induction, based on the neuropathologist's recommendation, Lisa had a course of massage and was prescribed the following drugs: Cortexin, Retinalamin and Lidocaine.
All the procedures were helpful. Lisa can now sit by herself confidently. She started to communicate more and knows many new words. She eats well and gains weight.
Soon the neuropathologist will prescribe her new therapy and massage.
For now, we are unable to pay apartment rent on our own. We will be very grateful for help.
We would like to thank everyone for their help and support! Lisa's dad

Update as of November 18, 2008. We completed 8 re-inductions, and the next one is scheduled for the end of November. Also at the end of November Lisa will start the next course of massage therapy.
She is starting to walk, with little support, which makes us very happy. She feels well. Lisa is very social and can say several dozens of words. She has a good appetite and in a happy mood.
We are enormously grateful to all our supporters whose help allowed us rent an apartment, buy medications and pay for massage. Lisa takes Biseptol, and her punctures and re-inductions are planned to continue until the end of May.
Valentin Belov, Lisa's father

Update as of February 16, 2009. We completed another course of re-induction. Lisa feels well and she was discharged home on schedule. We are very grateful to everyone who has been helping us with paying for massage therapy and apartment rent. Thanks to massage, Lisa is already trying to walk, while holding our hands. With more therapy, I am certain she will soon be able to walk on her own. She also started to eat by herself and at times holds her spoon by her right hand. Once again, thank you for all the help and support!
With gratitude,
Lisa and her father

Update as of March 27, 2009. Liza's blood counts dropped after a reinduction. She got transfusions of erythrocytes and placelets at hospital, now she's feeling fine but she still needs a course of antibiotics treatment. We are very grateful to the Parents of St. Petersburg Club forum and the AdVita fund for mental and financial support!
Valentin, Liza's father

Update as of June 23, 2009. Liza completed the course of treatment. She is in remission in regards to her main illness and she feels well. She is now with her grandparents. In September she will continue rehabilitation course to overcome the consequences of neuroleukemia.

Update as of October 2, 2009. Lisa completed supporting therapy six months ago and she remains in remission. The main goal of therapy now is to rehabilitate Lisa after the stroke. Lisa is now on treatment at a specialized clinic in Kolpino.
The therapy includes monitoring by neurologists, orthopedic specialists and physical therapists. Lisa receives injections and massage therapy. The course will run until the end of October.

Update as of January 22, 2010. Lisa completed a course of rehabilitation therapy at the specialized clinic in Kolpino and she will return with her father home to Ulyanovsk. Lisa feels well and she is in remission.

Update as of January 29, 2010. Prior to Lisa's return to Ulianovsk with her father, she had scheduled tests that showed blasts in her bone marrow. Lisa will be hospitalized at Children's hospital No.1 on Sunday.

Update as of February 3, 2010. There is 85% of blasts in Liza's bone marrow. Liza is now having a complete examination, and HLA matching and consultation with transplantologists are scheduled for February 4. Liza is feeling fine.

Update as of February 20, 2010. Liza is in intensive care in a grave condition: a virus infection lead to lung complications, Liza is getting oxygen and being administered antibacterial, antiviral and antifungal therapy as well as Pentaglobin. The treatment scheme has been approved by the developers of the protocol (due to a stroke Liza had there are some limitations as to drugs) but the treatment cannot be started so far. Based on the matching results Liza has potential donors in the registry. The situation is to be discussed next week by a board of doctors.

Update as of April 15, 2010. Liza had a very hard anti-relapse FLAG chemotherapy course and is now recovering. She is feeling ok, she plays and listens to fairy tales. We are to receive the invoice for donor search from the registry shortly.
Since Liza's father cannot work at the moment so the family needs financial support to buy food and drugs.

Update as of May 28, 2010. Lisa completed the full course of anti-relapse chemotherapy. She was diagnosed with a remission. While a search for a donor for Lisa is underway, she will be on maintenance therapy. The treatment was prescribed for a month. She feels rather well and got a better appetite.

Update as of August 30, 2010. Examination at BMT clinic is continuing. Transplantation is planned for fall. While waiting for transplantation, Lisa's dad is not working. He is staying with her at the rented apartment, which his parents are helping to rent. Lisa is gaining her strength for the transplantation. The family still needs help with buying food, transportation and other daily needs.

Update as of October 30, 2010. Lisa recently had tests at Pavlov State Medical University. She feels well and has good blood counts. Transplantation is scheduled for the end of November - early December.

Update as of January 17, 2011. Transplantation is planned for February 19.

Update as of March 17, 2011. Lisa underwent an anti-relapse chemotherapy cycle under FLAG protocol at Children's City Hospital No.1. The doctors are waiting for Lisa's blood counts to rise. If there are no blasts in her blood, Lisa will be transferred to Gorbacheva Pediatric Hematology & Transplantology Institute for urgent transplantation.

Update as of May 5, 2011. Liza's transplantation is scheduled for June 3rd.

Update as of May 25, 2011. Liza was hospitalized at R. Gorbacheva Pediatric Hematology & Transplantology Institute. Her conditioning regimen will start on May 27th.

Update as of June 4, 2011. Today Liza underwent bone marrow transplant. All went as planned. Liza has a hard time swallowing large capsules of Vfend, so in the near future she may need intravenous Vfend.

Update as of June 25, 2011. Liza is recovering after the transplantation, follow-up puncture results testify to a remission. There are minor signs of a skin GVH reaction. The girl still needs intravenous Vfend.

Update as of July 7, 2011. Lisa developed GVHD with damage to skin and intestines, grade III. She is receiving Cyclosporin, Campath and budenofalk. Vfend therapy is also continuing. Lisa is responding well to therapy and GVHD symptoms are improving.

Update as of July 20, 2011. Lisa has acute GVHD of intestines and liver. Immunosuppressive therapy also led to activation of cytomegalovirus. She is receiving therapy with Campath, Remicade, Cymevene and Neo-Cytotect. Lisa is in intensive care unit in a serious, but stable condition.

Update as of August 9, 2011. Lisa's condition improved and she was moved out of intensive care unit. GVHD of her skin and liver was taken under control. All her blood counts are now normal, although she has slight intestinal GVHD. She still needs medications to treat infectious complications: Cymevene, Neocytotect and Vfend.

Update as of August 12, 2011. Lisa died tonight, on August 12th, from a sudden profuse pleural bleeding. All her blood counts were normal, GVHD was under control, and Lisa felt well. In just an hour she passed away.

Liza's photos

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