Hello!
My son, Kostya Makoveev, was born in 2002. He got sick in November 2008 and
was diagnosed with acute lymphoblastic leukemia. On November 27, 2008 he was
hospitalized at R. Gorbacheva Hematology and Transplantology clinic where
he is currently receiving treatment.
Due to development of a catheter-induced infection, on January 11, 2009,
Kostya's subclavicular catheter was removed. The therapy to fight the infection
continued through the peripheral veins. However, due to chemotherapy, Kostya's
peripheral veins became very fragile. They could not sustain the pressure and
either broke or got infected and developed phlebitis. The nurses moved peripheral
catheter six times in two weeks, and now Kostya ran out of veins that could
handle the catheters.
Kostya needs long-term therapy with Vfend (200 mg) twice a day. Each package
costs 25,000 rubles and it lasts a week.
Please help!
Update as of March 20, 2009
Kostya is continuing treatment. He is now at the consolidating stage of treatment.
He receives Methotrexate and Purinetol.
Update as of April 15, 2009
Kostya has been diagnosed with aspergillosis and needs Vfend. The boy is
now going through a chemotherapy course.
Update as of May 12, 2009.
Kostya underwent a round of chemotherapy and was discharged home. The
boy still needs Vfend therapy, as treatment of aspergillosis is a
long-term process.
Update as of July 8, 2009.
Kostya was transferred to outpatient monitoring. He receives Methotrexate
and Purinethol, and continues Vfend therapy.
Update as of September 8, 2009.
Kostya started the first grade this year! Our congratulations! He is
continuing treatment according to the protocol. Once a week, Kostya
comes to the hospital for testing. He still needs Vfend.
Update as of December 24, 2009.
Kostya's family got in trouble: his parents were both seriously
injured in a car accident. It's now Kostya's grandmother who is
staying with him. For further treatment the boy needs such
antifungal drugs as Vfend and Ampholip.
Update as of January 20, 2010.
Kostya feels well. He is on maintenance therapy, and receives Ampholip
and Vfend to treat aspergillosis. Kostya's parents were discharged from
the hospital and undergo a rehabilitation course after a traffic accident.
Update as of February 20, 2010.
Kostya continues to come to hospital once a week for tests and is still
getting maintenance therapy. He also loves studying (he's on home schooling).
Kostya's father returned to his job, and his mother is going on with the
rehabilitation course. Kostya still needs Vfend.
Update as of March 26, 2010.
Kostya is at home, with his father and grandmother. His mom will be at
rehabilitation center in Sestroretsk for 6 weeks. Kostya has been having
constant cough, and he is being monitored by pulmonologist and otolaryngologist.
He is still taking Vfend at 400 mg a day. Kostya is in a good mood and enjoys
being on a spring break.
Update as of April 30, 2010.
Kostya is now at home, being monitored as an outpatient. He still has cough.
Update as of August 18, 2010.
Kostya is still on maintenance therapy. Since examination testified
to changes in the lung tissues again Orungal has been substituted by
Vfend (400 mg per day).
Update as of September 22, 2010.
Kostya started another re-induction. Infection in lungs was taken under control:
cough is gradually going away, and Kostya is taking several antibiotics and seeing
pulmonologist frequently. He is now on home schooling and is studying under 2nd
grade program. Kostya recently started English and he really enjoys it.
Update as of October 6, 2010.
Kostya is still on maintenance chemotherapy and takes Vfend.
He is scheduled for a consultation with Professor Klimko regarding
Aspergillosis. The tests for Pseudomonas aeruginosa infection are negative.
Update as of November 24, 2010.
During the consultation, Professor N. Klimko
provided reassurance with a good aspergillosis prognosis, but,
unfortunately, the tests showed the aspergillosis antigen presence in the
blood. The reason for its appearance, considering the length of the
treatment, is not clear, so another consultation is required. The rest of
the treatment goes as planned.
Kostya studies at home with at teacher who is very pleased with him.
Natasha, Kostya's mother
Update as of December 29, 2010.
Kostya has finished another
chemotherapy cycle. A biopsy is scheduled in two months. He still
needs to take Vfend. Now Kostya is at home, he is waiting for the New
Year and a winter break.
Kostya's mother
Update as of February 17, 2011.
Kostya completed treatment protocol. Now he will be monitored by hematologist
and finish treatment of complications. Based on CT of lungs, the lesions are gone
and he tested negative for aspergillosis antigen. Vfend was finally canceled. Kostya
feels well and his blood counts are good. We are very grateful to everyone who has
been helping us!
Kostya's mom
Update as of September 9, 2011.
Kostya feels well, although his summer was somewhat marred by his complex arm
fracture after a fall. At the end of September, Kostya and his mom plan to go to a
sanatorium near Moscow, and on September 1 Kostya will line up with other kids
at his 3rd grade.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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