Hello!
My name is Irina Lukoyanova. I kindly ask you to help me with the treatment of my son Kirill. He is 12 and is a student of the 5th grade. My son was born with numerous congenital abnormalities: congenital hypoplasia of the 1st finger of the right hand with a deficient grasping function, bilateral congenital conductive hearing loss, right-sided cryptorchidism, lumbar dystopia of the left kidney combined with its hypoplasia, incomplete right kidney rotation, etc.
Up until the 4th grade those congenital abnormalities did not prevent Kirill from going to a middle school in the town of Kozlovka of the Chuvash Republic where he did very well. My son made a point of going to all physical training classes as we both hoped it would improve his physical development. He was enrolled in a soccer club for children, the same one which my younger son Pavel was going to, and Pavel is a winner of the second prize at the Chuvash Republic Soccer Championship among children.
During the year 2007 Kirill was having spontaneous nosebleeds (which could last as long as 40 minutes), approximately 2-4 times a month. All mental and physical activities made him very tired in no time. One day he had a nosebleed at night, and I called the ambulance. The doctor examined him and advised us to have a full blood count. On November 27, 2007 my son had a complete examination which revealed blood changes.
When Kirill went to the 4th grade (that is, in September 2008) his condition got a lot worse. He had a weakness and fatigue which he could not bear any more. We were admitted to a regional hospital and then transferred to a republican hospital. A clinical test revealed an anemia (his hemoglobin count was 77). Further on Kirill was admitted to the Raisa Gorbacheva Institute of Children's Hematology and Transplantology so that the diagnosis could be specified and the treatment tactics defined. Given Kirill's numerous abnormalities he was diagnosed with a severe form of aplastic anemia, and the doctors suspected Fanconi's anemia.
My son was examined by Professor B.V. Afanasiev who thought it reasonable to activate the search for donors in the International registry and cord blood banks. Unfortunately according to the matching results Kirill's brother Pavel could not be his donor. The search for a non-relative compatible donor in the International registry requires 15,000 euros. A bone marrow transplantation is the only chance to save my son's life. We faced a problem we cannot solve on our own!
Thank you all very much. We hope for your compassion and help!

Irina, Kirill's mother
Contact phone:
+7 (964) 343-15-86

Bill for the donor search in Germany
Medical conclusion

Update as of January 13, 2010. Kirill feels pretty well. In the next few days, he will be hospitalized locally for planned transfusions of blood components. At the end of January, he is planned to come for tests to R. Gorbacheva Pediatric Hematology and Transplantology Institute.

Update as of February 20, 2010. We are very thankful to the Podari Zhizn fund for their decision to help raise the money for Kirill. No donor for Kirill has been found so far.

Update as of April 16, 2010. A donor for Kirill was found. Transplantation was scheduled for the end of May.

Update as of May 19, 2010. Kirill and his mom arrived to St. Petersburg and in the next few days he will be hospitalized for pre-transplant chemotherapy.

Update as of July 6, 2010. Transplantation took place on May 28th and on June 18th Kirill was discharged for outpatient monitoring. Bone marrow engrafted, and his blood counts are normal. CT scan and MRI results were normal too. Kirill takes Heptral, Mycosyst, Ursofalk, Zovirax, Cyclosporine and Amoxiclav. He feels well and takes walks.

Update as of July 30, 2010. Kirill feels well. The test results and puncture results were good. Transplanted stem cells are working well. He has a good appetite. We go for walks, and Kirill is in a good mood. He takes Mycosyst, Cyclosporine, Ursofalk and Heptral.
Kirill's mom

Update as of August 25, 2010. It has been 100 days since Kirill's transplantation. He is undergoing complete examination. Kirill feels well.

Update as of September 30, 2010. Based on control tests results, all is well: the donor's bone marrow engrafted 100%, and there is no GVHD. We were allowed to go home for a month.
We are enormously grateful to all the doctors and nurses, all supporters, blood donors, volunteers and AdVita fund for their continuing help and support. Stay healthy! We will see you in a month.
Irina, Kirill's mom

Update as of December 24, 2010. Kirill came in for the planned tests. The results are good, donor's bone marrow works well. He had some problems with bronchi, but they were taken under control. Kirill is going home until March, he is in a great mood. Thank you to everyone! Happy New Year!

Update as of March 10, 2011. Kirill feels well, and his test results are normal. He still takes Mycosyst, Ursofalk and Cyclosporine. In early April he will go for control tests to Gorbacheva Pediatric Hematology & Transplantology Institute.
Kirill's mom

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