Hello!
Kirill Belyaev was born on January 18, 2003. He is diagnosed with embryonal rhabdomyosarcoma.
On January 18, 2008 the local physician diagnosed Kirill with acute respiratory viral infection. On January 21, 2008 Kirill's nose became congested and he had a small nosebleed. On January 24, 2008 he visited an otolaryngologist and had a blood and urine test. The next day, the otolaryngologist referred Kirill for hospitalization at Children's hospital No.5. However, based on the results of an x-ray and a visual examination by another specialist he was refused hospitalization, even though our boy could only breathe with his mouth by then. Until February 2, 2008 Kirill was monitored by an otolaryngologist from the pediatric clinic.
On February 3, 2008 he had a severe nosebleed. The ambulance took him to Ear, Nose and Throat department of Children's hospital No.5. On February 7, 2008 Kirill had CT scan of sinuses and had a preliminary diagnosis of angiofibroma. On February 14, 2008 at Polenov Research Institute Professor A. Kholin performed MRI scan, during which he discovered a tumor sized 35*23*32 mm. Kirill's preliminary diagnosis was again angiofibroma.
On February 18, 2008 he was transferred to Otolaryngology Research Institute where his doctor was M. Samotekin. On February 21, 2008 another doctor, N. Naumenko, performed a biopsy of the tumor and the material was sent for histological testing to Professor V. Kovalenko, head of Pathology and Anatomy department at Military Medical Academy.
On February 22, 2008 based on the histological testing results, Kirill was diagnosed with juvenile angiofibroma in active growth phase. On February 27, 2008 the tumor material was sent for additional histological testing to Diagnostics center at Berezovaya Alley 3/5, where on February 29th Kirill was issued another diagnosis based on the test results:
esthesioneuroblastoma. On March 2, 2008 he was taken to neurosurgery unit of Children's hospital No. 5. Practically right away, Kirill's condition worsened and he was transferred to intensive care, where he was applied tamponade without anesthesia, as his nosebleeds still continued. The head of the Ear, Nose & Throat unit, Elena Nailovna, refused to let Kirill have additional testing. On March 4, 2008 the tumor tissue was sent for testing to Pathology & Anatomy department of Children's hospital No.1. The next day, Kirill was transferred to city hospital No. 31, to Pediatric Oncology & Hematology unit.
His doctor is now E. Chavpetsova. As of March 11, 2008, Kirill's final diagnosis is embryonal rhabdomyosarcoma. During admission to the hospital, Kirill had another CT scan that showed his tumor had doubled in size. He had also lost his vision and could no longer walk. After he completed the first course of polychemotherapy under CWS-2002 protocol, Kirill recovered some vision in one of his eyes, started walking and regained ability to breathe through the nose.
We have to pay for all the testing and therapies. But most importantly, we are looking for a neurosurgeon and a hospital where Kirill could be operated. This is why we are asking not only for the financial support, although it is very important, but also for help with finding a doctor and a clinic. Kirill's mom is always by his side, while Kirill's older sister Masha who is 6 is living with her grandmother.

Tatiana and Eduard Belyaev
Home address:
198332, St. Petersburg,
Brestsky boulevard, d.13, kv.58.
Contact phones:
+7 (812) 758-77-15 (home),
+7 (911) 922-17-05 (Eduard),
+7 (911) 836-72-13 (Tatiana)

Medical conclusion

Update as of March 31, 2008. Kirill recovered after the first chemotherapy and completed the second block. He feels well. Unfortunately, his eye is still closed. Kirill spends a lot of time at the game room.

Update as of April 10, 2008. On Thursday Kirill was installed a port, which was followed by increase in his temperature. He received antibiotics and Berlition. Due to his tumor, Kirill cannot breathe through one of his nostrils and can barely open his eye. The boy started having problems with walking. He was prescribed vitamin B and massage. Next week Kirill will start the third chemotherapy block, which will be followed by MRI and CT scan.

Update as of April 22, 2008. Kirill underwent the third chemotherapy. His eyelid opened and he can see a little with that eye! Kirill can already walk well and continues receiving leg massage. His spleen and liver are enlarged significantly. He was scheduled for an ultrasound test. Today Kirill's tooth started aching and the dentist found five inflamed areas.

Update as of May 15, 2008. Kirill completed the 4th chemotherapy block. He is in a satisfactory condition. The CT and MRI scans showed tumor shrinkage in sphenoid and maxillary sinus, but progression into the medial wall of the left orbit with invasion into the optic nerve and tumor growth over the carotid artery. Additional tests, consultations and possible change of chemotherapy protocol are being considered. The results of ophthalmologist's examination of Kirill's vision are: 0.01 vision in his left eye and 1.0 in his right eye.

Update as of June 6, 2008. Due to slow response of the tumor to the base therapy, Kirill started second-line therapy with Hycamtin.

Update as of July 15, 2008. Kirill underwent a course of treatment with Hycamtin and was referred for radiation. He has no appetite and suffers from depression.

Update as of August 21, 2008. Kirill's radiation therapy is over. He developed a serious sinusitis and his mucous tissues are enflamed. The eye specialist discovered that Kirill also has atrophy of the optical nerve in his left eye. In two weeks, Kirill will undergo control MRI scan.

Update as of September 20, 2008. Kirill is in cytopenia and thrombocytopenia. He constantly has high temperature and fatigue. The doctors are giving him antibiotics intravenously. The x-ray of the sinuses showed that the ethmoid bone contours appear enlarged. The MRI was scheduled for September 25th.
Kirill's mom would like to thank Anna and Svetlana, who paid for the consultation with the ophthalmologist, medications and MRI. Kirill may also need CT scan in the near future.

Update as of September 26, 2008. Due to slow growing blood counts, Kirill's chemotherapy was delayed for 9 days.

Update as of November 26, 2008. Kirill is in cytopenia. He has a fever and does not feel well. Due to his low thrombocyte count, MRI scan has been postponed indefinitely. Kirill received a transfusion of thrombocyte mass and will also receive a blood transfusion.

Update as of December 3, 2008. Kirill is in a stable condition. He is undergoing therapy with antibiotics. His temperature normalized and we hope to go for MRI scan in the next few days.
Kirill's mom

Update as of December 16, 2008. Kirill is undergoing an addition chemotherapy block with Avastin and Cisplatin. He tolerates it OK, but does not eat well and feels irritable, according to his mom.

Update as of December 24, 2008. After the 10th chemotherapy course his condition is stable. There are some complications on the part of his vegetative-vascular and endocrine systems. Every move makes the child sweat profusely, his body temperature is low and he has no appetite. Upon the psychologist's advice he is taking Strattera regularly, and there are some improvements. Very soon Kirill is to have examinations to find out his condition after the chemotherapy.
Kirill's mother

Update as of December 31, 2008. Kirill underwent 11th chemotherapy round with Avastin from December 30th to January 1. The treatment started with Kirill suffering from increasing nosebleed, but having good test results.
As of December 31, he had severe nosebleed and cannot breathe through the nose. Kirill cried the whole night non-stop. He feels well during the day, however.
Kirill's mom

Update as of February 12, 2009 Kirill is receiving supporting chemotherapy course with Endoxan and Vinblastine. He feels relatively well.

Update as of March 6, 2009 After 11 chemotherapy blocks Kirill was transferred on supporting chemotherapy on February 6th. The plan is to move him back on active chemotherapy in May after a checkup. While on supporting chemotherapy, Kirill was admitted to the unit with a fever (40.5C) and was diagnosed with viral pneumonia. The treatment was successful and the boy is being prepared for the discharge, but his next chemotherapy block will be postponed until he is in a stable condition. Kirill was examined by doctor Kovalevskaya, an ophthalmologist, and based on her recommendation was tested at two ophthalmology centers. They issued two diametrically different conclusions from physiological testing of Kirill's vision. Now we need to consult with neuropathologist to determine whether treatment of left optical nerve atrophy is necessary.
Kirill's mom

Update as of April 3, 2009 Kirill's condition is stable and he is continuing supporting chemotherapy. We made a joint decision to continue the course for another month, and then undergo MRI and PET + CT scans. Kirill gets tired easily, he limps, and his legs feel weak. In addition, he does not eat well and feels unstable psychologically. Kirill went to a consultation with a neurologist and was prescribed therapy to treat optical nerve atrophy as follows: Actovegin, Vitamin E and multivitamins. Every month he will come for a visit and therapy correction. Unfortunately, eletric stimulation of optical nerve was contra-indicated for Kirill.
Kirill's mom

Update as of May 2, 2009. Kirill Belyaev is undergoing dental treatment. The treatment is expensive, and his mother urgently needs financial support.

Update as of May 13, 2009. Kirill finally completed MRI scan at City hospital No.31. The results are encouraging. The tumor had finally, after 15 months of treatment, stopped accumulating contrast, which allows Kirill continue supporting therapy according to the protocol. After three courses of supporting therapy, he is planned to undergo MRI and PET and CT scans. In parallel, Kirill is visiting a neurologist monthly, because he had developed polyneuropathy, which manifests itself in periodic severe limping, decreased attention, excitability and headaches.
Kirill's course of treatment is under ongoing correction. Recently, he had a course of Milgamma. The therapy with Strattera has been constant, however. Due to long-term chemotherapy, Kirill had severe toothache, and the examination discovered the need for extensive dental treatment.
At first, Kirill had treatment for five instances of inflammation, and then orthodontist treatment. Kirlll also had EP study at two ophthalmology centers and he is monitored by the ophthalmologist due to atrophy of his left optic nerve. The combined opinion of neuropathologist and ophthalmologist is encouraging, but the process will take a very long time.
Kirill is a very patient and generally happy boy, but due to chemotherapy effects he has serious problems with memory and attention. He gets very upset that he forgets everything.
The cost of his monthly treatment fluctuates depending on the number of tests and consultations and ranges from 15,000 - 22,000 rubles. Please help us financially! Here are the estimated expenses that are coming up:

1. Strattera - 4.5 packages at 1,320 rubles, or 5,820 rubles.
2. Consultations with ophthalmologist and neuropathologist - 2,050 rubles.
3. Current medications - 3,000 rubles.
4. EP study: 2,500 - 4,900 rubles.
5. Dental treatment: 5 teeth at 3,000 rubles, or 15,000 rubles in two months.
We would like to thank Vika for paying for two months' supply of medications for Kirill!
Kirill's mom

Update as of June 23, 2009. Kirill needs to pay for PET imaging, which is estimated to cost 20,000 rubles.

Update as of August 8, 2009. Kirill felt worse and had problems breathing through the nose. The doctors suspected relapse. Fortunately, CT scan results showed that the contrast agent does not accumulate. Kirill is continuing his treatment under the protocol. PET imaging was decided to postpone for now.

Update as of October 2, 2009. Kirill is continuing supporting chemotherapy with Vinblastine and Endoxan as an outpatient. He stays at the hospital only for Vinblastine injections. He feels relatively well and will undergo four more such courses. At the end of October, Kirill will need to go for control PET imaging that costs 18,000 rubles.

Update as of November 30, 2009. Kirill completed a course of chemotherapy. He now needs to undergo PET scan to evaluate treatment results. Kirill is currently hospitalized at Children's hospital No.1 with a viral infection.

Update as of December 3, 2009. PET and MRI scans were rescheduled several times. Kirill is on treatment at 6th ward of Children's hospital No.1. He had drastic temperature rises, severe allergy and serious dysbacteriosis. For several days, Kirill's temperature stayed at 40.2C, but he is now much better. The MRI is now scheduled for December 4th and PET - for December 10th, if everything goes well.
Kirill's mom

Update as of January 10, 2010. The tests were rescheduled for January (MRI on January 11th and PET on January 13th). Kirill feels rather well.

Update as of January 29, 2010. Based on results of PET and CT, Kirill does not have areas accumulating contrast. He is being monitored by neurologist and ophthalmologist. Kirill feels pretty well, but he has had rhinitis for several months due to lowered immunity.

Update as of May 19, 2010. Based on PET imaging, Kirill had no changes.

Update as of October 4, 2010. Based on MRI data, Kirill's condition is the same. On Monday he will be hospitalized at Municipal hospital No.31 due to rhinitis. He will receive antibiotics, and also needs to have his port taken out.
Kirill feels rather well. He enrolled into Arts School, Choreography department. Kirill goes to kindergarten and is getting ready for the 1st grade.

Update as of March 13, 2011. The tests showed that the tumor is necrotic, but it has grown in size compared to the last year. Doppler test showed disruption of vein flow and neurologist prescribed complex therapy. In the second half of March, the doctors of hospital No. 31 will discuss Kirill's further treatment.

Update as of March 30, 2012. Kirill completed planned tests. Although MRI result was ambiguous, PET showed that the tumor is not live. Kirill goes to school and also takes choreography classes.

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