My son's Ilnur's diagnosis on February 5, 2009 sounded like a thunder in a clear sky: acute myeloblastic leukemia. I believe he became sick around September – November 2008, when I started to notice that he lost a lot of weight.
I thought it could be due to change in his environment and move from country to the city, as it was when he enrolled into Fuel and Energy college in Ufa.
Ilnur began feeling constantly tired in December. But he became clearly sick at the end of January 2009: he had flu symptoms and fever that would not go away even with medications. Then the diagnosis was determined. Ilnur had a long and expensive therapy ahead of him.
We have three sons: the oldest Airat is 21, and he is a student of Aviation Institute in Ufa. Youngest, Ainur, is in the 4th grade. My husband Ramil Nasibullovich is a trade teacher at a vocational school. I am a teacher in school. Since February I have not been paid as I was on a sick leave to care for my son. Due to our low earnings, our family budget cannot afford all the expenses related to Ilnur's treatment.
On behalf of my whole family, I would like to ask you to help us with finding a place to live while Ilnur is on treatment at R. Gorbacheva Pediatric Hematology and Transplantology in St. Petersburg.

Zinfira Yulaeva, Ilnur's mom
Home address:
452122, Bashkortostan republic,
Alsheevsky raion,
Selo Raevsky, ul. Tukaya, d. 28.
Contact phones:
+7 (911) 967-29-40
+7 (927) 951-74-56

Medical conclusion #1
Medical conclusion #2: page 1, page 2, page 3, page 4

Update as of January 15, 2010. Ilnur is in the 34th day post-transplantation of bone marrow. He feels well. After the transplantation, he had two punctures. They show that transplant engrafted at about 95%.
Ilnur's mom

Update as of February 10, 2010. Ilnur has slight symptoms of skin GVHD, but he feels well and was discharged to stay at the rented apartment. On February 11th his infraclavicular catheter will be removed. Ilnur was taken off suppressive therapy, so at this time he only receives antibiotics and Mycosyst.

Update as of February 20, 2010. Ilnur still has a catheter because his liver counts have risen dramatically. It might be signs of a liver GVH reaction. Ilnur is still in hospital under the doctors' control.

Update as of March 3, 2010. Ilnur's intestinal GVHD re-activated and he was prescribed Salofalk.

Update as of March 31, 2010. Dear supporters, we came from Bashkortostan in October 2009. On December 11, 2009 Ilnur received bone marrow transplant from his 10-year-old brother. And today, on March 31, 2010 we are being allowed to go home for a month.
Ilnur feels well. I cannot imagine what I would do without help from Advita fund. Thank you very much from us, and from all mothers who come to your fund for help.
We would also like to thank all the blood donors and whose people who helped us with medications.
Ilnur's mom

Update as of April 3, 2010. Ilnur feels well. The doctors are letting him go home for a month. We are sincerely grateful to Grant Life fund and Aeroflot for providing Ilnur and his mom with free tickets as part of Charity Miles program.

Update as of June 2, 2010. Ilnur came to St. Petersburg for a checkup. He was diagnosed with GVHD of skin and soft tissues. He takes hormones and waits for the course of photopheresis.

Update as of September 24, 2010. Ilnur came for planned tests. He feels well and is in a great mood.

Update as of September 29, 2010. Ilnur has arrived for a routine examination and the second course of photopheresis. He is feeling well, his spirits are up. Ilnur is saying: "After photopheresis we're going home!" My sincere thanks to the doctors and the donors.
Ilnur's mother

Update as of October 30, 2010. Ilnur completed a planned cycle of photopheresis and went home. He feels well.

Update as of December 6, 2010. Ilnur came for the 3rd session of photopheresis. He takes Cyclosporine and feels well. On December 11th it will be a year since bone marrow transplant. We are very grateful to everyone for their help!
Ilnur's mom

Update as of December 24, 2010. Ilnur is doing well; in January he comes back for pool therapy, the improvement was seen after a few sessions.

Update as of June 11, 2011. Ilnur came for control tests and another cycle of photopheresis. All his test results are normal and he is in sustained remission. After photopheresis he has had slow improvement. Ilnur feels well.

Update as of June 21, 2011. Ilnur underwent planned course of photopheresis and went home. He feels well and is in a great mood. The next course of therapy is planned for September.

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