Hello!
Our daughter Irina Grushevskaya was born on October 5, 2002 in
Pereyaslavka settlement in Khabarovsky region. Ira has an older sister
Anya who is in the 8th grade. Irina was growing up healthy and active.
However, when she was 4 years old, she started having nosebleeds. After an
examination, she was diagnosed with thrombocytopenic purpura. Irina
underwent a course of treatment, but it was unsuccessful.
After a successive examination, Ira was issued a different diagnosis:
acquired aplastic anemia in a late stage. She was administered two courses
of immunosuppressive therapy. However, this treatment did not produce
positive results as well. Irina constantly needed transfusions of blood
and thrombocytes.
In October 2008 Ira was referred to R. Gorbacheva Institute of Pediatric
Hematology and Transplantology at Pavlov State Medical University, where
she underwent bone marrow transplantation. The search for the bone marrow
donor was paid for by AiF-Kind Heart fund, and we paid for the delivery of
transplant. Ira is now receiving therapy for infection with
cytomegalovirus and acute form of "graft versus host" disease.
I no longer receive sick pay, as it does not exceed three months under the
current law. Our family's income consists of Ira's father's salary. We
have no other sources of income. We need any help: with food, current
medications and tests and apartment rent. We will be grateful for any
support!
Update as of March 20, 2009
Ira was discharged for outpatient monitoring. Her cytomegalovirus
reactivated and she receives therapy with Zovirax.
Update as of March 27, 2009
Ira is in hospital again due to the GVH reaction. She is now fine, the
dosage of hormones is gradually being decreased. Ira's legs hurt her,
she has difficulty walking.
Update as of April 15, 2009.
Ira got into an intensive care unit due to cramps. The situation is now
stable, and Ira is planned to be transferred back to the unit.
Update as of April 26, 2009.
Ira is still at the hospital. She was transferred to the unit from
intensive care. Ira was taken off hormones and GVHD is now under control.
However, Ira keeps running high temperature and receives antibiotics and
Noxafil. In the next few days, the results of bronchoscopy will be ready.
Update as of May 12, 2009.
Ira was discharged for outpatient monitoring. She takes Exjade to
reduce iron levels in her blood.
Update as of June 4, 2009.
Ira's blood counts are increasing, and her bone marrow is working.
However, she developed a serious complication, hemorrhagic cystitis.
She has pain during walking and was scheduled to visit an urologist.
Update as of June 17, 2009.
Ira feels better and the cystitis is gone. She walks around and eats well.
Update as of July 15, 2009.
Ira is under the doctors' watch as an outpatient.
She feels well and has no symptoms of GVHD.
Update as of August 4, 2009.
Ira feels well and she is undergoing planned testing. The doctors are
ready to allow her return home, to her place of residence. The planned
tests are scheduled in two months.
Update as of December 24, 2009.
Ira has had examinations. The basic disease is in remission,
the donor bone marrow is functioning well but she has a cytomegalovirus.
Ira needs Valcyte.
Update as of February 4, 2010.
Ira was hospitalized at a hospital in Khabarovsk due to low platelet
count and high temperature. She receives antibiotics and urgently needs Valcyte!
Update as of February 20, 2010.
Valcyte has been bought with the money donated to all patients and sent to
Khabarovsk. The girl is feeling better.
Update as of August 18, 2010.
Ira came to St. Petersburg for scheduled examinations.
Update as of September 29, 2010.
Routine examination results have shown full remission. There are manifestations
of cystitis, but graft-versus-host disease has not been confirmed. Ira went home.
Update as of April 13, 2011.
Ira came for planned tests at R. Gorbacheva Pediatric Hematology & Transplantology
Institute. She feels well.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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