Hello!
My name is Gulyuzum Tuisina. I was born in 1985 in Chingizovo
village of Baimaksky district of Bashkortostan republic.
When I graduated from Arts College, I began working at a
music school. But in May 2009, I was diagnosed with acute
myeloid leukemia.
I am currently in St. Petersburg where I came for evaluation
at R. Gorbacheva Pediatric Hematology and Transplantology
Institute at Pavlov State Medical University to determine whether
I can have allogeneic transplantation.
I have four related donors, but I cannot afford their typing,
living expenses in St. Petersburg and treatment.
My parents are retired and I am on disability pension.
Please help!
Update as of December 29, 2009.
I came for tests to St. Petersburg. During the tests, a decision
was made regarding bone marrow transplantation. My older sister
matched as a donor. She is now in St. Petersburg. The tests are
almost over, and transplantation was scheduled for January.
Gulyuzum
Update as of February 10, 2010.
Transplantation went on schedule. Gulyuzum feels well, expect
for total lack of appetite.
In the next few days, the doctors plan to transfer her
to the outpatient monitoring.
Update as of April 30, 2010.
Gulyuzum's condition is stable and she was allowed to go home.
She feels well. We are very grateful to everyone who supported her!
Update as of July 20, 2010.
Gulyuzum came to St. Petersburg for complete examination.
In regards to primary diagnosis, she is in remission. Puncture
results and other tests are normal. However, she has high
bilirubin and is now being tested for hepatitis and liver GVHD.
She was also referred for CT of lungs.
Update as of August 6, 2010.
I was diagnosed with GVHD in liver and I was prescribed hormonal therapy.
The blood tests are now showing decrease in bilirubin, so the hormonal
doses are being gradually reduced.
I feel well now. I hope that after hormonal and immunosuppressive therapy
doses are reduced, I will be able to go home for two months.
Gulyuzum
Update as of August 25, 2010.
Hello! After the examination, I was allowed to go home to continue
therapy locally. I take Tacrolimus and hormones, and hormonal therapy
dosage is gradually decreasing. The next examination will be next month.
I am very grateful to AdVita fund and its supporters for medications,
paying for tests, help with buying tickets and providing me with a place to
live in St. Petersburg. I would not have done it without you. Thank you!
Gulyuzum
Update as of October 21, 2010.
I traveled in for planned tests. The results are good: I have complete donor's chimerism
(transplant engraftment) and I was taken off hormones. I feel well and I have a positive
outlook. I am grateful to my doctors who were ready to help me day and night. I am particularly
grateful to AdVita fund: the people who work there take your problems and your illness close
to their hearts. It is very important to feel support when you are away from home. With people
like these nearby, you find strength to fight and beat this treacherous disease. I am wishing good
health, peace and happiness to everyone.
Update as of July 5, 2011.
Gulya came for planned evaluation at the clinic. All the test results
are normal. She is in remission in regards to primary
diagnosis and feels well.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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