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Hello!
Our son's name is Arsen. He was born on April 23, 2000. In February 2004 he was diagnosed with acute lymphoblastic leukemia, high risk, first active phase.
The treatment began. It consisted of six chemotherapy courses and lasted almost a year. Arsen endured it and entered remission. It seemed all was going well. He started taking music and painting classes and was getting ready for school at the same time. He also really wanted to have a brother. In July 2007 our second son Daniel was born. Arsen started school where he was a good student and made friends with his classmates. Unfortunately, his disease returned soon after.
Since December 2007, my husband and son are staying at the leukemia chemotherapy unit of Children's hospital No.1, while I take care of our baby at home. We have no opportunity to work. Arsen has very long treatment ahead of him: ten anti-relapse chemotherapy blocks. All our savings have already been used up by his treatment. We really need help now.

Asmik Samvelian
Contact phone:
+7 (909) 582-0977

Bill for the donor search in Germany
Medical Information

Update as of March 13, 2008. We completed four blocks. Arsen feels well, but he misses his brother a lot. He has not seen him for three months. On March 11th we started the fifth block and we will need additional medications.
We would like to thank everyone who is helping us!
Arsen's mom

Update as of April 18, 2008. Unfortunately, Arsen's brother did not match as a bone marrow donor. Arsen is now undergoing the sixth chemotherapy block. He is much weakened.
Arsen's mom

Update as of May 9, 2008. The bone marrow donor for Arsen was not found. We will try to find a matching donor in Armenia. He now completed six chemotherapy blocks. We were allowed to go home for a few days. After the holidays we will return to the hospital. Arsen feels well.
We would like to thank the AdVita fund supporters!
Arsen's mom

Update as of July 7, 2008. Arsen started the tenth chemotherapy block with delay due to stomatitis. He now feels well. The bone marrow donor has not yet been found for Arsen, so the transplantation is not in the plans for now.

Update as of July 30, 2008. After the tenth chemotherapy course our son felt very unwell. He had high temperature and stomatitis. For three weeks, Arsen could not leave the room. He had no appetite and lost a lot of weight. He now needs some dental work.
Afterwards, the protocol calls for radiation therapy, for which we will be hospitalized at City hospital No.31. Then we will return to Children's hospital No.1 to continue therapy. Thank you very much!
Arustamian family

Update as of October 15, 2008. Arsen is now on treatment at Children's hospital No.1 where he is treated for complications that arose after radiation therapy. He is fatigued, lost a lot of weight and has high temperature. However, there is some positive dynamic in his condition. Arsen is receiving supporting chemotherapy.
Arustamian family

Update as of February 20, 2009. Arsen is undergoing another re-induction course. He feels well, but we have fallen behind the treatment schedule due to his high temperature.
Arsen's mom

Update as of June 3, 2009. Arsen completed the main course of treatment. He is in remission regarding the main illness. We are now on supporting therapy. Unfortunately, Arsen now has viral infection. We treat him at home with Aqua Maris, Polydexa, antibiotics and Tantum Verde. Next week we plan to go to Children's hospital No.1 for the checkup. We hope that by that time Arsen will be well.
We are enormously grateful to all the donors, supporters and volunteers for their help and support, financial and emotional. This really helps the children and us, their parents.
Arsen's mom

Update as of October 20, 2009. Arsen is studying at home under 3rd grade program. He is a little behind in English, but doing well with other subjects. Arsen is a little sick now. He has a cold, with high temperature and runny nose, so he stays at home. Once every 2 weeks Arsen goes for tests at Children's hospital No.1, but due to a cold, he has not gone for three weeks now. Arsen takes supporting chemotherapy in pills.

Update as of February 15, 2010. Unfortunately, Arsen is now sick. He has a cold with runny nose and fever.
Arsen will continue maintenance therapy in pills until September. We now need to come for tests once a month.
Arsen's mom

Update as of September 20, 2011. Planned tests revealed relapse. As soon as typing results are ready, bone marrow transplantation will be discussed. Arsen was hospitalized at Children's Hospital No.1 for anti-relapse chemotherapy.

Update as of November 29, 2011. Arsen is continuing chemotherapy cycle at Children's hospital No.1. Based on results of a consultation, it was decided to start the donor search at the international registry. A bill was requested.

Update as of February 26, 2012. Arsen achieved remission after the first cycle of chemotherapy. For the New Year holidays he was allowed to go home for three days. Then he had the 5th chemotherapy cycle, which he tolerated rather well, but the 6th cycle was very difficult: Arsen had sepsis and was in a serious condition. Fortunately, it was taken under control and Arsen is now better. He started getting up, but gets tired from any activity. The doctors do not think he will be able to tolerate four more cycles of high-dose chemotherapy. On Monday further maintenance chemotherapy will be discussed, as a donor was not yet found. Arsen takes Vfend. His mom asked to thank all donors whose help allows Arsen to access this drug.

Update as of March 15, 2012. On March 6th doctors' council took place at R. Gorbacheva Institute. Since all the potential donors for Arsen were typed and none of them matched, it was decided to perform haploidentical bone marrow transplantation from one of his parents (the results of their typing are not yet ready).
Arsen is now at Children's hospital No.1 where he is receiving maintenance chemotherapy (methotrexate and Purinethol). Transplantation was preliminarily scheduled for April.

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