Another Anya's photo

My daughter Anya is 6. In October 2007 she got sick. With high fever and enlarged subclavicular lymph node, she was admitted to Regional Clinical Children's hospital in Krasnodar where on November 15, 2007 she was diagnosed with acute lymphoblastic leukemia. The treatment lasted a year and 7 months, but in May 2009 Anya had an early bone marrow relapse. We were told that Anya needed bone marrow transplantation that can be done at R. Gorbacheva clinic and referred to St. Petersburg for consultation. Unfortunately, no matching donors were found for Anya at the international registry, so a different type of transplantation is being considered.
I am raising two children (Anya and her 10-year-old daughter), and live with my mother and younger sister. I cannot work at this time because I stay with my daughter at the clinic. My older daughter lives with her grandmother for now. Our income consists of pension (4,700 rubles), sick leave (1,200 rubles) and my mother's retirement (3,000 rubles).
Please help us with paying for the tests that will be needed for bone marrow transplantation. In the future, we will also need help with paying for a rented apartment. In addition, we will probably need help of blood donors. Anya's blood type is AВ(IV) Rh(+).

Thank you in advance,
Katerina, Anya's mom
Home address:
Krasnodarsky krai, Krymsky raion,
s. Kievskoe, ul. Gorkogo, d. 174.
Contact phones:
+7 (911) 736-92-24 (Peterburg)
+7 (909) 446-74-18 (Krasnodarsky krai)

Update as of December 24, 2009. Anya underwent a haploidentical bone marrow transplantation and is now recovering. To prevent aspergillosis Anya needs 400 mg of Vfend a day. The girl is feeling ok.

Update as of January 21, 2010. Anya recovered after transplantation and was discharged to stay at the rented apartment. She is continuing Vfend therapy.

Update as of January 28, 2010. Anya was urgently hospitalized due to fever. She is now stable, has normal temperature, receives antibiotics and feels well.

Update as of February 21, 2010. Anya was discharged from the hospital. She lives in a rented apartment and is being monitored as an outpatient. She feels well and is in a good mood. Every day she goes for walks outside, otherwise, she has a hard time falling asleep. She is busy with something all the time - either playing with clay, or gluing something, or playing. Her blood counts have finally started to grow. For now, her potassium and protein are low, so he receives immunoglobulins and albumin. Since Anya is still taking Cyclosporine, she is tested twice a week.
Anya had a skin biopsy, and treatment of her skin GVHD will be discussed. She still needs Vfend.
Anya's mom

Update as of March 14, 2010. Anya is still monitored as an outpatient. She is continuing immunosuppressive therapy. Anya still needs Vfend. She also needs a wheelchair to go outside. Please call Anya's mom at the phone number posted on her page. Anya will also be very glad to get arts and craft set - she is very good at making art!

Update as of April 3, 2010. Due to hormonal therapy, Anya developed steroid diabetes. She needs NovoRapid insulin pens for insulin injections.

Update as of April 30, 2010. Anya had high temperature for several days, but her condition had stabilized. She is gradually being taken off hormonal drugs. Anya feels well and stays busy - she makes remarkable crafts.

Update as of May 24, 2010. Anya feels well. On Friday, Anya had a puncture. All the blood counts are normal. Anya still needs Vfend. While her mom is away to bring in her sister, Anya's father is staying with her.

Update as of July 8, 2010. Anyuta feels well. She is active and happy. We are now at the apartment and she likes to walk a lot. But due to hormonal therapy, she cannot go to far - she is always hungry. At home, Anya makes crafts, and she likes watching cartoons with her sister. They are now making new gifts for our relatives.
Anya's mom

Update as of July 27, 2010. We are now at home. Anyuta feels great. We go out a lot. On July 25th Anyuta and her sister went to a concert. She loved it, especially the fireworks at the end of the show. The only thing that we are not happy about is the heat.
Anya's mom

Update as of September 22, 2010. Anya is monitored as an outpatient. She feels well. My daughter has many interests and wishes, but while she is taking many medications, we cannot be away from home for long. We try to keep her in a great mood. Thank you very much for helping us!
Anya's mom

Update as of October 19, 2010. Anya lives at the rented apartment. She is stable. Recently she had a sudden rash all over her body and the doctors decided to prevent a new occurrence. Anya will soon get a referral for photopheresis. She is now waiting for November 1st - this is her birthday and she will see all her friends and relatives.

Update as of November 23, 2010. We are going home! Anya is doing great, photopheresis was not needed, the skin GVHD practically does not appear. Anna is very happy that she is going home, we were dreaming about it for a long time since we had to live in St. Petersburg for almost a year. Thanks to everyone who helped us to fight the illness during this difficult time. We would still need to come to St. Petersburg for check ups, but we are hoping for a happy and healthy life!
Katherina, Anya's mom

Update as of April 19, 2011. Anechka feels great and has good test results. She still takes Vfend and will come for control tests in mid-May when cancellation of Vfend therapy will be considered.
Anya's mom

Update as of May 20, 2011. Anechka and her mom arrived for an examination in St. Petersburg. Unfortunately, control CT scan showed new aspergillosis lesions. Anya was prescribed Noxafil in combination with Ampholip.

Update as of June 4, 2011. Anechka is continuing therapy for lung aspergillosis. Ampholip was canceled and she now needs Noxafil only. She enjoys walking, drawing, and going on field trips. Anya feels well.

Update as of July 7, 2011. Anya's temperature suddenly rose to 41C and she was urgently hospitalized at the clinic. She was started on antifungal, antiviral and antibacterial therapies. The test results are not ready yet. She also had re-appearance of skin GVHD. Photopheresis therapy is being considered. Anya still needs Noxafil.

Update as of July 18, 2011. Doctors got infection under control. Anya feels well and will start photopheresis tomorrow. She is in remission.

Update as of July 31, 2011. Anechka is monitored as a day patient. Due to acute GVHD of skin she was prescribed hormonal therapy again. She had two photopheresis sessions with good response. Anya was also prescribed maintenance therapy with Methotrexate again. She feels well.

Update as of August 24, 2011. Anya completed therapy with photopheresis. She has improvement with GVHD and was allowed to go home. She is preparing to start school on September 1. Noxafil is still needed. Anya's mom is sincerely grateful to all the caring people that are supporting them.

Update as of September 26, 2011. Anechka came for scheduled tests. She feels well.

Update as of October 10, 2011. Anya had a follow-up examination which showed that she is fine. The girl goes to school with other kids her age and loves to study. Noxafil is still needed.

Update as of November 29, 2011. Anya is still monitored locally. She feels well and goes to school. She loves to study. Anya still needs Noxafil.

Update as of December 18, 2011. Anya came to the Raisa Gorbacheva Institute of Children's Hematology and Transplantology for an examination and another photopheresis course. Her basic disease is in remission. Anya is feeling fine, but the skin GVH reaction has gotten a bit worse. The girl still needs Noxafil.

Update as of January 18, 2012. Anya had a medical examination performed and photopheresis administered. She went back home feeling fine. Noxafil hasn't been canceled yet.

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