Hello!
my son Antosha is now 5. When he was just 18 months old, he got sick.
At the Regional Children's Clinical hospital in Irkutsk he was diagnosed
with acute lymphoblastic leukemia. The treatment Anton received then worked,
but in just three years he had a relapse. My son almost completely lost his vision!
Irkutsk doctors referred us for a consultation at R. Gorbacheva Pediatric
Hematology & Transplantation Institute. Here we got hope that bone marrow
transplantation will help Anton. Fortunately, an unrelated donor was found
and on June 6, 2011 transplantation took place.
My son spent two weeks in ICU in a critical condition: he had fever, pneumonia,
and skin form of "graft versus host disease", grade 4.
Now that it has been 3.5 months since transplant, Anton's condition became stable.
He is even recovering vision in his right eye: he can already orient himself
spatially and started discerning colors. To continue treatment, he needs expensive
medication, Vfend, which we are unable to afford. A box of it costs 26,990 rubles
and lasts just a week. The clinic currently cannot provide us with it.
Please help my son - he now has a chance to get well and live a normal life.
Please help.
Update as of November 11, 2011.
Anton was urgently hospitalized due to high fever. The infection
is now under control and he was discharged for day hospital.
Vfend is still needed.
Update as of November 29, 2011.
Anton had signs of stomach GVHD, which were controlled with hormonal therapy.
His vision is improving. Vfend is still needed.
Update as of December 30, 2011.
Based on planned tests, Anton was confirmed to be in remission.
The doctors are gradually reducing doses of hormones and immunosuppressive drugs.
Update as of January 18, 2012.
Anton is still at the day patient facility, the doses of hormones are being
reduced gradually.The boy is feeling fine. Vfend hasn't been canceled yet.
Update as of February 11, 2012.
It has been 220 days since Anton's transplantation. He feels well, and steroid
dosage is being gradually reduced (he will be taking them for another 4-6 weeks).
Based on ophthalmologist's evaluation, Anton's vision in the right eye is practically
completely recovered, although he still has foci in his left eye. Anton started seeing
objects far away and his side vision expanded as well. Vfend is still prescribed.
Based on puncture results, he is in remission and has no GVHD symptoms.
Update as of February 22, 2012.
Anton is being monitored at the day hospital. Based on control CT scan,
he has improvement with aspergillosis, but Vfend was not yet canceled.
Anton's hormonal therapy doses are being reduced. The lesions in his
eye are gradually going away.
Update as of April 8, 2012.
Anton is being followed as a day patient. He is in remission and feels rather well.
He has GVHD symptoms involving upper GI and receives hormonal therapy.
Vfend is still needed.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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