Hello,
My name is Natalia Turik. My son's name is Andrei. He is 20 years
old. He first got sick when he was 9. He was diagnosed with acute
myeloblastic leukemia. Andrei was on treatment at Morozovskaya and
Botkinskaya hospitals. When he was 16, he got sick again. This time
he got a new diagnosis: lymphoblastic t-cell leukemia. He was cured
from it too. But when my son turned 20, the doctors diagnosed a
relapse.
He now needs to undergo bone marrow transplantation.
Andrei's older brother Valera will be the donor.
My husband and I are retired. We will not be able to afford treatment
in St. Petersburg. We need to rent an apartment here, and after
transplantation Andryusha will need expensive medications (Vfend and
Intraglobin). Now we don't even have money for living expenses.
Please help us overcome this challenge. We will be grateful for nay
help.
Respectfully,
Natalia Turik
Home address:
129347 Moscow,
ul. Kholmogorskaya d. 6 korp. 2 kv. 346
Contact phones:
+7 (911) 182-30-69 (Natalia, Andrei's mother)
+7 (499) 182-87-80
Update as of July 1, 2010.
It is 45th day after transplantation. Andrei feels well.
He started showing minimal skin GVHD, and it is being controlled.
Update as of July 27, 2010.
Based on control puncture, Andrei has 5.7% of blasts. He was taken off
all immunosuppressive drugs. Based on results of repeat puncture,
chemotherapy followed by donor's lymphocyte infusion will be decided upon.
Update as of August 5, 2010.
After cancellation of immunosuppressive
therapy, blasts went down to 2% based on repeat puncture.
Control puncture will take place in two weeks.
Andrei's mother
Update as of August 25, 2010.
Based on control puncture results, Andrei is in remission and he feels well.
Update as of September 10, 2010.
Andrei developed intestinal GVHD. He is now receiving Salofalk.
Update as of September 29, 2010.
Andrei is still being treated for intestinal graft-versus-host disease, the dynamics
is positive, and the doctors are gradually beginning to reduce hormone doses. As the
cytomegalovirus titre is positive, Andrei is receiving "Cymeven". He is feeling well.
Update as of October 22, 2010.
It has been 4.5 months since Andrei's transplantation. GVHD situation is gradually improving.
He was taken off hormonal therapy and is planned to receive photopheresis therapy. Andrei feels well.
Update as of November 3, 2010.
Andrei was prescribed Vfend.
Update as of December 9, 2010.
GVHD and infections are now under control, but Andrei still needs
Vfend, Pulmozyme and Kolistine. He feels well and doctors allowed
him to go home until mid-January. In January he would have planned
testing and corrections to treatment plan. He is in remission.
Update as of December 24, 2010.
Andrei is going to be gradually taken off Tacrolimus prior to New Year,
and in January will have the planned tests. He feels well.
Update as of February 8, 2011.
Andrei is now undergoing examination at R. Gorbacheva Pediatric
Hematology & Transplantology Institute. Unfortunately, he still has
positive titer to aspergillosis. He currently needs to take Vfend,
inhalations of Atrovent, salbutamol, colistin, fluditec and antibiotics.
At the doctors council due to skin GVHD, it was decided to start
therapy with photopheresis. Andrei is in remission in regards
to primary diagnosis.
Andrei's mom
Update as of February 20, 2011.
Andrei is monitored as an outpatient at R. Gorbacheva Pediatric Hematology & Transplantology
Institute. He is suspected of having intestinal GVHD. Vfend dose was increased to 600 mg/day.
Andrei tries to keep positive spirits and support others.
Andrei's mom
Update as of February 22, 2011.
The examination is completed. Andrei went to Moscow. He was recommended to
continue Vfend therapy at 600 mg a day, as well as inhalations of
Pulmozyme and Fluimucil. His blood tests are normal and he feels
rather well. We will need to return for tests in a month.
Andrei's mom
Update as of May 29, 2011.
Andrei has come to the clinic for an examination and a photopheresis
course. CT of the lungs showed progression, so a bronchoscopy was
performed, and the doctors are now looking into it. There are
manifestations of GVHD as well as eye problems. Andrei needs
obturators. He is feeling well and his mood is very optimistic!
Andrei's mother
Update as of July 23, 2011.
Andrei arrived for another course of photopheresis. May's tests
did not show aspergilla infection, but considering CT scan results,
it was decided to continue Vfend at 600 mg. The next course of
photopheresis is scheduled in a month.
Update as of September 23, 2011.
Andrei came in for another course of photopheresis and control tests.
He has no change in lungs based on CT scan, so Vfend is continued
at 600 mg a day. He feels well and will go for another session of
photopheresis in a month.
Andrei's mom
Update as of November 12, 2011.
Andrei came in for control tests and planned photopheresis therapy.
He feels rather well and his blood counts are normal.
He is in remission. Andrei still has mild issue with GVHD in
his eyes and continues taking Vfend. The next evaluation and
photopheresis therapy are scheduled in a month.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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