Hello!
I am asking for help for the kindest young man in the world, our son Alexander
Sheligan. When he was 18, he got sick with a terrible disease, acute leukemia.
Alexander is a 2nd year student at Chita State University. From the time he
was a kid, he was active in sports, gymnastics and wrestling. He studied well
and even completed a course at Information Technology College in parallel with
high school. After he enrolled into college, he was active in union work.
Alexander is a very kind and responsive person, and even at the hospital
everyone loves him.
Unfortunately, his remission only lasted 8 months. Alexander had a recurrence
of his disease and he needs bone marrow transplantation, based on recommendation
of the specialists from Raisa Gorbacheva Institute for Pediatric Hematology &
Transplantology. The operation requires an unrelated donor (Alexander's sister
did not match as a donor), the search for whom is very expensive. For us,
state employees, this amount is out of reach.
We would like to ask everyone to help us save our son!
Alexander's parents
Home address:
672530, Zabaikalsky krai,
Chitinsky raion, Atamanovskoe,
Ul. Gagarina, d. 8, kv. 55.
Contact phone:
+7 (931) 206-93-49
(Tatiana Sheligan in St.Petersburg)
Update as of April 14, 2009.
A donor for Sasha was found, transplantation is scheduled for May 12.
Only 5,316 euros of the 15,000 were paid to the registry; the money for
the transplant delivery has not been raised either.
Update as of April 27, 2009.
Sasha's parents raised money for delivery of transplant, and our
fund paid off their debt to Morsch registry using donations sent
to all patients. Sasha will come to St. Petersburg at the
beginning of May.
Update as of May 12, 2009.
Sasha arrived to St. Petersburg and was hospitalized at BMT clinic.
Update as of June 3, 2009.
It has been three weeks since transplantation.
Sasha was transferred out of sterile zone. His blood counts are growing,
but he keeps running high temperature. He is planned to undergo CT scan.
Since the Institute's tomograph is currently broken, the test has to be paid
for.
Update as of July 1, 2009.
Sasha recovered after transplantation and was transferred for outpatient
monitoring. Based on CT scan results, he was prescribed Vfend.
Update as of July 15, 2009.
Sasha's cytomegalovirus infection re-activated and he was prescribed Valcyte.
A course of treatment costs 45,000 rubles.
Update as of August 23, 2009.
Sasha was diagnosed with bacterial pneumonia
and he is receiving therapy with antibiotics. He still needs Vfend as well.
After the course of treatment and control CT scan, he is planned to receive
donor's lymphocyte infusion.
Update as of September 8, 2009.
Sasha continues antibacterial and anti-fungal therapies. The doctors are
planning to biopsy the lesions in his lungs that were discovered during
CT scan.
Update as of October 1, 2009.
Sasha developed problems with breathing. He was put on artificial lung
ventilation in intensive care unit.
Update as of October 13, 2009.
Sasha was taken off artificial lung ventilation. He is breathing on
his own, and feels better. To continue his therapy, Sasha urgently
needs Cancidas (14 bottles, for the cost of 200,000 rubles) and
Tazobactam (a course costs 1,000 euros).
Update as of October 26, 2009.
Sasha's condition is improving gradually, and infiltrate is clearing from
his lungs. Sasha still needs Cancidas and Pulmozyme.
For now, Sasha cannot get up due to difficulty breathing, but he does
physical therapy, uses Internet for staying in touch and wants to overcome
all difficulties.
Update as of November 13, 2009.
Sasha's condition improved markedly, and he is already walking along the
hospital hallways. In the near future he may be allowed to travel home,
and in that case he will need to bring Vfend along, at least 2-3 packages.
His lungs are in much better state. Sasha is in remission in regards to
leukemia.
Update as of November 19, 2009.
Sasha feels well! His lungs are clear, but the lungs have scar tissue
and it causes fibrosis and shortness of breath. The fewer scars he has,
the better he can breathe.
On November 22nd we will travel home. Three months later we will return
for the scheduled tests. Sasha still needs antifungal therapy with Vfend
(200 mg twice a day).
Sasha's mom
Update as of February 20, 2010.
Sasha is coming to St. Petersburg for examinations.
Update as of March 3, 2010.
Sasha came for scheduled examination and is undergoing tests.
He is still taking Vfend.
Update as of April 3, 2010.
Based on test results, Sasha was confirmed to be in
remission in regards to primary disease, but he has
residual mycotic lesions in his lungs. Sasha is still
taking Vfend. He was allowed to go home to be under doctors'
watch in Chita. The next checkup is scheduled for summer.
Update as of July 30, 2010.
Based on blood test results and results of immunophenotyping,
Sasha is in remission. In September he will undergo control tests.
Sasha had therapy for bronchus and lungs, had CT scan of lungs and
visited a TB specialist. His results are good. Sasha
feels well and is in a positive mood.
Sasha's mom
Update as of October 10, 2010.
Sasha was in St. Petersburg for planned tests. All his results are
normal, and CT images do not show progression. The blood test for
aspergillosis antigen was negative.
Sasha feels well and looks great.
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703840712001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT: RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT: RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Bank of New York Mellon,
New York, USA
SWIFT: IRVT US 3N Correspondent Account No:
8901003069
Correspondent Bank #2:
JP Morgan Chase Bank,
New York, USA
SWIFT: CHAS US 33 Correspondent Account No:
822839205
*,**
Beneficiary:
Non-Profit Organization
"AdVita Charitable Foundation"
acc. 40703978312001000468 Beneficiary Bank:
JSC Bank Otkritie, Moscow
SWIFT RUDL RU MM
For Petrovskiy branch,
St.Petersburg
SWIFT RUDL RU M1PET Adress of Beneficiary Bank:
191186, Saint-Petersburg Russia,
Nevsky pr. 26
Correspondent Bank #1:
Deutsche Bank AG,
SWIFT: DEUT DE FF Correspondent Account No:
9477134
Correspondent Bank #2:
Commerzbank AG,
Frankfurt am Main, Germany
SWIFT: COBA DE FF Correspondent Account No:
400886482900
*,**
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