Anya died on October 22, 2011

Hello!
We are asking for financial support for our daughter, Anya Golubyatnikova, who was born on May 26, 2003, to continue treatment of her oncological disease. Anya got sick in July 2007. She was diagnosed with stage IV neuroblastoma of paravertebral region with growth into her spine. Currently, she is receiving the last chemotherapy course at Petrov Oncology Research Institute.
The Institute's specialists together with the doctors of Raisa Gorbacheva Center of Pediatric Hematology and Transplantology decided to continue Anya's treatment and perform haploidentical transplantation at the Center. One of Anya's parents will be used as a donor.
Unfortunately, the cost of the planned medical procedures is incomparable with the financial means of our family. We will only be able to continue our child's therapy if we receive your support.

TV100: "Let's live under the water" - film about Anya
Personal Anya's website
V_contacte community

Update as of March 8, 2008. Anya urgently needs a column for the cleaning of donor's stem cells (CliniMACS CD34 Complete Kit with Accessories, order #177-01). The column costs 6,350 euros in Russia.

Update as of March 12, 2008. Anya's transplantation is scheduled for April 5-7.

Update as of March 26, 2008. Anya needs three bottles of Fludara (50 mg) for haploidentical transplantation. Each bottle costs 6,000 rubles.

Update as of April 18, 2008. It has been 10 days since Anya's transplantation. Her leukocyte counts are 0.3. She is in a stable condition.

Update as of May 5, 2008. Anya practically recovered after the transplantation. Her leukocyte counts are 2.4. The ultrasound showed that her tumor shrank in half and changed its structure. In the next few days Anya will have a CT scan and a bone marrow puncture.

Update as of May 25, 2008. The puncture results showed that Anya is in bone marrow remission. At this time, a surgical removal of the remainder of the tumor is under discussion. Anya is taking Vfend (50 mg) twice a day. A package of the drug that costs 8,000 rubles lasts Anya a week.

Update as of June 13, 2008. The operation to remove Anya's tumor was scheduled for June 17th. It will take place at Pediatric Academy.

Update as of July 6, 2008. Anya had a very complex surgery that was successful. The tumor was completely removed. Once she recovers, Anya will be hospitalized again at BMT clinic for cell injection from her father, which is designed to strengthen the therapy results.

Update as of August 3, 2008. Next week Anya is planned for a first course of immunotherapy, NK-cell infusion from her father. We are very grateful to Russian Help fund for paying for the columns for selecting these cells. There are plans for several of such courses. Anya feels well.

Update as of September 11, 2008. Anya is still in remission in regards to her main illness, but she was found to have a cyst in her spine. Today she received an infusion of nk-cells from her father.

Update as of October 31, 2008. Anya was hospitalized at Pediatric Academy due to kidney failure (one of her kidneys was previously removed). We are sincerely grateful to Alena and her friends for the financial support for Anya's testing and treatment.

Update as of December 22, 2008. Anya is suspected to have a relapse. We are now awaiting the doctors' final conclusion.

Update as of December 25, 2008. Anya is still on treatment at Pediatric Academy and her renal indicators are gradually improving. After the New Year, a council of oncologists, transplantologists and nephrologists is planned, during which a possibility of kidney transplantation from Anya's father will be discussed.

Update as of April 15, 2009. Anechka feels well. She is undergoing rehabilitation course to strengthen her back muscles. Her leg muscles have fully recovered sensitivity and Anya learned to stand on her knees and get off the couch. She is trying to take her first steps. The kidney transplantation was considered unnecessary, as her renal function is improving. Anya is in remission in regards to her main disease.
Anya's relatives would like to say they are very grateful to Alena and Tatiana who continue helping the little girl and her family.

Update as of October 3, 2009. Anechka had a relapse. She is now undergoing a course of therapy with Topotekan and Cyclophosphan at Oncology Research Institute. Afterwards, she is planned to undergo infusion of donor's lymphocytes and NK-cells.

Update as of November 5, 2009. Anya completed two rounds of chemotherapy and the tumor responded. In the next few days, she will have a control MRI scan, and then Anya will be transferred to R. Gorbacheva Pediatric hematology and Transplantology Institute for second haploidentical transplantation from her father.

Update as of December 24, 2009. Anya is now getting an experimental protocol chemotherapy course, the doctors are consulting a US clinic which is ready to enroll the girl in a research program.
Quote from the Vermont Cancer Center.

Update as of February 9, 2010. Anya is at home. She is recovering after a round of chemotherapy and will soon undergo the next cycle of experimental therapy at Oncology Research Institute in Pesochny. The consultations with the clinics in the US are ongoing.

Update as of August 11, 2010. Anya is improving. She is now hospitalized at Pediatric Hematology & Transplantology Institute for nk-cell infusion. She feels well.

Update as of October 6, 2010. After a cycle of chemotherapy and infusion of NK-cells, Anya had severe cytopenia. She already recovered and on October 12th she will have a bone scan. Her tumor mass is decreasing and she is improving neurologically. Anya can stand with support. She is being home schooled as a first grader. Therapy with NK-cells will be continued.

Update as of March 28, 2011. Examination in November 2010 revealed a new tumor in the lumbar area. Chemotherapy is continuing, and at the same time we are looking for a clinic which could offer MIBG therapy followed by a haploidentical transplantation and Ch14.18 fusion proteins treatment. Such clinics are very few in Europe, and in Russian this kind of therapy is not possible at all.

Update as of June 11, 2011. At our request, specialists of London clinic created an estimate for treatment that includes possible life-threatening complications, such as hemodialysis. Anya has one kidney and MIBG therapy could cause complications. The bill also includes infusion of donor's stem cells (from father), as Anya's bone marrow is depleted by numerous chemotherapy cycles. As a result, the new bill is 2.5 times higher. Although the full amount may not be needed (and the clinic does not require 100% prepayment), we feel it is necessary to inform donors about possible treatment cost for Anya.

MIBG therapy bill
Donor stem cell infusion bill

Update as of June 22, 2011. Anya received an opinion from her treating doctors that she is recommended MIBG therapy that is not done in Russia. Anya's volunteers created a personal website for her. Now all the donations to Anya's relatives' bank accounts will be reflected on her website and our fund will publish summary data once a week.

Update as of July 7, 2011. As of July 5, Anya's family and Advita fund raised 1,567,542 rubles. A story about Anna was broadcast by NTV. Anya feels well and has no progression based on control tests.

Update as of July 10, 2011. As of July 10th, Anya's relatives and Advita Fund USA raised 3,203,318 rubles.

Update as of July 18, 2011. As of July 16th, we raised 4,616,331 rubles. We still need 400,000 rubles to cover the first bill. Thank you very much!! Today we will start applying for visas. Next week Anya will be examined. Hopefully, nothing new will show up. Then we will be able to fly out.
The Health and Social Development Ministry asked Oncology Research Institute for additional data. Our doctors sent them on July 14th. It means work is underway.
Anya's grandmother

Update as of July 28, 2011. Anya and her grandmother will be flying to the clinic in London on July 31. On Sunday, she will have the first tests prior to MIBG therapy. As of July 27th, the family raised 6,800,660 rubles (including donations to Anya's relatives' bank accounts and AdVita fund).

Update as of August 22, 2011. Based on results of tests at Harley Street clinic in London, planned therapy (MIBG followed by haploidentical transplantation) is not yet possible for Anechka due to condition of her kidney. Anechka returned to St. Petersburg and she will continue maintenance chemotherapy and therapy to improve renal function. As soon as she improves, MIBG therapy followed by donor's cell infusion will be considered again.

Update as of September 7, 2011. Anya is now recovering after a cycle of chemotherapy at Children's hospital No.1. Her kidney function improved significantly and the counts rose to the limit that allows MIBG therapy. Anya's return to London to continue treatment is now under discussion.

Update as of October 9, 2011. Dear friends! I have not written about us for a long time. At present the situation is as follows. The kidney is functioning better but the platelet count that had dropped after a course of Vepesid fails to rise to the level that would allow the doctors in London to start the MIBG therapy.
In the meantime examinations testify to the disease progressing so we cannot do without treatment any more. The Hadassa clinic (Jerusalem, Israel) has responded to our inquiry and is ready to offer is an experimental treatment program.
On October 10, 2011 we are leaving for Israel. As soon as we get the first examinations there and it becomes clear what protocol we will follow we will let you know.
Many thanks to all of you for your help.
Anna Gavrilovna,
Anya's grandmother

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